Re: newbie with fibromyalgia

[Guest guest]

I'm not familiar with those treatments. I will have to research. U of Michigan

used to have rheumatologists that specialized in FMS. Now, since so many are

being diagnosed, they only treat you if you have another rheumatic disease.

They teach workshops on how to manage life with FMS and then send you to family

doc. Research being done lately makes many doctors think its more neurological

because of pain receptors in the spine and brain than it is rheumatological.

They still see me as I have connected tissue disease. Mine is simply treated

with Flexeril, sleeping meds and ultram ER. I cannot take Lyrica due to

reactions and side effect. There is a new drug being researched that they were

hoping to have on the market this year. perhaps I can take that! I'm hoping! I

take Effexor ER for numbness and tingling pain (as it works on the same brain

chemicals Cymbalta did) It's not as effective for pain though. Cymbalta was

great to me for 2 years but eventually the dose

recommended which is I believe 300mgs began to affect my mood after two years

and had to discontinue it. I'm at the point where I'd rather be depressed

everyday then live with that numbing tingling burning pain in my arms and hands

though, so am thinking of asking them to give it back to me despite the mood

swings Welcome to the group! Everyone here is very caring, supportive,

knowledgeable, gives great advice and is wonderful at sharing and answering

questions. I appreciate everyone and their feedback more than they could ever

know

pielet12 <pielet@...> wrote: Hi everyone,

I been diagnosed with FM for about 14 years. I am looking for a doc in the NYC

(preferably

Westchester) area.

Also, I am wondering if anyone has tried low dose naltrexone treatment or

amphotericin (sp?

).

Thanks for any and all help!

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