Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Dear , One thing I always ask a new doctor is how many PA patients has he treated. I also ask him how many of them are better and what sort of outcome should I expect. (If you ask them what their success rate is with PA, some of the get offended. It’s a normal question though to ask a surgeon or someone doing any type of procedure on me. Then I want to know how often they have done that procedure and their success rate, and the worst case possible. Even though the worst case is normally not going to happen, I think it’s important to know all the risks before you go through any sort of surgery or procedure. Another thing that is important to find out is how easy is it to get in to see him if you have a problem or emergency. They can be the greatest doctors in the world, but they aren’t any good to you if you can’t get in to see them. Write your questions down because it’s so easy to forget something when you are in the office and your mind is going from one thing to another. Also notice how he handles your questions. If he brushes you off, then I would look for another doctor. You have to be able to communicate with you doctor or it’s almost impossible to get anything accomplished. Some doctors listen for the first 5 minutes and then once they start talking they don’t want to hear any more questions. When you have a list, they know you need to ask everything on it. I’ve had doctors take my list and just go through the questions with me one by one. That made me feel great and I knew he wasn’t just brushing aside any fears or worries I might have had. If you have any X-rays or tests be sure and take them with you. It saves time, money and the doctor has an easier time coming to conclusions if all the information is in front of them at one time. I hope these little things help. I try to always do all of them when I see a new doctor and sometimes even with all my current ones. They all know now to expect a list…lol. Take care and good luck. I hope you like the doctor and he or she turns out to have some answers for you. Sincerely, Fran [ ] hi all... hi to all melbourne australia here .. it been cold and some rain and lots of wind.... this last week i have been a bit bettter..pain down some.. ankles left side still kills at times/ but it is bettter than previous weeks... i see the rhuemi dr on the 26th . my darlin is going to give me a few questions to go thru with dr.. if you could out there give some advise as to what to ask.. it would be appreciated .. its the first ever rhuemi dr i am seeing... its now friday morning here.. on monday morning i was babysittin my daughters dog.. and we went on a 3k walk/run=drag which did me good ..with a few stumbles in there as well.. i have also done some embroidery this week .. be it little amount ... only an hour or two.. i usually average 2 hours on a ggod day .. i have to go do some shopping etc.. catch you later laura xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hi -- Good to hear from you. You ask a really good question.......what should we ask our docs? I think the first question should be " what do you know about PA and are you treating anybody who has it? I also like to repeat what I thought the doc said. That way the doc can correct/clarify things for me. Then go to your list. I do better if I keep to 2 or 3 questions and make another appointment if I have lengthy issues to bring up. I always think about how long I waited to be seen which means there are a lot of others waiting. Doctor's offices always seem to overbook and as someone said here recently, they seem to glaze over after a few questions. Then I feel like I am not getting much out of it anyway. I also take notes while in appointments. The doc does so I feel it is only reasonable for me to do it too. Good Luck, Cheri :-)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Hi janey, When you say you don't have the metals anymore I suspect you mean you had mercury amalgam dental fillings removed. That just means that mercury is out of your mouth, not out of the rest of your body/brain. Hve you tried any of the chelators or things advertised as chelators? If so, which ones, for how long, what dose, and what dosing schedule? Did you have them removed by a mercury-free dentist according to proper protocol? Any gold placed in the mouth before all the mercury was out? It appears that you do meet counting rule #3 with 4 essentials in the red. How's your diet? Any other ongoing exposure to toxic metals? (smoking? tattoos? etc) What supplements are you taking? Do you have chronically low blood pressure? I do and have tended to pass out (or feel as if I'm going to) when in flight or fight situations which for me are usually medical appts. The blood I have goes to my heart/lungs with not enough left for my brain. S S <tt> i posted my hair analysis...<BR> and really don't know whats wrong with me.<BR> ever since i was a kid i got faint once in a while,then panic attacks<BR> at 27.<BR> anyway..right now my heart is racing..i feel weak, my kidneys hurt and <BR> i'm full of anxiety.<BR> is it the metals (don't have them anymore for a year)???<BR> i just don't know anymore..<BR> sorry for rambling...it's hard to take care of the family when i'm all <BR> out of it.<BR> <BR> ~janey~<BR> <BR> <BR> <BR> <BR> </tt> <!-- |**|begin egp html banner|**| --> <br><br> <tt> =======================================================<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 hi linda.. i normally don't have low blood pressure.i did develope candida after the removals of the amalgams. i take vitamins...i have not done any detox..i'm to weak. i know chelation takes alot out of you..so i would have to be stronger. i do the baths, steam. never had any gold in teeth..took them out properly with rubber dam,oxygen etc. i'm a mess... ~janey~ can you tell me what you inteprete in my hair analysis, don't know what type #3 means, sorry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Janey, Following are the counting rules (developed by Hall Cutler, PhD). I was referring to step #2 (which in looking at your hair test results again I see you have only 3 essentials in the red, rather than 4 as I thought?). In mercury toxic people, mercury generally doesn't show up as high on the hair test because the person's body cannot excrete it (not even through the hair). Instead it causes disordered mineral transport (the body can't use essentials properly because of the interference of the mercury), hence the counting rules. What have you done/are you doing about the candida? Does it seem to be working? What vitamins are you taking? S S How to read a hair test from DDI These rules are ONLY for the Doctor's Data " hair elements " test - tests by other companies need different rules. Andy highly recommends using the DDI " hair elements " test. Do not get the DDI " toxic elements " test. STEP ONE: Find the " essential and other elements " section. In this section, count the number of results which are above 50%. Count all the ones where the value is above the 50th percentile line in the middle of the page and the bar extends over toward the right side, rather than to the left. Include any items where the result is still in the white only, if it is above 50%. If the number of items above 50% is 5 or less it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. If the number of items above 50% is 18 or more it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. STEP TWO: In the " essential and other elements " section, count the number of results which go all the way into the red zone on either edge of the page, " very elevated " or " very low. " Count only the ones where the bar extends into the red section (on either end). If the number of items " very elevated " and " very low " is 4 or more it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. STEP THREE: In the " essential and other elements " section, count the number of results which are entirely in the middle section. These are the ones where the bar ENDS in the white or green sections (on either side). These results are " average " . If the number of items entirely inside the middle band (white and green) is 11 or less it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. If any ONE of these criteria is met, it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. If step one OR step two OR step three indicates abnormal results, it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. Note about statistical probabilities If any one (or more) of the criteria are met, there is a 1 in 44 chance that it happened randomly and a 43 in 44 chance that something is wrong. Of course, the chances that it is random diminish rapidly if the deviation is greater or if more than one of the rules is met. The greater the deviation, the greater the probability that the person is toxic. Additional patterns which are characteristic of mercury toxicity There are some characteristic non-statistical findings, too, in mercury toxic people. These are probably caused by other heavy metals in addition to mercury, but are NOT caused by COPPER toxicity. People who are copper toxic, with nothing else going on, have very normal looking hair analyses except for very elevated copper. Their minerals are not " skewed " . Not everyone who is mercury toxic has these patterns, but they are reasonably common: calcium that is vastly elevated. Usually the lithium is very low, too. a really characteristic pattern of very high calcium and magnesium, along with very low sodium and potassium. This isn't present in that many cases but is common enough to mention since, when present, it suggests mercury poisoning, or something else interfering with adrenal function. an " all low " pattern is quite common for mercury toxic people even though many have more than 5 elements above the midline. This has a more than 1 in 44 chance of being random, but is not what you expect to see. The most important finding is the one that the counting rules " count " : mercury toxic people generally have their essential elements much more scattered than well people, with lots of highs and lows. " Normal " people do NOT have this pattern. If you look at the hair analyses of some " normal " people it becomes quite obvious. <tt> hi linda..<BR> <BR> i normally don't have low blood pressure.i did develope candida <BR> after the removals of the amalgams. i take vitamins...i have not done<BR> any detox..i'm to weak. i know chelation takes alot out of you..so i <BR> would have to be stronger. i do the baths, steam. never had any gold <BR> in teeth..took them out properly with rubber dam,oxygen etc.<BR> <BR> i'm a mess...<BR> <BR> ~janey~<BR> <BR> <BR> can you tell me what you inteprete in my hair analysis, don't know<BR> what type #3 means, sorry.<BR> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 and thanks for your support through yet another hurdle down the path of life with RA. My biopsy results were inconclusive. Something about possible casselman's disease??? I have been referred to an oncologist for more testing. So will put this issue in perspective with the chronic eye, teeth, hip issues in hopes of there being an answer for the scare. I am not interested in dealing with another diagnosis and chronic condition. Yet, I remain hopeful this is all just a false alarm. best wishes, Ebony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2009 Report Share Posted December 12, 2009 My heart goes out to you. Where are you located, and do you want to enlist the help of a naturopath or other specialist? Pam > > I have posted here previously regarding my son Josh diagnoised with Autism this year. Sadly my daughter is developing signs of Rett's. Iam looking for info on treating holistically alternatively specifically for this disorder. Iaysha, symptoms are, Stiff legs not using leg anymore, losing speech not wanting to eat, very weak, losing weight, we are in hospital at the moment undergoing tests. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2009 Report Share Posted December 13, 2009 From Wikipedia (http://en.wikipedia.org/wiki/Rett_syndrome): " Rett syndrome is usually caused (95% or more) by a de novo mutation in the child, and not inherited from either parent. Parents are generally genotypically normal, without a MECP2 mutation. In sporadic cases of Rett syndrome, it is thought that the mutated MECP2 is usually derived from the male copy of the X chromosome. [3] It is not yet known what causes the sperm to mutate, and such mutations are rare. " This makes me think something environmental causes this to happen. If you haven't done so already, get a hair test and check for metal poisoning. I have an official diagnosis of a genetic disorder. Removing metals from my system and other toxins from my environment has done a lot to reverse what are supposed to be 'incurable' symptoms. Here are some of my thoughts on genetic disorders, which grow out of getting myself healthier when doctors claim it can't be done: http://healthgazelle.com/genes.shtml Good luck with this. Michele http://www.healthgazelle.com http://www.kidslikemine.com http://www.solanorail.com > > I have posted here previously regarding my son Josh diagnoised with Autism this year. Sadly my daughter is developing signs of Rett's. Iam looking for info on treating holistically alternatively specifically for this disorder. Iaysha, symptoms are, Stiff legs not using leg anymore, losing speech not wanting to eat, very weak, losing weight, we are in hospital at the moment undergoing tests. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2009 Report Share Posted December 15, 2009 Stays in the gut, doesn't go into the blood. How can it remove any metals without going into the bloodstream. TJ ________________________________ From: Just A Friend <elizabeth_yohe@...> Sent: Mon, December 14, 2009 8:56:24 PM Subject: [ ] Re: Hi all... Â I have used Zeolite before and I am here to tell you I am pretty darn sure it Chelates. My son had a major reaction to one drop of the stuff. I could not bring myself to keep using it. I do know others who have used it with good results. It sure moves something. > > > > > > > > I have posted here previously regarding my son Josh diagnoised with Autism this year. Sadly my daughter is developing signs of Rett's. Iam looking for info on treating holistically alternatively specifically for this disorder. Iaysha, symptoms are, Stiff legs not using leg anymore, losing speech not wanting to eat, very weak, losing weight, we are in hospital at the moment undergoing tests. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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