Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Hi Aliza, we saw a cranio facial plastic surgeon and it was pretty straight forward. he measured my daughter using calipers and compared the measurement with the norm. in our case he told us we could band right away or try repo for 8 week (our daughter was 4.5 mo at her appointment). we decided to band quickly and I'm happy we did. He gave us the Rx for the band, and the next week we saw the ortho and she had her band by the end of the month. I hope your visit goes smoothly. the bands work wonders. christine mom to sydney/ 8.5 mo/ starband 5-31-06 > > Hi everyone, > > Our son is almost eight months old and he has a flat spot on the > right side of his head. We have an apointment with a neurosurgeon who > deals with plagio for next friday. We are very concerned and don't > really know what to expect. We are pretty sure that he will need the > helmet or the band. If any one has any tips for us about what to > expect during the exam or how the process goes, it would be extremely > helpful. > > Thanks in advance, > > Aliza > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 I have RA and i dont know what to expect next. I have had it only a couple of months. it is horable. I am takeing prednisone and salphasalazine. I had pain in my wrist, hands, Knees, and back. My hands are alittle better as well as knees. My back hurts daily and limits my activity. Is this normal? Does anyone know anything about the Meds? I really dont like takeing them. Any special diet that will help? I am frightened at what will happen in the future. I dont know alot about RA. Please give any and all imfo you have. I am 52 years old. Thanks for your support Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi , I don't have RA - my husband does. He was diagnosed with it only in November. I sure don't have all the answers, but he was immediately put on Predesone and Methotrexate, and in a couple days started feeling better. We are also have a great Naturopath who works along with the standard route. He hasn't had a total turn around, but the improvement has been incredible. After an awful lot of obsessing on the internet and communicating with people, he was also put on some rounds of antibiotics. We believe the whole thing was triggered when he was tearing out walls remodeling our basement, and was confronted with years of old mouse droppings, carcasses ect. I believe once he got it all airborne while cleaning it up was the trigger. The symptoms started showing up a few weeks after that. That is just our theory, I am not a doctor. I belive his own personal " trigger " was the mice, and therefore the antibiotics. Pam Petry <mapetry0177@...> wrote: I have RA and i dont know what to expect next. I have had it only a couple of months. it is horable. I am takeing prednisone and salphasalazine. I had pain in my wrist, hands, Knees, and back. My hands are alittle better as well as knees. My back hurts daily and limits my activity. Is this normal? Does anyone know anything about the Meds? I really dont like takeing them. Any special diet that will help? I am frightened at what will happen in the future. I dont know alot about RA. Please give any and all imfo you have. I am 52 years old. Thanks for your support Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 My son has been in his band for 2.5 weeks and the reactions haven't been as bad as I expected, since I tried to prepare myself for the worst. A lot of people will stare, I generally ignore them. He has a shirt now that says "Warning: the longer you stare, the cuter I get" -- I made it with one of those iron-on transfers. Some people have been blatantly ignorant, like "look that kid's got a helmet!" but those are few and far between. Surprisingly, I have found that most people, especially little older ladies (in the grocery store usually), will comment about how adorable he is, how cute he is, etc. So I have found a balance between stares (because it's out of the ordinary) and overly kind comments about how cute my little guy is. Hopefully you will have the same luck with few to no negative or rude comments.From: lauriehudicek <lauriehudicek@...>Plagiocephaly Sent: Saturday, August 1, 2009 6:32:01 PMSubject: What to expect We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything? I'm thinking about decorating the band with the words... "Thanks for looking!" Thanks for any help! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 My daughter has been in a hanger helmet for about 2 weeks now. So far, the response has been mostly positive. Not to say that we haven't gotten a few strange looks, but they are easy to ignore. A few people have asked why she has the helmet, and I've explained it. A few others have said that they know a baby in a helmet. We still get people telling us how cute she is all the time. Helmet or not, strangers still "baby flirt" with her all the time. The funniest moments are with kids - they loudly ask their moms "why is that baby wearing a helmet?" I just tell them it's to make her head look nice, or I joke that, because her daddy is Canadian, she got her hockey helmet early. One kid said, "Cool, Dad! Look that baby is wearing a helmet! Awesome!" So, I would say not to worry about it too much. People will look, but most comments have been kind or simply curious.Best of luck to you and your son!- (mom to Lulu, 6 months, in Massachusetts)Plagiocephaly From: lauriehudicek@...Date: Sat, 1 Aug 2009 22:32:01 +0000Subject: What to expect We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything? I'm thinking about decorating the band with the words... "Thanks for looking!" Thanks for any help! Laurie Windows Live™: Keep your life in sync. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 My daughter got her helmet almost two weeks ago. People do stare...some with sympathetic looks, some wondering why I have done that. I think some think I am an over protective parent puting a helmet on my daughter in her stroller (she has the helmet not the band). No one has actually asked me what it is for, sometimes I want to say what are you staring at, but I haven't got up the courage yet. It did bother me at first but not as much anymore... I kind of want someone to ask just so I can educate them on what it is for. > > We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything? > > I'm thinking about decorating the band with the words... " Thanks for looking! " > > Thanks for any help! > Laurie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Our daughter was banded a couple of weeks ago, and I, too, worried about the looks she'd get. I have found that she actually gets more attention than before - and all of it has been positive! A lady at the grocery store told her how cute she was and said, "Oh, what a nice hat you have! Don't worry, it will be off soon!" That was the only time that somebody actually made direct mention of it. I didn't reply at all. I just smiled at the woman. She wasn't rude at all. Our daughter actually looks very cute in it, and I didn't think I'd think that at all. We decorated her band and that helped to make it look more fun and less medical. If anyone ever stares at her or makes a rude comment, let it go in one ear and out the other! You know that you are doing the right thing for your child and that is all that matters!Good luck! Everything will be just fine! Below are photos of our little girl in her DOC band.http://www.flickr.com/photos/littleadehla~--- On Sat, 8/1/09, lauriehudicek <lauriehudicek@...> wrote:From: lauriehudicek <lauriehudicek@...>Subject: What to expectPlagiocephaly Date: Saturday, August 1, 2009, 10:32 PM We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything? I'm thinking about decorating the band with the words... "Thanks for looking!" Thanks for any help! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 No one has said anything rude--but they all look! and they mostly make ding-dong comments about how he's "ready for football" (he's in a helmet). It's easier when kids make a comment because they flat out ask, "Why is he wearing that?" and i can explain; the adults don't always give me an opening. They tell me it's "cute", as if I'd put my child in it for fun and fashion in 100 degree weather I just tell people all about it when there is an opening; prepare your little 2 minute speech (you dont' want to bore them to tears, but you do want it clarified). We put Elijah's name on his helmet; I think that helps people warm up to him quickly. It hasnt' been bad, but I certainly will be glad when it's over!! I miss his head. He's been in his helmet since May 21, and the prediction is 4-6 months, sigh. Betsy From: lauriehudicek <lauriehudicek@...>Subject: What to expectPlagiocephaly Date: Saturday, August 1, 2009, 5:32 PM We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything?I'm thinking about decorating the band with the words... "Thanks for looking!"Thanks for any help!Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 We're in week 7 of our DOC Band and we haven't gotten rude comments at all...just lots of staring and double-takes. It didn't bother me too much at first, but I have become increasingly frustrated with it as each week has passed. A few people have politely asked why he's wearing it, which I much prefer over the staring. I find myself making less eye contact with people -- I tend to look away when I feel the double-take coming. That way, I don't have to see it. Prior to the band, everyone talked to my son when we were out...commenting on chubby cheeks and such. Since he got his band, I can probably count on one hand the number of people who have talked to him. In seven weeks. I didn't expect that. Sounds like from some of the other responses, others have had better luck with the general public. I guess it's a lesson for me in being patient and understanding with others. They don't know what to say, so they don't say anything. Anyway, it's temporary and for that I am thankful. We've had great success with the DOC Band and are glad we're doing it. He's still got his cute little chubby cheeks, so hopefully his fanclub will be chatty with him once again when he's band-free. Good luck with your little one. I think your " Thanks for looking " idea is cute! I was frustrated one day and almost put " ASK or Quit Staring! " I think your idea is better. :-) Jill Cade's mom, 7 mo, DOCBand 6/18/09 Austin TX > > We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything? > > I'm thinking about decorating the band with the words... " Thanks for looking! " > > Thanks for any help! > Laurie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Maysa was in a passive helmet and then in 2 DOC bands for almost 11 months and we never got a bad comment or a funny stare. Could it be that I wasn't looking, or that I really didn't care that someone might have a negative opinion about it? I don't know! All I know is that I wanted to help her and while we got off on the wrong foot with the passive helmet, the DOC bands did the trick for us. The rest is in the past. I had fun decorating the band. I usually put her name on it and flowers, all kinds of flower stickers and people always thought that she looked cute. She is such a social butterfly and always smiles and says hi to people, so that helped. Don't worry too much. You are doing the right thing! Leila,Maysa, 18.5 mo, DOC band Grad 5.29.09 www.mymaysa.wordpress.com From: jillmckay@... <jillmckay@...>Subject: Re: What to expectPlagiocephaly Date: Sunday, August 2, 2009, 2:23 PM We're in week 7 of our DOC Band and we haven't gotten rude comments at all...just lots of staring and double-takes. It didn't bother me too much at first, but I have become increasingly frustrated with it as each week has passed. A few people have politely asked why he's wearing it, which I much prefer over the staring. I find myself making less eye contact with people -- I tend to look away when I feel the double-take coming. That way, I don't have to see it. Prior to the band, everyone talked to my son when we were out...commenting on chubby cheeks and such. Since he got his band, I can probably count on one hand the number of people who have talked to him. In seven weeks. I didn't expect that. Sounds like from some of the other responses, others have had better luck with the general public. I guess it's a lesson for me in being patient and understanding with others. They don't know what to say, so they don't say anything. Anyway, it's temporary and for that I am thankful. We've had great success with the DOC Band and are glad we're doing it. He's still got his cute little chubby cheeks, so hopefully his fanclub will be chatty with him once again when he's band-free. Good luck with your little one. I think your "Thanks for looking" idea is cute! I was frustrated one day and almost put "ASK or Quit Staring!" I think your idea is better. :-) JillCade's mom, 7 mo, DOCBand 6/18/09Austin TX>> We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything?> > I'm thinking about decorating the band with the words... "Thanks for looking!"> > Thanks for any help!> Laurie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 We didn't have rude comments at all. A few people would ask eachother about it from a distance - rather than just asking us. Kids would ask. Most people were very friendly. I put my daughter's name on it with stickers, and people would say " Hi Sydney " . Some guy in toy R us wanted to buy one because he son kept bumping his head... (it does save the head a lot when babies are learning to crawl and walk). -christine sydney, 3.5 yrs, starband grad > > We're getting our son banded in two weeks. I'm trying to prepare myself for the reactions of people. Can you share what some reactions were and how you handled them? Did anyone say anything rude to you? Did they mostly stare? If so, did you say anything? > > I'm thinking about decorating the band with the words... " Thanks for looking! " > > Thanks for any help! > Laurie > Quote Link to comment Share on other sites More sharing options...
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