Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Well, ive been reading everyones post and thought i would stop and say hi. My name is C.C. and i live in Florida with my husband of 8 yrs, . I have dealt with arthritis in my life pretty much since it set in in my leg after a workplace injury in 2003. By 2005 I had to quit working because the pain got bad enough i couldn't do much. At that point I had reached the emotional lowpoint- I had worked all my life since the age of 16 (im 36 now). My husband was supportive and i tried my best with staying home. I found one thing that i could do to help bring income and raise my spirits. I took my hobby of sewing and was able to bring a small income in. Everything was going well until about the past 3 months. I started developing pain in my right shoulder and i figured that the arthritis was spreading and dealt with it as best as i could. I finally went to the doctor 2 weeks ago as i finally was hurting enough (i have a high pain level) i was loosing sleep. He perscribed a anti inflamitory and set me to get a mri, which i got yesterday. After the appointment , i did find out from my dad in RA does run in my family. my frustration is this and i hope there is someone who has dealt with these feelings.... I am a person that cant sit still. Sewing is the one thing that helps deal with the pain, keeping me feeling " sane " . Now even sewing hurts. I am feeling lost, trying to figure out what i do now, because the pain is slowly sucking the bright spots out. I guess the best way to say it is i feel like i am at war with my body. any ideas or advice? CC _________________________________________________________________ Stay in touch when you're away with Windows Live Messenger. http://www.windowslive.com/messenger/overview.html?ocid=TXT_TAGLM_WL_Refresh_mes\ senger_052008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi CC! It's quite possible that once you are diagnosed and started on medication, DMARDs, NSAIDS, or biologics, that your pain will decrease and you will be able to do the hobby that you so love! You might have to pace yourself more during a flare, but I have met many that quilt, sew, and even paint!! I have an uncle with RA that has very deformed hands and he is a mechanic and still tinkers on cars occassionally. It's very easy for our spirits to get low and for us to get frustrated and discouraged. Yet, this is an autoimmune disease, and the more emotional stress we feel, the more physical pain we feel. Try to be really gentle with yourself at this time. Do things for you that you enjoy, hot baths, small acts of pampering, reading a good book, finding joy in the little things in life. Hang in there! There are more better days to come " C.C. cheshire " <isewthereforeiam@...> wrote: Well, ive been reading everyones post and thought i would stop and say hi. My name is C.C. and i live in Florida with my husband of 8 yrs, . I have dealt with arthritis in my life pretty much since it set in in my leg after a workplace injury in 2003. By 2005 I had to quit working because the pain got bad enough i couldn't do much. At that point I had reached the emotional lowpoint- I had worked all my life since the age of 16 (im 36 now). My husband was supportive and i tried my best with staying home. I found one thing that i could do to help bring income and raise my spirits. I took my hobby of sewing and was able to bring a small income in. Everything was going well until about the past 3 months. I started developing pain in my right shoulder and i figured that the arthritis was spreading and dealt with it as best as i could. I finally went to the doctor 2 weeks ago as i finally was hurting enough (i have a high pain level) i was loosing sleep. He perscribed a anti inflamitory and set me to get a mri, which i got yesterday. After the appointment , i did find out from my dad in RA does run in my family. my frustration is this and i hope there is someone who has dealt with these feelings.... I am a person that cant sit still. Sewing is the one thing that helps deal with the pain, keeping me feeling " sane " . Now even sewing hurts. I am feeling lost, trying to figure out what i do now, because the pain is slowly sucking the bright spots out. I guess the best way to say it is i feel like i am at war with my body. any ideas or advice? CC __________________________________________________________ Stay in touch when you're away with Windows Live Messenger. http://www.windowslive.com/messenger/overview.html?ocid=TXT_TAGLM_WL_Refresh_mes\ senger_052008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 WELCOME CC, IM 38YRS.OLD IVE HAD SEVERE RA SINCE THE AGE OF 5.I REMEMBER SOME OF MY HAPPY CHILDHOOD, MY MOM ALWAYS SHOWED ME LOVE & TENDER CARE. SHE WAS ALWAYS THERE FOR ME, BEING BOTH MY CONSTRUCTIVE CRITIC & MY CONSTANT CHEERLEADER.. I LOST HER AT THE AGE OF 14. OF COURSE I WAS THINKING TO MYSELF WHAT AM I GOING TO DO. I WAS GETTING WORSE,MY MOM WAS GONE & MY DAD DID NOT KNOW HOW TO DEAL OR EVEN TAKE CARE OF A CHILD WITH A PHYSICAL DISABILITY.. ANYWAY, I SURVIVED PAIN, SURGERIES, & ALOT OF REHAB TO GET ME WHERE I AM TODAY!! YES CC HAVING THIS UGLY ILLNESS IS SCARRY BUT MAKE THE MOST OF WHAT YOU CAN DO & STOP FOCUSING ON THE THINGS YOU MIGHT NOT BE ABLE TO DO ANY LONGER.... I KNOW THINGS MIGHT MAKE YOU FEEL AS IF IT IS THE END OF THE WORLD BUT ITS NOT!!! I SOOO GET FRUSTRATED AT TIMES BUT I STOP, & I THINK ABOUT ALL THE OTHER PEOPLE WHO ARE WORSE OFF THAN WE ARE. THEN I SAY TO MYSELF,MELYNDA YOUR ALIVE, YOU HAVE A WONDERFUL HUB & AN AWESOME DAUGHTER. THE FEELINGS OF BEING IN PAINDOES NOT EVEN COMPARE TO THE HAPPINESS & JOY I FEEL AT THIS VERY MOMENT IN TIME... I HOPE I COULD HELP CC, IF NOT STAY TRUE TO WHO YOU ARE & HANG IN THERE!!!!! GOD BLESS,MELYNDAGAMEZ 5/5/08 12:20A.M..CENTRAL TIME [ ] guess ill say hello...feeling frustrated. Well, ive been reading everyones post and thought i would stop and say hi. My name is C.C. and i live in Florida with my husband of 8 yrs, . I have dealt with arthritis in my life pretty much since it set in in my leg after a workplace injury in 2003. By 2005 I had to quit working because the pain got bad enough i couldn't do much. At that point I had reached the emotional lowpoint- I had worked all my life since the age of 16 (im 36 now). My husband was supportive and i tried my best with staying home. I found one thing that i could do to help bring income and raise my spirits. I took my hobby of sewing and was able to bring a small income in. Everything was going well until about the past 3 months. I started developing pain in my right shoulder and i figured that the arthritis was spreading and dealt with it as best as i could. I finally went to the doctor 2 weeks ago as i finally was hurting enough (i have a high pain level) i was loosing sleep. He perscribed a anti inflamitory and set me to get a mri, which i got yesterday. After the appointment , i did find out from my dad in RA does run in my family. my frustration is this and i hope there is someone who has dealt with these feelings.... I am a person that cant sit still. Sewing is the one thing that helps deal with the pain, keeping me feeling " sane " . Now even sewing hurts. I am feeling lost, trying to figure out what i do now, because the pain is slowly sucking the bright spots out. I guess the best way to say it is i feel like i am at war with my body. any ideas or advice? CC _________________________________________________________________ Stay in touch when you're away with Windows Live Messenger. http://www.windowslive.com/messenger/overview.html?ocid=TXT_TAGLM_WL_Refresh_mes\ senger_052008 Quote Link to comment Share on other sites More sharing options...
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