Pushpa and Aman

[Guest guest]

Hi Pushpa,

How is Aman? How are his parents? Are things more normal(?) now that Aman is

home? Is he well enough to attend baby stimulation classes (Highly recommended

for both Aman and his mother!!!)?

Is there any possibility you (+ family) will be able to come to Belleville for

the Canadian CHARGE weekend? We would very much like to meet you.

Please keep us updated.

Anne, mom of Penina (CHArgE, 5 3/4)

[Guest guest]

Hi Pushpa,

I was disappointed to learn that the Belleville weekend has been canceled. I

think in that case we'll remain close to home. Toronto is only about 6 hours

from Montreal by car (or a pleasant train ride), but I think that this summer

Penina would rather hang out at the community pool and go to day camp. We're all

rather tired and not into a busy vacation this year!

But do let me know if you plan to visit Montreal during your stay....

Regards,

Anne

pushpakishore wrote:

> Anne, seems like the charge weekend in Belville is not on, but it would be

a pleasure to meet all of you. We should be in Whitby, Toronto by end of next

month, and planning to stay for some months. Aman is home, but he is still G

Tube fed, suctioned, has oxygen tongs in his nose, his sats are monitored, and

with 35 hours nursing respite, but this is what Amrit wrote<. with aman at home,

its absolutely delightful. he seems to be enjoying himself for the first time in

his life, having two people pamper and spoil him- no iv's no tests, etc.> Please

do keep in touch, LOL Pushpa grandma to Aman 7

months

>

>

>

> Membership of this email support groups does not constitute membership in the

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> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

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