Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Since CHARGE is thought to be genetic, the fact that other family members may not run fevers, or may have different ways their bodies indicate infection or illness than is most often considered typical, may just be a confirmation of the genetic component. Martha, I agree that we need data and information on these topics. One way we could do something is to gather information on some of these topics and approach researchers that we know or suspect to have interest in these issues. Researchers are often quite focused in their interests so finding the right one can be a bit of a trick. Mom to Kendra, and Camille At 09:54 PM 5/31/02 -0500, you wrote: >In our family, my older daughter and I run quite high fevers. My husband and > do not. So, I guess it might not be a CHARGE " thing, " but I still >think 's lack of fevers so consistently is odd --- but maybe that's >just because that's not what I do when sick... We need data! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 But you have to figure in if say s " normal " temp is 96.7-97.6 then 99.6 is a fever for him it would be like a " nrmal " persn having a temp 101 right?LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 But you have to figure in if say s " normal " temp is 96.7-97.6 then 99.6 is a fever for him it would be like a " nrmal " persn having a temp 101 right?LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 runs a high temp only when he has the flu or streph other than that no fever. mom to 8years. Fevers > Hi everyone; > I was just wondering how common it was for CHARGE children *not* to run a > fever with illness. Tyler never seems to. He'll become clammy feeling > instead. > Take care, Eve (foster Mom to cHARGe'r Tyler, 23 months) > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 runs a high temp only when he has the flu or streph other than that no fever. mom to 8years. Fevers > Hi everyone; > I was just wondering how common it was for CHARGE children *not* to run a > fever with illness. Tyler never seems to. He'll become clammy feeling > instead. > Take care, Eve (foster Mom to cHARGe'r Tyler, 23 months) > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 I have always run a low grade fever all my life 96.8 when it gets to 100.4 doctors tell me to go to the hospital. I don't like going to hospitals usally I go there and some how I end up staying there I swear they don't want to let you go. Melody Married to wonderful Husband Mother of 5 is with God waiting for his mom. 4 living , , a, Amber, Mom trying to get use to a empty nest. Grandma to 2 boys Harlan Jr and . __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 YES YES YES!!! i get fevers all the time. i have one right now for no apparent reason tlvc@... ilovedavid22000@... -- fevers Hi there, I was wondering any other fibro patients out there are having trouble with fevers? This has been a huge issue for me as it relates to my fibro. I started running fevers over 3 years ago; I was diagnosed close to 6 years ago, so I wasn't running the fevers for the first couple of years. But once I started running fevers, that was it...they are almost a daily occurence now. I've had more blood tests than I can count; I've had cat scans to rule out tumors, etc., and I was sent to an infectious disease specialist to see if he could find the source of the fevers....all to no avail.It doesn't seem that the "conventional" medical community has accepted fevers as one of the possible symptoms of fibro. On the other hand, it seems like "alternative" medical community does list fevers as one of the many issues fibro patients may face.In my case, the fevers make everything so much worse...especially the pain factor. It literally feels like you have a flu-bug that will not go away.Has anyone else been dealing with fevers?I'd love to hear from anybody regarding fevers and how you cope with them.Thanks so much...Jen1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
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