Guest guest Posted September 13, 1999 Report Share Posted September 13, 1999 Joan, Well said! I don't remember how long ago I found this list but it changed my life, at least the direction it was going at the time. I had two uncommunicative doctors who seemed to be trying to figure out how soon to get out the door the minute they stepped into the exam room. They were doing the right things, I now know that, but most of us need more than blind faith. The days of " Doctor is God " are gone. I spent every minute and all of my limited energy trying to understand what was going on with me. A thoughtless doctor had told me that I would die within 2-5 years without any hint that it wasn't inevitable. I was puffing up like a balloon filled with water, felt miserable, began to give away the things that were most precious to me, wrote up my after-death wishes and tried to deal with my husband's fear and despair. My life was over. Now, it's just beginning and I fully intend to be around for another 20 years or more and not only that, I'm NOT going to feel lousy. I give almost 100% credit to the support and information I got from this list. It took some doing, but my doctors are no longer dismissive. I know what I'm talking about when I discuss my condition and they know it. We come from everywhere and we are all different. Some of us might be a little edgy now and then and who can blame us? But we need each other and we should never lose sight of that. I've also had some strained periods of time on this list. I got over it though I seriously considered dropping out. I realized quickly that it would have been a mistake. I have a lot to say. Probably too much, but I figure you all have a delete button on your keyboard, so block me out if you want, but I need to be able to express my feelings in ways I haven't been able since I was a child, talking to my Mom. My husband is incredibly supportive but it's too much for him to carry my weight alone. You are all carrying me and I hope that I share the weight each of you have to carry. Let's never let differences of opinion shatter the beauty of this group of wonderful people. In fact, we have to even allow the occasional venting. What the heck, it isn't going to hurt us to listen to someone sound off now and then, but meanness should be avoided and we all know the difference between being argumentative, opinionated and just plain mean. There is so much more to be gained in life from giving instead of only receiving, and you know that you all have everything my heart has to give. It's the least I can do in return to how much you give me every single day. Take care my friends, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 1999 Report Share Posted September 13, 1999 Joan, I wish you well in this storm. I just find it so hard, to visualize going through a storm like this. God bless, Lynn FOXDIANA@... wrote: > From: FOXDIANA@... > > Hi Everyone... > > With the pending threat of a hurricane about to come ashore down here in > South Florida, as the new moderator I want to say a few things. > > First, I do not know when I will be back online if the storm hits knocking > out the power or phones. If I have both power and my phone it will be no > problem. > > Second, and this is so hard to say. We are all adults on this list, we will > have differences because we are all indiviuals, each with our own > personality, quirks, sore spots and idiosyncrasies BUT....isn't there always > a BUT...we all are in this together. We need to pull together, support each > other, laugh and cry with each other. The world as a whole does not > understand our being tired, after all we look healthy, they don't understand > the need to claw that itch until it bleeds because it is driving you nuts. > Nor do they understand anything going on inside us. Sure we are going to > have differences, that is part of life. Sure, we all have our up days and > down days, but we need each other. > > Now that I have had my say, I want to tell you all how much this group means > to me. I need each and everyone of you. We are family here, a unique > family, for some reason, what ever it is, we have been given these life > challanging diseases. But we don't have to let them take control of our > lives. We need to take control as best we can. We are loving, caring and very > special people. The best people in the world. > > Have a good day, and remember...Laughter is the music of a happy heart, love > is it's sustenance. Sooooo...laugh a lot, it is healing. > > Joan, AIH, PBC, HBP > Florida > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 1999 Report Share Posted September 14, 1999 I wonder if we will be hearing much for from you for a couple of days. Looks like hurricane is pretty well covering the state. Electricity may be out for awhile. J >From: FOXDIANA@... >Reply- onelist > onelist >Subject: Re: [ ] Hi Everyone... >Date: Tue, 14 Sep 1999 19:17:09 EDT >MIME-Version: 1.0 >From errors-165537-6619-shireen42=hotmail.comonelist Tue Sep 14 >16:17:26 1999 >Received: (qmail 27741 invoked by alias); 14 Sep 1999 23:16:47 -0000 >Received: (qmail 27723 invoked from network); 14 Sep 1999 23:16:46 -0000 >Received: from unknown (HELO imo27.mx.aol.com) (198.81.17.71) by >pop.onelist.com with SMTP; 14 Sep 1999 23:16:46 -0000 >Received: from FOXDIANA@... by imo27.mx.aol.com (mail_out_v22.4.) id >hNSMa22320 (3966) for < onelist>; Tue, 14 Sep 1999 >19:17:10 -0400 (EDT) >Message-ID: <41a9e025.25103175@...> >X-Mailer: AOL 4.0 for Windows 95 sub 243 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: FOXDIANA@... > >Thank you everyone for your prayers. > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 1999 Report Share Posted September 14, 1999 Thank you everyone for your prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Hi Piyali, Good luck on your surgery, were all thinking of you and our prayers are with you...Keep us posted... ~*~Renonda~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 Thanks Renonda. nonnykay1@... wrote: Hi Piyali,Good luck on your surgery, were all thinking of you and our prayers are with you...Keep us posted...~*~Renonda~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Hi Jane, Thanks for the reply, I guess I wont know anything for sure until Ive had my consult and follow-up with the ENT. (another week and a half...ugh...) All Ive been told is that he has a collapsed eardrum..Im just doing alot of research on my own. Ive learned so much already..Thanks again for the info... ~*~Renonda~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Hi, Since the c-toma is soft tissue the area it occupies shows up as grey. Fluid shows up as grey as well. So visible - yes and no. And most often the CT scan doesn't show all of it. Jane >From: " nonnykay1 " <nonnykay1@...> >Reply-cholesteatoma >cholesteatoma >Subject: Hi everyone... >Date: Wed, 20 Nov 2002 01:45:07 -0000 > >Hello, >Just have another quick question. Is a C-toma always visible on a CT >scan? Thanks for any replys.... > _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 GOOD TO HEAR FROM YOU. IT'S GOOD THAT YOU ARE HOME AT LAST. PERHAPS YOU WILL BE ABLE GET THINGS BACK TO NORMAL AS BEST AS YOU CAN. JUST TAKE THINGS EASY AND TRY NOT TO DO TOO MUCH UNTIL YOU CAN GET STRONGER AND BEGIN TO FEEL BETTER.{BUT THEN YOU ALREADY KNOW THAT } I'M REALLY GLAD THAT YOU HAVE MADE IT THROUGH THE SURGERY AND THE LONG PERIOD OF BEING BEDRIDDEN. THAT MUST HAVE BEEN VERY HARD TO DO. WELL,THE WORST PART SEEMS TO BE OVER FOR YOU. NOW YOU CAN CONCENTRATE ON REGAINING YOUR STRENGTH.AS YOU GET STRONGER YOU WILL FIND THE EXACT PLACE THAT YOU ARE SUPPOSED TO BE. WELL,I GUESS THAT I HAVE RAMBLED ON LONG ENOUGH. TAKE CARE. LARRY segreto_forza <cozy@...> wrote: hi guys. Sorry it's been a while since i've posted a meassage but I've been busy getting myself situated. I'm finally back in my own home in my home town after being bedridden for 6 months with my parents. I have to say my feelings are bittersweet. I feel very lost in the world right now and I don't know where exactly I'm going to fit in. Planning to have back surgery has been my focus for over 4 years and now have done it. I'm coming to terms with the fact that I'm not the same person who left the town 9 months ago to go have surgery. I'm different mentally-slightly. I appreciate a lot more but I also feel extremely vulnerable. It's so hard to explain but I think a lot of it has to do with me not having a job and trying so hard to go back to the life I left. I can't. I will start working in August, maybe sooner if I feel better. The pain was extremely bad when I first started moving again. My ankles and knees swelled to twice their size and hurt to touch because I hadnt used them in so long. But as time went by the pain decreased and I have come to realize that I may feel better over time. Its just so hard to tell because I have pain but probably a lot of it is from being bedridden. I do still feel like Im sitting on bone and I lock up after sitting for more than 30 minutes but oh well. Only positive feelings right. I may be having some issues with my surgeon in the future and will need some your help. I need to know if anyone has had or heard of the type of surgery I had. I had a fusion L5 S1 with the protein deposits not the hip bone. I did not have any pins and rods put in or a cage. Because of this I had to be bedridden for 6 months. I just want to know if anyone knows about the protein deposits-calcium composites.Also, to Cherly''what type of surgery did you have that failed_ Did you have a cage put in, or pins and rods or only used your hip bone graft.I am so happy to be a part of this group. It has helped me so much and I hope it helps everyone else as well.Thank you and I wish everyone a pain free day. DON'T WORRY ABOUT THE SMALL STUFF. LIFE IS TOO SHORT FOR THAT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 GOOD TO HEAR FROM YOU. IT'S GOOD THAT YOU ARE HOME AT LAST. PERHAPS YOU WILL BE ABLE GET THINGS BACK TO NORMAL AS BEST AS YOU CAN. JUST TAKE THINGS EASY AND TRY NOT TO DO TOO MUCH UNTIL YOU CAN GET STRONGER AND BEGIN TO FEEL BETTER.{BUT THEN YOU ALREADY KNOW THAT } I'M REALLY GLAD THAT YOU HAVE MADE IT THROUGH THE SURGERY AND THE LONG PERIOD OF BEING BEDRIDDEN. THAT MUST HAVE BEEN VERY HARD TO DO. WELL,THE WORST PART SEEMS TO BE OVER FOR YOU. NOW YOU CAN CONCENTRATE ON REGAINING YOUR STRENGTH.AS YOU GET STRONGER YOU WILL FIND THE EXACT PLACE THAT YOU ARE SUPPOSED TO BE. WELL,I GUESS THAT I HAVE RAMBLED ON LONG ENOUGH. TAKE CARE. LARRY segreto_forza <cozy@...> wrote: hi guys. Sorry it's been a while since i've posted a meassage but I've been busy getting myself situated. I'm finally back in my own home in my home town after being bedridden for 6 months with my parents. I have to say my feelings are bittersweet. I feel very lost in the world right now and I don't know where exactly I'm going to fit in. Planning to have back surgery has been my focus for over 4 years and now have done it. I'm coming to terms with the fact that I'm not the same person who left the town 9 months ago to go have surgery. I'm different mentally-slightly. I appreciate a lot more but I also feel extremely vulnerable. It's so hard to explain but I think a lot of it has to do with me not having a job and trying so hard to go back to the life I left. I can't. I will start working in August, maybe sooner if I feel better. The pain was extremely bad when I first started moving again. My ankles and knees swelled to twice their size and hurt to touch because I hadnt used them in so long. But as time went by the pain decreased and I have come to realize that I may feel better over time. Its just so hard to tell because I have pain but probably a lot of it is from being bedridden. I do still feel like Im sitting on bone and I lock up after sitting for more than 30 minutes but oh well. Only positive feelings right. I may be having some issues with my surgeon in the future and will need some your help. I need to know if anyone has had or heard of the type of surgery I had. I had a fusion L5 S1 with the protein deposits not the hip bone. I did not have any pins and rods put in or a cage. Because of this I had to be bedridden for 6 months. I just want to know if anyone knows about the protein deposits-calcium composites.Also, to Cherly''what type of surgery did you have that failed_ Did you have a cage put in, or pins and rods or only used your hip bone graft.I am so happy to be a part of this group. It has helped me so much and I hope it helps everyone else as well.Thank you and I wish everyone a pain free day. DON'T WORRY ABOUT THE SMALL STUFF. LIFE IS TOO SHORT FOR THAT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 GOOD TO HEAR FROM YOU. IT'S GOOD THAT YOU ARE HOME AT LAST. PERHAPS YOU WILL BE ABLE GET THINGS BACK TO NORMAL AS BEST AS YOU CAN. JUST TAKE THINGS EASY AND TRY NOT TO DO TOO MUCH UNTIL YOU CAN GET STRONGER AND BEGIN TO FEEL BETTER.{BUT THEN YOU ALREADY KNOW THAT } I'M REALLY GLAD THAT YOU HAVE MADE IT THROUGH THE SURGERY AND THE LONG PERIOD OF BEING BEDRIDDEN. THAT MUST HAVE BEEN VERY HARD TO DO. WELL,THE WORST PART SEEMS TO BE OVER FOR YOU. NOW YOU CAN CONCENTRATE ON REGAINING YOUR STRENGTH.AS YOU GET STRONGER YOU WILL FIND THE EXACT PLACE THAT YOU ARE SUPPOSED TO BE. WELL,I GUESS THAT I HAVE RAMBLED ON LONG ENOUGH. TAKE CARE. LARRY segreto_forza <cozy@...> wrote: hi guys. Sorry it's been a while since i've posted a meassage but I've been busy getting myself situated. I'm finally back in my own home in my home town after being bedridden for 6 months with my parents. I have to say my feelings are bittersweet. I feel very lost in the world right now and I don't know where exactly I'm going to fit in. Planning to have back surgery has been my focus for over 4 years and now have done it. I'm coming to terms with the fact that I'm not the same person who left the town 9 months ago to go have surgery. I'm different mentally-slightly. I appreciate a lot more but I also feel extremely vulnerable. It's so hard to explain but I think a lot of it has to do with me not having a job and trying so hard to go back to the life I left. I can't. I will start working in August, maybe sooner if I feel better. The pain was extremely bad when I first started moving again. My ankles and knees swelled to twice their size and hurt to touch because I hadnt used them in so long. But as time went by the pain decreased and I have come to realize that I may feel better over time. Its just so hard to tell because I have pain but probably a lot of it is from being bedridden. I do still feel like Im sitting on bone and I lock up after sitting for more than 30 minutes but oh well. Only positive feelings right. I may be having some issues with my surgeon in the future and will need some your help. I need to know if anyone has had or heard of the type of surgery I had. I had a fusion L5 S1 with the protein deposits not the hip bone. I did not have any pins and rods put in or a cage. Because of this I had to be bedridden for 6 months. I just want to know if anyone knows about the protein deposits-calcium composites.Also, to Cherly''what type of surgery did you have that failed_ Did you have a cage put in, or pins and rods or only used your hip bone graft.I am so happy to be a part of this group. It has helped me so much and I hope it helps everyone else as well.Thank you and I wish everyone a pain free day. DON'T WORRY ABOUT THE SMALL STUFF. LIFE IS TOO SHORT FOR THAT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Dear Kiki, I'm so happy you wrote!!!! I've been in ferverent prayer (sp) for you these past few days. I just had a feeling and knew you needed to be lifted up in prayer. Please know that I'll continue for your health, and now for your safety. LOL...I'm the one out there that scares the bejeevies out of everyone else. I go 5 miles an hour and am terrified the entire time....makes everyone else so mad! My husband tells me to just stay home or I'll cause a bunch of wrecks LOL So I do! Be safe dear one! And come back when you can...we miss your uplifting spirit! love you, Jenni Proud Air Force Mom! May God guide and protect our troops! Hi everyone... I haven't been on much at all. Got a terrible sick and have been down with that. There's so many posts to reply to that I don't think I'll have the time, so.... To all of you that have been doing so wonderfully and getting your great results...WAY TO GO!!! ^5 {high 5} to each and every one of you. Bonnie, I'm so excited that your son is at least back in Germany. I understand that you weren't terribly worried, but you were. We all worry, no matter what. Anyway, I'm happy dancing with you!!! And what a fabu surprise to get the wrap that was so unexpected. You truly have made a wonderful impression on some sweetheart of a person. I can't wait to hear your updates. {Not that you haven't made a wonderful impression on all of us!} R...You go girl, ^5 to you too!!!! What great results you've gotten so far. I've no doubt you'll make the goal you set. I haven't been doing anything well or good or anything. When I get as sick as I've been, all I want are pizza and fries, if I want anything. I know, odd, but true...LOL Mostly I've just slept tho. Haven't had near enough of any kind of fluid either. I feel so much better today, still stuffy, but that I can deal with. The National Western Stock Show also started this past weekend and I'm a volunteer there. My first day, they sent me home early...LOL I haven't been sent home for sick in a LONG time! I'm sposed to go this afternoon. It's snowing and ice under that, and just an awful mess out. It took a friend over 2 hours to make a 30 minutes drive this morning. Wrecks all over and driving slow {2nd gear the whole way} I have no idea how long it will take me. It's usually a 30-45 minute drive depending on the time of day and all that. Anyway, now that I've rambled on, I just wanted to check in. If you think of it, could you all say a prayer for me and my family as we face the driving conditions. No choice, have to get out in it. I don't worry about our driving, {natives can do this} it's the other ones that scare the heck outta me. If I've missed anyone or anything, I'm so sorry, and know that it's not on purpose. I'll check in when I can. Know that you're all in my thoughts and prayers... Love and Blessings to all of you, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Take care Kiki, and watch out for those " other drivers " ! Prayers for your health and safety on the way..... When I lived in the Idaho panhandle, I knew how to drive in snow, ice, etc. -- and I had the vehicle/tires/sandbags, etc. to handle it. Now I live in Austin, and a light dusting of snow gives me a very valid excuse for working from home! LOL! If any sanding is done on the roads, it's from a truck bed BY HAND -- the last time we had an icy bridge (near where I work) they got so enthusiastic about sanding it that you drove through a good 6 inches of sand -- and it lasted forever! And the drivers -- some go perhaps 5 mph, others feel that they have off-roaders and can handle 60+ MPH -- and it's a mess! I do NOT like driving in anything other than perfect weather here.... I sure don't miss the icy roads, though!!! Bonnie Re: Hi everyone... Dear Kiki, I'm so happy you wrote!!!! I've been in ferverent prayer (sp) for you these past few days. I just had a feeling and knew you needed to be lifted up in prayer. Please know that I'll continue for your health, and now for your safety. LOL...I'm the one out there that scares the bejeevies out of everyone else. I go 5 miles an hour and am terrified the entire time....makes everyone else so mad! My husband tells me to just stay home or I'll cause a bunch of wrecks LOL So I do! Be safe dear one! And come back when you can...we miss your uplifting spirit! love you, Jenni Proud Air Force Mom! May God guide and protect our troops! Hi everyone... I haven't been on much at all. Got a terrible sick and have been down with that. There's so many posts to reply to that I don't think I'll have the time, so.... To all of you that have been doing so wonderfully and getting your great results...WAY TO GO!!! ^5 {high 5} to each and every one of you. Bonnie, I'm so excited that your son is at least back in Germany. I understand that you weren't terribly worried, but you were. We all worry, no matter what. Anyway, I'm happy dancing with you!!! And what a fabu surprise to get the wrap that was so unexpected. You truly have made a wonderful impression on some sweetheart of a person. I can't wait to hear your updates. {Not that you haven't made a wonderful impression on all of us!} R...You go girl, ^5 to you too!!!! What great results you've gotten so far. I've no doubt you'll make the goal you set. I haven't been doing anything well or good or anything. When I get as sick as I've been, all I want are pizza and fries, if I want anything. I know, odd, but true...LOL Mostly I've just slept tho. Haven't had near enough of any kind of fluid either. I feel so much better today, still stuffy, but that I can deal with. The National Western Stock Show also started this past weekend and I'm a volunteer there. My first day, they sent me home early...LOL I haven't been sent home for sick in a LONG time! I'm sposed to go this afternoon. It's snowing and ice under that, and just an awful mess out. It took a friend over 2 hours to make a 30 minutes drive this morning. Wrecks all over and driving slow {2nd gear the whole way} I have no idea how long it will take me. It's usually a 30-45 minute drive depending on the time of day and all that. Anyway, now that I've rambled on, I just wanted to check in. If you think of it, could you all say a prayer for me and my family as we face the driving conditions. No choice, have to get out in it. I don't worry about our driving, {natives can do this} it's the other ones that scare the heck outta me. If I've missed anyone or anything, I'm so sorry, and know that it's not on purpose. I'll check in when I can. Know that you're all in my thoughts and prayers... Love and Blessings to all of you, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Dear, sweet, Jenni and Bonnie, I hope you know just how much your prayers and thoughts for me, meant and mean to me. You are two of the most specialist people I 'know.' I am doing SO much better, pretty much back to full power. I don't wish whatever this was on anyone!!! By the time I had to leave today, the storm had raced thru {Much faster than they had thought it would} the sun was out, roads had been cleared, and it was a breeze of a drive. Well, with the exception of all the fun back splash. But I had a full thing of washer fluid Just a wonderful reminder of one of the reasons it's so great to live in Colorado! I am pooped tho...LOL But in a good way Did a lot of walking, not sure, but I think at least 2 miles, could easily be more. I'm hoping that this will be my saving grace of sorts, that with all the movement, I'll be able to get in the mind set to keep it up and not find reasons to not move or breath when I'm not at the stock show any longer. I decided I need to take a chance and take my own food to eat. There's a fridge for us to use. Hopefully no one will take mine. Besides it being so expensive to eat at these types of things {even tho we get a break} the choices aren't anywhere near good. A hamburger is close to $4.00, and after I take the bun off, I'd want another. So, I'll take turkey or taco meat wrapped in lettuce and string cheese. That'll get me thru quite nicely. And I won't have to hang my head in shame on the accountability thread. Wish me luck everyone. If I can get myself jump started, it'll be smooth sailing into the spring and summer NOT fluffy!!! You just go ahead and stay home and off the streets Jenni. I wish more people would, to be honest...LOL Bonnie, ice and snow aren't my favorites to drive in, by any means, but I do know how to. We have so many transplants that have come here from {and PLEASE, I'm really NOT wanting to sound mean, but...} CA and TX. The first snow flake or rain drop and they freak...LOL So many people think that since they have an SUV or truck, with 4 wheel drive, they can drive like a bat outta you know where. Oh well, I'm a defensive driver and I REPEAT, I do not mean any offense to anyone from those places, it's just kinda a truth for here. That sand story cracked me up! Thanks for the laugh OK, I know I've gone on way to long. I'll be around pretty much the next couple days and am looking forward to all y'alls emails. Till tomorrow... Love and Blessings my friends, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Thanks Kiki Glad you made it home safe! My drive home was so thick tonight with FOG Scary R Hi everyone... I haven't been on much at all. Got a terrible sick and have been down with that. There's so many posts to reply to that I don't think I'll have the time, so.... To all of you that have been doing so wonderfully and getting your great results...WAY TO GO!!! ^5 {high 5} to each and every one of you. Bonnie, I'm so excited that your son is at least back in Germany. I understand that you weren't terribly worried, but you were. We all worry, no matter what. Anyway, I'm happy dancing with you!!! And what a fabu surprise to get the wrap that was so unexpected. You truly have made a wonderful impression on some sweetheart of a person. I can't wait to hear your updates. {Not that you haven't made a wonderful impression on all of us!} R...You go girl, ^5 to you too!!!! What great results you've gotten so far. I've no doubt you'll make the goal you set. I haven't been doing anything well or good or anything. When I get as sick as I've been, all I want are pizza and fries, if I want anything. I know, odd, but true...LOL Mostly I've just slept tho. Haven't had near enough of any kind of fluid either. I feel so much better today, still stuffy, but that I can deal with. The National Western Stock Show also started this past weekend and I'm a volunteer there. My first day, they sent me home early...LOL I haven't been sent home for sick in a LONG time! I'm sposed to go this afternoon. It's snowing and ice under that, and just an awful mess out. It took a friend over 2 hours to make a 30 minutes drive this morning. Wrecks all over and driving slow {2nd gear the whole way} I have no idea how long it will take me. It's usually a 30-45 minute drive depending on the time of day and all that. Anyway, now that I've rambled on, I just wanted to check in. If you think of it, could you all say a prayer for me and my family as we face the driving conditions. No choice, have to get out in it. I don't worry about our driving, {natives can do this} it's the other ones that scare the heck outta me. If I've missed anyone or anything, I'm so sorry, and know that it's not on purpose. I'll check in when I can. Know that you're all in my thoughts and prayers... Love and Blessings to all of you, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Thanks . I hope I can be as successful as you've been... Love ya, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Hope today is better Kiki sounds like you have a good plan R Re: Hi everyone... Dear, sweet, Jenni and Bonnie, I hope you know just how much your prayers and thoughts for me, meant and mean to me. You are two of the most specialist people I 'know.' I am doing SO much better, pretty much back to full power. I don't wish whatever this was on anyone!!! By the time I had to leave today, the storm had raced thru {Much faster than they had thought it would} the sun was out, roads had been cleared, and it was a breeze of a drive. Well, with the exception of all the fun back splash. But I had a full thing of washer fluid Just a wonderful reminder of one of the reasons it's so great to live in Colorado! I am pooped tho...LOL But in a good way Did a lot of walking, not sure, but I think at least 2 miles, could easily be more. I'm hoping that this will be my saving grace of sorts, that with all the movement, I'll be able to get in the mind set to keep it up and not find reasons to not move or breath when I'm not at the stock show any longer. I decided I need to take a chance and take my own food to eat. There's a fridge for us to use. Hopefully no one will take mine. Besides it being so expensive to eat at these types of things {even tho we get a break} the choices aren't anywhere near good. A hamburger is close to $4.00, and after I take the bun off, I'd want another. So, I'll take turkey or taco meat wrapped in lettuce and string cheese. That'll get me thru quite nicely. And I won't have to hang my head in shame on the accountability thread. Wish me luck everyone. If I can get myself jump started, it'll be smooth sailing into the spring and summer NOT fluffy!!! You just go ahead and stay home and off the streets Jenni. I wish more people would, to be honest...LOL Bonnie, ice and snow aren't my favorites to drive in, by any means, but I do know how to. We have so many transplants that have come here from {and PLEASE, I'm really NOT wanting to sound mean, but...} CA and TX. The first snow flake or rain drop and they freak...LOL So many people think that since they have an SUV or truck, with 4 wheel drive, they can drive like a bat outta you know where. Oh well, I'm a defensive driver and I REPEAT, I do not mean any offense to anyone from those places, it's just kinda a truth for here. That sand story cracked me up! Thanks for the laugh OK, I know I've gone on way to long. I'll be around pretty much the next couple days and am looking forward to all y'alls emails. Till tomorrow... Love and Blessings my friends, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Dear Kiki, Your post made me laugh....what a wonderful way to start my day I'm glad you are feeling better. And how wonderful that the roads cleared just for our dear Kiki God must have been listening to all our prayers! Personally, I always love it when God chooses to prove the weathermen wrong...it just shows how much He is in control! Well, I'm off to start today's thread. Love you dear one! with love, Jenni Proud Air Force Mom! May God guide and protect our troops! Re: Hi everyone... Dear, sweet, Jenni and Bonnie, I hope you know just how much your prayers and thoughts for me, meant and mean to me. You are two of the most specialist people I 'know.' I am doing SO much better, pretty much back to full power. I don't wish whatever this was on anyone!!! By the time I had to leave today, the storm had raced thru {Much faster than they had thought it would} the sun was out, roads had been cleared, and it was a breeze of a drive. Well, with the exception of all the fun back splash. But I had a full thing of washer fluid Just a wonderful reminder of one of the reasons it's so great to live in Colorado! I am pooped tho...LOL But in a good way Did a lot of walking, not sure, but I think at least 2 miles, could easily be more. I'm hoping that this will be my saving grace of sorts, that with all the movement, I'll be able to get in the mind set to keep it up and not find reasons to not move or breath when I'm not at the stock show any longer. I decided I need to take a chance and take my own food to eat. There's a fridge for us to use. Hopefully no one will take mine. Besides it being so expensive to eat at these types of things {even tho we get a break} the choices aren't anywhere near good. A hamburger is close to $4.00, and after I take the bun off, I'd want another. So, I'll take turkey or taco meat wrapped in lettuce and string cheese. That'll get me thru quite nicely. And I won't have to hang my head in shame on the accountability thread. Wish me luck everyone. If I can get myself jump started, it'll be smooth sailing into the spring and summer NOT fluffy!!! You just go ahead and stay home and off the streets Jenni. I wish more people would, to be honest...LOL Bonnie, ice and snow aren't my favorites to drive in, by any means, but I do know how to. We have so many transplants that have come here from {and PLEASE, I'm really NOT wanting to sound mean, but...} CA and TX. The first snow flake or rain drop and they freak...LOL So many people think that since they have an SUV or truck, with 4 wheel drive, they can drive like a bat outta you know where. Oh well, I'm a defensive driver and I REPEAT, I do not mean any offense to anyone from those places, it's just kinda a truth for here. That sand story cracked me up! Thanks for the laugh OK, I know I've gone on way to long. I'll be around pretty much the next couple days and am looking forward to all y'alls emails. Till tomorrow... Love and Blessings my friends, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Thanks . I AM doing it! Only got about 2 1/2 miles in today walking the SS. Ended up taking tickets most of the time, so when I got off, I walked. What WILL I have to talk about when it's over? LOL Ate great. 2 turkey rollups in lettuce and fauxtato salad for lunch. Hadn't been hungry till now 11:30 PM, natch. I may go have a little turkey, but not much, just something to put in there. Tomorrow {Sunday} I'm off, and home. The 'plan' is to get to the cleaning and laundry, that are badly needed. And to keep on keepin' on. Love ya, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 You will Kiki !!!!!!!!! R Re: Hi everyone... Thanks . I hope I can be as successful as you've been... Love ya, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Kiki You're Doing great!! R Re: Hi everyone... Thanks . I AM doing it! Only got about 2 1/2 miles in today walking the SS. Ended up taking tickets most of the time, so when I got off, I walked. What WILL I have to talk about when it's over? LOL Ate great. 2 turkey rollups in lettuce and fauxtato salad for lunch. Hadn't been hungry till now 11:30 PM, natch. I may go have a little turkey, but not much, just something to put in there. Tomorrow {Sunday} I'm off, and home. The 'plan' is to get to the cleaning and laundry, that are badly needed. And to keep on keepin' on. Love ya, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hi Kiki, It is great to have you back. I am glad you had some time off to have some fun and meet some new people. Take good care, Rashelle Harness the Powerful Benefits of Oxygen with LifeLift. Oxygen burns fat, tones muscles, reduces stress Breathe in the most efficient way possible with Life Lift! www.oxygenlift.net. Life Lift is the Original Aerobic Breathing .... I've been out of town over the weekend Love to all, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Sounds like FUN!! R Hi everyone... I've been out of town over the weekend and seem to be getting some messages but not nearly all... That's just so frustrating! My daughter volunteered to go to a retreat with me, that was with people from another board I belong to. We got together in Grand Junction, CO. It was so much fun after we got thru all the weather we had the day we left... We'd been having BIG rain storms for 3 days, which isn't usual lately... We left in pouring rain, luckily no hail {had that the day before} and drove into a snow storm in the mountains. We knew what we were in for but by the time we got there the white out conditions were over, the roads were cleared and it was fine. It was still snowing and it was beautiful... I just wish we'd been able to pull over and get some pictures. The drive back was a total 180*... Nothing unusual for here, either... Had a wonderful time, but I'm happy to be home... Met some really great women and am looking forward to the next time we do it... Hopefully I'll be getting all the messages now... Guess I should go to the site and check them there. As soon as I have some time I will.. Got a lot going on right now, getting back and now trying to get ready for company coming the 16th... Love to all, Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 Thank you all for the advice on heat or cold. I do feel a ton better when I take a hot shower,and I let the water run on my wrists, but I'm going to try cold tonight while I watch tv. It just makes sense to use cold, but my rheumatologist's nurse (who has RA) says to use whichever one feels better. She uses both at different times. Now, when I use the heat at night, with the heat wraps, it only feels good when they're on. As soon as I take them off, my wrists hurt again. Same with the shower. My wrists start hurting within 30 minutes after I'm out, so perhaps the cold will last longer. We'll see. Well, as many of you may remember, I am a leukemia patient also, so I was very worried about taking methotrexate with my Gleevec. I was almost NOT going to take it, but I contacted my former (genius) hemo/onc. (who went to St. 's from Henry Ford), and he called me back and explained EVERYTHING to me. I love that man,and losing him as a doctor was worse than having the disease. He REALLY knows everything; treats the WHOLE patient; is head of hemo/onc.; studied under Dr's Talpaz and Kantarjan at MD ; and ALWAYS has time for his patients - and apparently, his former patients - me. My current hem/onc at HFH NEVER has time for ANY patient (or the clinical trials girls) EVER. His appointments are 5 minutes in the room - zap, he's out - and you cannot contact him for ANYTHING EVER. Privately, the nurses and CT girls told me to contact my former hem/onc because they could not get an answer for the methotrexate/gleevec combo. Isn't that sad? Anyway, I believe I can switch to a different hemo/onc. I didn't think he took BCN insurance, but my former hemo/onc said he did. For those wondering why I just don't go to my former doctor - I can't. I'm in the clinical trial at HFH for Gleevec, and have been for 8 years. I get my $3000.00 dosage a month - free from the clinical trial, so I'd be nuts to leave. Now, I've been told that the ct is going to last for my lifetime, which means my drug will always be provided free (6 mo. supply at a time, as per the last 8 years), BUT, I will never be able to have my former hemo/onc back. At least he still helps me privately. I love that man. Well, Happy Mother's Day to all, and I hope you all have great Hemo/onc., Rheumatologists, etc... I'll find out Monday if I can switch to the other one at HFH. Thanks, **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
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