Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Dear Cheryl - Sitting in a huge pile of pity party isnt something to be ashamed of. We should all do it now and again, and rant and shout. Were not aliens with no feelings or emotions. It OK. I make a point of a having a mini-breakdown at least once every few weeks , for one it releases my feelings...I hate not being in control..and get fed up with being the strong one when all I want is someone to hug me. Ive realised Im not that strong as well, most of it is a big act. My family are a bit untidy and drop things on the floor and one day I just got so tired and more tired and just flipped...I brought in the garden rake and raked up everything that was on the floor and raked it into the garden and over to our cliff edge and biffed the lot over! Extreme yes but oh it felt so good. .. the family thought Id gone completely mad but I hadnt I was just fed up with everything and everyone. But as sure as night and day, the sun comes out again. The rake incident has become a huge family joke, with me laughing the loudest. Go to bed and go to sleep. Love Jan [ ] is this normal It is 1 AM, I can't sleep and all of a sudden I feel like everything is falling down around me. I feel like I am on the verge of a breakdown. I am so sick of going to the doctor, I am sick of feeling like crap, I am sick of everything. I feel all of a sudden paranoid, like all of the relationships with my friends and family are hanging by threads. I am feeling oversensitive and I am being incredibly harsh on myself but I can't stop. I know I am sitting here in a huge pile of pity party, but I have been expected to be strong through this whole liver disease crap. I am not strong, I am weak parading as strong. Perhaps this is the 'mood swing' aspect of medication. Sorry to dump on you all, I didn't know where else to go.Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Cheryl, Last year when I was on prednisone, I wish someone had told me about the mood swings!!! Not only that, from day to day I didn't know if I was on top of the world, or dragging my face in the gutter!! Of course, I thought it was everyone around me, especially my husband. Now that I'm off the prednisone and only on imuran, I really don't know how my family tolerated me. there is light at the end of tunnel, hang in there!! Love K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Dear Cheryl, Absolutely you are normal! I would venture to state that if you never felt that way you would be deluding yourself. But if it continues and the feelings stay on, go see the dr. He can check your meds, prescibe anitdepressant, or give you more information so that you can understand what is happening to you. Keep in touch with us, we care. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Hey come on now cheryl, you have every right to feel as you do. i know i feel like that alot. it doesnt matter how much of a fight you give it gets to us all. you are not oversensitive or harsh on yourself, but just normal. all of my relationships (including marriage) are hanging by threads, guy and me dont even live together and apart from my 2 children still at home and 1 best friend, i have no one except the group. you are a very strong person who is probably at a low point, but you will bounce back. we love you and you can moan and complain as much and as often as you want. we are happy to listen and give support, you have all done that for me. love, prayer and hugs anita > > From: Homeykat@... > Date: Fri 10/Jan/2003 06:11 GMT > > Subject: [ ] is this normal > > It is 1 AM, I can't sleep and all of a sudden I feel like everything is > falling down around me. I feel like I am on the verge of a breakdown. I am > so sick of going to the doctor, I am sick of feeling like crap, I am sick of > everything. I feel all of a sudden paranoid, like all of the relationships > with my friends and family are hanging by threads. I am feeling > oversensitive and I am being incredibly harsh on myself but I can't stop. I > know I am sitting here in a huge pile of pity party, but I have been expected > to be strong through this whole liver disease crap. I am not strong, I am > weak parading as strong. Perhaps this is the 'mood swing' aspect of > medication. Sorry to dump on you all, I didn't know where else to go. > > Cheryl > > __________________________________________________________________________ Freeserve AnyTime - Go online whenever you want for just £6.99 a month for your first 3 months, that's HALF PRICE! And then it's just £13.99 a month after that. For more information visit http://www.freeserve.com/time/ or call free on 0800 970 8890 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 nice one jan, tho am i abnormal, i have a least 3 breakdowns a day and counting. love anita > > From: " Ian & Janet " <ianjanaust@...> > Date: Fri 10/Jan/2003 07:59 GMT > < > > Subject: Re: [ ] is this normal > > Dear Cheryl - Sitting in a huge pile of pity party isnt something to be ashamed of. We should all do it now and again, and rant and shout. Were not aliens with no feelings or emotions. It OK. I make a point of a having a mini-breakdown at least once every few weeks , for one it releases my feelings...I hate not being in control..and get fed up with being the strong one when all I want is someone to hug me. Ive realised Im not that strong as well, most of it is a big act. My family are a bit untidy and drop things on the floor and one day I just got so tired and more tired and just flipped...I brought in the garden rake and raked up everything that was on the floor and raked it into the garden and over to our cliff edge and biffed the lot over! Extreme yes but oh it felt so good. .. the family thought Id gone completely mad but I hadnt I was just fed up with everything and everyone. But as sure as night and day, the sun comes out again. The rake incident has become a huge family joke, with me laughing the loudest. Go to bed and go to sleep. > Love Jan > [ ] is this normal > > > It is 1 AM, I can't sleep and all of a sudden I feel like everything is falling down around me. I feel like I am on the verge of a breakdown. I am so sick of going to the doctor, I am sick of feeling like crap, I am sick of everything. I feel all of a sudden paranoid, like all of the relationships with my friends and family are hanging by threads. I am feeling oversensitive and I am being incredibly harsh on myself but I can't stop. I know I am sitting here in a huge pile of pity party, but I have been expected to be strong through this whole liver disease crap. I am not strong, I am weak parading as strong. Perhaps this is the 'mood swing' aspect of medication. Sorry to dump on you all, I didn't know where else to go. > > Cheryl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 - just hang in there! It does get better. Once you have the surgery, you will feel a million times better. I know how disabling dizziness can be, but just hang in there. There are some websites on balance / dizziness that might be worth a look at. Do a Google search for balance and it'll bring one up. Hang in there - you'll be fine!elizabeth_sobotta2001 <elizabeth_sobotta2001@...> wrote: I swear it getting worse. I have 24 more days to surgery. I am so dizzy and nausea. Pain around the right is in unbearable and no pain med are touching it. Headache from hell. Sometimes it feel my right side of the face is numb. How do you make it to surgery? Going to the er is out of the question because dr do not know anything about being dizzy. Been there and done it. Am I on bed rest till then. It is scarey to know i got something growing in my ear. My dr told me it is slow growing and not to worry. I just gradurated from college and bills are piling up becuase I can not work or know when it will be safe to work. My dr say part time with flexible hours for up to a year after the surgery till the reconstruction is done. Just to take it easy till surgery. This sucks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 I am on week 4 post surgery. I am working light duty at work for 4 hours. I get extremely tired and have to take a nap after work each day. I was told to be patient with recovery; that it takes time. Best wishes to you. Conrad > Today is two week since surgery. I know everybody heals different. > I have no energy and it seems to be getting worse not a little bit > everyday. My packing is coming out Tuesday. I am so scared but can not > wait for it to go. I know the nerves are trying to work because of the > pain today. I just want to be able not to suck on quarters and taste > food. Be able to have energy to do something. I am only able to get a > few chores done a day. It was all I could do to cut grass today. We > have a small yard to cut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 , Hang in there, it will get better. I am about 10 weeks post op and have had two previous surgeries. Each one of my surgeries was different with regard to healing. After my second surgury I was "messed up" for a good two weeks. Don't be worried about the packing, it will feel better when it comes out (it will feel a bit odd and may even hurt a bit, but you'll feel better after). Good Luck, Rich From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of elizabeth_sobotta2001Sent: Thursday, July 28, 2005 11:05 PMcholesteatoma Subject: Is this normal Today is two week since surgery. I know everybody heals different.I have no energy and it seems to be getting worse not a little bit everyday. My packing is coming out Tuesday. I am so scared but can not wait for it to go. I know the nerves are trying to work because of the pain today. I just want to be able not to suck on quarters and taste food. Be able to have energy to do something. I am only able to get a few chores done a day. It was all I could do to cut grass today. We have a small yard to cut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 I had CWU and my ear stopped draining after about two weeks. It's been five months since my surgery and I still have shooting pains that last up to a minute or two; I've been told this is normal and will go away with more time. Missy > When does the drainage stop. I am almost a month out from surgery. It > draining. Dr told me it is some medicine coming out. Every since the > packing was moved from the ear canal. It just drain. It wakes me up at > night. It dry up and block the drainage and irate the ear. I clean it > out and back it goes. > Dr told me putting drops in my ear would not hurt. Bull it hurts. I was > using it before surgery and had me up at night in pain. Dr told me it > hurts because of the infections and hole in the ear drum. It starting > it again. There no holes or infection in there now. What causing it to > hurt. It wakes me up at night I will be on the phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 is this normal Hi Ethel and to the rest of the group: I'm experiencing a new phenonom in getting these SD numbers down. I thought if anyone would know the answer someone in the group would. The last blood test came back with the anticentemer (sp) numbers at 297, my ANA is still at 1,200. We switched the antibiotic from flagyll to doxy. I started the doxy (2X a day 3X a week and am experiencing a flair (swollen hands, the awful itch, etc). The flagyl is an anti-fungal. The flare after starting doxy could be a Herxheimer reaction, or the doxy may not be working allowing an exacerbation of the disease. (Did you switch from Minocin to doxy?) The itching, as you know, could be a Herxheimer reaction. For some time I've had a very stressful schedule (work, grad school and an ill mother). However even with these circumstances the numbers were going down. Feel good other than the hands. None of this happened prior to changing to doxy. I would have thought that with 297 as the test result, that a lot of those critters would be gone. Continual stress will eventually take it's toll. Stress lowers the immune system and those critters are just waiting for an opportune time to strike again. Ethel My original thought is it is a herx, but it seems awful strong. Is this a normal experience when switching to doxy? Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 I need to vent/whine or cry/im not sure what...I have felt better in the last month than I have since December...Taking Neurotin/plaquenil/celebrex and Chlord/Clidi....my hands started hurting a bit a couple of days ago/today I can barely move/my back hurts me so bad I may have to go home/my elbows are on fire...what is really happening/how one day im so good and now/im scarred and in pain....I think I am so mad right now...5 more hours of work...I just had to get it out/I cant tell the people here at work/or well I can but they dont understand because I was just laughing and joking yesterday...Sometimes they look at me like...what now...or whatever...not again...Thank you for listening/wising everyone a pain free day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 I have a rheummy that I have been seeing forever,and if I have an emergency I can call & nbsp; his nurse.I am always seen asap.Maybe this could work for you.Reception can only do so much,but they will give you the nurses extension.hope this helps:) Sherry Quote Link to comment Share on other sites More sharing options...
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