Re: New here and need help

[Guest guest]

Hi Theresa,

I have SLE, too. I found a great dr. by calling Great Smokies Lab

(www.gsdl.com/). She uses both prescriptions and supplements to bring all

the imbalances into balance. She believes I am " fixable, " and I am starting

to believe her lol. After only a short time, so much has been healed and/or

improved. So, there are dr.s out there who will work with you on yeast, and

the like...you just gotta call around and find them.

Good luck,

Annette

[Guest guest]

Hi and welcome!  There are tons of people in the group from MI.  I grew up

in central, MI and went to college in Ann Arbor.  Has your doc considered a

biologic or even a DMARD like Plaquenil or Methotrexate?  Do you see a

rheumatologist or a regular internist/family practice doc?

Kate F

[ ] New here and need help

Hi I'm new here and was just diagnosed last week. I'm 31, live in

Michigan and hitting a road block right now.

I was put on a med that was awesome, a NSAID. My inflamation got so

much better and I could do my physical therapy with not many problems

and get on my elliptical for 5 mins twice a day to start. Then about

2 weeks in I had an allergic reaction to the med. I'm allergic to

asprin. So now I've been back and forth with the doc office on the

phone and am told there is no help except pain pill management. Every

arthritis med has asprin. This is so upsetting and depressing. I do

not want pain meds I want to control the inflamation so I can

function, not be zoned out all the time. I can barely walk my joints

have flaired up so much in the last few days. Does anyone know of

anything that will help? I can not be the only person to be allergic

to asprin who has RA. We are going to try prescription Motrin since I

seem to be able to take that over the counter without any problems

but they're saying it's a last resort and I'm not actually supposed

to take that either because of the allergy. I have celiac disease and

it is causing so many other problems for me like the RA.

Thanks,

[Guest guest]

>

> Hi and welcome! There are tons of people in the group from MI.

I grew up in central, MI and went to college in Ann Arbor. Has your doc

considered a biologic or even a DMARD like Plaquenil or Methotrexate?

Do you see a rheumatologist or a regular internist/family practice doc?

> Kate F

>

>

>

> [ ] New here and need help

>

>

> Hi I'm new here and was just diagnosed last week. I'm 31, live in

> Michigan and hitting a road block right now.

> I was put on a med that was awesome, a NSAID. My inflamation got so

> much better and I could do my physical therapy with not many problems

> and get on my elliptical for 5 mins twice a day to start. Then about

> 2 weeks in I had an allergic reaction to the med. I'm allergic to

> asprin. So now I've been back and forth with the doc office on the

> phone and am told there is no help except pain pill management. Every

> arthritis med has asprin. This is so upsetting and depressing. I do

> not want pain meds I want to control the inflamation so I can

> function, not be zoned out all the time. I can barely walk my joints

> have flaired up so much in the last few days. Does anyone know of

> anything that will help? I can not be the only person to be allergic

> to asprin who has RA. We are going to try prescription Motrin since I

> seem to be able to take that over the counter without any problems

> but they're saying it's a last resort and I'm not actually supposed

> to take that either because of the allergy. I have celiac disease and

> it is causing so many other problems for me like the RA.

>

> Thanks,

>

>

>

>

> Welcome to our group . I live in Florida, and I also have RA,

and can't take aspirin or motrin. I take Prednison, Mtx. injections,

Placquenal, Sulfasalazine, Leucovorin, cal. w/ vit. D., Actonal,

Magnesium, for my RA. I take prescrip. meds. for pain when I need them

during a bad flare up. I have never been zoned out, nor would I want to

be. My PCP sent me to my Rheumy, and she takes care of the RA. You

might consider seeing a Rheumy. I hope this info. helps, and I hope you

will be feeling much better soon. Wishing you a pain free day.

Hugs,

Barbara

>

>

>

>

[Guest guest]

HI JAMIE & WELCOME! i have just read your post, im so SORRY for the pain you are

going through. i know how you feel, it sux! i can't take aspirin either but i do

take prescribed meds from my drs.(plaquenile,folic acid,

mtx,lexapro,xanax,ambien,neurotin,vit.d,citrical,forteo

injections,lortab,skelaxin,etc.) some of the meds i take are for depression as

are they for pain.... its soo hard when you cant function & your in severe pain

& cant walk... i have been living that way for over 30 yrs now & its not

pleasant!!! i wake up in pain & go to bed in pain or should i say i get in bed

but dont SLEEP cuz of the pain.... yes its very upsetting & depressing

especially when they cant find a med. that would help your pain, jamie. i wish

you the BEST OF LUCK & may god bless you. melyndagamaez 6/3/08 8:14p.m.central

[ ] New here and need help

>

>

> Hi I'm new here and was just diagnosed last week. I'm 31, live in

> Michigan and hitting a road block right now.

> I was put on a med that was awesome, a NSAID. My inflamation got so

> much better and I could do my physical therapy with not many problems

> and get on my elliptical for 5 mins twice a day to start.. Then about

> 2 weeks in I had an allergic reaction to the med. I'm allergic to

> asprin. So now I've been back and forth with the doc office on the

> phone and am told there is no help except pain pill management. Every

> arthritis med has asprin. This is so upsetting and depressing. I do

> not want pain meds I want to control the inflamation so I can

> function, not be zoned out all the time. I can barely walk my joints

> have flaired up so much in the last few days. Does anyone know of

> anything that will help? I can not be the only person to be allergic

> to asprin who has RA. We are going to try prescription Motrin since I

> seem to be able to take that over the counter without any problems

> but they're saying it's a last resort and I'm not actually supposed

> to take that either because of the allergy. I have celiac disease and

> it is causing so many other problems for me like the RA.

>

> Thanks,

>

>

>

>

> Welcome to our group .  I live in  Florida, and I also have RA,

and can't take aspirin or motrin.  I take Prednison, Mtx. injections,

Placquenal, Sulfasalazine, Leucovorin, cal. w/ vit. D., Actonal,

Magnesium, for my RA.  I take prescrip. meds. for pain when I need them

during a bad flare up.  I have never been zoned out, nor would I want to

be..  My PCP sent me to my Rheumy, and she takes care of the RA.  You

might consider seeing a Rheumy.  I hope this info. helps, and I hope you

will be feeling much better soon.  Wishing you a pain free day.

Hugs,

Barbara

>

>

>

>

[Guest guest]

Hi,

I live in Ypsilanti, Michigan. There's quite a group of us here -

perhaps the lack of sunlight contributes.

I've tried a number of the medications mentioned by others. All have

helped. I have some trouble finding something without side effects

that I can tolerate. Now I'm on Enbrel. I see a Rhuematologist out of

Ann Arbor and Brighton who has always been very positive about the

many treatment options available. So, definitely see a Rhuematologist

who can help you find a medicine that works for you.

Blessings, Elaine

[Guest guest]

Hi Kate.

I'm in southwest MI. I didn't grow up here but we have been here 15 years now. I

really enjoy the winters here. In Ohio we did not get the snow we do here. I see

my doc in 2 weeks for a complete physical and new blood work. I'm so new to all

of this I am not familiar with what you mentioned. I see an internist and am

thinking I need to see a rheumatologist. Right now I'm on 600mg of Motrin 3

times a day and while things a feeling a little better I'm still in pain.

,,,,,,,,,,,,,,,,,,,,,,,,

Hi and welcome! There are tons of people in the group from MI. I grew up

in central, MI and went to college in Ann Arbor. Has your doc considered a

biologic or even a DMARD like Plaquenil or Methotrexate? Do you see a

rheumatologist or a regular internist/family practice doc?

Kate F

____________________________________________________________

Fly in style. Click here for information on private jets.

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uH1DrkmvXD3Sose1hQI0TNbQCG\

tSvrJNVYSsmjIlgYxMh5d/

[Guest guest]

Hi Jaimie!  My best friend from college lives in Grand Rapids, so we go there a

lot.  You're right about the snow, that lake effect stuff really is something!

Have you checked out the Arthritis Foundation's site?  www.arthritis.org  They

have some good things relevant to being newly diagnosed and they have a book on

RA that you can order which is really comprehensive.

Drugs can be divided into several classes.  Of course there are steriods which

can be used short term in higher doses, or longer term in lower doses.  Then

there's NSAIDs like Celebrex, Lodine, Motrin which reduce inflammation by

inhibiting prostagladins.  A jump up from that are Disease Modifying

Antirheumatic Drugs which actually slow the progression of RA and are considered

joint sparing treatments.  DMARDs include Plaquenil and Methotrexate (and I'm

sure others that I'm not thinking of).  In the late 90's a new class of drugs

called biologics were introduced.  They work higher in the chain of inflammation

to reduce RA symptoms and protect joints.  They suppress the immune system, so

you have to be sure you don't have a latent infection like TB before starting

them.  They are administered either by injection or by infusion in the office. 

For me, weekly injected Enbrel has been *magical*.  I feel like a new girl on

it.  I think their site

is www.enlivenservices.com or try www.enbrel.com . 

Soon you'll have all this drug info and lab stuff down cold.  Hang in there, the

first 6 mos of diagnosis and trying to find a treatment plan that works is

challenging.  Soon, it will be old hat.

Oh, and on the MD front, it's a good idea to have a rheumatologist managing

you.  They are MDs/DOs who go through an internal medicine residency and then do

advanced training in rheumatic diseases.  They are the most up to date and if

you want a biologic, you have to see them, rather than a general internist.

Keep me posted on how you're doing!

Kate

[ ] RE: new here and need help

Hi Kate.

I'm in southwest MI. I didn't grow up here but we have been here 15 years now. I

really enjoy the winters here. In Ohio we did not get the snow we do here. I see

my doc in 2 weeks for a complete physical and new blood work. I'm so new to all

of this I am not familiar with what you mentioned. I see an internist and am

thinking I need to see a rheumatologist. Right now I'm on 600mg of Motrin 3

times a day and while things a feeling a little better I'm still in pain.

,,,,,,,,,,,, ,,,,,,,,, ,,,

Hi and welcome! There are tons of people in the group from MI. I grew up

in central, MI and went to college in Ann Arbor. Has your doc considered a

biologic or even a DMARD like Plaquenil or Methotrexate? Do you see a

rheumatologist or a regular internist/family practice doc?

Kate F

____________ _________ _________ _________ _________ _________ _

Fly in style. Click here for information on private jets.

http://thirdpartyof fers.netzero. net/TGL2241/ fc/Ioyw6i4uH1Drk mvXD3Sose1hQI0TN

bQCGtSvrJNVYSsmj IlgYxMh5d/

[Guest guest]

Hi !

Welcome to the group! I have lived in southwest michigan my entire life except

for when living in NY and NJ. I live right on Lake Michigan with 2 other lakes

just down the street. The winters and extreme cold here kill me with the

inflammatory arthritis and pain. I have Fibromyalgia as well, and Reynaud's

which the cold weather is rough on! The humidity that is now kicking in does

not help the pain either, so its a no win at times! Good luck on the upcoming

lab work and physical exam! I hope they are able to find the cause and to begin

you on a treatment to help decrease the pain

<jaayimee@...> wrote: Hi Kate.

I'm in southwest MI. I didn't grow up here but we have been here 15 years now.

I really enjoy the winters here. In Ohio we did not get the snow we do here. I

see my doc in 2 weeks for a complete physical and new blood work. I'm so new to

all of this I am not familiar with what you mentioned. I see an internist and am

thinking I need to see a rheumatologist. Right now I'm on 600mg of Motrin 3

times a day and while things a feeling a little better I'm still in pain.

,,,,,,,,,,,,,,,,,,,,,,,,

Hi and welcome! There are tons of people in the group from MI. I grew

up in central, MI and went to college in Ann Arbor. Has your doc considered a

biologic or even a DMARD like Plaquenil or Methotrexate? Do you see a

rheumatologist or a regular internist/family practice doc?

Kate F

__________________________________________________________

Fly in style. Click here for information on private jets.

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uH1DrkmvXD3Sose1hQI0TNbQCG\

tSvrJNVYSsmjIlgYxMh5d/

[Guest guest]

Welcome Barb! I wouldn't say that *all* of the EMF pendants are a scam,

because some people have seen definite improvements from specific

pendants/devices. However, there is nothing that seems to work for

everyone.

As for a Home Protector, a good one is the " Quantum Home " from

QuantumProducts.com, but this may fall into the " too expensive "

category for you? I think all of the home protectors are pretty

expensive, unless you do something like put Tachyon silica discs

on your fuse box (which may or may not help).

I have NOT seen a lot of success stories here with the Q-Link.

So that might be something you should skip, even though I realize

they have a large marketing budget. A good cheap place to start

might be a " Personal Polarizer " from cutcat.com or a RADAR card

from radar3.com

Marc

On Fri, 02 Oct 2009 18:11:49 -0000, " barbpom2000 " <barbpom2000@...> said:

> Hi Everyone,

> I am just learning all about EMF. It is confusing with so much out there

> to read. On the flip side I have also been reading that these pendants

> are a scam. I do believe EMF are real. But looking for something that

> would protect my home is difficult. I have no idea where to look. SO

> items are really expensive. I cannot afford those high end items. Can

> someone give me a place to look to possibly order a home protector. I

> have seen some you plug into the wall. Are they effective? I have read up

> on the Q links, pros and cons, which make me more confused on what to

> get. I am not real technical at all, so I hope you can bear with me on

> this. Thank you all so much for your help.

[Guest guest]

Hello Barb -

What you will soon learn - what works for you is dependent upon your genes -

The chinese recently discovered the defective gene that allows kids to get

leukemia. The children with defective genes cannot repair the DNA damage caused

by the EMF from power lines.

Scientists now know that cell phones do effect the DNA and can cause cancer -

but they can't agree upon how it happens. Does the radiation stop the DNA from

repairing itself or does it damage the DNA directly. Do people have different

defective genes that can't fight the damage from electropollution? This is where

the science now leads us.

My dad was a raydar cop that sat in his squad car with the ray gun in his lap

which in turn radiated his sex organs. His CB radio was beside him 6 hours a

day, allways on -always listening to calls for help. I was born

electrosensitive. My dad died of brain cancer.

Everytime I went to the dentist for fillings my teeth became loose - I was

allergic to mercury in the fillings. I just thought that was a normal part of

going to the dentist.

Pay attention to the cell phone warnings because they are real. I filmed the

senate hearings a few weeks ago that dealt with cell phones and brain cancer.

Scarry stuff and it's real.

So - where to start.

Last year - I made a documentary for Deepak Chopra.

Here is what Deepak Chopra says about Q-link

" We have found that you and your Q-Link begin to create a linked energy system

over time - a sympathetic resonance effect, to use the technical term. This

effect reinforces and enhances specific life-supporting energies in your

biofield.

Occasionally, customers do not feel any effects at all. However, when we examine

these individuals with various tests, we find beneficial changes that they

simply haven't noticed.

" I feel quite invigorated wearing it. "

Deepak Chopra, M.D.

I bought one 15 years ago and wear it every day and swear by it. I sit in front

of computers making documentaries and scientific reports about EMF almost 12

hours a day. I became very hypersensitive to electricity. The Q-link kept me

awake but that is not enough to keep the cancer away.

Your best bet is to turn off the power in your house when you sleep at night.

Just find a way to keep the fridge and heat going. When you sleep in an

environment free of electropollution - your DNA will heal from the bombardment

of radiation from our environment.

Camping is a great way to heal and get grounded to the earth.

During the day, use stetzer filters in your outlets to remove the frequencies

that are harmful to the human body. I have seen people that have multiple

sclerosis been cured. Mr Stetzer is an amazing man that was an electrician for

farmers who could not keep their cows alive because of the ground current and

" dirty electricity " that is pumped through the earth and into the barn and into

the cows by utility companies. He found ways to mitigate that problem on farms

- and his research is now being incorporated into dairy farms all over the world

and laws were just passed to protect farmers in Canada. But those laws only

work for farmers. You need to do the same thing in your home....

Just like the q-link - You may feel nothing different when you use these Stetzer

filters in your home - but do understand you are removing very harmful radiated

frequencies from the wireing in that walls and your appliances and lights.

Read up on a man named Rife - and you will soon understand that the world of

cancer evolves and revolves around the electromagnetic fields in radio waves.

If breast cancer runs in your family - the defective gene again comes into play.

Radio waves love the human body and you absorb them like a sponge. These waves

like the metals in your cells that carry electrical impulses throughout your

nervous system and they attach themselves to them and do damage to the DNA.

You need to detox the harmful heavy metals in your mouth, body and brain -

especially the mercury. A good dentist and Far infrared saunas and sweat lodges

are wonderful for this. It's fun - sweat the metals out, but make sure to

replenish the minerals that are lost -especially magnesium- so important to the

functioning of the cells electromagnetic property.

Pulsating Electromagnetic Field Therapy is emerging quickly as a way of helping

people with magnetic deficiency syndrome. Mats like the MRS2000, and the QRS

are expensive devises but have amazing powers to cure electrical problems in

your nervous system. I tried them all and then bought them too and these are

healing machines right out of Star trek and they do work miracles. These PEMF

devises are just now becoming FDA approved after many years of being limited

only for use on animals. Times are changing..

The most important thing to remember is - Everyone is different - somethings

work for some people - other things don't because we are all different. It's

really trial and error.

You need to do the research and it's confusing and contradictory as the

Government and Industry attempt to keep us in the dark about what is really

causing cancer and our illness- EHS.

But

The Q-link was the beginning for me.......It works for me.

[Guest guest]

Hi, Barb,

 

Welcome to the group!  I have a Quantum Pro.  It works great for me.  It was

very expensive ($500) but came with a 60 day return policy.  The company has a

less pricey model called the Quantum Home that I do not recommend (It doesn't

have all the fine settings mine does and the setting which works best for me

isn't even on it, if I recall correctly.)  I also tried the Quantum Companion,

which I returned, as that didn't meet my needs.  (But Marc owns this one and

likes it.)  Without the Q Pro I was unable to live in my house, so it was well

worth it and saved me selling the place.  I have planned to try a couple of the

inexpensive portable things such as the personal polarizer but have not gotten

around to ordering them yet. 

Hope you find something that works well for you,

Diane

From: barbpom2000 <barbpom2000@...>

Subject: New here and need help

Date: Friday, October 2, 2009, 2:11 PM

 

Hi Everyone,

I am just learning all about EMF. It is confusing with so much out there to

read. On the flip side I have also been reading that these pendants are a scam.

I do believe EMF are real. But looking for something that would protect my home

is difficult. I have no idea where to look. SO items are really expensive. I

cannot afford those high end items. Can someone give me a place to look to

possibly order a home protector. I have seen some you plug into the wall. Are

they effective? I have read up on the Q links, pros and cons, which make me more

confused on what to get. I am not real technical at all, so I hope you can bear

with me on this. Thank you all so much for your help.

Barb

[Guest guest]

> I also tried the Quantum Companion, which I returned, as that didn't

> meet my needs.  (But Marc owns this one and likes it.) 

The Quantum Companion is admittedly weak... although using two at

the same time is stronger than one! The Quantum Pro is much

stronger, although I think it may be too strong for some households.

I just got the newer/stronger/more adjustable Quantum Pro for my

workplace ... I would NOT want this is my house -- it's too strong!

Marc

[Guest guest]

Hi, Marc,

 

The Quantum Pro has so many settings, that I never thought it could be too

strong.  You can literally set it very low to very high on the dial.  Then on

the back of the unit, it has a button to fine tune the settings--18 in all.  So

I am surprised you think it is too strong, Marc!  Have you tried it very low in

your home, then?  I am quite surprised it was too strong for you.  My

understanding from the company rep I talked to is it is the same as the Q Home

except with more range and settings.  You also are advised by the company to use

the Q Pro if your home is larger than 1500 sq feet.  My house is 1000sf main

floor and 1000sf basement, so the rep recommended the Pro for me. 

 

Diane

From: Marc <marc@...>

Subject: Re: New here and need help

Date: Saturday, October 3, 2009, 2:08 AM

 

> I also tried the Quantum Companion, which I returned, as that didn't

> meet my needs.  (But Marc owns this one and likes it.) 

The Quantum Companion is admittedly weak... although using two at

the same time is stronger than one! The Quantum Pro is much

stronger, although I think it may be too strong for some households.

I just got the newer/stronger/ more adjustable Quantum Pro for my

workplace ... I would NOT want this is my house -- it's too strong!

Marc

[Guest guest]

> The Quantum Pro has so many settings, that I never thought it could be

> too strong.  You can literally set it very low to very high on the dial. 

> Then on the back of the unit, it has a button to fine tune the

> settings--18 in all.  So I am surprised you think it is too strong, Marc!

Well, note that I was only a few feet away from the unit when I tried

it out at home. If I was in some other room, it would probably be fine.

I think that even at the low setting, the Quantum Pro is stronger than

the Quantum Home would be at the highest setting.

But the Quantum Pro seems fine at work, which is where I'm using it.

Marc

[Guest guest]

Wow Marc,

That is interesting!  If I am experiencing a frequency surge (happens sometimes

in the afternoon after all the kids and moms return home), I actually plug the

unit in next to me and it makes me feel normal again!  I even like to sleep with

it in my room.  I know we were discussing these units a few months ago and the

setting I always use was not actually on your Quantum Home.  Maybe because I

have an odd magnetic thing going on in my body (or that I react as a capacitor)

I " like " the stronger field more than people who are straight ES?  We should try

to break down the subsets of EMSers and see whether people with different

symptoms like particular products.  (But I have no idea how to go about that

right now since I am inudated with work at the moment.)

 

Thanks for your input, Marc,

Diane

From: Marc <marc@...>

Subject: Re: New here and need help

Date: Monday, October 5, 2009, 11:44 AM

 

> The Quantum Pro has so many settings, that I never thought it could be

> too strong.  You can literally set it very low to very high on the dial. 

> Then on the back of the unit, it has a button to fine tune the

> settings--18 in all.  So I am surprised you think it is too strong, Marc!

Well, note that I was only a few feet away from the unit when I tried

it out at home. If I was in some other room, it would probably be fine.

I think that even at the low setting, the Quantum Pro is stronger than

the Quantum Home would be at the highest setting.

But the Quantum Pro seems fine at work, which is where I'm using it.

Marc