Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Clora: I am happy for you that your Rheumy has you started on Pred., and then you will start either Enbrel or Humira!!! Great news! I sure hope this all goes well for you, and that you will be feeling much better soon. Also, praying for you to be pain free, as you've been through enough!!! I am leaving this Fri. to go home and see all my family and friends. Yeah!!!!!!!!!!!!!!!!! I will keep all of you in my prayers, and praying for everyone to have better days. You are all the best!!!! God Bless all of you.... Hugs, Barbara > > Group > Sue you crack me up laughing. haaaaaaa > I got some prednisone for 4 weeks. Rheumy ask me what i want the > enbrel or the humira. > > I said the one i get the shot every 2 weeks. I can do them myselves. > she also talked about coming in for some injections. I am eating now. > After I eat I WILL pot a prednisone. I am so happy. woo hoo. > > hugs everyone > gentle hugs > Clora > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 HI CLORA, I'M GLAD THINGS WORKED OUT FOR U. HOPE U CONTINUE TO FEEL GOOD. KEEP LAUGHING! GOD BLESS,MELYNDAGAMEZ 7/30/08 7:20P.M.CENTRAL [ ] Re:CLORA/ OT Clora: I am happy for you that your Rheumy has you started on Pred., and then you will start either Enbrel or Humira!!! Great news! I sure hope this all goes well for you, and that you will be feeling much better soon. Also, praying for you to be pain free, as you've been through enough!!! I am leaving this Fri. to go home and see all my family and friends. Yeah!!!!!!!!!!!!!!!!! I will keep all of you in my prayers, and praying for everyone to have better days. You are all the best!!!! God Bless all of you.... Hugs, Barbara > > Group > Sue you crack me up laughing. haaaaaaa > I got some prednisone for 4 weeks. Rheumy ask me what i want the > enbrel or the humira. > > I said the one i get the shot every 2 weeks. I can do them myselves. > she also talked about coming in for some injections. I am eating now. > After I eat I WILL pot a prednisone. I am so happy. woo hoo. > > hugs everyone > gentle hugs > Clora > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Mylenda and Group I am taking prednisone for a month, 10 mg the first 2 weeks, one a day. than 5 mg for 2 weeks one a day. And no more. I will start on humira in a month. Maybe I got to wait a month to get permission from my insurance company. Thanks Mylenda. keep writting your funny emails and I will keep laughing. I love to hear some one funny or happy. I know we can't be funny or happy everyday. Oh I know lol. but when one can it's great. Thanks group for all your kind words, I sure loved to hear them. Everyone is great in this support group, I appreciate everyone here. Barbara I finally got some relief. I took a prednisone about 5 hours ago. I feel so good. Hardly pain anywher. I am going to miss the prednisone. I hope the himura makes me feel this good. No, lol, I cant run around the yard. But I can get up without hollering in pain. woo hoo. love you guys Gently hugs to everyone Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Barbara and Group OMG, I havent felt this good in I don't know how long. Prednisone is soooooooo good. I will only get it for a month. After a month I go on humira injections every 2 weeks. I will do them myself. Or my husband can do them for me lol. Barbara have a fun holiday. I will miss you very much. Thanks for the kind words. Everyone has said such nice things to me. I am so glad I joined this group. I didnt believe in support groups. I am a do it on my own person. I was desperate. Wish I would have done it much sooner. gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Dear Clora. I am the cabana boy girl (or should I say old lady!). I am sending two your way via Fed Ex (including sand any Mai Tai's)/ Prednisone is the drug that we all love to hate. Several years ago they gave me HIGH dose prednisone because of my lungs. First of all, I blew up like a Macy's Day Thanksgiving Float and that was just eating hospital food. While I was on these high doses, I got diabetes and that is a whole other story. Well, they finally released me from that hospital ob a slow taper (one thing you DO NOT want to do is STOP abruptly because it can cause heart trouble that can kill you. However I was still ob a pretty high dose of prednisone when I came home and I was eating anything that wasn't nailed down (wallpaper, smalll chilldren and even our little dog looked good!). They finally kept me on a maintenance dose of 10mg. Oh, what I forgot to tell you is that I had NEVER felt bvetter in my life. I was registering in dance competitions, marathons.........WOWI I wiill be keeping my fingers crossed for your for success and pain free for which ever biologic you choose. Oh, by the way, the Mai Tai's are virgin........no calories. Watch for strange looking boxes from FL!!!!!!!!!!!!! Gentle, tender, optomistic angel hugs, Debs in FL [ ] Re:CLORA/ OT Mylenda and Group I am taking prednisone for a month, 10 mg the first 2 weeks, one a day. than 5 mg for 2 weeks one a day. And no more. I will start on humira in a month. Maybe I got to wait a month to get permission from my insurance company. Thanks Mylenda. keep writting your funny emails and I will keep laughing. I love to hear some one funny or happy. I know we can't be funny or happy everyday. Oh I know lol. but when one can it's great. Thanks group for all your kind words, I sure loved to hear them. Everyone is great in this support group, I appreciate everyone here. Barbara I finally got some relief. I took a prednisone about 5 hours ago. I feel so good. Hardly pain anywher. I am going to miss the prednisone. I hope the himura makes me feel this good. No, lol, I cant run around the yard. But I can get up without hollering in pain. woo hoo. love you guys Gently hugs to everyone Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 DEB, group AWe DEB, Bless your sweet heart. I love reading your post. You seem to tickle me everytime. I am so glad you warned me about stopping prednisone all at once,because it's dangerous to the heart. I have CHF now. I will follow the doctors instructions exactly. Wow Deb, I am so happy you feel so good. I want to feel that good. Hopefully I will, the prednisone is not working as good as the first few days. I hope the humira will be better. I want to have fun again. Not that cleaning house is fun. But I wish I could. I plan to go in a pool. I plan to walk down the street. All with out being in horrifying pain. woo hoo. I am very hopeful. Thank you so much for your post. Lol cabana girl sounds so fun. Tender gentle hugs everyone Clora > > Dear Clora. > > I am the cabana boy girl (or should I say old lady!). I am sending two > your way via Fed Ex (including sand any Mai Tai's)/ Prednisone is the > drug that we all love to hate. Several years ago they gave me HIGH > dose prednisone because of my lungs. > First of all, I blew up like a Macy's Day Thanksgiving Float and that > was just eating hospital food. While I was on these high doses, I got > diabetes and that is a whole other story. > > Well, they finally released me from that hospital ob a slow taper (one > thing you DO NOT want to do is STOP abruptly because it can cause heart > trouble that can kill you. However I was still ob a pretty high dose > of prednisone when I came home and I was eating anything that wasn't > nailed down (wallpaper, smalll chilldren and even our little dog looked > good!). They finally kept me on a maintenance dose of 10mg. Oh, > what I forgot to tell you is that I had NEVER felt bvetter in my life. > I was registering in dance competitions, marathons.........WOWI > > I wiill be keeping my fingers crossed for your for success and pain > free for which ever biologic you choose. > > Oh, by the way, the Mai Tai's are virgin........no calories. Watch > for strange looking boxes from FL!!!!!!!!!!!!! > > Gentle, tender, optomistic angel hugs, > > > Debs in FL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Clora, I enjoy reading your posts. There is just something about them. They are uplifting. This is a wonderful group but so busy I can't seem to keep up! By the time I'm ready to respond or reply to a subject talked about it seems like it's day's later! LOL! So I usually just dismiss what I have to say because people probably wonder what I'm talking about when the subject has past weeks ago! LOL! Well anyway I just wanted you to know that your posts stand out for me and they make me smile or feel good. And also can relate so much! I know what you mean when you say you go into doctors acting like you are okay and not showing your full pain. It is almost like we have to give up are dignity to get taken seriously. Did I say that right! LOL! And about the bath tub. Oh yea... It is getting real hard to take a bath. I'm afraid to try it when I'm home alone. I might not get back out! The marina that my husband keeps his boat at has a swimming pool and spa. My oh my the pain does seem to disappear under water! We are thinking about getting a spa next year for home. But husband is worried it cost too much to care for. But he is willing to get it if it helps me. About the Predisone... When I was first went to doc to see what was wrong with me she gave me a 6 day packet of that while they waited for test results. Started out high dose and slowly lessen the does until the 6 day's were up. I couldn't believe how the pain went away! I was pain free the whole time I was taking that stuff. But as soon as it ran out I was back in misery. When I went back for my second doctors appt. she diagnosed me with RA. Gave me another packet of predisone and after that was gone she gave me a couple prescriptions to take. Once a day 5 mg Predisone and 2 x a day Nabumetone 500 mg. Darvocet for wen the pain is unbearable. Then tells me she'll see me in 6 months. Almost like this: " You have RA, take these pills and come back in 6 months " LOL! Well, what ever is happening to me is getting worse by the day. I've already mention that it's murder getting out of bed. Not only do the feet, toes, ankles hurt. Can't use hands or arms for support to walk or lift myself out of bed because they feel shot too! It is hard just to roll over when laying down. Sometimes can't even lay on one sides or another. My neck acts up every other day and my shoulders seem to take turns with the agony. It's getting to the point where they are hurting at the same time. I really don't know how I'm going to work without at least one arm to raise. And hands are weak and wrist and fingers oh my! I told husband we may need to get rid of our 3 horses. Hard for me to take care of them anymore. The darvocet doesn't work for the pain. I called over and over again to speak to doc. I had to ask her if I could have something stronger for the pain and aren't I supposed to be seeing a specialist. About 3 weeks later she gets the message back to me that the best they can do is give me Tylenol 3's. And that she is hooking me up with specialist. And that she can't do anymore for me. So I have apt 28th of August. I pray to god he takes me serious! My daughter has to put up my hair for me to go to work. I limp to work and use one arm. I don't know how long that is going to last because it is getting hard to lift both arms now. My daughter has to help me get undressed and get dressed and so on. Wow! I really got carried away here. I only meant to tell you that you were appreciated! LOL! so sorry! So far this has been the best support group I've came across. It is just too busy to keep up with everyone because there are so many wonderful people on this list. I want to respond to them all! But there are so many members I can't keep track of who is who! LOL! But your post stands out! That is a good thing! Thank you for listening and Bless your heart! Michigan **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 , Please excuse me for butting in, but I hope your appointment coming up is with a rheumatologist. What your doc gave you may address the inflammation and pain, but does not do anything for the progression of RA. Making you wait six months, I think, is ridiculous! Sorry, I know you didn't ask for my opinion, but that is horrible. I just don't want anyone with RA to have to wait to get medications that might put you into remission or stop the progression. No one should have to suffer when there could be something that will help. I don't have any idea why the 6 month wait. I am so sorry that your RA was not taken more seriously. My GP told me to come back when I had another flare. I came home did some research, made another appt. with him and when I finally got back in, told him no, I won't wait. Give me a referral now. It still took 3 mos. to see my rheummy but I am so glad that I did not let him put me off longer. I am pulling for you. I hope that you get a good rheummy and that he is agressive like mine. Shirley > > Clora, > > I enjoy reading your posts. There is just something about them. They are > uplifting. > This is a wonderful group but so busy I can't seem to keep up! By the time > I'm ready to respond or reply to a subject talked about it seems like it's > day's later! LOL! So I usually just dismiss what I have to say because people > probably wonder what I'm talking about when the subject has past weeks ago! > LOL! > > Well anyway I just wanted you to know that your posts stand out for me and > they make me smile or feel good. And also can relate so much! > > I know what you mean when you say you go into doctors acting like you are > okay and not showing your full pain. It is almost like we have to give up are > dignity to get taken seriously. Did I say that right! LOL! > > And about the bath tub. Oh yea... It is getting real hard to take a bath. > I'm afraid to try it when I'm home alone. I might not get back out! > > The marina that my husband keeps his boat at has a swimming pool and spa. > My oh my the pain does seem to disappear under water! We are thinking about > getting a spa next year for home. But husband is worried it cost too much to > care for. But he is willing to get it if it helps me. > > About the Predisone... When I was first went to doc to see what was wrong > with me she gave me a 6 day packet of that while they waited for test results. > Started out high dose and slowly lessen the does until the 6 day's were up. > I couldn't believe how the pain went away! I was pain free the whole time I > was taking that stuff. But as soon as it ran out I was back in misery. > > When I went back for my second doctors appt. she diagnosed me with RA. Gave > me another packet of predisone and after that was gone she gave me a couple > prescriptions to take. Once a day 5 mg Predisone and 2 x a day Nabumetone > 500 mg. Darvocet for wen the pain is unbearable. Then tells me she'll see me > in 6 months. Almost like this: " You have RA, take these pills and come > back in 6 months " LOL! > > Well, what ever is happening to me is getting worse by the day. I've > already mention that it's murder getting out of bed. Not only do the feet, toes, > ankles hurt. Can't use hands or arms for support to walk or lift myself out > of bed because they feel shot too! It is hard just to roll over when laying > down. Sometimes can't even lay on one sides or another. > > My neck acts up every other day and my shoulders seem to take turns with the > agony. It's getting to the point where they are hurting at the same time. > I really don't know how I'm going to work without at least one arm to raise. > > > And hands are weak and wrist and fingers oh my! > > I told husband we may need to get rid of our 3 horses. Hard for me to take > care of them anymore. > > The darvocet doesn't work for the pain. I called over and over again to > speak to doc. I had to ask her if I could have something stronger for the pain > and aren't I supposed to be seeing a specialist. About 3 weeks later she > gets the message back to me that the best they can do is give me Tylenol 3's. > And that she is hooking me up with specialist. And that she can't do anymore > for me. So I have apt 28th of August. > > I pray to god he takes me serious! My daughter has to put up my hair for me > to go to work. I limp to work and use one arm. I don't know how long that > is going to last because it is getting hard to lift both arms now. > My daughter has to help me get undressed and get dressed and so on. > > Wow! I really got carried away here. I only meant to tell you that you > were appreciated! LOL! so sorry! > > So far this has been the best support group I've came across. It is just > too busy to keep up with everyone because there are so many wonderful people on > this list. I want to respond to them all! But there are so many members I > can't keep track of who is who! LOL! But your post stands out! That is a > good thing! > > Thank you for listening and Bless your heart! > > Michigan > > > > > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > (http://autos.aol.com/cars-BMW-128-2008/expert-review? ncid=aolaut00050000000017 ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Hi Shirley and group, Your opinions are more than welcome! That is why I joined this group. Yeah... I didn't really know what RA was all about until I joined this group. I've learn so much. Right away from reading everyones post I got the impression that I need a specialist. That is when I called doctor and said I needed on. So, yes the next appointment later this month is with a Rheumatologist. But I don't think she was going to refer me to one if I didn't ask. She was just going to have me come back in 6 months! LOL! Wow! For what??? To see how far the RA has progressed? LOL! I have a feeling that I've had RA for quite awhile. Since years ago I've had crippling pain in one joint or another but I always past it off as maybe I slept on it wrong or maybe I pulled a muscle without realizing it. And I'm not one to go to doctors unless I feel it is something real serious. Well, the pain and the lack of ability to move one limb or another has become so often now it can't be ignored. I can't wait to go see the Rheumatologist now. I would like to know exactly what is going on. My doctor did no more than ran tests and came up with the RF. Thank you Shirley for your words of encouragement. They meant a lot. michigan > > > > Clora, > > > > I enjoy reading your posts. There is just something about them. > They are > > uplifting. > > This is a wonderful group but so busy I can't seem to keep up! By > the time > > I'm ready to respond or reply to a subject talked about it seems > like it's > > day's later! LOL! So I usually just dismiss what I have to say > because people > > probably wonder what I'm talking about when the subject has past > weeks ago! > > LOL! > > > > Well anyway I just wanted you to know that your posts stand out > for me and > > they make me smile or feel good. And also can relate so much! > > > > I know what you mean when you say you go into doctors acting like > you are > > okay and not showing your full pain. It is almost like we have to > give up are > > dignity to get taken seriously. Did I say that right! LOL! > > > > And about the bath tub. Oh yea... It is getting real hard to take > a bath. > > I'm afraid to try it when I'm home alone. I might not get back > out! > > > > The marina that my husband keeps his boat at has a swimming pool > and spa. > > My oh my the pain does seem to disappear under water! We are > thinking about > > getting a spa next year for home. But husband is worried it cost > too much to > > care for. But he is willing to get it if it helps me. > > > > About the Predisone... When I was first went to doc to see what > was wrong > > with me she gave me a 6 day packet of that while they waited for > test results. > > Started out high dose and slowly lessen the does until the 6 > day's were up. > > I couldn't believe how the pain went away! I was pain free the > whole time I > > was taking that stuff. But as soon as it ran out I was back in > misery. > > > > When I went back for my second doctors appt. she diagnosed me > with RA. Gave > > me another packet of predisone and after that was gone she gave > me a couple > > prescriptions to take. Once a day 5 mg Predisone and 2 x a day > Nabumetone > > 500 mg. Darvocet for wen the pain is unbearable. Then tells me > she'll see me > > in 6 months. Almost like this: " You have RA, take these pills > and come > > back in 6 months " LOL! > > > > Well, what ever is happening to me is getting worse by the day. > I've > > already mention that it's murder getting out of bed. Not only do > the feet, toes, > > ankles hurt. Can't use hands or arms for support to walk or lift > myself out > > of bed because they feel shot too! It is hard just to roll over > when laying > > down. Sometimes can't even lay on one sides or another. > > > > My neck acts up every other day and my shoulders seem to take > turns with the > > agony. It's getting to the point where they are hurting at the > same time. > > I really don't know how I'm going to work without at least one > arm to raise. > > > > > > And hands are weak and wrist and fingers oh my! > > > > I told husband we may need to get rid of our 3 horses. Hard for > me to take > > care of them anymore. > > > > The darvocet doesn't work for the pain. I called over and over > again to > > speak to doc. I had to ask her if I could have something stronger > for the pain > > and aren't I supposed to be seeing a specialist. About 3 weeks > later she > > gets the message back to me that the best they can do is give me > Tylenol 3's. > > And that she is hooking me up with specialist. And that she > can't do anymore > > for me. So I have apt 28th of August. > > > > I pray to god he takes me serious! My daughter has to put up my > hair for me > > to go to work. I limp to work and use one arm. I don't know how > long that > > is going to last because it is getting hard to lift both arms now. > > My daughter has to help me get undressed and get dressed and so > on. > > > > Wow! I really got carried away here. I only meant to tell you > that you > > were appreciated! LOL! so sorry! > > > > So far this has been the best support group I've came across. It > is just > > too busy to keep up with everyone because there are so many > wonderful people on > > this list. I want to respond to them all! But there are so many > members I > > can't keep track of who is who! LOL! But your post stands out! > That is a > > good thing! > > > > Thank you for listening and Bless your heart! > > > > Michigan > > > > > > > > > > > > **************Looking for a car that's sporty, fun and fits in > your budget? > > Read reviews on AOL Autos. > > (http://autos.aol.com/cars-BMW-128-2008/expert-review? > ncid=aolaut00050000000017 ) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 , and group; Omg how sweet, I got tears building in my eyes. YOu discribe it just as if I was writtin it. So many people think. Look at her she looks fine, In reality we are in serious pain. I know exactly what you mean. No one I know understands not even my doctors. I guess they can't dwell on our pain they would be going home crying too. They do only what we convey to them in our body language. Of course the test also. But we know. I thought it was only me. I thought my God in heaven other people are not like this. We are here. Not that I would ever want any animail or human to suffer like this. I almost cried the last rheumy visit telling her my pain. My husband over did it lol.. He said yea I got to do everything for her, he said it a couple times haaaaaaaaaaaaa. I was thinking ok hon thats good enough. haaaaaaa. Yes the prednisone is pretty good. Woo hoo, I heard the humira is really good for most of the group. I start in about 2 weeks. Haaaaaaaaa, yes you said it right. It was perfect. I hope you get your spa. I really really pray we all get relief from this pain and weakness. I pray we all get healed. In the name of Jesus. Yes , It was murder to just get out of bed. What is really weird when I woke up I felt like crappy. I didnt want to get out of bed at all. I knew I had to. It was like a slow motion dread. Its a lot better, since I got the prednisone a week or so ago. I am not pain free, but its a tolerable level. Thank you so much,. and group I applaud everyone for their kindness and understanding. When I first found the group I was a little undecided but I needed information about RA. I had no idea everyone knew exactly what I meant about RA. I read post that sound just like my experiences with RA and Fibro. I have fibro, I think most of my adult life. I was just diagnosed about 5 years ago for fibro. Your post is great. I loved it. Everyone seems to write my thoughts haaaaaaaaaaa. I was in awe in the beginning when I fisrt read all the post. Wow thats exaclty what happens to me is much of my thoughts as I read the post.. Or sometimes its OMG WOW, I didnt know that. hugs gently to the group Clora > Clora, > I enjoy reading your posts. There is just something about them. They are > uplifting. > This is a wonderful group but so busy I can't seem to keep up! By the time > I'm ready to respond or reply to a subject talked about it seems like it's > day's later! LOL! So I usually just dismiss what I have to say because people > probably wonder what I'm talking about when the subject has past weeks ago! > LOL! > > Well anyway I just wanted you to know that your posts stand out for me and > they make me smile or feel good. And also can relate so much! > > I know what you mean when you say you go into doctors acting like you are > okay and not showing your full pain. It is almost like we have to give up are > dignity to get taken seriously. Did I say that right! LOL! > > And about the bath tub. Oh yea... It is getting real hard to take a bath. > I'm afraid to try it when I'm home alone. I might not get back out! > > The marina that my husband keeps his boat at has a swimming pool and spa. > My oh my the pain does seem to disappear under water! We are thinking about > getting a spa next year for home. But husband is worried it cost too much to > care for. But he is willing to get it if it helps me. > > About the Predisone... When I was first went to doc to see what was wrong > with me she gave me a 6 day packet of that while they waited for test results. > Started out high dose and slowly lessen the does until the 6 day's were up. > I couldn't believe how the pain went away! I was pain free the whole time I > was taking that stuff. But as soon as it ran out I was back in misery. > > When I went back for my second doctors appt. she diagnosed me with RA. Gave > me another packet of predisone and after that was gone she gave me a couple > prescriptions to take. Once a day 5 mg Predisone and 2 x a day Nabumetone > 500 mg. Darvocet for wen the pain is unbearable. Then tells me she'll see me > in 6 months. Almost like this: " You have RA, take these pills and come > back in 6 months " LOL! > > Well, what ever is happening to me is getting worse by the day. I've > already mention that it's murder getting out of bed. Not only do the feet, toes, > ankles hurt. Can't use hands or arms for support to walk or lift myself out > of bed because they feel shot too! It is hard just to roll over when laying > down. Sometimes can't even lay on one sides or another. > > My neck acts up every other day and my shoulders seem to take turns with the > agony. It's getting to the point where they are hurting at the same time. > I really don't know how I'm going to work without at least one arm to raise. > > > And hands are weak and wrist and fingers oh my! > > I told husband we may need to get rid of our 3 horses. Hard for me to take > care of them anymore. > > The darvocet doesn't work for the pain. I called over and over again to > speak to doc. I had to ask her if I could have something stronger for the pain > and aren't I supposed to be seeing a specialist. About 3 weeks later she > gets the message back to me that the best they can do is give me Tylenol 3's. > And that she is hooking me up with specialist. And that she can't do anymore > for me. So I have apt 28th of August. > > I pray to god he takes me serious! My daughter has to put up my hair for me > to go to work. I limp to work and use one arm. I don't know how long that > is going to last because it is getting hard to lift both arms now. > My daughter has to help me get undressed and get dressed and so on. > > Wow! I really got carried away here. I only meant to tell you that you > were appreciated! LOL! so sorry! > > So far this has been the best support group I've came across. It is just > too busy to keep up with everyone because there are so many wonderful people on > this list. I want to respond to them all! But there are so many members I > can't keep track of who is who! LOL! But your post stands out! That is a > good thing! > > Thank you for listening and Bless your heart! > > Michigan > > > > > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > (http://autos.aol.com/cars-BMW-128-2008/expert-review? ncid=aolaut00050000000017 ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 and Group; I saved your post you sent me so I could reply later. Also it was so sweet. You talked about how your neck hurt. My hurts really bad but its where the neck ends and the back begins. My shoulders hurt really bad too. I have bursitis so I can't tell if its the RA or the bursitis. My neck and shoulders will hurt and burn so bad. I have to lie down every few hours to stop the pain. I wonder if others have this problem too. I know you said yours hurt to. Is this RA in the neck. Anyone know. I been on prednisone for a few weeks now. Ten miligrams) I started taking a half pill a few days ago. I am beginning to hurt all over again. Half as bad lol. These last 2 weeks have been unbelievable for me. Hardly any pain at all. I have to take the half of the ten mg for the next 2weeks. I have about 10 more days to go. I will start humira injections the 28th of this month. I really hope it works, I fear going back to that horrid pain again. I hope your getting something for your pain.. I hope everyone in the group does. I read so much of people suffering here, My heart goes out to everyone. I would still be suffering if it wasn't for our little group here. They all gave me ideas on how to talk to the doctor and get some relief. When I took the predisone and it helped, it was then when I relized how much pain I had been in, I felt no pain at all. I couldnt believe it. I don't understand why they let us suffer so much. They have our test they know we hurt. I guess a number 3 is like no pain to a doctor. The scale of 1 to 10, with one the best and ten the worst. I kept telling her 3 or 4. She just kept me on my reg pills. Plaqunil and sufazaline. I went in the last time and said 10. Haaaaaaaaaaaaaaa. Should of said that the first time. The meds I take done nothing for me. I got worse it went to a 15 lol. I wasnt lieing either. Our rhemys thing anthing under a 5 is tolerable I guess. Thanks for responding to my post. I hope you get your spa. God bless everyone. gentle hugs Clora > Clora, > > I enjoy reading your posts. There is just something about them. They are > uplifting. > This is a wonderful group but so busy I can't seem to keep up! By the time > I'm ready to respond or reply to a subject talked about it seems like it's > day's later! LOL! So I usually just dismiss what I have to say because people > probably wonder what I'm talking about when the subject has past weeks ago! > LOL! > > Well anyway I just wanted you to know that your posts stand out for me and > they make me smile or feel good. And also can relate so much! > > I know what you mean when you say you go into doctors acting like you are > okay and not showing your full pain. It is almost like we have to give up are > dignity to get taken seriously. Did I say that right! LOL! > > And about the bath tub. Oh yea... It is getting real hard to take a bath. > I'm afraid to try it when I'm home alone. I might not get back out! > > The marina that my husband keeps his boat at has a swimming pool and spa. > My oh my the pain does seem to disappear under water! We are thinking about > getting a spa next year for home. But husband is worried it cost too much to > care for. But he is willing to get it if it helps me. > > About the Predisone... When I was first went to doc to see what was wrong > with me she gave me a 6 day packet of that while they waited for test results. > Started out high dose and slowly lessen the does until the 6 day's were up. > I couldn't believe how the pain went away! I was pain free the whole time I > was taking that stuff. But as soon as it ran out I was back in misery. > > When I went back for my second doctors appt. she diagnosed me with RA. Gave > me another packet of predisone and after that was gone she gave me a couple > prescriptions to take. Once a day 5 mg Predisone and 2 x a day Nabumetone > 500 mg. Darvocet for wen the pain is unbearable. Then tells me she'll see me > in 6 months. Almost like this: " You have RA, take these pills and come > back in 6 months " LOL! > > Well, what ever is happening to me is getting worse by the day. I've > already mention that it's murder getting out of bed. Not only do the feet, toes, > ankles hurt. Can't use hands or arms for support to walk or lift myself out > of bed because they feel shot too! It is hard just to roll over when laying > down. Sometimes can't even lay on one sides or another. > > My neck acts up every other day and my shoulders seem to take turns with the > agony. It's getting to the point where they are hurting at the same time. > I really don't know how I'm going to work without at least one arm to raise. > > > And hands are weak and wrist and fingers oh my! > > I told husband we may need to get rid of our 3 horses. Hard for me to take > care of them anymore. > > The darvocet doesn't work for the pain. I called over and over again to > speak to doc. I had to ask her if I could have something stronger for the pain > and aren't I supposed to be seeing a specialist. About 3 weeks later she > gets the message back to me that the best they can do is give me Tylenol 3's. > And that she is hooking me up with specialist. And that she can't do anymore > for me. So I have apt 28th of August. > > I pray to god he takes me serious! My daughter has to put up my hair for me > to go to work. I limp to work and use one arm. I don't know how long that > is going to last because it is getting hard to lift both arms now. > My daughter has to help me get undressed and get dressed and so on. > > Wow! I really got carried away here. I only meant to tell you that you > were appreciated! LOL! so sorry! > > So far this has been the best support group I've came across. It is just > too busy to keep up with everyone because there are so many wonderful people on > this list. I want to respond to them all! But there are so many members I > can't keep track of who is who! LOL! But your post stands out! That is a > good thing! > > Thank you for listening and Bless your heart! > > Michigan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 > Hi Clora and group This is a late thankyou for everyone's post on whether RA is from family or stress. You have all been so supportive and I think that we can agree that stress does play a hand in our RA!!! I am slow catching up with all the posts.!!! I wanted to say Clora that I too have been having a lot of trouble with my neck and shoulders !! I think it is conected to the RA, but when I was at hospital a while ago with the pain at the front of my neck they said it was more likely to be from my FM. All I know is like most of us out there I have been in terrible pain. And it is getting worse not better. I am sore from my neck shoulders, arms, elbows, wrists, fingers, legs ( I also suffer from bursitis !!) ankles and my feet are so sore too, they are starting now to make popping sounds when I walk !!! Subject that was addressed a while ago !! I agree that you need to say more for your pain, I have learnt that 3 and 4 is apparently tolerable !!! I don't think the pain we are suffering with is tolerable when it flares up so badly. We are not doing ourselves any favours by saying less numbers !! Go for the higher numbers and we will then maybe get the help we need.!! My heart goes out to everyone out there in pain, good luck to everyone and I hope your pain levels improve. Take care . > and Group; > > I saved your post you sent me so I could reply later. Also it was > so sweet. You talked about how your neck hurt. My hurts really bad > but its where the neck ends and the back begins. My shoulders hurt > really bad too. I have bursitis so I can't tell if its the RA or > the bursitis. My neck and shoulders will hurt and burn so bad. I > have to lie down every few hours to stop the pain. I wonder if > others have this problem too. I know you said yours hurt to. Is > this RA in the neck. Anyone know. > > I been on prednisone for a few weeks now. Ten miligrams) I started > taking a half pill a few days ago. I am beginning to hurt all over > again. Half as bad lol. These last 2 weeks have been unbelievable > for me. Hardly any pain at all. I have to take the half of the ten > mg for the next 2weeks. I have about 10 more days to go. I will > start humira injections the 28th of this month. I really hope it > works, I fear going back to that horrid pain again. > > I hope your getting something for your pain.. I hope everyone in the > group does. I read so much of people suffering here, My heart goes > out to everyone. I would still be suffering if it wasn't for our > little group here. They all gave me ideas on how to talk to the > doctor and get some relief. When I took the predisone and it > helped, it was then when I relized how much pain I had been in, I > felt no pain at all. I couldnt believe it. > > I don't understand why they let us suffer so much. They have our > test they know we hurt. I guess a number 3 is like no pain to a > doctor. The scale of 1 to 10, with one the best and ten the worst. > I kept telling her 3 or 4. She just kept me on my reg pills. > Plaqunil and sufazaline. I went in the last time and said 10. > Haaaaaaaaaaaaaaa. Should of said that the first time. The meds I > take done nothing for me. I got worse it went to a 15 lol. I wasnt > lieing either. > > Our rhemys thing anthing under a 5 is tolerable I guess. Thanks for > responding to my post. I hope you get your spa. God bless everyone. > > gentle hugs > Clora > > > > Clora, > > > > I enjoy reading your posts. There is just something about them. > They are > > uplifting. > > This is a wonderful group but so busy I can't seem to keep up! By > the time > > I'm ready to respond or reply to a subject talked about it seems > like it's > > day's later! LOL! So I usually just dismiss what I have to say > because people > > probably wonder what I'm talking about when the subject has past > weeks ago! > > LOL! > > > > Well anyway I just wanted you to know that your posts stand out > for me and > > they make me smile or feel good. And also can relate so much! > > > > I know what you mean when you say you go into doctors acting like > you are > > okay and not showing your full pain. It is almost like we have to > give up are > > dignity to get taken seriously. Did I say that right! LOL! > > > > And about the bath tub. Oh yea... It is getting real hard to take > a bath. > > I'm afraid to try it when I'm home alone. I might not get back > out! > > > > The marina that my husband keeps his boat at has a swimming pool > and spa. > > My oh my the pain does seem to disappear under water! We are > thinking about > > getting a spa next year for home. But husband is worried it cost > too much to > > care for. But he is willing to get it if it helps me. > > > > About the Predisone... When I was first went to doc to see what > was wrong > > with me she gave me a 6 day packet of that while they waited for > test results. > > Started out high dose and slowly lessen the does until the 6 > day's were up. > > I couldn't believe how the pain went away! I was pain free the > whole time I > > was taking that stuff. But as soon as it ran out I was back in > misery. > > > > When I went back for my second doctors appt. she diagnosed me > with RA. Gave > > me another packet of predisone and after that was gone she gave > me a couple > > prescriptions to take. Once a day 5 mg Predisone and 2 x a day > Nabumetone > > 500 mg. Darvocet for wen the pain is unbearable. Then tells me > she'll see me > > in 6 months. Almost like this: " You have RA, take these pills > and come > > back in 6 months " LOL! > > > > Well, what ever is happening to me is getting worse by the day. > I've > > already mention that it's murder getting out of bed. Not only do > the feet, toes, > > ankles hurt. Can't use hands or arms for support to walk or lift > myself out > > of bed because they feel shot too! It is hard just to roll over > when laying > > down. Sometimes can't even lay on one sides or another. > > > > My neck acts up every other day and my shoulders seem to take > turns with the > > agony. It's getting to the point where they are hurting at the > same time. > > I really don't know how I'm going to work without at least one > arm to raise. > > > > > > And hands are weak and wrist and fingers oh my! > > > > I told husband we may need to get rid of our 3 horses. Hard for > me to take > > care of them anymore. > > > > The darvocet doesn't work for the pain. I called over and over > again to > > speak to doc. I had to ask her if I could have something stronger > for the pain > > and aren't I supposed to be seeing a specialist. About 3 weeks > later she > > gets the message back to me that the best they can do is give me > Tylenol 3's. > > And that she is hooking me up with specialist. And that she > can't do anymore > > for me. So I have apt 28th of August. > > > > I pray to god he takes me serious! My daughter has to put up my > hair for me > > to go to work. I limp to work and use one arm. I don't know how > long that > > is going to last because it is getting hard to lift both arms now. > > My daughter has to help me get undressed and get dressed and so > on. > > > > Wow! I really got carried away here. I only meant to tell you > that you > > were appreciated! LOL! so sorry! > > > > So far this has been the best support group I've came across. It > is just > > too busy to keep up with everyone because there are so many > wonderful people on > > this list. I want to respond to them all! But there are so many > members I > > can't keep track of who is who! LOL! But your post stands out! > That is a > > good thing! > > > > Thank you for listening and Bless your heart! > > > > Michigan > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 group; I have fibromyalgia really bad. The lyrcia really took the pain away. But soon afterwards the RA got worse. gentle hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Really...is there a " tolerable " level of pain? I think so many of us get used to living in pain and that's a shame. What a doctor feels is tolerable is easy for the doctor to say! The doctors should use a pain scale to judge severity and whether there is improvement. But when it comes to pain management, I think we all have the right to be pain-free if it's possible without detrimental side effects. _____ From: [mailto: ] On Behalf Of michellefollet Sent: Friday, August 15, 2008 10:23 PM Subject: [ ] Re:CLORA/ OT > Hi Clora and group This is a late thankyou for everyone's post on whether RA is from family or stress. You have all been so supportive and I think that we can agree that stress does play a hand in our RA!!! I am slow catching up with all the posts.!!! I wanted to say Clora that I too have been having a lot of trouble with my neck and shoulders !! I think it is conected to the RA, but when I was at hospital a while ago with the pain at the front of my neck they said it was more likely to be from my FM. All I know is like most of us out there I have been in terrible pain. And it is getting worse not better. I am sore from my neck shoulders, arms, elbows, wrists, fingers, legs ( I also suffer from bursitis !!) ankles and my feet are so sore too, they are starting now to make popping sounds when I walk !!! Subject that was addressed a while ago !! I agree that you need to say more for your pain, I have learnt that 3 and 4 is apparently tolerable !!! I don't think the pain we are suffering with is tolerable when it flares up so badly. We are not doing ourselves any favours by saying less numbers !! Go for the higher numbers and we will then maybe get the help we need.!! My heart goes out to everyone out there in pain, good luck to everyone and I hope your pain levels improve. Take care . .._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 in Michigan and group; if your still with the group here is an idea. You said you dont comment on the post because you take a while to read the post. Here is what you can do. I enjoyed your post I SAVED IT. Below you will see where you wrote the post I am commenting on., Just dont delete the post your commenting on. THis post you wrote was a long time ago, I really would like to hear how your doing now. I hope your doing ok. If you get this a long time from date just leave this part on and comment. I hope your doing better. I enjoyed reading this. But i dont want anyone to be in pain. Your story sounds like what i have been through. I thought only I have been this unable to take a bath. I see a lot of us go through it also. I hope you send another post. Your post are very interesting and funny also haaaaaa. So when possible don't dismiss what you want to say. gentle hugs Clora > Clora, > > I enjoy reading your posts. There is just something about them. They are > uplifting. > This is a wonderful group but so busy I can't seem to keep up! By the time > I'm ready to respond or reply to a subject talked about it seems like it's > day's later! LOL! So I usually just dismiss what I have to say because people > probably wonder what I'm talking about when the subject has past weeks ago! > LOL! > > Well anyway I just wanted you to know that your posts stand out for me and > they make me smile or feel good. And also can relate so much! > > I know what you mean when you say you go into doctors acting like you are > okay and not showing your full pain. It is almost like we have to give up are > dignity to get taken seriously. Did I say that right! LOL! > > And about the bath tub. Oh yea... It is getting real hard to take a bath. > I'm afraid to try it when I'm home alone. I might not get back out! > > The marina that my husband keeps his boat at has a swimming pool and spa. > My oh my the pain does seem to disappear under water! We are thinking about > getting a spa next year for home. But husband is worried it cost too much to > care for. But he is willing to get it if it helps me. > > About the Predisone... When I was first went to doc to see what was wrong > with me she gave me a 6 day packet of that while they waited for test results. > Started out high dose and slowly lessen the does until the 6 day's were up. > I couldn't believe how the pain went away! I was pain free the whole time I > was taking that stuff. But as soon as it ran out I was back in misery. > > When I went back for my second doctors appt. she diagnosed me with RA. Gave > me another packet of predisone and after that was gone she gave me a couple > prescriptions to take. Once a day 5 mg Predisone and 2 x a day Nabumetone > 500 mg. Darvocet for wen the pain is unbearable. Then tells me she'll see me > in 6 months. Almost like this: " You have RA, take these pills and come > back in 6 months " LOL! > > Well, what ever is happening to me is getting worse by the day. I've > already mention that it's murder getting out of bed. Not only do the feet, toes, > ankles hurt. Can't use hands or arms for support to walk or lift myself out > of bed because they feel shot too! It is hard just to roll over when laying > down. Sometimes can't even lay on one sides or another. > > My neck acts up every other day and my shoulders seem to take turns with the > agony. It's getting to the point where they are hurting at the same time. > I really don't know how I'm going to work without at least one arm to raise. > > > And hands are weak and wrist and fingers oh my! > > I told husband we may need to get rid of our 3 horses. Hard for me to take > care of them anymore. > > The darvocet doesn't work for the pain. I called over and over again to > speak to doc. I had to ask her if I could have something stronger for the pain > and aren't I supposed to be seeing a specialist. About 3 weeks later she > gets the message back to me that the best they can do is give me Tylenol 3's. > And that she is hooking me up with specialist. And that she can't do anymore > for me. So I have apt 28th of August. > > I pray to god he takes me serious! My daughter has to put up my hair for me > to go to work. I limp to work and use one arm. I don't know how long that > is going to last because it is getting hard to lift both arms now. > My daughter has to help me get undressed and get dressed and so on. > > Wow! I really got carried away here. I only meant to tell you that you > were appreciated! LOL! so sorry! > > So far this has been the best support group I've came across. It is just > too busy to keep up with everyone because there are so many wonderful people on > this list. I want to respond to them all! But there are so many members I > can't keep track of who is who! LOL! But your post stands out! That is a > good thing! > > Thank you for listening and Bless your heart! > > Michigan > > > > > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > (http://autos.aol.com/cars-BMW-128-2008/expert-review? ncid=aolaut00050000000017 ) > > > Quote Link to comment Share on other sites More sharing options...
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