Re: RE humira

[Guest guest]

Insurance compainies in US also are very reluctant to accept the cost of these

drugs....many just won't so it isn't a problem just with socialized medicine,

but a problem of medical care outpricing our ability to pay for it or for many

to take advantage of the advances...

[Editor's Note: An excellent point (above). Whether it's de jure (the results of

regulation/policy, and well-meaning but inefficiently bureaucratic) as with

socialized medicine, or de facto (the results of the ruthlessness of the

" capital over people " laissez faire, zero-sum game, the so-called " free market " )

as is the case in the U.S., the results are the same (although for different

socioeconomic sets of people): patients who desperately need the medicine are

denied its benefits. There must be a better way than both.

D.]

gordon eliott <geliott@...> wrote:Ron,

I appreciate your comments about Humira and the other biologics having such

success, but it leaves me with a sense of frustration. Here in Australia, PA

sufferers still do not have subsidized access to any biologics, and full cost is

prohibitive. Working with the Arthritis Foundation of Australia, we have

managed to have Enbrel subsidized for rheumatoid arthritis, but the prescribing

restrictions the government placed on it means very few RAs even will have

access to it. Us PAs are so far back in the race that the biologics have not

even been approved yet for marketing in Australia for PA, let alone being

subsidized. I, personally, am running out of steam, and am losing the will to

continue the fight, and I cannot seem to get even the Foundation more motivated

to fight for PA. We are the minority arthritis sufferers with no real voice.

Sorry, but my frustration grows as I continue to read how successful the

biologics are.

Regards, Gordon

[Ed. Note: Yes, you have my fullest sympathy Gordon. That's unfortunately what

happens with socialized medicine. I believe our friends in Canada and the UK

have the same problem for the same reason - unless they happen to have their own

private health insurance policy. Several members have mentioned that some of the

drug manufacturers of these biologics have programs in place that provide the

medications for free to those not covered by their health insurance policies. I

would urge you to contact the manufacturers of these drugs and find out if they

might be able to help you, even if it means moving out of Australia temporarily.

Best wishes, Ron]

[Guest guest]

In a message dated 3/13/2004 11:01:25 AM Eastern Standard Time,

JNJSewing@... writes:

I would take the shot and enjoy the cruise. The very first shot helped me,

whereas enbrel did nothing.

Jan

I am leaving in an hour and I am going to inject myself now. I hope I am as

lucky as you on the first shot. I will let you know when I get back.

Thanks

JANET

[Guest guest]

Why don't you go to your regular doc and ask for Minocin or Keflex(Cephalexin).

The med your are on is very toxic.

Also remember that when you take any antibiotic (and any toxic drug like the

ones you take) you also need to treat the candida w/high doses of Probiotics.

I sent my son who was displaying the same symptoms as I do Keflex, his IBS,

irregular heart beat, joint pain, chronic sinus infection, etc are disappearing.

I also sent him Probiotics, garlic, and powder Vit C to treat the candida.

Also, anytime you take methotrexate, or any other toxic drug you should be

taking Probotics as well as sores are very common. Cancer patients that are on

chemo, are advised to take Probotics. Always take probotics 3 hours before or

after. I take probiotics 3-4 times a day. I also drink a large glass of powder

Vit C w/filtered water. I also take garlic pills as all these things help fight

candida.

Kathy <sunbriar@...> wrote:

I have just had 2 shots of humira, I have not even seen an AP Dr yet (waiting

list) so far i dont see any difference with the humira. also I had to stop

taking my prescription pain pills (tramidol) because they said i wasnt allowed

to work on it (I drive a bus) so Im taking only tylenol. I do blood work today,

then maybe I can take celebrex again. so far Im mostly doing stretches and using

a heating pad (alot) but Im still working hard on the farm and get very sore but

keep going. Oh Im also taking some hormones. Im wondering how long before I see

a difference with humira. thanks for the warning about the lymph nodes, should i

see a DR if that happens? Kathy

[Guest guest]

Dear phine, You are killing yourself with all those toxic meds. Stop and

get a doc to prescribe some antibiotics and start healing. Probiotics and

garlic are great for the digestive system and for keeping your pH balanced. Get

off all that other crap as fast as you can w/o going into withdrawal and don't

let any doc talk you back into it. Your health is in your own hands. Do the

research, read the books by Scammell and Dr. Brown. Read the posts on

www.roadback.com. as well as the ones on this site. Get familiar with the

" Infectious Theory " and " The antibiotic protocol " , and get on the road back to

health. Good Luck! Dolores

phine Bradshaw <jjosie007@...> wrote: Why don't you go to

your regular doc and ask for Minocin or Keflex(Cephalexin). The med your are on

is very toxic.

Also remember that when you take any antibiotic (and any toxic drug like the

ones you take) you also need to treat the candida w/high doses of Probiotics.

I sent my son who was displaying the same symptoms as I do Keflex, his IBS,

irregular heart beat, joint pain, chronic sinus infection, etc are disappearing.

I also sent him Probiotics, garlic, and powder Vit C to treat the candida.

Also, anytime you take methotrexate, or any other toxic drug you should be

taking Probotics as well as sores are very common. Cancer patients that are on

chemo, are advised to take Probotics. Always take probotics 3 hours before or

after. I take probiotics 3-4 times a day. I also drink a large glass of powder

Vit C w/filtered water. I also take garlic pills as all these things help fight

candida.

Kathy <sunbriar@...> wrote:

I have just had 2 shots of humira, I have not even seen an AP Dr yet (waiting

list) so far i dont see any difference with the humira. also I had to stop

taking my prescription pain pills (tramidol) because they said i wasnt allowed

to work on it (I drive a bus) so Im taking only tylenol. I do blood work today,

then maybe I can take celebrex again. so far Im mostly doing stretches and using

a heating pad (alot) but Im still working hard on the farm and get very sore but

keep going. Oh Im also taking some hormones. Im wondering how long before I see

a difference with humira. thanks for the warning about the lymph nodes, should i

see a DR if that happens? Kathy

[Guest guest]

I only take Keflex(Cephalexin) which is an antibiotic. Minocin did not work for

me. I take Probotics ,garlic, and oil of oregano to keep the yeast in check, as

if you don't keep the yeast/candida in check other problems arise. Because I

have been doing this regiment since last year, I see a marked improvement, My

AP Doc, recommended 3 probiotics , and 2 oil of oregano 3 times a day.

I stopped going to conveniently docs, years ago, other than for blood work,

and reg check-ups. I saw that they were just pill pushers for the

pharmaceutical Co. and didn't care about me.

In fact, I was reviewing my blood work from 1996, and saw I had Wegeners (only

an Nuclear blood test can detect it). Hand written by technician stated, I had

it. The doc NEVER even blinked an eye, but my mother died last Nov. form

Wegeners. So you see I have been suspicious of Docs since 1996, as I could feel

and see what was happening to my body, but the doc kept on prescribing Prozacs,

and pain med. Everything my I got an infection, and had to be put on

antibiotic, the doc was reluctant to give me a prescription. I would tell him,

I felt I was getting rid of what was ailing me , starting from my feet on up

when I took the antibiotic. But he told me he didn't like prescribing the

antibiotics, so I started going to Mex, (9 hr drive 1 way) and getting my own.

I lived w/the pain, and sick feeling, so I knew what worked and what didn't.

In 2001 I started going to a Doc who would subscribe the antibiotics. I kept

on reading more from this group, incorporating other things, and now I just go

to my holistic Doc, and get my antibiotics over the Internet. I even got my son

on the same program, and ordered the same antibiotic for my son 2 months ago,

and he is feeling so much better.

mike rosner <martysfolks2004@...> wrote:

Dear phine, You are killing yourself with all those toxic meds. Stop and

get a doc to prescribe some antibiotics and start healing. Probiotics and garlic

are great for the digestive system and for keeping your pH balanced. Get off all

that other crap as fast as you can w/o going into withdrawal and don't let any

doc talk you back into it. Your health is in your own hands. Do the research,

read the books by Scammell and Dr. Brown. Read the posts on www.roadback.com. as

well as the ones on this site. Get familiar with the " Infectious Theory " and

" The antibiotic protocol " , and get on the road back to health. Good Luck!

Dolores

phine Bradshaw wrote: Why don't you go to your regular doc and ask for

Minocin or Keflex(Cephalexin). The med your are on is very toxic.

Also remember that when you take any antibiotic (and any toxic drug like the

ones you take) you also need to treat the candida w/high doses of Probiotics.

I sent my son who was displaying the same symptoms as I do Keflex, his IBS,

irregular heart beat, joint pain, chronic sinus infection, etc are disappearing.

I also sent him Probiotics, garlic, and powder Vit C to treat the candida.

Also, anytime you take methotrexate, or any other toxic drug you should be

taking Probotics as well as sores are very common. Cancer patients that are on

chemo, are advised to take Probotics. Always take probotics 3 hours before or

after. I take probiotics 3-4 times a day. I also drink a large glass of powder

Vit C w/filtered water. I also take garlic pills as all these things help fight

candida.

Kathy wrote:

I have just had 2 shots of humira, I have not even seen an AP Dr yet (waiting

list) so far i dont see any difference with the humira. also I had to stop

taking my prescription pain pills (tramidol) because they said i wasnt allowed

to work on it (I drive a bus) so Im taking only tylenol. I do blood work today,

then maybe I can take celebrex again. so far Im mostly doing stretches and using

a heating pad (alot) but Im still working hard on the farm and get very sore but

keep going. Oh Im also taking some hormones. Im wondering how long before I see

a difference with humira. thanks for the warning about the lymph nodes, should i

see a DR if that happens? Kathy

[Guest guest]

Sounds like you got it nailed. Like you, I would crawl across America to keep

my antibiotics coming in. Good luck, Sounds like you're on the right path.

Dolores

phine Bradshaw <jjosie007@...> wrote: I only take

Keflex(Cephalexin) which is an antibiotic. Minocin did not work for me. I take

Probotics ,garlic, and oil of oregano to keep the yeast in check, as if you

don't keep the yeast/candida in check other problems arise. Because I have been

doing this regiment since last year, I see a marked improvement, My AP Doc,

recommended 3 probiotics , and 2 oil of oregano 3 times a day.

I stopped going to conveniently docs, years ago, other than for blood work, and

reg check-ups. I saw that they were just pill pushers for the pharmaceutical Co.

and didn't care about me.

In fact, I was reviewing my blood work from 1996, and saw I had Wegeners (only

an Nuclear blood test can detect it). Hand written by technician stated, I had

it. The doc NEVER even blinked an eye, but my mother died last Nov. form

Wegeners. So you see I have been suspicious of Docs since 1996, as I could feel

and see what was happening to my body, but the doc kept on prescribing Prozacs,

and pain med. Everything my I got an infection, and had to be put on antibiotic,

the doc was reluctant to give me a prescription. I would tell him, I felt I was

getting rid of what was ailing me , starting from my feet on up when I took the

antibiotic. But he told me he didn't like prescribing the antibiotics, so I

started going to Mex, (9 hr drive 1 way) and getting my own.

I lived w/the pain, and sick feeling, so I knew what worked and what didn't.

In 2001 I started going to a Doc who would subscribe the antibiotics. I kept on

reading more from this group, incorporating other things, and now I just go to

my holistic Doc, and get my antibiotics over the Internet. I even got my son on

the same program, and ordered the same antibiotic for my son 2 months ago, and

he is feeling so much better.

mike rosner <martysfolks2004@...> wrote:

Dear phine, You are killing yourself with all those toxic meds. Stop and get

a doc to prescribe some antibiotics and start healing. Probiotics and garlic are

great for the digestive system and for keeping your pH balanced. Get off all

that other crap as fast as you can w/o going into withdrawal and don't let any

doc talk you back into it. Your health is in your own hands. Do the research,

read the books by Scammell and Dr. Brown. Read the posts on www.roadback.com. as

well as the ones on this site. Get familiar with the " Infectious Theory " and

" The antibiotic protocol " , and get on the road back to health. Good Luck!

Dolores

phine Bradshaw wrote: Why don't you go to your regular doc and ask for

Minocin or Keflex(Cephalexin). The med your are on is very toxic.

Also remember that when you take any antibiotic (and any toxic drug like the

ones you take) you also need to treat the candida w/high doses of Probiotics.

I sent my son who was displaying the same symptoms as I do Keflex, his IBS,

irregular heart beat, joint pain, chronic sinus infection, etc are disappearing.

I also sent him Probiotics, garlic, and powder Vit C to treat the candida.

Also, anytime you take methotrexate, or any other toxic drug you should be

taking Probotics as well as sores are very common. Cancer patients that are on

chemo, are advised to take Probotics. Always take probotics 3 hours before or

after. I take probiotics 3-4 times a day. I also drink a large glass of powder

Vit C w/filtered water. I also take garlic pills as all these things help fight

candida.

Kathy wrote:

I have just had 2 shots of humira, I have not even seen an AP Dr yet (waiting

list) so far i dont see any difference with the humira. also I had to stop

taking my prescription pain pills (tramidol) because they said i wasnt allowed

to work on it (I drive a bus) so Im taking only tylenol. I do blood work today,

then maybe I can take celebrex again. so far Im mostly doing stretches and using

a heating pad (alot) but Im still working hard on the farm and get very sore but

keep going. Oh Im also taking some hormones. Im wondering how long before I see

a difference with humira. thanks for the warning about the lymph nodes, should i

see a DR if that happens? Kathy

[Guest guest]

In a message dated 8/30/2008 7:47:34 A.M. Central Daylight Time,

clora4jesus@... writes:

>Why do I have to take a TB test anyone know?>

Important information about Humira

Before you start treatment with Humira, your doctor may perform tests to

make sure you do not have tuberculosis or other infections.

_http://www.drugs.com/humira.html_ (http://www.drugs.com/humira.html)

I'm thinking that if you did have TB, and you took Humira (or other

immunosuppressants), your immune system wouldn't be able to fight the TB.

dd

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

If you have inactive TB (dormant, but in your system), Humira can cause the TB

to reactivate.

I had the same tests for Remicade as well.

Di

[Guest guest]

Clora,

They do the tuberculosis (TB) test to make sure you don't have latent TB.

If a person has latent TB, that means that person has been infected

with TB in the past, but his or her body was able to prevent the

infection from spreading and causing serious symptoms (tuberculosis

disease). The body is keeping the TB under wraps.

The anti-TNF inhibitors such as Humira can cause the TB infection to

" reactivate, " meaning that latent TB could develop into active TB.

Not an MD

On Sat, Aug 30, 2008 at 7:44 AM, CLORA <clora4jesus@...> wrote:

> Group;

>

> I am waiting approval for humira from my insuranse group. I have to

> take a TB test first. Why do I have to take a TB test anyone know? I

> don't post much anymore, however; I read everyons post. I feel very

> close to everyone here. Feel better. RA is really a strange disease.

> The meds I take for CHF, DIABETES, PAH, HEADACHES, and HBP is more or

> less basic, but with RA everyone seems to have different responses

> from thier meds. I hope there is a cure found for arthirits. What a

> waste arthritis is for us. Love you all.

>

> gentle kind hugs everyone

> Clora

[Guest guest]

Diane and group;

Thanks Diane. I have had TB test before so I should be fine. I was

worried that my meds cause tb. Thats why I thought they was taking a

TB test haaaaaaa. Silly me.

Gentle hugs

Clora

>

> If you have inactive TB (dormant, but in your system), Humira can

cause the TB to reactivate.

>

> I had the same tests for Remicade as well.

>

> Di

>

[Guest guest]

;

Thanks so much. I admire you to have a group. I have a chat

group on paltalk, I open monday through friday 4 hours a day and its

a job. I love talking to people around the world. I have admins to

open the room. Most admins only come in when I am there. I hope you

have help with our group.

Its your group that kept me from getting depressed. I didnt

understand this RA till I joined your group. I google RA. I looked

up on on RA but it didnt make sence to me. Talking to others

here with it has been so helpful. You have a wonderful group here

and I am so grateful to you and the group.

gentle hugs everyone

Clora

Rheumatoid.Arthritis.Support@...> wrote:

>

> Clora,

>

> They do the tuberculosis (TB) test to make sure you don't have

latent TB.

>

> If a person has latent TB, that means that person has been infected

> with TB in the past, but his or her body was able to prevent the

> infection from spreading and causing serious symptoms (tuberculosis

> disease). The body is keeping the TB under wraps.

>

> The anti-TNF inhibitors such as Humira can cause the TB infection

to

> " reactivate, " meaning that latent TB could develop into active TB.

>

>

>

> Not an MD

>

>

>

> On Sat, Aug 30, 2008 at 7:44 AM, CLORA <clora4jesus@...> wrote:

> > Group;

> >

> > I am waiting approval for humira from my insuranse group. I have

to

> > take a TB test first. Why do I have to take a TB test anyone

know? I

> > don't post much anymore, however; I read everyons post. I feel

very

> > close to everyone here. Feel better. RA is really a strange

disease.

> > The meds I take for CHF, DIABETES, PAH, HEADACHES, and HBP is

more or

> > less basic, but with RA everyone seems to have different

responses

> > from thier meds. I hope there is a cure found for arthirits.

What a

> > waste arthritis is for us. Love you all.

> >

> > gentle kind hugs everyone

> > Clora

>

[Guest guest]

Thanks, Clora.

a, who started the group, hasn't been able to be with us for some

time now, so I'm managing the group alone.

I'm glad the group has been beneficial for you!

Not an MD

On Sat, Aug 30, 2008 at 10:59 AM, CLORA <clora4jesus@...> wrote:

> ;

>

> Thanks so much. I admire you to have a group. I have a chat

> group on paltalk, I open monday through friday 4 hours a day and its

> a job. I love talking to people around the world. I have admins to

> open the room. Most admins only come in when I am there. I hope you

> have help with our group.

>

> Its your group that kept me from getting depressed. I didnt

> understand this RA till I joined your group. I google RA. I looked

> up on on RA but it didnt make sence to me. Talking to others

> here with it has been so helpful. You have a wonderful group here

> and I am so grateful to you and the group.

>

> gentle hugs everyone

> Clora

[Guest guest]

,

Clora spoke for all of us, thanks Clora. You do a fantastic job on

you own!

This is like having a team to support and back us up without having to

get dressed and drive to a meeting. Because we don't face each other,

I feel more open.

This is my lifeline.

Thank you for everything.

Shirley

[Guest guest]

Shirly and group;

Haaaaaaaa wow, I don't know what I did but I am so glad you liked

it. God bless and take care. oh and pain free days. At least I am

behaving haaaaaa.

gentle hugs

Clora

> ,

> Clora spoke for all of us, thanks Clora. You do a fantastic job

on

> you own!

> This is like having a team to support and back us up without

having to

> get dressed and drive to a meeting. Because we don't face each

other,

> I feel more open.

> This is my lifeline.

> Thank you for everything.

> Shirley

>

[Guest guest]

Well yes I second that. You do it right !

So great....

Chris

UK

From: CLORA <clora4jesus@...>

Subject: [ ] Re: RE humira

Date: Sunday, 31 August, 2008, 9:18 PM

Shirly and group;

Haaaaaaaa wow, I don't know what I did but I am so glad you liked

it. God bless and take care. oh and pain free days. At least I am

behaving haaaaaa.

gentle hugs

Clora

> ,

> Clora spoke for all of us, thanks Clora. You do a fantastic job

on

> you own!

> This is like having a team to support and back us up without

having to

> get dressed and drive to a meeting. Because we don't face each

other,

> I feel more open.

> This is my lifeline.

> Thank you for everything.

> Shirley

>

[Guest guest]

CHriss and group;

Haaaaaa you guys have made my head get so big my neck is hurting

hahahaha. I am going to lie down for a few hours and watch a good

movie. Be back later

gentle hugs

Clora

> Well yes I second that. You do it right !

> So great....

> Chris

> UK

>

>

[Guest guest]

Thanks very much, Shirley and everyone.

I am grateful to all members who contribute to this effort.

Not an MD

On Sun, Aug 31, 2008 at 2:44 PM, nana2livi <s.p5315@...> wrote:

> ,

> Clora spoke for all of us, thanks Clora. You do a fantastic job on

> you own!

> This is like having a team to support and back us up without having to

> get dressed and drive to a meeting. Because we don't face each other,

> I feel more open.

> This is my lifeline.

> Thank you for everything.

> Shirley

[Guest guest]

I enjoy it more than you do. THat don't sound right. I enjoy it more

than everyone else does. Never mind haaaaaaaa. Your welcome its a

pleasure for me in other words.

hugs Clora

>

> Thanks very much, Shirley and everyone.

>

> I am grateful to all members who contribute to this effort.

>

>

>

> Not an MD

>

>