Re: Thank you for letting me whine

[Guest guest]

HI I feel your pain too. I started to notice my hands were not quite

working right over a year ago and since than symptoms have increased. I saw

my MD for the first time about this in March. I had an EMG and back xrays

and labs done. went back and still having pain EMG neg, Labs Neg but

symptoms worse. Started on Mobic. Some relief but all in all still getting

worse. Very tired all the time etc. Back to my MD last Friday and I showed

him I have developed Raynaud's, my hands get very red and mottled white

when they are dependent. So he started me on aspirin a day and prednisone.

It is helping but has made more irritable. I go back to my MD on June 5.

Hopefully he will refer me to a rheumatologist. I am not going to put it off

.. It is difficult to do my job at this point but I am plugging along. So

whining is perfectly acceptable form of behavior at times we all need to do

it!

On Wed, May 28, 2008 at 10:24 AM, buslady1995 <buslady1995@...> wrote:

>

>

> I so much appreciate all of the online hugs. Thank you for the kind

> words, this group helps so much. Everyone understands, what we deal

> with everyday.

> I watched my sisiter take Prednisone for 30 years and it took it's toll

> on her physically and mentally, she ended up in a psyriactic (not

> spelled right) ward for awhile so they could wean her off. It is a

> great drug taken correctly and not for years on end. I hope that when I

> see the reumy for the 1st time, he is knowledgable and understanding---

> 13 days to go.

>

> Again, God Bless you all.

>

> , NY

>

>

>

--

Deb N

" If you can dream it, you can do it. Always remember that this whole thing

was started with a dream and a mouse "

[Guest guest]

hi karen, i have been on prednisone for 21yrs. already & yes it does take a toll

not only on your body but your well being as well. i have not only gained weight

but also have severe osteoporosis. my bones are soo very fragile & i HURT mostly

all the time, it sux!! i use to be on 10mg. but then the dr. cut me to 5mg.now

im on 4mg. daily. your right its HARD to get off & sometimes i do feel like im

going CRAZY! im sorry to hear about your sister & i hope things get better with

the both of you... do you mind me asking how old your sister is & how long she

had ra???? god bless,melyndagamez 5/28/08 3p.m.central

[ ] Thank you for letting me whine

I so much appreciate all of the online hugs. Thank you for the kind

words, this group helps so much. Everyone understands, what we deal

with everyday.

I watched my sisiter take Prednisone for 30 years and it took it's toll

on her physically and mentally, she ended up in a psyriactic (not

spelled right) ward for awhile so they could wean her off. It is a

great drug taken correctly and not for years on end. I hope that when I

see the reumy for the 1st time, he is knowledgable and understanding---

13 days to go.

Again, God Bless you all.

, NY

------------------------------------

[Guest guest]

She is 68 now, and they put her on Pred in her 40's. And like you she also has

VERY weak bones and has surgery to try to reshape the bones in her feet, to no

avail. The problem mostly with her is that all the drugs that I see posted here

she treid but had bad side effects so the only one that didn't was Pred, so her

Dr. I am sure was discouraged. And we know more about the disease now than we

used to, which is good for us.

NY

Melynda Gamez <melyndagamez@...> wrote:

hi karen, i have been on prednisone for 21yrs. already & yes it does

take a toll not only on your body but your well being as well. i have not only

gained weight but also have severe osteoporosis. my bones are soo very fragile &

i HURT mostly all the time, it sux!! i use to be on 10mg. but then the dr. cut

me to 5mg.now im on 4mg. daily. your right its HARD to get off & sometimes i do

feel like im going CRAZY! im sorry to hear about your sister & i hope things get

better with the both of you... do you mind me asking how old your sister is &

how long she had ra???? god bless,melyndagamez 5/28/08 3p.m.central

[ ] Thank you for letting me whine

I so much appreciate all of the online hugs. Thank you for the kind

words, this group helps so much. Everyone understands, what we deal

with everyday.

I watched my sisiter take Prednisone for 30 years and it took it's toll

on her physically and mentally, she ended up in a psyriactic (not

spelled right) ward for awhile so they could wean her off. It is a

great drug taken correctly and not for years on end. I hope that when I

see the reumy for the 1st time, he is knowledgable and understanding---

13 days to go.

Again, God Bless you all.

, NY

------------------------------------

[Guest guest]

What is dependent mean? My hands are also red with white blotches. I looked up

the symptoms of Raynauds too. It seems to fit also.

Deb N <deb38n@...> wrote: HI I feel your pain too. I

started to notice my hands were not quite

working right over a year ago and since than symptoms have increased. I saw

my MD for the first time about this in March. I had an EMG and back xrays

and labs done. went back and still having pain EMG neg, Labs Neg but

symptoms worse. Started on Mobic. Some relief but all in all still getting

worse. Very tired all the time etc. Back to my MD last Friday and I showed

him I have developed Raynaud's, my hands get very red and mottled white

when they are dependent. So he started me on aspirin a day and prednisone.

It is helping but has made more irritable. I go back to my MD on June 5.

Hopefully he will refer me to a rheumatologist. I am not going to put it off

.. It is difficult to do my job at this point but I am plugging along. So

whining is perfectly acceptable form of behavior at times we all need to do

it!

On Wed, May 28, 2008 at 10:24 AM, buslady1995 <buslady1995@...> wrote:

>

>

> I so much appreciate all of the online hugs. Thank you for the kind

> words, this group helps so much. Everyone understands, what we deal

> with everyday.

> I watched my sisiter take Prednisone for 30 years and it took it's toll

> on her physically and mentally, she ended up in a psyriactic (not

> spelled right) ward for awhile so they could wean her off. It is a

> great drug taken correctly and not for years on end. I hope that when I

> see the reumy for the 1st time, he is knowledgable and understanding---

> 13 days to go.

>

> Again, God Bless you all.

>

> , NY

>

>

>

--

Deb N

" If you can dream it, you can do it. Always remember that this whole thing

was started with a dream and a mouse "

[Guest guest]

hi, Deb! my daughter has Raynaud's and her hands are always cold,

especially the fingers. she will twirl her arms, like a windmill. the

harder she twirls, the quicker the blood surges into her hands/fingers

and the redness/cold goes away. try it, it may help. gentle hugs!

Marcia

--- Deb N <deb38n@...> wrote:

> HI I feel your pain too. I started to notice my hands were not

> quite

> working right over a year ago and since than symptoms have increased.

> I saw

> my MD for the first time about this in March. I had an EMG and back

> xrays

> and labs done. went back and still having pain EMG neg, Labs Neg but

> symptoms worse. Started on Mobic. Some relief but all in all still

> getting

> worse. Very tired all the time etc. Back to my MD last Friday and I

> showed

> him I have developed Raynaud's, my hands get very red and mottled

> white

> when they are dependent. So he started me on aspirin a day and

> prednisone.

> It is helping but has made more irritable. I go back to my MD on June

> 5.

> Hopefully he will refer me to a rheumatologist. I am not going to put

> it off

> . It is difficult to do my job at this point but I am plugging along.

> So

> whining is perfectly acceptable form of behavior at times we all need

> to do

> it!

>

> On Wed, May 28, 2008 at 10:24 AM, buslady1995 <buslady1995@...>

> wrote:

>

> >

> >

> > I so much appreciate all of the online hugs. Thank you for the kind

> > words, this group helps so much. Everyone understands, what we deal

> > with everyday.

> > I watched my sisiter take Prednisone for 30 years and it took it's

> toll

> > on her physically and mentally, she ended up in a psyriactic (not

> > spelled right) ward for awhile so they could wean her off. It is a

> > great drug taken correctly and not for years on end. I hope that

> when I

> > see the reumy for the 1st time, he is knowledgable and

> understanding---

> > 13 days to go.

> >

> > Again, God Bless you all.

> >

> > , NY

> >

> >

> >

>

>

>

> --

> Deb N

>

> " If you can dream it, you can do it. Always remember that this whole

> thing

> was started with a dream and a mouse "

>

>

>

[Guest guest]

When I put my hands down, they turn red with with blotches and they go away

as I bend my elbows and raise my hands up.

On Wed, May 28, 2008 at 10:32 PM, Dunn <buslady1995@...> wrote:

> What is dependent mean? My hands are also red with white blotches. I

> looked up the symptoms of Raynauds too. It seems to fit also.

>

> Deb N <deb38n@... <deb38n%40gmail.com>> wrote: HI I feel your

> pain too. I started to notice my hands were not quite

> working right over a year ago and since than symptoms have increased. I saw

> my MD for the first time about this in March. I had an EMG and back xrays

> and labs done. went back and still having pain EMG neg, Labs Neg but

> symptoms worse. Started on Mobic. Some relief but all in all still getting

> worse. Very tired all the time etc. Back to my MD last Friday and I showed

> him I have developed Raynaud's, my hands get very red and mottled white

> when they are dependent. So he started me on aspirin a day and prednisone.

> It is helping but has made more irritable. I go back to my MD on June 5.

> Hopefully he will refer me to a rheumatologist. I am not going to put it

> off

> . It is difficult to do my job at this point but I am plugging along. So

> whining is perfectly acceptable form of behavior at times we all need to do

> it!

>

> On Wed, May 28, 2008 at 10:24 AM, buslady1995

<buslady1995@...<buslady1995%40>>

> wrote:

>

> >

> >

> > I so much appreciate all of the online hugs. Thank you for the kind

> > words, this group helps so much. Everyone understands, what we deal

> > with everyday.

> > I watched my sisiter take Prednisone for 30 years and it took it's toll

> > on her physically and mentally, she ended up in a psyriactic (not

> > spelled right) ward for awhile so they could wean her off. It is a

> > great drug taken correctly and not for years on end. I hope that when I

> > see the reumy for the 1st time, he is knowledgable and understanding---

> > 13 days to go.

> >

> > Again, God Bless you all.

> >

> > , NY

> >

> >

> >

>

> --

> Deb N

>

> " If you can dream it, you can do it. Always remember that this whole thing

> was started with a dream and a mouse "

>

>

[Guest guest]

Hi,

I was on prednisone, I think only 5mg/day, for 2 yrs. Afte a

dexascan when I was 57 showed osteoporosis and I was weaned off the

pred. I think it is a wonderful drug for a short period but to be on

it for so long, it is poison. I don't know why drs will

stillprescribe this for long term. I would would NEVER do prednisone

again for long term. Wish you all successful healing with gentle

hugs.

Stella

> hi karen, i have been on prednisone for 21yrs. already &

yes it does take a toll not only on your body but your well being as

well. i have not only gained weight but also have severe

osteoporosis. my bones are soo very fragile & i HURT mostly all the

time, it sux!! i use to be on 10mg. but then the dr. cut me to

5mg.now im on 4mg. daily. your right its HARD to get off & sometimes

i do feel like im going CRAZY! im sorry to hear about your sister & i

hope things get better with the both of you... do you mind me asking

how old your sister is & how long she had ra???? god

bless,melyndagamez 5/28/08 3p.m.central

>

> [ ] Thank you for letting me whine

>

> I so much appreciate all of the online hugs. Thank you for the kind

> words, this group helps so much. Everyone understands, what we deal

> with everyday.

> I watched my sisiter take Prednisone for 30 years and it took it's

toll

> on her physically and mentally, she ended up in a psyriactic (not

> spelled right) ward for awhile so they could wean her off. It is a

> great drug taken correctly and not for years on end. I hope that

when I

> see the reumy for the 1st time, he is knowledgable and

understanding---

> 13 days to go.

>

> Again, God Bless you all.

>

> , NY

>

> ------------------------------------

>

>

[Guest guest]

Hi im new to the group i was browsing for information on RA when i came

across this site had to lol when i read about the predninose i have been

on it now for a year It really helps with the pain but hate the side

effects Are your hands hot and sore all the time ? mine are I am on pain

meds that help

>

> >

> >

> > I so much appreciate all of the online hugs. Thank you for the kind

> > words, this group helps so much. Everyone understands, what we deal

> > with everyday.

> > I watched my sisiter take Prednisone for 30 years and it took it's

toll

> > on her physically and mentally, she ended up in a psyriactic (not

> > spelled right) ward for awhile so they could wean her off. It is a

> > great drug taken correctly and not for years on end. I hope that

when I

> > see the reumy for the 1st time, he is knowledgable and

understanding---

> > 13 days to go.

> >

> > Again, God Bless you all.

> >

> > , NY

> >

> >

> >

>

> --

> Deb N

>

> " If you can dream it, you can do it. Always remember that this whole

thing

> was started with a dream and a mouse "

>

>

[Guest guest]

Thanks!

On 5/28/08, Marcia Stoyle <marciastoyle@...> wrote:

>

> hi, Deb! my daughter has Raynaud's and her hands are always cold,

> especially the fingers. she will twirl her arms, like a windmill. the

> harder she twirls, the quicker the blood surges into her hands/fingers

> and the redness/cold goes away. try it, it may help. gentle hugs!

> Marcia

> --- Deb N <deb38n@... <deb38n%40gmail.com>> wrote:

>

> > HI I feel your pain too. I started to notice my hands were not

> > quite

> > working right over a year ago and since than symptoms have increased.

> > I saw

> > my MD for the first time about this in March. I had an EMG and back

> > xrays

> > and labs done. went back and still having pain EMG neg, Labs Neg but

> > symptoms worse. Started on Mobic. Some relief but all in all still

> > getting

> > worse. Very tired all the time etc. Back to my MD last Friday and I

> > showed

> > him I have developed Raynaud's, my hands get very red and mottled

> > white

> > when they are dependent. So he started me on aspirin a day and

> > prednisone.

> > It is helping but has made more irritable. I go back to my MD on June

> > 5.

> > Hopefully he will refer me to a rheumatologist. I am not going to put

> > it off

> > . It is difficult to do my job at this point but I am plugging along.

> > So

> > whining is perfectly acceptable form of behavior at times we all need

> > to do

> > it!

> >

> > On Wed, May 28, 2008 at 10:24 AM, buslady1995

<buslady1995@...<buslady1995%40>

> >

> > wrote:

> >

> > >

> > >

> > > I so much appreciate all of the online hugs. Thank you for the kind

> > > words, this group helps so much. Everyone understands, what we deal

> > > with everyday.

> > > I watched my sisiter take Prednisone for 30 years and it took it's

> > toll

> > > on her physically and mentally, she ended up in a psyriactic (not

> > > spelled right) ward for awhile so they could wean her off. It is a

> > > great drug taken correctly and not for years on end. I hope that

> > when I

> > > see the reumy for the 1st time, he is knowledgable and

> > understanding---

> > > 13 days to go.

> > >

> > > Again, God Bless you all.

> > >

> > > , NY

> > >

> > >

> > >

> >

> >

> >

> > --

> > Deb N

> >

> > " If you can dream it, you can do it. Always remember that this whole

> > thing

> > was started with a dream and a mouse "

> >

> >

> >

[Guest guest]

My hands are hot not cold but they discolor and turn red.

On 5/29/08, blanche_maries <blanche_maries@...> wrote:

>

> Hi im new to the group i was browsing for information on RA when i came

> across this site had to lol when i read about the predninose i have been

> on it now for a year It really helps with the pain but hate the side

> effects Are your hands hot and sore all the time ? mine are I am on pain

> meds that help

>

> >

> > >

> > >

> > > I so much appreciate all of the online hugs. Thank you for the kind

> > > words, this group helps so much. Everyone understands, what we deal

> > > with everyday.

> > > I watched my sisiter take Prednisone for 30 years and it took it's

> toll

> > > on her physically and mentally, she ended up in a psyriactic (not

> > > spelled right) ward for awhile so they could wean her off. It is a

> > > great drug taken correctly and not for years on end. I hope that

> when I

> > > see the reumy for the 1st time, he is knowledgable and

> understanding---

> > > 13 days to go.

> > >

> > > Again, God Bless you all.

> > >

> > > , NY

> > >

> > >

> > >

> >

> > --

> > Deb N

> >

> > " If you can dream it, you can do it. Always remember that this whole

> thing

> > was started with a dream and a mouse "

> >

> >

[Guest guest]

I don't have a problem with the cold though.I can pick up a cold can of soda and

it doesn't hurt, so I guess Raynauds is out of the question. I also have nodules

all over my hands. The last 2 nights were awful, my hands were just throbbing,

and hurt to the touch.

I read that someone here said that you can't focus on the pain, but focus on

something different. & nbsp; I am going to try that tonight.

& nbsp;

Thank you to the group for the great info on this site. It so helpful.

& gt;

& gt; Hi im new to the group i was browsing for information on RA when i came

& gt; across this site had to lol when i read about the predninose i have been

& gt; on it now for a year It really helps with the pain but hate the side

& gt; effects Are your hands hot and sore all the time ? mine are I am on pain

& gt; meds that help

& gt;

& gt; & gt;

& gt; & gt; & gt;

& gt; & gt; & gt;

& gt; & gt; & gt; I so much appreciate all of the online hugs. Thank you for the

kind

& gt; & gt; & gt; words, this group helps so much. Everyone understands, what we

deal

& gt; & gt; & gt; with everyday.

& gt; & gt; & gt; I watched my sisiter take Prednisone for 30 years and it took

it's

& gt; toll

& gt; & gt; & gt; on her physically and mentally, she ended up in a psyriactic (not

& gt; & gt; & gt; spelled right) ward for awhile so they could wean her off. It is

a

& gt; & gt; & gt; great drug taken correctly and not for years on end. I hope that

& gt; when I

& gt; & gt; & gt; see the reumy for the 1st time, he is knowledgable and

& gt; understanding- --

& gt; & gt; & gt; 13 days to go.

& gt; & gt; & gt;

& gt; & gt; & gt; Again, God Bless you all.

& gt; & gt; & gt;

& gt; & gt; & gt; , NY

& gt; & gt; & gt;

& gt; & gt; & gt;

& gt; & gt; & gt;

& gt; & gt;

& gt; & gt; --

& gt; & gt; Deb N

& gt; & gt;

& gt; & gt; " If you can dream it, you can do it. Always remember that this whole

& gt; thing

& gt; & gt; was started with a dream and a mouse "

& gt; & gt;

& gt; & gt;

[Guest guest]

Cold does bother my hands but I notice this red color change more at work

where I am stressed and I am washing them and using them all day. spiking

IV's is very hard. I use warm water to wash them and I have never seen them

turn blue. SO maybe I am not dealing with raynaud's either. I think I will

learn more when I get to see a Rheumy too.

On Fri, May 30, 2008 at 7:48 AM, Dunn <buslady1995@...> wrote:

> I don't have a problem with the cold though.I can pick up a cold can of

> soda and it doesn't hurt, so I guess Raynauds is out of the question. I also

> have nodules all over my hands. The last 2 nights were awful, my hands were

> just throbbing, and hurt to the touch.

> I read that someone here said that you can't focus on the pain, but focus

> on something different. & nbsp; I am going to try that tonight.

> & nbsp;

> Thank you to the group for the great info on this site. It so helpful.

>

>

> & gt;

> & gt; Hi im new to the group i was browsing for information on RA when i

> came

> & gt; across this site had to lol when i read about the predninose i have

> been

> & gt; on it now for a year It really helps with the pain but hate the side

> & gt; effects Are your hands hot and sore all the time ? mine are I am on

> pain

> & gt; meds that help

> & gt;

> & gt; & gt;

> & gt; & gt; & gt;

> & gt; & gt; & gt;

> & gt; & gt; & gt; I so much appreciate all of the online hugs. Thank you for

> the kind

> & gt; & gt; & gt; words, this group helps so much. Everyone understands, what

> we deal

> & gt; & gt; & gt; with everyday.

> & gt; & gt; & gt; I watched my sisiter take Prednisone for 30 years and it

> took it's

> & gt; toll

> & gt; & gt; & gt; on her physically and mentally, she ended up in a psyriactic

> (not

> & gt; & gt; & gt; spelled right) ward for awhile so they could wean her off.

> It is a

> & gt; & gt; & gt; great drug taken correctly and not for years on end. I hope

> that

> & gt; when I

> & gt; & gt; & gt; see the reumy for the 1st time, he is knowledgable and

> & gt; understanding- --

> & gt; & gt; & gt; 13 days to go.

> & gt; & gt; & gt;

> & gt; & gt; & gt; Again, God Bless you all.

> & gt; & gt; & gt;

> & gt; & gt; & gt; , NY

> & gt; & gt; & gt;

> & gt; & gt; & gt;

> & gt; & gt; & gt;

> & gt; & gt;

> & gt; & gt; --

> & gt; & gt; Deb N

> & gt; & gt;

> & gt; & gt; " If you can dream it, you can do it. Always remember that this

> whole

> & gt; thing

> & gt; & gt; was started with a dream and a mouse "

> & gt; & gt;

> & gt; & gt;

[Guest guest]

Why are you staying on prednizone so long?

Cheryl

[ ] Thank you for letting me whine

>

>

>

> I so much appreciate all of the online hugs. Thank you for the kind

> words, this group helps so much. Everyone understands, what we deal

> with everyday.

> I watched my sisiter take Prednisone for 30 years and it took it's toll

> on her physically and mentally, she ended up in a psyriactic (not

> spelled right) ward for awhile so they could wean her off. It is a

> great drug taken correctly and not for years on end. I hope that when I

> see the reumy for the 1st time, he is knowledgable and understanding---

> 13 days to go.

>

> Again, God Bless you all.

>

> , NY

>

>

> ------------------------------------

>

>

[Guest guest]

hi cheryl, the reason im on the pred.is because w/o it i would probably die or

be a vegetable. i dont want that i have a hub & an 11yr. old daughter to live

for.... they r my life!!! thats y i wake up everyday, w/o them i would have

nothing,so why go on living..... dont get me wrong its very hard at times for me

to even get out of bed,to bathe,to dress and to fed myself. as a matter of fact

i was taking the wrong mg. for my pred. i was taking 1mg..insyead of 4mg. & let

me tell you I HAVE BEEN SUFFERING FOR 2/1 WEEKS WITH PAIN & I DID NOT NKOW

WHY!!! im like soo druged up on meds i forget,i lose my thoughts & i even forget

how to spell. to me i think im just PLAIN CRAZY!!! i hop i answerd your ?

cheryl!!!! god bless,melyndagamez 6/1/08 3:10a.m.central time (see what i mean i

cant even sleep, im in PAIN.) till then i will continue to catch up on my

e-mails, ive been out for a lil while due to my hands & i could not

type......................

[ ] Thank you for letting me whine

>

>

>

> I so much appreciate all of the online hugs. Thank you for the kind

> words, this group helps so much. Everyone understands, what we deal

> with everyday.

> I watched my sisiter take Prednisone for 30 years and it took it's toll

> on her physically and mentally, she ended up in a psyriactic (not

> spelled right) ward for awhile so they could wean her off. It is a

> great drug taken correctly and not for years on end. I hope that when I

> see the reumy for the 1st time, he is knowledgable and understanding---

> 13 days to go.

>

> Again, God Bless you all.

>

> , NY

>

>

> ------------------------------------

>

>