Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Hi, I don't think we were trying to convey giving up hope. There is always hope for a pain free day, for a cure, etc. However, accept yourself for who you are in this very moment and yes, go on with your day. Dwelling on the pain, will slow everything down. It's ok to move forward and go on about your daily activities, some days you might just be slower than others. There are days that I question if I have RA! I asked my rheumy once, do I really have RA, he smiled, laughed a little, and pulled out all the supporting documents, with explanations. I appreciated that reaction, and would never have asked if I didn't have that kind of rapport with my Dr. The point is, accept it, learn everything you can, and continue living your life everyday. Giving in means RA wins. We can't have that! Wishing you and all of us, many as close to pain free days as possible! Hugs and smiles, Heidi Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 5/29/2008 6:53:03 A.M. Eastern Daylight Time, l8debl u@... writes: Thank you all for your thoughts and candid sharing. I think I am still in the discovery/possibly denial stage of this experience. I wanted to know if there was a chance that I wouldn't hurt all the time, but in reading your posts, what I am learning is that I need to stop focusing on it and just live my life. Knowing that I might always have pain allows me to just accept it as a fact of life rather than having hope or expectation that it might go away and that acceptance will then free me to just do the best I can with each day. Thank you all! **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 , We have to do the best we can each day we are given and accept that there is not a cure yet but do not give up hope for pain free days and active lives. With the right treatment, medical advances and prayer we learn to do the best we can and be especially thankful and appreciative of the good days. Keep searching for the treatment that will give you pain free days but focus on living life fully and learn that you may have to make some lifestyle changes and that change may not be all bad. I've learned to appreciate some things that I probably would have never slowed down enough to even look at a few years ago. I still have days of frustration because I can't go at the pace I would like to but when I look what my grandmother faced 50 years ago with lack of medical treatment I just try to be thankful for today. Sullivan <l8deblu@...> wrote: Thank you all for your thoughts and candid sharing. I think I am still in the discovery/possibly denial stage of this experience. I wanted to know if there was a chance that I wouldn't hurt all the time, but in reading your posts, what I am learning is that I need to stop focusing on it and just live my life. Knowing that I might always have pain allows me to just accept it as a fact of life rather than having hope or expectation that it might go away and that acceptance will then free me to just do the best I can with each day. Thank you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Giving up hope for me is not an option. However, I do accept the fact that I have pain, yet have to do things to take my attention away from that and focus on what I enjoy. I was working with my CBT doctor last night who also does pain therapy. We were talking about how I spent the last few weeks in bed and could not even really take care of myself. We discussed how if someone focuses on that pain all day, if I let it get me down, I'm adding to that pain because I am adding more stress to the situation. Instead, I could be listening to relaxing music, and thinking positive thoughts (about how this flare WILL pass) and taking deep breaths! Or reading a good book, or watching a feel good movies. It's all about accepting and adapting and doing what you are IN CONTROL OF to make the pain not worse:) sposy@... wrote: Hi, I don't think we were trying to convey giving up hope. There is always hope for a pain free day, for a cure, etc. However, accept yourself for who you are in this very moment and yes, go on with your day. Dwelling on the pain, will slow everything down. It's ok to move forward and go on about your daily activities, some days you might just be slower than others. There are days that I question if I have RA! I asked my rheumy once, do I really have RA, he smiled, laughed a little, and pulled out all the supporting documents, with explanations. I appreciated that reaction, and would never have asked if I didn't have that kind of rapport with my Dr. The point is, accept it, learn everything you can, and continue living your life everyday. Giving in means RA wins. We can't have that! Wishing you and all of us, many as close to pain free days as possible! Hugs and smiles, Heidi Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 5/29/2008 6:53:03 A.M. Eastern Daylight Time, l8debl u@... writes: Thank you all for your thoughts and candid sharing. I think I am still in the discovery/possibly denial stage of this experience. I wanted to know if there was a chance that I wouldn't hurt all the time, but in reading your posts, what I am learning is that I need to stop focusing on it and just live my life. Knowing that I might always have pain allows me to just accept it as a fact of life rather than having hope or expectation that it might go away and that acceptance will then free me to just do the best I can with each day. Thank you all! **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Molly, It didn't take long for Enbrel to get my pain and inflammation under control, just a few weeks, if I remember correctly. I've been on it for over five years, so it's hard to remember exactly. I can't take MTX with it, as most do, because it causes my white blood cell count to get too low. The Enbrel does the job all by itself. I consider myself lucky that it works so well for me. Plus, I don't get sick often (knock on wood). Since the surgery interrupted your use of Enbrel, those first three shots don't even count as far as building up in your body. Give it a little more time. I hope you get the same kind of success that I have. Good luck! Sue On Thursday, May 29, 2008, at 07:54 PM, Molly Schaeffer wrote: > Sue, I hope all turns out okay with your heart. I just started > Enbrel about 12 weeks ago, although I had to go off it for 5 weeks > for surgery. I've had a total of 6 shots, 3 before and 3 after the > surgery. I'm not seeing any improvement yet. I know everyone can > react differently, but I'm curious about how long you had to wait > before you got to 'under great control'. Quote Link to comment Share on other sites More sharing options...
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