Re:I've been on them all...

May 15, 2008

Hi, I read your post I'm sorry you are having an allergic reaction.

I've been on all the biologics,Enbrel-didn't work, Humira-didn't

work, Remicade-worked for 6 months!! orencia-didn't work NOW Rutuxin-

Has pretty much managed 85% of my RA pain but not fibropain~ So I

can't complain!! I also take methotrexate 6 pills on thursday

When they givw me my Rutuxin I get bendryl and salumedrol (a

steriod). I hope this help someone... Try to have a good day and

take care of you!

>

> Hello, I am new to your group and was hoping that someone may have

> some advice for me. I was diagnosed with RA about ten years ago and

> have had trouble finding a med that works for me. I am currently in

> between meds due to an allergic reaction. I take plaquenil as my

main

> stay but it is not enough. I tried sulfasalazine and got results

for

> only a short amount of time. They then tried Enbrel which was

amazing

> for the first four months and then I had an allergic reaction. Each

> shot I had my lips became more and more numb then one morn I woke

up

> covered in a rash and could not feel my lips or the roof of my

mouth

> and I became horse. Next they put me on Methotrexate but I was in

bed

> two days a week with side effects. Then they tried arava and that

was

> going ok until my liver levels became sky high. They then tried MTX

> by injection. After the second injection I became horse the third

> injection I was horse and short of breath with discomfort in my

chest.

> The Dr. sent me to consult with the Allergist and he said no way

> should I continue because of my history. (I have had other

> anaphylactic reactions to meds) That also rules out Humira and

> Remicaid. The Dr. is waiting for me to call back with an answer

from

> the allergist but I am feeling too emotinal to call her because she

> said I was running out of options. Anyone out there know of any

other

> meds that have helped? I have been on prednisone for about 3 months

> now also. The longer I wait the more pain I am in. It is in my

> feet(had surgery in the R foot in 2004 and it is already back to

> presurgery condition) I also have it in my neck back and knees.

> Sorry if I rambled on too long.

>

May 16, 2008

Hi Amy thanks for your input. I saw the rheumy on Thursday and she

wants to send me for a consult in Boston. In the meantime she gave me

Arthrotec for the pain and told me to take flexeril before I go to

bed. I also take Plaquenil, Arava, and Requip. I took the flexeril

last night and other than making me sluggish it really did not help my

neck pain. Has anyone ever taken Arthrotec? Any results? What about

acupunture? I think I am going to give that a try. At this point I

am open to anything that will relieve the pain in my feet and neck.

> >

> > Hello, I am new to your group and was hoping that someone may have

> > some advice for me. I was diagnosed with RA about ten years ago and

> > have had trouble finding a med that works for me. I am currently in

> > between meds due to an allergic reaction. I take plaquenil as my

> main

> > stay but it is not enough. I tried sulfasalazine and got results

> for

> > only a short amount of time. They then tried Enbrel which was

> amazing

> > for the first four months and then I had an allergic reaction. Each

> > shot I had my lips became more and more numb then one morn I woke

> up

> > covered in a rash and could not feel my lips or the roof of my

> mouth

> > and I became horse. Next they put me on Methotrexate but I was in

> bed

> > two days a week with side effects. Then they tried arava and that

> was

> > going ok until my liver levels became sky high. They then tried MTX

> > by injection. After the second injection I became horse the third

> > injection I was horse and short of breath with discomfort in my

> chest.

> > The Dr. sent me to consult with the Allergist and he said no way

> > should I continue because of my history. (I have had other

> > anaphylactic reactions to meds) That also rules out Humira and

> > Remicaid. The Dr. is waiting for me to call back with an answer

> from

> > the allergist but I am feeling too emotinal to call her because she

> > said I was running out of options. Anyone out there know of any

> other

> > meds that have helped? I have been on prednisone for about 3 months

> > now also. The longer I wait the more pain I am in. It is in my

> > feet(had surgery in the R foot in 2004 and it is already back to

> > presurgery condition) I also have it in my neck back and knees.

> > Sorry if I rambled on too long.

> >

>

May 16, 2008

Hi,

I have tried many things. I have not tried Arthrotec, but have tried

acupuncture, and it did not work. The Chinese doctor told me that it usually

did not work for rheumatoid arthritis.

flatsurfacesyndrome <flatsurfacesyndrome@...> wrote: