Newly diagionosed....

May 16, 2008

Finally heard today my diagionoses...RA/inflamatory polyarthritis..This

my story short in all..Started almost 2 years ago with pain in

fingers,hands and wrist...My pcp told me One year ago that it was

carpel tunnel, wear a brace..At that time my sedrate wase 59..In april

of this year decided to get test which came back neg...Within this year

my feet started hurting and I thought bad shoes because Im a

nurse..than varoius other joints started hurting...My pcp called after

she received the results of my cp test and decided to order other

tests..Will my sedrate up to 74 and rf 104..started felling worst with

pain and fatigue..My body feels 20 years older..So, than I went to

rheumy at the cleveland clinic in april 22 and had more blood

work..came back neg except the sedrate and rf were about the same...,

low vit d... so, reeding these threads I decided to keep bugging them

and dr called today...start on mtx,solumedrol pack,folic acid,vit d and

calcium..He wants to see me back in 6-8 weeks..have blood work prior..

will kinda releived that maybe Im not crazy!!!!!!diane

May 16, 2008

Hi Diane I am glad you are finally getting the meds you need. I have been on

the Mobic for 21/2 weeks and my hands are really painful and and stiff. My

feet still hurt mostly in the morning but I am starting to have elbow

shoulder and knee pain! Lovely! I have an appointment with my GP on June 5

but maybe I should call and have him get i\me in The Cleveland clinic too. I

am so tired all the time. It is tough. We are trying to pack to move and I

have no energy. I save my energy for work!

Keep me posted on how you are doing on the meds. Do you like your Doc at

CCF?

On 5/16/08, diane crawford <nuttynurse25@...> wrote:

>

> Finally heard today my diagionoses...RA/inflamatory polyarthritis..This

> my story short in all..Started almost 2 years ago with pain in

> fingers,hands and wrist...My pcp told me One year ago that it was

> carpel tunnel, wear a brace..At that time my sedrate wase 59..In april

> of this year decided to get test which came back neg...Within this year

> my feet started hurting and I thought bad shoes because Im a

> nurse..than varoius other joints started hurting...My pcp called after

> she received the results of my cp test and decided to order other

> tests..Will my sedrate up to 74 and rf 104..started felling worst with

> pain and fatigue..My body feels 20 years older..So, than I went to

> rheumy at the cleveland clinic in april 22 and had more blood

> work..came back neg except the sedrate and rf were about the same...,

> low vit d... so, reeding these threads I decided to keep bugging them

> and dr called today...start on mtx,solumedrol pack,folic acid,vit d and

> calcium..He wants to see me back in 6-8 weeks..have blood work prior..

> will kinda releived that maybe Im not crazy!!!!!!diane

>

--

Deb N

" If you can dream it, you can do it. Always remember that this whole thing

was started with a dream and a mouse "

May 17, 2008

> >

> > Finally heard today my diagionoses...RA/inflamatory

polyarthritis..This

> > my story short in all..Started almost 2 years ago with pain in

> > fingers,hands and wrist...My pcp told me One year ago that it was

> > carpel tunnel, wear a brace..At that time my sedrate wase 59..In

april

> > of this year decided to get test which came back neg...Within

this year

> > my feet started hurting and I thought bad shoes because Im a

> > nurse..than varoius other joints started hurting...My pcp called

after

> > she received the results of my cp test and decided to order other

> > tests..Will my sedrate up to 74 and rf 104..started felling worst

with

> > pain and fatigue..My body feels 20 years older..So, than I went to

> > rheumy at the cleveland clinic in april 22 and had more blood

> > work..came back neg except the sedrate and rf were about the

same...,

> > low vit d... so, reeding these threads I decided to keep bugging

them

> > and dr called today...start on mtx,solumedrol pack,folic acid,vit

d and

> > calcium..He wants to see me back in 6-8 weeks..have blood work

prior..

> > will kinda releived that maybe Im not crazy!!!!!!diane

> >

>

> --

> Deb N

>

> " If you can dream it, you can do it. Always remember that this

whole thing

> was started with a dream and a mouse "

>

May 17, 2008

We are trying to sell our house now. My hubby is waiting to hear on his job.

They may want him on short notice. y hands and arms hurt so bad today I

can't stand it. Nothing is helping me. I am going to call Monday and see

what he decides. Of course my labs are negative but they were done 2 months

ago. SO if it is not RA they need find out what it is.

Glad to hear you are feeling better already that is encouraging.

On Sat, May 17, 2008 at 12:57 PM, diane crawford <nuttynurse25@...>

wrote:

>

> > >

> > > Finally heard today my diagionoses...RA/inflamatory

> polyarthritis..This

> > > my story short in all..Started almost 2 years ago with pain in

> > > fingers,hands and wrist...My pcp told me One year ago that it was

> > > carpel tunnel, wear a brace..At that time my sedrate wase 59..In

> april

> > > of this year decided to get test which came back neg...Within

> this year

> > > my feet started hurting and I thought bad shoes because Im a

> > > nurse..than varoius other joints started hurting...My pcp called

> after

> > > she received the results of my cp test and decided to order other

> > > tests..Will my sedrate up to 74 and rf 104..started felling worst

> with

> > > pain and fatigue..My body feels 20 years older..So, than I went to

> > > rheumy at the cleveland clinic in april 22 and had more blood

> > > work..came back neg except the sedrate and rf were about the

> same...,

> > > low vit d... so, reeding these threads I decided to keep bugging

> them

> > > and dr called today...start on mtx,solumedrol pack,folic acid,vit

> d and

> > > calcium..He wants to see me back in 6-8 weeks..have blood work

> prior..

> > > will kinda releived that maybe Im not crazy!!!!!!diane

> > >

> >

> > --

> > Deb N

> >

> > " If you can dream it, you can do it. Always remember that this

> whole thing

> > was started with a dream and a mouse "

> >

May 17, 2008

Hi Deb!

My labs are still negative to this day. It took two years of being bounced back

and forth from sports medicine to orthopedic back to rheumatology. Mine started

in my knees with bilateral joint knee effusions. The xray showed some changes,

and I had to have the joints aspirated several times. They thought it was just

bilateral patella femoral syndrome. I had elevated ESR, Westegren, CRP and anti

ccp so they decided it was early stages of inflammatory. After all that

bouncing around, and having those tests come back positive except for ANA and

RF, they finally began to treat me. I was given Prednisone to see if that

helped my inflammation (which it did). Then the next flare I was started on

Plaquenil. I was also given Diclofenac, an NSAID now taking Mobic due to liver

disease my rheumatologist thought the . I've had that for a little over 2 years,

and Sulfasalazine was added. My symptoms are getting worse so even though I am

seronegative my next step is Methotrexate

or Enbrel. Even taking all of the DMARDS, it took 6 months for the Plaquenil

to begin working. The Sulfasalazine took 6 months, then we had to increase to

maximum dosage. Then I got bronchitis for three months and couldn't take the

Sulfasalazine for all that time, so had to restart and wait for it to kick in

again. I've been spending more time in bed lately with heating pads and ice

packs almost all day every day for over the past week. I'm having difficulties

even walking. Luckily, I go on June 2nd so not much longer to wait! Hang in

there and if the Mobic isn't working, they should add a DMARD since the Mobic is

only an NSAID.

Deb N <deb38n@...> wrote: We are trying to

sell our house now. My hubby is waiting to hear on his job.

They may want him on short notice. y hands and arms hurt so bad today I

can't stand it. Nothing is helping me. I am going to call Monday and see

what he decides. Of course my labs are negative but they were done 2 months

ago. SO if it is not RA they need find out what it is.

Glad to hear you are feeling better already that is encouraging.

On Sat, May 17, 2008 at 12:57 PM, diane crawford <nuttynurse25@...>

wrote:

>

> > >

> > > Finally heard today my diagionoses...RA/inflamatory

> polyarthritis..This

> > > my story short in all..Started almost 2 years ago with pain in

> > > fingers,hands and wrist...My pcp told me One year ago that it was

> > > carpel tunnel, wear a brace..At that time my sedrate wase 59..In

> april

> > > of this year decided to get test which came back neg...Within

> this year

> > > my feet started hurting and I thought bad shoes because Im a

> > > nurse..than varoius other joints started hurting...My pcp called

> after

> > > she received the results of my cp test and decided to order other

> > > tests..Will my sedrate up to 74 and rf 104..started felling worst

> with

> > > pain and fatigue..My body feels 20 years older..So, than I went to

> > > rheumy at the cleveland clinic in april 22 and had more blood

> > > work..came back neg except the sedrate and rf were about the

> same...,

> > > low vit d... so, reeding these threads I decided to keep bugging

> them

> > > and dr called today...start on mtx,solumedrol pack,folic acid,vit

> d and

> > > calcium..He wants to see me back in 6-8 weeks..have blood work

> prior..

> > > will kinda releived that maybe Im not crazy!!!!!!diane

> > >

> >

> > --

> > Deb N

> >

> > " If you can dream it, you can do it. Always remember that this

> whole thing

> > was started with a dream and a mouse "

> >

May 17, 2008

Thanks , It is my arms and hands that are worse than my legs

considering I am a nurse and on my feet but my new balance tennis shoes

really help my feet. Some days my legs are worse than others.

On Sat, May 17, 2008 at 7:45 PM, stephanie <stephieann2@...> wrote:

> Hi Deb!

> My labs are still negative to this day. It took two years of being bounced

> back and forth from sports medicine to orthopedic back to rheumatology. Mine

> started in my knees with bilateral joint knee effusions. The xray showed

> some changes, and I had to have the joints aspirated several times. They

> thought it was just bilateral patella femoral syndrome. I had elevated ESR,

> Westegren, CRP and anti ccp so they decided it was early stages of

> inflammatory. After all that bouncing around, and having those tests come

> back positive except for ANA and RF, they finally began to treat me. I was

> given Prednisone to see if that helped my inflammation (which it did). Then

> the next flare I was started on Plaquenil. I was also given Diclofenac, an

> NSAID now taking Mobic due to liver disease my rheumatologist thought the .

> I've had that for a little over 2 years, and Sulfasalazine was added. My

> symptoms are getting worse so even though I am seronegative my next step is

> Methotrexate

> or Enbrel. Even taking all of the DMARDS, it took 6 months for the

> Plaquenil to begin working. The Sulfasalazine took 6 months, then we had to

> increase to maximum dosage. Then I got bronchitis for three months and

> couldn't take the Sulfasalazine for all that time, so had to restart and

> wait for it to kick in again. I've been spending more time in bed lately

> with heating pads and ice packs almost all day every day for over the past

> week. I'm having difficulties even walking. Luckily, I go on June 2nd so not

> much longer to wait! Hang in there and if the Mobic isn't working, they

> should add a DMARD since the Mobic is only an NSAID.

>

> Deb N <deb38n@... <deb38n%40gmail.com>> wrote: We are trying to sell

> our house now. My hubby is waiting to hear on his job.

> They may want him on short notice. y hands and arms hurt so bad today I

> can't stand it. Nothing is helping me. I am going to call Monday and see

> what he decides. Of course my labs are negative but they were done 2 months

> ago. SO if it is not RA they need find out what it is.

>

> Glad to hear you are feeling better already that is encouraging.

>

> On Sat, May 17, 2008 at 12:57 PM, diane crawford

<nuttynurse25@...<nuttynurse25%40att.net>

> >

> wrote:

>

> >

> > > >

> > > > Finally heard today my diagionoses...RA/inflamatory

> > polyarthritis..This

> > > > my story short in all..Started almost 2 years ago with pain in

> > > > fingers,hands and wrist...My pcp told me One year ago that it was

> > > > carpel tunnel, wear a brace..At that time my sedrate wase 59..In

> > april

> > > > of this year decided to get test which came back neg...Within

> > this year

> > > > my feet started hurting and I thought bad shoes because Im a

> > > > nurse..than varoius other joints started hurting...My pcp called

> > after

> > > > she received the results of my cp test and decided to order other

> > > > tests..Will my sedrate up to 74 and rf 104..started felling worst

> > with

> > > > pain and fatigue..My body feels 20 years older..So, than I went to

> > > > rheumy at the cleveland clinic in april 22 and had more blood

> > > > work..came back neg except the sedrate and rf were about the

> > same...,

> > > > low vit d... so, reeding these threads I decided to keep bugging

> > them

> > > > and dr called today...start on mtx,solumedrol pack,folic acid,vit

> > d and

> > > > calcium..He wants to see me back in 6-8 weeks..have blood work

> > prior..

> > > > will kinda releived that maybe Im not crazy!!!!!!diane

> > > >

> > >

> > > --

> > > Deb N

> > >

> > > " If you can dream it, you can do it. Always remember that this

> > whole thing

> > > was started with a dream and a mouse "

> > >

May 17, 2008

Its seems that a large # of the people who post here are nurses. Are we more

prone to RA because of the amt. of time we have spent on our feet and the

physical abuse our bodies take with all the lifting etc. or are we just more

proactive in trying to improve our lives and know more about this disease?

Wonder if there have been any studies done on professions of people with RA.

linda

diane crawford <nuttynurse25@...> wrote: Finally heard today my

diagionoses...RA/inflamatory polyarthritis..This