Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Hi All- Meghann again. tonight will be day 9 of LDN for my RRMS and so many of my symptoms have gone away. I have pain in my middle back but it is something I can deal with. My hands are getting less and less numb as the days go by. LDN really is a miracle pillSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 hi debbie, I am also fairly new on this site. there are a lot of ms people on this site. yes i have ms. started taking ldn last night around 1130. one hour passed then i began a little pain or cramps in my upper thigh. since i have heard so much about ldn i will not stop. so my husband started massage, help a little. pain got a little worse started an ice pack for 20 minutes. that helped a lot. pain went away then returned. kept massaging then we got the heating pad. this really worked just fine. at about 130am i felt okay and went to sleep. keep in touch with this website. we all need to learn about each other and ldn.Debbie <bennettd99@...> wrote: Hi This is my first time writing to this site. I was diagnsed with R/R MS in July/2004. I started LDN in Jan/2005 on the advice of a friend. I have since had no attacks except for some burning sensation in my left leg for a week now(completely numb in July/2004). I went to see my GP yesterday and got the results of my last MRI(Jan/2007) and my lesions(about 70) are getting smaller compared to my MRI I had done in Jul/2004. I hope this sensation of burning goes away soon. Just wanted to let you know my fantastic results and intention to keep taking LDN because as far as I'M concerned it's a miracle pill. Thanks Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Congratulations for the great MRI results! Every improvement is great news. Can you please share with us how much LDN your taking? Thanks, Ronit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 With all of the new pills, I love LDN. I am concerned about my eyes and after 1 mile my leg goes numb. Will the damage ever be reversed? I am going for another MRI in a month. Anything to add. THANKS See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 > > With all of the new pills, I love LDN. > I am concerned about my eyes and after 1 mile my leg goes numb. > Will the damage ever be reversed? I am going for another MRI in a month. > Anything to add. > > THANKS > ============ Some people are left with permanent damage. I have permanent nerve damage and paralysis damage. Some function I was able to regain after starting LDN but nowhere near all function and it took alot of hard work. I did strengthening exercises in the pool no less than 2 hours a day, 6 days a week for 1 year. /Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Hi Guys, Last week I had an MRI of my lower back, bilateral thighs. Yesterday I got the results. If it's not one thing it's another. Anyone else something as wacky? I'm a bit overwhelmed and frustrated. Thanks in advance for any insight. Results are not normal. Here is the list: DJD, Disc protrusion L3 to L5, annular tear, facet arthritis, mild spinal stenosis, lumbar radiculitis, a benign tumor Hemanogena?(very common I guess), OA, and while they were busy they discovered a cyst on my right ovary. I was referred to spineuniverse.com as a web site to use for any questions or explanations or words. Oh yeah, and that partridge in a pear tree called RA. I could have had more hip shots today but declined as I want to go away for the weekend and I'm doing OK right now. I did take the shoulder shots. I am having an ultrasound next Wednesday, and can only imagine my visit with my wonderful Rheumy next Wednesday right after the ultrasound. I am going to go for PT. So, that's that! Guess that's enough. Heidi Massachusetts To those who believe, no explanation is necessary; to those who dont, no explanation is possible **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 hi heidi, im SORRY about your results. at least now you know whats wrong with you & why you feel this way!! i know what you mean they go to check one thing & find something else wrong with you, that sux!!!! thought of the day: " AND ALWAYS TRY TO UNDERSTAND THE WAY OTHER PEOPLE FEEL " . have fun over the weekend & god bless,melyndagamez 5/25/08 3:25p.m.central [ ] MRI Results Hi Guys, Last week I had an MRI of my lower back, bilateral thighs. Yesterday I got the results. If it's not one thing it's another. Anyone else something as wacky? I'm a bit overwhelmed and frustrated. Thanks in advance for any insight. Results are not normal. Here is the list: DJD, Disc protrusion L3 to L5, annular tear, facet arthritis, mild spinal stenosis, lumbar radiculitis, a benign tumor Hemanogena?(very common I guess), OA, and while they were busy they discovered a cyst on my right ovary. I was referred to spineuniverse.com as a web site to use for any questions or explanations or words. Oh yeah, and that partridge in a pear tree called RA. I could have had more hip shots today but declined as I want to go away for the weekend and I'm doing OK right now. I did take the shoulder shots. I am having an ultrasound next Wednesday, and can only imagine my visit with my wonderful Rheumy next Wednesday right after the ultrasound. I am going to go for PT. So, that's that! Guess that's enough. Heidi Massachusetts To those who believe, no explanation is necessary; to those who dont, no explanation is possible **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 , I so hope LDN will be useful for you, your condition sounds so scary. One thing I wanted to ask you about is the MRI, I don't understand how they can see damaged cells in an MRI. I thought they just saw structures and masses and not so detailed to discern actual cells and their integrity. How does that work? Angel MRI results Posted by: " " iveykarma@... iveykarma Thu Jul 17, 2008 6:15 am (PDT) I saw my Neurologist this past Friday to discuss the results of my MRI and he told me he had never had a patient that had as many damaged cells before. When I was diagnosed in 1998 the Neurologist said that I showed signs of having MS since my early pre-teen years, and have always had much activity on my MRI's. The way I look at it, MS is a debilitating disease and some show signs of having it. I took my first dose of LDN last night, hoping it'll help me if/when I have my next 'Pseudo-relapse' {false relapse due to pushing oneself to do more than one with MS should do}. Back to top Reply to sender | Reply to group | Reply via web post Quote Link to comment Share on other sites More sharing options...
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