Re: Re:new here - mtx question

[Guest guest]

Yes i was so scared too but Heidi on here walked me through my first night..

What a blessing she was

i have im messenger so if you want to chat im around.

Jolene

In a message dated 8/1/2008 9:06:30 A.M. Eastern Daylight Time,

wjkh@... writes:

Hi

It is scary when you first go onto methotrexate (mtx) - I know all about

that fear But mtx has put me into remission twice now - the first time

remission lasted for 4 happy years. I'm currently in a drug-induced

remission, after my 3rd flare which started in Jan 2005: I take

sulphasalzine and mtx and have been in remission for 2 years now.

Be brave and give it a go. Remember, regular blood tests while you are on it

mean any effects on your white blood count or liver function are picked up

early.

in NZ

**************Looking for a car that's sporty, fun and fits in your budget?

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)

[Guest guest]

Clora, did I read that you only take 2 mtx a week? And the Dr has not prescribed

folic acid for you? 2 mtx a week is a VERY light dose, I thought Drs started at

3. I know you said your Dr is foreign, can you switch Drs? For me, my Dr must

be educated in the USA. in PA

[ ] Re:new here - mtx question

and Group

Last email till later. Anyway I hope there is more later. OMG

you are on a drug induced remission. Its so great. 4 years wow. I

never heard remission for RA till I came to the group. TWo ways to

get remission, naturaly or drug induced. Awe that is so cool. Twice

the chance for remission. Thank you so much . I take MXT but

nothing yet good or bad. Start humira in 4 weeks.

hugs everyone till later lol

Clora

> Yes i was so scared too but Heidi on here walked me through my

first night..

> What a blessing she was

> i have im messenger so if you want to chat im around.

> Jolene

>

>

> In a message dated 8/1/2008 9:06:30 A.M. Eastern Daylight Time,

> wjkh@... writes:

>

>

>

>

> Hi

>

> It is scary when you first go onto methotrexate (mtx) - I know

all about

> that fear But mtx has put me into remission twice now - the

first time

> remission lasted for 4 happy years. I'm currently in a drug-

induced

> remission, after my 3rd flare which started in Jan 2005: I take

> sulphasalzine and mtx and have been in remission for 2 years now.

>

> Be brave and give it a go. Remember, regular blood tests while

you are on it

> mean any effects on your white blood count or liver function are

picked up

> early.

>

> in NZ

>

>

>

>

>

>

>

> **************Looking for a car that's sporty, fun and fits in

your budget?

> Read reviews on AOL Autos.

> (http://autos.aol.com/cars-BMW-128-2008/expert-review?

ncid=aolaut00050000000017 )

>

>

>

[Guest guest]

Never heard this either.

JOlene

In a message dated 8/1/2008 7:57:24 P.M. Eastern Daylight Time,

marysue@... writes:

I have never heard of it, either, and sent an earlier message asking

Clora about it.

Sue

On Friday, August 1, 2008, at 07:16 PM, McNally wrote:

> Group, I have never heard of anyone being told to take their mtx on a

> daily basis. Is it me or is this unheard of, I'd like to know.

> Thanks, in PA

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

[Guest guest]

I can't imagine taking MTX on a daily basis. I haven't heard of anyone

being told to do this in my short 13 months of having RA.

Heidi in Mass.

In a message dated 8/1/2008 6:10:17 P.M. Pacific Daylight Time,

Jolenefive@... writes:

Never heard this either.

JOlene

In a message dated 8/1/2008 7:57:24 P.M. Eastern Daylight Time,

_marysue@..._ (mailto:marysue@...) writes:

I have never heard of it, either, and sent an earlier message asking

Clora about it.

Sue

On Friday, August 1, 2008, at 07:16 PM, McNally wrote:

> Group, I have never heard of anyone being told to take their mtx on a

> daily basis. Is it me or is this unheard of, I'd like to know.

> Thanks, in PA

************************<WBR>**Looking for a car that's sporty, fun and fits

in

Read reviews on AOL Autos.

(_http://autos.http://autos.http://autos.http://autos.http://autos.<WBhttp://a

u_

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017)

)

[Non-text portions of this message have been removed]

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

[Guest guest]

Group, I have never heard of anyone being told to take their mtx on a daily

basis. Is it me or is this unheard of, I'd like to know. Thanks, in PA

[ ] Re:new here - mtx question

and Group

Omg no, I saw on here where some one was getting injections of mtx

twice week. I take 2 a day. So that would be 14 a week. And no, she

hasnt prescribed folic acid in weeks. I take them on my own.

OMG I hope she was educated in the USA. But I noticed with me all my

doctors are that way. My lung doctor, My heart doctor, My primary

doctor, and now my rheumatoid doctor. I have to tell them every

visit what meds to prescribe. Well not every time. One time I ran in

the hall hollering aren't you going to refill my prescriptions, that

was my heart doctor. I am sure he is educated here.

The last visit If she didnt do something about this pain I was going

to request for a new rheumy, Yes sir re. lol. I would have been

boiling mad. After the help I have heard this support group gets and

this lady let me suffer for a year. She is from India.lol It seems

like my doctors are in such a hurry to get in and get out. If others

are not having this problem, I must have jackass across my forhead.

I take my husband with me to each doctor visit. I think he spoke up

at the rheumys because he is tired of doing house work. haaaaaaaa.

just kidding. He dont want me to suffer.

She did help me and I am going to mention the folic acid. I have a

new insurance. I was on medicaid with my mecicare. Its changed in

the last few months. I am on Carolina Solutions and medicare now.

When I see a specialist, it has to be through my primary doctor.

THat scares me. I was going to complain like hell if my rheumy didnt

do something. But thats only after I read about all the other meds

my group is taking. I dont know if thats why she help me. But I was

getting pretty darn mad. I almost cried in her office a few days

ago. Telling her how much pain I was in.

gentle hugs to everyone

Clora

[Guest guest]

I have never heard of it, either, and sent an earlier message asking

Clora about it.

Sue

On Friday, August 1, 2008, at 07:16 PM, McNally wrote:

> Group, I have never heard of anyone being told to take their mtx on a

> daily basis. Is it me or is this unheard of, I'd like to know.

> Thanks, in PA

[Guest guest]

MONIQUE, IT'S O.K. WE ALL NEED HELP EVERY ONCE IN A WHILE & IT SEEMS U HAVE A

VERY STRONG,COMPASSIONATE ,LOVING MAN WHO LOVES U & WILL DO WHATEVER IT TAKES TO

TO MAKE U FEEL BETTER. TO ME THAT'S ONE IN A MILLION MAN, BE STRONG LAUREN & I'M

ALWAYS HERE TO CHAT IF U NEED 2.

GOD BLESS,MELYNDAGAMEZ 8/1/09 9:38P.M.

[ ] Re:new here - mtx question

thank you wendy. i really need to here that right now. i am so sore

today i can barely type this e-mail. my husband had to help me bathe

this am. i start mtx tomorrow.

monique

------------------------------------

[Guest guest]

Hi Clora,

So glad you are feeling so much less pain at the moment.Love your posts.

This note is a follow on to all the others who have been concerned about how you

are taking MTX,that is daily and without, until recently, folic acid. This would

certainly go against present prescribing advice and safety as far as I know. Not

only safer but better effects on the immune processs are achieved by weekly

pulsing.

Try googling 'daily methotrexate' and the results show clearly it is not

reccommended.I would suggest you contact your prescribing doctor and query it

strongly.You could ask a friendly pharmacist to check it out too first so you

feel more confident to query?. They are usually very keen to help make sure this

kind of drug is safely and correctly prescribed. For example if the patient has

English as their second language,they go over very carefully warning that it

only once a WEEK, because most people would expect to take daily meds of course.

It sounds as though you have been on this regime some time?, which in a way is

reassuring, because I trust your blood counts and liver tests have stayed OK?

Let us know more.

Best wishes

Chris

your friend, retired doc UK

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[Guest guest]

Clora, it sounds as though you have a wonderful husband who understands

what you're going through. You're lucky to have him.

Sue

On Saturday, August 2, 2008, at 09:05 AM, CLORA wrote:

> My husband seems to remember more than I

> do. He takes me to my doctor visits so he knows whats going on, and

> good thing he does because I have forgotton a lot of directions she

> has given me. I have a sound mind so far at 54.

[Guest guest]

Yes, MTX is just an abbreviation for methotrexate. We probably got you

confused by using the abbreviation.

Sue

On Saturday, August 2, 2008, at 09:18 AM, CLORA wrote:

>

> Are MTX and methotrixate the same thing. It was a year ago I took

> methtotrixate. I don't remember now how often I took it. Again sorry

> for the mix up

[Guest guest]

HI WENDY AND WELCOME. THIS IS AN AWESOME GROUP! I TO AM ON MTX IT SEEMS TO HELP,

I WAS SCARED AT FIRST

TO BUT I'LL TRY WHATEVER WILL HELP ME TO FUNCTION. THE ONLY TIME I STOP MY MTX

IS WHEN I'M SICK & ON

ANTIBIOTICS. YES IT AFFECTS YOUR LIVER & LUNGS SO MAKE SURE U GET YOUR BLOOD

DRAWN EVERY VISIT.

GOOD LUCK & GOD BLESS,MELYNDA GAMEZ 8/29/08 10:29A.M.CENTRAL

[ ] Re:new here - mtx question

>

    I have just been diganoised and start my methotrexate as soon as

I get the courage to take it.  I am 30 have a wonderful family and an

scared to death,  what are some side effects you had and how did they

know you were in remission. Do you stop the medication while in

remission?  I really don't have alot of info and could use anything

you can tell me.  Thanks steph

> Hi

>

> It is scary when you first go onto methotrexate (mtx) - I know all

about

> that fear But mtx has put me into remission twice now - the

first time

> remission lasted for 4 happy years. I'm currently in a drug-induced

> remission, after my 3rd flare which started in Jan 2005: I take

> sulphasalzine and mtx and have been in remission for 2 years now.

>

> Be brave and give it a go. Remember, regular blood tests while you

are on it

> mean any effects on your white blood count or liver function are

picked up

> early.

>

> in NZ

>

------------------------------------

[Guest guest]

I was dx only 4 mths ago.  My doctor said that I will be on medicine from now on

but the dosage may be lower. I had to try Plaquenil for two mths and after no

relieve from the pain he put me on MTX (and 2 mths later increased the doasge). 

I'm a little more mobile and functional but still in pain and have more bad days

than better days.  He offered the injection as well (but I'm not sure if it was

another drug or still the MTX now) but I said we could try the increase in MTX

first since I'm hating needles.  I have decided though needles are better than

pain and I'm ready for my first shot!!

Paris

 

[ ] Re:new here - mtx question

>

    I have just been diganoised and start my methotrexate as soon as

I get the courage to take it.  I am 30 have a wonderful family and an

scared to death,  what are some side effects you had and how did they

know you were in remission. Do you stop the medication while in

remission?  I really don't have alot of info and could use anything

you can tell me.  Thanks steph

> Hi

>

> It is scary when you first go onto methotrexate (mtx) - I know all

about

> that fear But mtx has put me into remission twice now - the

first time

> remission lasted for 4 happy years. I'm currently in a drug-induced

> remission, after my 3rd flare which started in Jan 2005: I take

> sulphasalzine and mtx and have been in remission for 2 years now.

>

> Be brave and give it a go. Remember, regular blood tests while you

are on it

> mean any effects on your white blood count or liver function are

picked up

> early.

>

> in NZ

>

------------------------------------