Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Hi , I don't think I ever have a 100% pain free day. If I allow myself to pay attention to it, I could tell you my left hip hurts today and maybe my right toe....LOL. However, these medications make it tolerable to have a good day to be productive. Work, walks, whatever a productive day is for you. They get you out of bed! For that I am grateful. Don't get me wrong, I've got my moments where I totally p and m about my meds. But it doesn't last long. Just a few moments ago, I carried my cat around the block and across the street to his vets office to have a paw looked at. I walked instead of putting him in the car and driving him. I'm all proud of myself! Heidi To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 5/28/2008 9:48:25 A.M. Eastern Daylight Time, l8deblu@... writes: Thanks to everyone for your replies. It gives me encouragement that the side effects of the Methotrexate will fade the longer I take it. I am curious for those who said it works great for them. Does that mean you are pain free? Are we ever pain free or is that something that is just in the past? Still learning, **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Thanks to everyone for your replies. It gives me encouragement that the side effects of the Methotrexate will fade the longer I take it. I am curious for those who said it works great for them. Does that mean you are pain free? Are we ever pain free or is that something that is just in the past? Still learning, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 , I'm not pain free, but the pain is at a level that I don't even use Tylenol, I call it just my cross to bear, I guess I've gotten used to it. I have started Pilates and the diference is amazing, I have mobility that I was losing. I'm also carrying around a few (40) extra pounds and I'm sure that doesn't help, working on that, LOL. mary in pa [ ] pain forever? Thanks to everyone for your replies. It gives me encouragement that the side effects of the Methotrexate will fade the longer I take it. I am curious for those who said it works great for them. Does that mean you are pain free? Are we ever pain free or is that something that is just in the past? Still learning, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 I was diagnosed over 10 years ago, and at this point I do not know what is pain free, I take MTX, mobic, folic acid, and vicodin, and toprel LX beta blocker. I do know that being active and exercising helps with the pain, and just not thinking about it helps also. I was on prednisone and went off it in December, since then I have lost 33 pounds, and loosing the weight helped so much with the pain. Try walking around with a ten pound bag of potatoes in each hand, imagine what it does to your joints, that alone is enough to encourage anyone that is a bit over weight to try and drop it, for me it was not easy on the prednisone I gained over 70 lbs. so I still have more to go, know I am off the prednisone it is easier to loose, I am 48 years old so age makes it tuff also. As far as pain, its there some days are better then others. Jean sposy@... wrote: Hi , I don't think I ever have a 100% pain free day. If I allow myself to pay attention to it, I could tell you my left hip hurts today and maybe my right toe....LOL. However, these medications make it tolerable to have a good day to be productive. Work, walks, whatever a productive day is for you. They get you out of bed! For that I am grateful. Don't get me wrong, I've got my moments where I totally p and m about my meds. But it doesn't last long. Just a few moments ago, I carried my cat around the block and across the street to his vets office to have a paw looked at. I walked instead of putting him in the car and driving him. I'm all proud of myself! Heidi To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 5/28/2008 9:48:25 A.M. Eastern Daylight Time, l8deblu@... writes: Thanks to everyone for your replies. It gives me encouragement that the side effects of the Methotrexate will fade the longer I take it. I am curious for those who said it works great for them. Does that mean you are pain free? Are we ever pain free or is that something that is just in the past? Still learning, **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 To be honest, I don't believe there is a " pain free " . Everyone in life experiences pains. Even those that are healthy will experience the aches and pains of aging. It's just like wishing anxiety would be gone..its a part of life and something that will always be there. The pain may lesson and flares may be less frequent, but when there is no cure, there is most likely still expected to be some pain Sullivan <l8deblu@...> wrote: Thanks to everyone for your replies. It gives me encouragement that the side effects of the Methotrexate will fade the longer I take it. I am curious for those who said it works great for them. Does that mean you are pain free? Are we ever pain free or is that something that is just in the past? Still learning, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 My RA is under great control with Enbrel. But I have flares of pain in my left hip that he says is probably osteoarthritis in my lumbar spine. The Enbrel doesn't do it any good. Last week I was on a trip to Kentucky, and my hip was very painful. I saw the rheumy today and talked about it. I commented that there are better meds for RA than for osteoarthritis, and he agreed. (Of course that's true only if you find one that works well for you.) At my last appointment four months ago, he detected a heart murmur that he had not heard before. About five years ago, my radiation oncologist also heard it. Today my rheumy heard it again and said that it sounded as though blood is leaking out of the valve. He is sending me to have an echo done. I'm hoping that it's nothing serious, but most anything to do with the heart is very scary to me. Sue On Wednesday, May 28, 2008, at 01:22 PM, stephanie wrote: > To be honest, I don't believe there is a " pain free " . Everyone in > life experiences pains. Even those that are healthy will experience > the aches and pains of aging. It's just like wishing anxiety would be > gone..its a part of life and something that will always be there. The > pain may lesson and flares may be less frequent, but when there is no > cure, there is most likely still expected to be some pain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Thank you all for your thoughts and candid sharing. I think I am still in the discovery/possibly denial stage of this experience. I wanted to know if there was a chance that I wouldn't hurt all the time, but in reading your posts, what I am learning is that I need to stop focusing on it and just live my life. Knowing that I might always have pain allows me to just accept it as a fact of life rather than having hope or expectation that it might go away and that acceptance will then free me to just do the best I can with each day. Thank you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Heidi, Thanks for your post, it made me laugh because I just asked my Rheumy two weeks ago if it was possible that I was misdiagnosed and did not have RA. I guess we all go through those stages of wishing the disease away... > > Hi, > > I don't think we were trying to convey giving up hope. There is always hope > for a pain free day, for a cure, etc. However, accept yourself for who you > are in this very moment and yes, go on with your day. Dwelling on the pain, > will slow everything down. It's ok to move forward and go on about your daily > activities, some days you might just be slower than others. There are days > that I question if I have RA! I asked my rheumy once, do I really have RA, he > smiled, laughed a little, and pulled out all the supporting documents, with > explanations. I appreciated that reaction, and would never have asked if I > didn't have that kind of rapport with my Dr. The point is, accept it, learn > everything you can, and continue living your life everyday. Giving in means RA > wins. We can't have that! > > Wishing you and all of us, many as close to pain free days as possible! > > Hugs and smiles, > > Heidi > Mass. > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > > In a message dated 5/29/2008 6:53:03 A.M. Eastern Daylight Time, l8debl > u@... writes: > > > > > Thank you all for your thoughts and candid sharing. I think I am still > in the discovery/possibly denial stage of this experience. I wanted to > know if there was a chance that I wouldn't hurt all the time, but in > reading your posts, what I am learning is that I need to stop focusing > on it and just live my life. Knowing that I might always have pain > allows me to just accept it as a fact of life rather than having hope > or expectation that it might go away and that acceptance will then > free me to just do the best I can with each day. > > Thank you all! > > > > > > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > Tyler Florence " on AOL Food. > (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Sue, I hope all turns out okay with your heart. I just started Enbrel about 12 weeks ago, although I had to go off it for 5 weeks for surgery. I've had a total of 6 shots, 3 before and 3 after the surgery. I'm not seeing any improvement yet. I know everyone can react differently, but I'm curious about how long you had to wait before you got to 'under great control'. Thanks, Molly > > > To be honest, I don't believe there is a " pain free " . Everyone in > > life experiences pains. Even those that are healthy will experience > > the aches and pains of aging. It's just like wishing anxiety would be > > gone..its a part of life and something that will always be there. The > > pain may lesson and flares may be less frequent, but when there is no > > cure, there is most likely still expected to be some pain > Quote Link to comment Share on other sites More sharing options...
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