Re: Re: RA and lung problems

[Guest guest]

Ugh. I've been having a deep cough, occ. fever and fatigue for the past 3

weeks. I figured it would go away. No luck. I called my PCP office today and the

receptionist told me I had to come in to be seen- I can't. there is no way.

" Well they can't prescribe over the phone. " I had told her i wanted to talk

to the nurse. Just get me the nurse. She started triaging me- what color

mucous, etc. I said it was clear---- " well then it must be a virus, it has to

be

green or yellow. " Not true I told her, green or yellow is often VIRAL. (i'm an

np). I told her I am taking enbrel (whats that? she asks). Why is she

triaging when she doesn't know anything????? I wanted to talk to the nurse- let

her

triage and decide if I should come in or what to do.

Abby

In a message dated 9/4/2008 1:07:48 P.M. Pacific Daylight Time,

mimi212@... writes:

> Is there anyone here with Rheumatoid lung disease? After having

what has been dx as bronchitis for three weeks and still unable to

breathe well on 10mg prednisone and inhaled corticosteroids, my

rheumy has ordered a CAT scan and xray to rule out Rheumatoid lung

disease. (This is after treatment with antibiotics, two breathing

treatments, an 80mg depo medrol injection followed by 20mgs of

prednisone a day for four days and 10mgs for another 20 days, and

three different kinds of inhalers).

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Thank you for the kind words. I went to immediate care. The doctors office

never called me back. My doctor was out.

The immediate care MD took an xray to rule out pneumonia (it was ok) and

said I have a bacterial infection, gave me antibiotics, cough syrup, pain meds

and a note to get off of work.

Abby

In a message dated 9/4/2008 6:34:20 P.M. Pacific Daylight Time,

clora4jesus@... writes:

Awe Hon, I am so sorry. I don't know why she did that to you. I hope

you can go in and be seen by the doctor you sound pretty sick. She

didn't even know what enbrel was! And she was triaging you. Maybe

the nurse was busy I have no idea. You need to see that doctor. My

doctor does that to me sometimes. My regular doctor not the RA

doctor.

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

HI CLORA,HOPE U R DOING WELL? BARBARA ASKED ABOUT U & I TOLD HER, I THOUGHT U

WERE DOING FINE!

 SHE'S DOING BETER BUT STILL IN PAIN. SHE CAN'T WAIT TO GET OUT OF REHAB. GOD

BLESS,MELYNDAGAMEZ 9/4/08 9:20P.M.CENTRAL

[ ] Re: RA and lung problems

Abby and group;

Awe Hon, I am so sorry. I don't know why she did that to you. I hope

you can go in and be seen by the doctor you sound pretty sick.  She

didn't even know what enbrel was!  And she was triaging you.  Maybe

the nurse was busy I have no idea. You need to see that doctor. My

doctor does that to me sometimes. My regular doctor not the RA

doctor.

I hope you get the meds you need hon. Sorry a receptionst thinks she

is a nurse. Where do they get trying that to people. If you can go

to the doctor dont let this infection get worse. God bless you

sweety.

gentle hugs

Clora

> Ugh. I've been having a deep cough, occ. fever and fatigue for the

past 3 

> weeks. I figured it would go away. No luck. I called my PCP office

today and the

>  receptionist told me I had to come in to be seen- I can't. there

is no way. 

> " Well they can't prescribe over the phone. " I had told her i

wanted to talk

> to  the nurse. Just get me the nurse. She started triaging me-

what color

> mucous,  etc. I said it was clear---- " well then it must be a

virus, it has to be

> green  or yellow. " Not true I told her, green or yellow is often

VIRAL. (i'm an

> np). I  told her I am taking enbrel (whats that? she asks). Why is

she

> triaging when she  doesn't know anything????? I wanted to talk to

the nurse- let her

> triage and  decide if I should come in or what to do.

> 

> Abby

> 

>

------------------------------------

[Guest guest]

Marie,

I read your symptoms and sounds like your rheumy is trying to help but let me

ask this....  does it hurt to breathe in.  When you take a breath, is there a

sharp pain in your lung?  It sounded a lot like when I had Pluerisy.  I may be

spelling it wrong but it's basically the lung tissue is inflammed and hits the

ribs. I would think the pred and cort would work but maybe it's just not strong

enough.  You know how we get " use " to the drugs and they have to increase the

dosage.   I use an inhaler when needed for my asthma and it was alot like having

an attack b/c you couldn't breathe but there was that sharp pain that almost

made me pass out.  I didn't have a cough at all though.  Hope you feel better

soon!! Good Luck! Paris

[ ] Re: RA and lung problems

and group;

I am so sorry you have suffered with your breathing and lungs hon. I

have lung problems to. Not due to RA I guess anyway. I do have RA.

You sure have went through a lot.

gentle hugs

Clora

@...> wrote:

>

> Is there anyone here with Rheumatoid lung disease? After having

what has been dx as bronchitis for three weeks and still unable to

breathe well on 10mg prednisone and inhaled corticosteroids, my

rheumy has ordered a CAT scan and xray to rule out Rheumatoid lung

disease. (This is after treatment with antibiotics, two breathing

treatments, an 80mg depo medrol injection followed by 20mgs of

prednisone a day for four days and 10mgs for another 20 days, and

three different kinds of inhalers).

>

> There is a question as to whether or not I have pneumonia (I was

on Enbrel) as well, but I have not had any fever at all and very

little in the way of a productive cough. I have a dry cough once in

a while, a lot of wheezing and tightness, some pain in my lungs, and

once in a while I am extremely short of breath (nearly blacking

out). Even on a number of different inhalers, I am needing my rescue

inhaler 2-3 times a day after nearly three weeks of treatment. My

primary thinks I just need to ride it out at this point, but my

rheumy says if I am not breathing well on 10mgs of prednisone

something is wrong. I have had asthma in the past, but it was very,

very mild and required the use of a rescue inhaler perhaps once or

twice a year.

>

> Has anyone else had a similar experience?

>

> ~Marie

> 

>

>

[Guest guest]

hi clora i'm glad u r feeling better. no one likes to b in pain. i will keep u

infomed about barb,if i talk with her again. as of now she's still recovering...

bless her heart.god bless,melyndagamez 9/5/08 9:15p.m.central

[ ] Re: RA and lung problems

Melynda and group;

Awe Melynda, I hope Barbara gets better soon. I sure miss her. If you

get to talk to her, would you give her a message for me?? If so here

it is. (I am on prednisone, I am waiting for my humira to arrive from

the pharmacy delivery. I feel great about a number 5. I hope the

humira takes it to a 0.)

The last time I talk to Barbara I believe i was in a pain range aroud

13 lol. So a 5 is very good. I hope Barbara is healing good soon.

thank you so much Melynda.

gentle hugs

Clora

------------------------------------