new and need advice

[Guest guest]

Here is a good summary:

/message/56179

Nordic Naturals are lemon flavored & some kids like that. Others mix

in juice.

>

> Hello group,

>

> We are new to this board and are hoping to pick up some great info

and

> help for our son Tyler. He is a twin and former preemie. He is now

2y

> 3m and is still not talking. Our speech terapist has reccomended

some

> fish oil supplements to his diet and said she has seen dramatic

> improvements when this is introduced.We are waiting to hear back

from

> our piediatrician who is lookig into a dose for him. Are there any

> reccomendations on brand or how /what to mix it with so he will

take it.

>

> To complicate matters we are also being told that he is on the

autistic

> spectrum,which is a story within itself.His twin brothe who also

does

> not talk but babbles and makes sounds is blind with a boatload of

> medical issues so we are hoping someone out there can relate and

give

> us some information.

>

> He has been getting speech therapy for many months and has great

> understanding of what words and what things are. He can pick out

> animals colors, numbers and knows the entire alphabit back and

forth

> and can follow simple instructions so this is very encouraging. We

are

> just hoping to get a word out of him sometime soon.

>

> Thanks in advance

> and Diane

>

[Guest guest]

I'm having the same problem with Cigna. My son, Christian (8mos

today) was recently diagnosed with mild plagio and my husband and I

are in the same position as you. We've decided to go ahead and band

regardless of what the insurance covers and doesn't cover. The other

option we're looking into is the Flex Spending. I have a call in to

my HR Dept at work to see if this will be covered under it. If not

then we'll still proceed as usual. What city/state are you in? I'm

located in Arlington, TX. Maybe since you and I are going through

similar issues we can work together and provide information to each

other as the process continues. Please email me if you'd like to chat

about it all.

I called Cigna yesterday and the customer service rep couldn't tell

me why it was denied but the rep from Cranial Tech said someone

mentioned the exclusion to her. They said they on;y cover post-

surgical use. This is ignorant to me because why wouldn't they want

to prevent it from getting that far?

Anyway, please email me if you would like to share information about

this whole thing as we learn. It sounds like we're both in the same

position with all of this.

Thanks,

Tammy

>

> First I wanted to say this is a wonderful group with an immense

> amount of helpful information!!

>

> I'm new to this and I'm confused in trying to figure out how all of

> this works. My son is 6 months old and was referred to Cranial

Tech.

> by his pediatrician last month. We went to the appointment last

week

> and they (CT) recommended the DOC band. They (CT) also called to

> tell me that they contacted my insurance carrier (Cigna) and they

do

> not cover it because of an exclusion in the policy. I told CT that

I

> wanted to go ahead with the treatment anyway and that I'll file an

> appeal too. Right now I am waiting for the pediatrician to send CT

> the prescription and then I guess they contact me to set up an

> appointment. I don't know how this works tough. Do I show up for

> the appointment and then get paperwork to file a claim and then

wait

> for the denial letter to appeal. Or do I call Cigna now and ask if

> it's covered and if not ask them to send me something in writing,

> then appeal? I'm not sure what comes next.

>

> Regardless, we decided to go through with the banding and pay up

> front because we don't want to put it off any longer.

>

> Thanks for any advice and help,

> , Mother of (6 mo. old with Brachycephaly and

> Torticollis)

>

[Guest guest]

I do not have Cigna, but was advised that it is imperative that your script says first a diagnosis of congenital torticollis adn then secondly the brach diagnosis. Also, my insurance wanted to know how long repositioning lasted and the results. My doctor said 8 weeks and no progress, however his tort was corrected, but they dont need to know that. ANyhow, good luck!

New and need advice

First I wanted to say this is a wonderful group with an immense amount of helpful information! !I'm new to this and I'm confused in trying to figure out how all of this works. My son is 6 months old and was referred to Cranial Tech. by his pediatrician last month. We went to the appointment last week and they (CT) recommended the DOC band. They (CT) also called to tell me that they contacted my insurance carrier (Cigna) and they do not cover it because of an exclusion in the policy. I told CT that I wanted to go ahead with the treatment anyway and that I'll file an appeal too. Right now I am waiting for the pediatrician to send CT the prescription and then I guess they contact me to set up an appointment. I don't know how this works tough. Do I show up for the appointment and then get paperwork to file a claim and then wait for the denial letter to appeal. Or do I call Cigna now and ask if

it's covered and if not ask them to send me something in writing, then appeal? I'm not sure what comes next. Regardless, we decided to go through with the banding and pay up front because we don't want to put it off any longer.Thanks for any advice and help,, Mother of (6 mo. old with Brachycephaly and Torticollis)

Never miss a thing. Make your homepage.

[Guest guest]

Thanks for the info.

>

> I do not have Cigna, but was advised that it is imperative that

your script says first a diagnosis of congenital torticollis adn then

secondly the brach diagnosis. Also, my insurance wanted to know how

long repositioning lasted and the results. My doctor said 8 weeks

and no progress, however his tort was corrected, but they dont need

to know that. ANyhow, good luck!

>

>

>

> New and need advice

>

> First I wanted to say this is a wonderful group with an immense

> amount of helpful information! !

>

> I'm new to this and I'm confused in trying to figure out how all of

> this works. My son is 6 months old and was referred to Cranial

Tech.

> by his pediatrician last month. We went to the appointment last

week

> and they (CT) recommended the DOC band. They (CT) also called to

> tell me that they contacted my insurance carrier (Cigna) and they

do

> not cover it because of an exclusion in the policy. I told CT that

I

> wanted to go ahead with the treatment anyway and that I'll file an

> appeal too. Right now I am waiting for the pediatrician to send CT

> the prescription and then I guess they contact me to set up an

> appointment. I don't know how this works tough. Do I show up for

> the appointment and then get paperwork to file a claim and then

wait

> for the denial letter to appeal. Or do I call Cigna now and ask if

> it's covered and if not ask them to send me something in writing,

> then appeal? I'm not sure what comes next.

>

> Regardless, we decided to go through with the banding and pay up

> front because we don't want to put it off any longer.

>

> Thanks for any advice and help,

> , Mother of (6 mo. old with Brachycephaly and

> Torticollis)

>

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

Hi girls,I'm in NM with CIGNA, having the same issue. We paid up

front (with our flex plan) and are going to pursue the appeals

process. Check out the Files area for some info on insurance. It

seems like if someone gets it covered that should help the rest of us.

My daughter got her helmet 2 weeks ago and I'm already glad we're

doing it, even if the insurance never pays up.

Meredith

> >

> > First I wanted to say this is a wonderful group with an immense

> > amount of helpful information!!

> >

> > I'm new to this and I'm confused in trying to figure out how all of

> > this works. My son is 6 months old and was referred to Cranial

> Tech.

> > by his pediatrician last month. We went to the appointment last

> week

> > and they (CT) recommended the DOC band. They (CT) also called to

> > tell me that they contacted my insurance carrier (Cigna) and they

> do

> > not cover it because of an exclusion in the policy. I told CT that

> I

> > wanted to go ahead with the treatment anyway and that I'll file an

> > appeal too. Right now I am waiting for the pediatrician to send CT

> > the prescription and then I guess they contact me to set up an

> > appointment. I don't know how this works tough. Do I show up for

> > the appointment and then get paperwork to file a claim and then

> wait

> > for the denial letter to appeal. Or do I call Cigna now and ask if

> > it's covered and if not ask them to send me something in writing,

> > then appeal? I'm not sure what comes next.

> >

> > Regardless, we decided to go through with the banding and pay up

> > front because we don't want to put it off any longer.

> >

> > Thanks for any advice and help,

> > , Mother of (6 mo. old with Brachycephaly and

> > Torticollis)

> >

>

[Guest guest]

Hello-

Thanks for responding to the post. So you were reimbursed by your

Flex Plan? That is great news if that's the case.

Thanks,

Tammy

> > >

> > > First I wanted to say this is a wonderful group with an

immense

> > > amount of helpful information!!

> > >

> > > I'm new to this and I'm confused in trying to figure out how

all of

> > > this works. My son is 6 months old and was referred to

Cranial

> > Tech.

> > > by his pediatrician last month. We went to the appointment

last

> > week

> > > and they (CT) recommended the DOC band. They (CT) also called

to

> > > tell me that they contacted my insurance carrier (Cigna) and

they

> > do

> > > not cover it because of an exclusion in the policy. I told CT

that

> > I

> > > wanted to go ahead with the treatment anyway and that I'll

file an

> > > appeal too. Right now I am waiting for the pediatrician to

send CT

> > > the prescription and then I guess they contact me to set up an

> > > appointment. I don't know how this works tough. Do I show up

for

> > > the appointment and then get paperwork to file a claim and

then

> > wait

> > > for the denial letter to appeal. Or do I call Cigna now and

ask if

> > > it's covered and if not ask them to send me something in

writing,

> > > then appeal? I'm not sure what comes next.

> > >

> > > Regardless, we decided to go through with the banding and pay

up

> > > front because we don't want to put it off any longer.

> > >

> > > Thanks for any advice and help,

> > > , Mother of (6 mo. old with Brachycephaly and

> > > Torticollis)

> > >

> >

>

[Guest guest]

hi,

i am in my 30's and have RA, OA and ostepenia, sjogrens and lupus. i

take disease modifying meds to help stop the progression of the

arthritis disease but i dont know if they are working. i go to the dr

in 2 weeks and thought maybe someone could help me figure out what's

going on with me.

can anyone help me?

julie

[Guest guest]

Hi !

I am in my 30's too and often think my DMARDS are not helping. I can tell you

though, I learned that although I feel miserable most of the time, I

do & nbsp;notice they decrease my pain somewhat. & nbsp; I have had to stop taking

my Sulfasalazine several times (6 times to be exact since I had infections URI

and had to take antibiotics). & nbsp; The minute I have to stop taking it my pain

increases immensely. & nbsp; If I miss a dose of my Plaquenil, I am in incredible

pain. & nbsp; My doctor recently stopped that one ( I have no idea WHY yet, I plan

to speak to her tomorrow) but since stopping that one, I'm miserable and the

Sulfasalazine is not enough on its own. & nbsp; Talk to your doctor as honestly as

you can. & nbsp; Document your symptoms and what is getting worse. & nbsp; I believe

one way they can know if they are helping you is by looking at labs, is the Sed

Rate and other blood factors lower than the last set or higher? Compare new

Xrays to older ones to see

if things are progressing. & nbsp; I hope that you can find some relief soon

From: batai9 & lt;batai9@... & gt;

Subject: [ ] new and need advice

Date: Sunday, June 8, 2008, 1:19 PM

hi,

i am in my 30's and have RA, OA and ostepenia, sjogrens and lupus. i

take disease modifying meds to help stop the progression of the

arthritis disease but i dont know if they are working. i go to the dr

in 2 weeks and thought maybe someone could help me figure out what's

going on with me.

can anyone help me?

julie

[Guest guest]

hi rita,

i have pain every day. i've been taking otc ibu and it helps a

little. i'm still working every day and taking care of house and

errands. my hubby is very supportive, but i just get frustrated that

i'm so young and cant do everything like planting a plant this

weekend. does it ever get better?

i take evosac for my sjogrens and that helps 100% with the saliva

issues. i'm not sure what else the sjogrens is part of my problems.

what kinds if issues do you ahve with it?

tell me more!

i'm glad to not be alone.

julie

>

> i have the very same diagnosis minus the lupus but includes

ankylosing spondolysis. it is pure hell some days. my life is over.

i cannot do anything i once did. grocery shopping is an all day event

get ready go and go to bed when i get home. i am on humira sufusadine

evoxac prenisone as needed for flares, etc. if my rheumy would just

give me on 10mg of pednisone once a week

> i could function. at least go to mail box grocery shopping wal into

drs office without feeling i am gonna have a heart attack.. the

sjorgens is the most aggravating thing i have ever experience. so

glad to know another human being has my problems. sometimes i feel

like an aliene, or an adult that have lost their mind. seriously

sometimes i think nothing is wrong with me it must just be a deep

depression. my husband doesn't really talk with me about it that

much, he helps tremendously with housework and never complains but i

just dont think he understands what i am dealing with. rita

>

>

>

> [ ] new and need advice

>

>

> hi,

> i am in my 30's and have RA, OA and ostepenia, sjogrens and lupus. i

> take disease modifying meds to help stop the progression of the

> arthritis disease but i dont know if they are working. i go to the dr

> in 2 weeks and thought maybe someone could help me figure out what's

> going on with me.

> can anyone help me?

> julie

>

>

>

>

>

>

>

[Guest guest]

>

> hi,

> i am in my 30's and have RA, OA and ostepenia, sjogrens and lupus. i

> take disease modifying meds to help stop the progression of the

> arthritis disease but i dont know if they are working. i go to the dr

> in 2 weeks and thought maybe someone could help me figure out what's

> going on with me.

> can anyone help me?

> julie

>

Hi ,your diagnosis and mine are the very same.Sometimes I just

don't know what is causing what.The Sjogrens has caused me more

grief,tooth decay,thrush,painful swollen raw tongue,mouth sores,painful

swollen salavary glands.I could go on for days,and I haven't even

mentioned my eyes,which are so dry,even the breeze from a fan irritates

them. I have taken most DMARDS and ended up on prednisone 15mgs a day

for the last few years.It was increased with each really bad

flare .Tomorrow I go for my first Orencia infusion,hopefully I will be

coming off the steroids soon.You didn't say how long you have been on

DMARDS?If you are still in a lot of pain or discomfort,tell the doc.you

need something for pain relief,most are willing to give you something.I

hope you get some answers at your MD visit.Hang in there,Hugs,Sherry

[Guest guest]

sherry,

hi. i have been on dmards for 6 yrs. you are right, it's hard to

tell which problem is from which disease. i dont take pain meds right

now cause all the choices all make you sleepy and you cant drive. i

still work and need my brain about me every day. i only take

prednisone if aboslutely necessary as it makes my stomach a mess. so

maybe once a year for a month or so. i dont want to do that yet.

i guess i'm just a mess for now. i can talk with the dr, but he

doesnt know any better than me. that's hard to take.

thanks,

julie

> >

> > hi,

> > i am in my 30's and have RA, OA and ostepenia, sjogrens and lupus. i

> > take disease modifying meds to help stop the progression of the

> > arthritis disease but i dont know if they are working. i go to the dr

> > in 2 weeks and thought maybe someone could help me figure out what's

> > going on with me.

> > can anyone help me?

> > julie

> >

> Hi ,your diagnosis and mine are the very same.Sometimes I just

> don't know what is causing what.The Sjogrens has caused me more

> grief,tooth decay,thrush,painful swollen raw tongue,mouth sores,painful

> swollen salavary glands.I could go on for days,and I haven't even

> mentioned my eyes,which are so dry,even the breeze from a fan irritates

> them. I have taken most DMARDS and ended up on prednisone 15mgs a day

> for the last few years.It was increased with each really bad

> flare .Tomorrow I go for my first Orencia infusion,hopefully I will be

> coming off the steroids soon.You didn't say how long you have been on

> DMARDS?If you are still in a lot of pain or discomfort,tell the doc.you

> need something for pain relief,most are willing to give you something.I

> hope you get some answers at your MD visit.Hang in there,Hugs,Sherry

>

[Guest guest]

Welcome to the group! To answer your questions:

1. It is not unusual to have a CT scan done. It is usually done to rule

out craniosyntosis (premature fusing of the skull bones). Not all doctors

will order at CT scan as they feel comfortable feeling the head.

2. My son had a CT scan done when he was 5 months old and from what I could

tell it was perfectly safe. They didn't have to sedate him, but would have

if he didn't cooperate.

3. Our specialist (plastic surgeon) was the one that ordered the CT scan

and we had it done after the appointment. Perhaps the neurosurgeon wants

the CT scan done before the appointment so he can review the results ahead

of time.

Hope this helps!

Molly

Novato, California

Nicolas, 3.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 6.5

, 9.5

new and need advice

Hi everyone! I am new to this group. Our son is 8 months and 9 days old and

we were just diagnosed with positional plagiocephaly. Our pediatrician

referred him to a neurosurgeon because he felt my son¡¯s head is not only

flat but also has a slight dent in the flat area. Today the nurse of

neurosurgeon called us and asked my son to have a head CT scan tomorrow (the

appointment with the specialist will be on next Thursday). I have some

concerns about the CT scan:

1. Is CT scan a routine check for child who may need a cranial band?

2. Is the CT scan safe for an 8-month old infant?

3. Is it unusual for the neurosurgeon requiring patient to have a CT

scan before he see the patient? (In our case, the pediatrician tried to have

the earliest available time with the neurosurgeon for my son. That could be

the reason, but it¡¯s good to know if anyone had the similar situation)

Any and all advice would be greatly appreciated.

Thank you!

Amy

------------------------------------

For more plagio info

[Guest guest]

We were also referred to a cranialfacial/neurosurgeon to see if a CT was necessary b/c the neurologist didn't want to expose my son to a CT if not necessary.  Our neurosurgeon was able to rule out fusing of the plates without a CT.  Your concerns are valid, but I think things will be fine.  Good luck. My son is 9 months and just got his DOC band on Monday.

On Thu, Sep 17, 2009 at 4:36 PM, amyzhaoxin <amyzhaoxin@...> wrote:

 

Hi everyone! I am new to this group. Our son is 8 months and 9 days old and we were just diagnosed with positional plagiocephaly. Our pediatrician referred him to a neurosurgeon because he felt my son¡¯s head is not only flat but also has a slight dent in the flat area. Today the nurse of neurosurgeon called us and asked my son to have a head CT scan tomorrow (the appointment with the specialist will be on next Thursday). I have some concerns about the CT scan:

1. Is CT scan a routine check for child who may need a cranial band?2. Is the CT scan safe for an 8-month old infant?3. Is it unusual for the neurosurgeon requiring patient to have a CT scan before he see the patient? (In our case, the pediatrician tried to have the earliest available time with the neurosurgeon for my son. That could be the reason, but it¡¯s good to know if anyone had the similar situation)

Any and all advice would be greatly appreciated. Thank you!Amy