Re: Effect on Eyes/BAMANUT

June 2, 2008

Hi Chris!

I started Plaquenil in December 2007 and by mid January noticed a decrease in my

vision/blurriness. At the time I was also recovering from a case of scleritis so

I thought that perhaps it was related to that however.... In April I went for my

3 month checkup to my ophthalmologist and failed my visual field test which led

to more testing and found out that I had developed discoloration around my

macula. Long story short... I stopped Plaquenil at the end of April and within 2

weeks my vision returned to normal. I still have the damage to my retina however

it is contained and not leaking. I will now be followed by my regular

ophthalmologist every 4 months and the retina specialist every 2 until they are

convinced that the damage is contained..... Both have told me that even though I

am off the Plaquenil that I can still suffer damage from it down the road....

Bottom line... Call your rheumy and tell him/her this. Most require that you are

followed up by an ophthalmologist while on Plaquenil. If not, I am sure he/she

will refer you to one.

*~ Kami ~*

[ ] Effect on Eyes

I was wondering if anyone had experienced blurred or reduced vision. I

have P/RA. I have been taking 12.5 of MTX /wk, 400 mg Plaquenil / day

and 1 MG folic acid. I have been on these meds for 5 weeks and this is

the first med's that I have taken.

My P seems to be spreading and worsending and so is the RA symptoms and

I am having vision problems. I have been blaming the reduced vision on

being 40 + years old now but I am beginning to wonder if the disease or

the medicine could be the culprit.

Any thoughts?

Thanks,

Chris

June 2, 2008

I also developed problems and was pulled off Plaquenil about a year ago. I

also failed a visual field test. It's SO important to have regular eye

exams with an ophthalmologist, NOT an optometrist when you're on this

medication.

_____

From: [mailto: ] On

Behalf Of ~ Kami ~

Sent: Monday, June 02, 2008 8:13 AM

Subject: Re: [ ] Effect on Eyes/BAMANUT

Hi Chris!

I started Plaquenil in December 2007 and by mid January noticed a decrease

in my vision/blurriness. At the time I was also recovering from a case of

scleritis so I thought that perhaps it was related to that however.... In

April I went for my 3 month checkup to my ophthalmologist and failed my

visual field test which led to more testing and found out that I had

developed discoloration around my macula. Long story short... I stopped

Plaquenil at the end of April and within 2 weeks my vision returned to

normal. I still have the damage to my retina however it is contained and not

leaking. I will now be followed by my regular ophthalmologist every 4 months

and the retina specialist every 2 until they are convinced that the damage

is contained..... Both have told me that even though I am off the Plaquenil

that I can still suffer damage from it down the road....

Bottom line... Call your rheumy and tell him/her this. Most require that you

are followed up by an ophthalmologist while on Plaquenil. If not, I am sure

he/she will refer you to one.

*~ Kami ~*

[ ] Effect on Eyes

I was wondering if anyone had experienced blurred or reduced vision. I

have P/RA. I have been taking 12.5 of MTX /wk, 400 mg Plaquenil / day

and 1 MG folic acid. I have been on these meds for 5 weeks and this is

the first med's that I have taken.

My P seems to be spreading and worsending and so is the RA symptoms and

I am having vision problems. I have been blaming the reduced vision on

being 40 + years old now but I am beginning to wonder if the disease or

the medicine could be the culprit.

Any thoughts?

Thanks,

Chris

June 2, 2008

Thanks for the replies.

Chris

>

> I also developed problems and was pulled off Plaquenil about a year

ago. I

> also failed a visual field test. It's SO important to have regular

eye

> exams with an ophthalmologist, NOT an optometrist when you're on

this

> medication.

>

> _____

>

> From: [mailto:RA-

SUPPORT ] On

> Behalf Of ~ Kami ~

> Sent: Monday, June 02, 2008 8:13 AM

>

> Subject: Re: [ ] Effect on Eyes/BAMANUT

>

> Hi Chris!

>

> I started Plaquenil in December 2007 and by mid January noticed a

decrease

> in my vision/blurriness. At the time I was also recovering from a

case of

> scleritis so I thought that perhaps it was related to that

however.... In

> April I went for my 3 month checkup to my ophthalmologist and

failed my

> visual field test which led to more testing and found out that I had

> developed discoloration around my macula. Long story short... I

stopped

> Plaquenil at the end of April and within 2 weeks my vision returned

to

> normal. I still have the damage to my retina however it is

contained and not

> leaking. I will now be followed by my regular ophthalmologist every

4 months

> and the retina specialist every 2 until they are convinced that the

damage

> is contained..... Both have told me that even though I am off the

Plaquenil

> that I can still suffer damage from it down the road....

>

> Bottom line... Call your rheumy and tell him/her this. Most require

that you

> are followed up by an ophthalmologist while on Plaquenil. If not, I

am sure

> he/she will refer you to one.

>

> *~ Kami ~*

>

> [ ] Effect on Eyes

>

> I was wondering if anyone had experienced blurred or reduced

vision. I

> have P/RA. I have been taking 12.5 of MTX /wk, 400 mg Plaquenil /

day

> and 1 MG folic acid. I have been on these meds for 5 weeks and this

is

> the first med's that I have taken.

>

> My P seems to be spreading and worsending and so is the RA symptoms

and

> I am having vision problems. I have been blaming the reduced vision

on

> being 40 + years old now but I am beginning to wonder if the

disease or

> the medicine could be the culprit.

>

> Any thoughts?

>

> Thanks,

>

> Chris

>

July 7, 2008

I am writing this to inform but also ask anyone with similiar

experiences to give me your input.

On June 14th, I woke up and was practically blind. I could see shapes

and colors but I could not focus on anything that wasn't stationary

and then only with one eye closed. I was and still am very dizzy

especially in the early a.m. While my vision has improved, I have to

use reading glasses now to be able to read and I don't think that my

near sighted vision has improved much in the 3 weeks. I tend to get

headaches if I read for more than a couple of hours and my eyes

are " tired " . I haven't driven a car as of yet and I am not sure if I

can do so, safely. There is a delay in my ability to " re-focus " on a

object.

A second side effect was the muscles in my mouth would not work

properly. This was on my right side only. I had begun to think that

I had or was having a stroke. This has improved and I have regained

the normal use of those muscles.

The Dr.'s are blaming MTX and I am only now beginning to agree. I

had been on MTX for only 8 weeks and it was just beginning to help my

P/RA. I had better than 20/20 vision 4 weeks ago and was in very

good health. My P/RA is in the early stages and doesn't greatly

effect my daily activities.

A couple of points that I want get across. I went back to find my

post regarding my early warning signs. As you can see below, I was

having blurry vision. My rheumy blew it off and told me to let them

know if it got worse. It did! And it got worse overnight. I should

have listened to my intuition and not my Dr in this case. I could

get on a soapbox regarding mistakes that I think my Dr. has made but

that isn't my point of the post, so I will move on.

I am just now beginning to be able to read and research, and I have

ran across (just last night) a condition that can be caused by MTX

and other similiar drugs. It is called Reversible Posterior

Leukoencephalopathy Syndrome (RPLS). Many of the symptoms are

exactly the same as mine. A key word is " Reversible " but some of the

articles qualify this as " sometimes and not always " . This brings me

my next point: I will take all side effects (minor, major or

otherwise) as serious. At this point in my life, my vision is more

important to me than my P/RA. I realize that for some that might not

be true and it might not be so for me as my disease progresses but I

was too casual in my approach to my treatment and the drugs. I won't

make this mistake again.

Has anyone had a similiar experience or any insight to this

condition? If what I read is accurate, this condition effects less

than 1/1000. Lucky me.

Sincerely,

Chris

> >

> > I also developed problems and was pulled off Plaquenil about a

year

> ago. I

> > also failed a visual field test. It's SO important to have

regular

> eye

> > exams with an ophthalmologist, NOT an optometrist when you're on

> this

> > medication.

> >

> > _____

> >

> > From: [mailto:RA-

> SUPPORT ] On

> > Behalf Of ~ Kami ~

> > Sent: Monday, June 02, 2008 8:13 AM

> >

> > Subject: Re: [ ] Effect on Eyes/BAMANUT

> >

> > Hi Chris!

> >

> > I started Plaquenil in December 2007 and by mid January noticed a

> decrease

> > in my vision/blurriness. At the time I was also recovering from a

> case of

> > scleritis so I thought that perhaps it was related to that

> however.... In

> > April I went for my 3 month checkup to my ophthalmologist and

> failed my

> > visual field test which led to more testing and found out that I

had

> > developed discoloration around my macula. Long story short... I

> stopped

> > Plaquenil at the end of April and within 2 weeks my vision

returned

> to

> > normal. I still have the damage to my retina however it is

> contained and not

> > leaking. I will now be followed by my regular ophthalmologist

every

> 4 months

> > and the retina specialist every 2 until they are convinced that

the

> damage

> > is contained..... Both have told me that even though I am off the

> Plaquenil

> > that I can still suffer damage from it down the road....

> >

> > Bottom line... Call your rheumy and tell him/her this. Most

require

> that you

> > are followed up by an ophthalmologist while on Plaquenil. If not,

I

> am sure

> > he/she will refer you to one.

> >

> > *~ Kami ~*

> >

> > [ ] Effect on Eyes

> >

> > I was wondering if anyone had experienced blurred or reduced

> vision. I

> > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg Plaquenil /

> day

> > and 1 MG folic acid. I have been on these meds for 5 weeks and

this

> is

> > the first med's that I have taken.

> >

> > My P seems to be spreading and worsending and so is the RA

symptoms

> and

> > I am having vision problems. I have been blaming the reduced

vision

> on

> > being 40 + years old now but I am beginning to wonder if the

> disease or

> > the medicine could be the culprit.

> >

> > Any thoughts?

> >

> > Thanks,

> >

> > Chris

> >

July 7, 2008

Man what a terrible experience you have gone through. I'm sorry I

don't have any knowledge of this but wanted to ask if you know what

drugs were mentioned that can cause this besides the mtx? I hope

things continue to improve for you.

> > >

> > > I also developed problems and was pulled off Plaquenil about a

> year

> > ago. I

> > > also failed a visual field test. It's SO important to have

> regular

> > eye

> > > exams with an ophthalmologist, NOT an optometrist when you're

on

> > this

> > > medication.

> > >

> > > _____

> > >

> > > From: [mailto:RA-

> > SUPPORT ] On

> > > Behalf Of ~ Kami ~

> > > Sent: Monday, June 02, 2008 8:13 AM

> > >

> > > Subject: Re: [ ] Effect on Eyes/BAMANUT

> > >

> > > Hi Chris!

> > >

> > > I started Plaquenil in December 2007 and by mid January noticed

a

> > decrease

> > > in my vision/blurriness. At the time I was also recovering from

a

> > case of

> > > scleritis so I thought that perhaps it was related to that

> > however.... In

> > > April I went for my 3 month checkup to my ophthalmologist and

> > failed my

> > > visual field test which led to more testing and found out that

I

> had

> > > developed discoloration around my macula. Long story short... I

> > stopped

> > > Plaquenil at the end of April and within 2 weeks my vision

> returned

> > to

> > > normal. I still have the damage to my retina however it is

> > contained and not

> > > leaking. I will now be followed by my regular ophthalmologist

> every

> > 4 months

> > > and the retina specialist every 2 until they are convinced that

> the

> > damage

> > > is contained..... Both have told me that even though I am off

the

> > Plaquenil

> > > that I can still suffer damage from it down the road....

> > >

> > > Bottom line... Call your rheumy and tell him/her this. Most

> require

> > that you

> > > are followed up by an ophthalmologist while on Plaquenil. If

not,

> I

> > am sure

> > > he/she will refer you to one.

> > >

> > > *~ Kami ~*

> > >

> > > [ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

July 7, 2008

I have book marked several of the sites and this is at least a

partial list. My research is in the infantile stage since I am just

now able to tolerate the computer screen for short periods of time.

Here is the link to the information below:

http://www.uwo.ca/cns/resident/pocketbook/disorders/cerebrovascular/rp

le.htm

Immunosuppressive and cytotoxic agents

- cyclosporin A

- tacrolimus / FK-506

- IFN-a

- cisplatin

- cytarabine

- IVIg

- Erythropoietin

> > > >

> > > > I also developed problems and was pulled off Plaquenil about

a

> > year

> > > ago. I

> > > > also failed a visual field test. It's SO important to have

> > regular

> > > eye

> > > > exams with an ophthalmologist, NOT an optometrist when you're

> on

> > > this

> > > > medication.

> > > >

> > > > _____

> > > >

> > > > From: [mailto:RA-

> > > SUPPORT ] On

> > > > Behalf Of ~ Kami ~

> > > > Sent: Monday, June 02, 2008 8:13 AM

> > > >

> > > > Subject: Re: [ ] Effect on Eyes/BAMANUT

> > > >

> > > > Hi Chris!

> > > >

> > > > I started Plaquenil in December 2007 and by mid January

noticed

> a

> > > decrease

> > > > in my vision/blurriness. At the time I was also recovering

from

> a

> > > case of

> > > > scleritis so I thought that perhaps it was related to that

> > > however.... In

> > > > April I went for my 3 month checkup to my ophthalmologist and

> > > failed my

> > > > visual field test which led to more testing and found out

that

> I

> > had

> > > > developed discoloration around my macula. Long story short...

I

> > > stopped

> > > > Plaquenil at the end of April and within 2 weeks my vision

> > returned

> > > to

> > > > normal. I still have the damage to my retina however it is

> > > contained and not

> > > > leaking. I will now be followed by my regular ophthalmologist

> > every

> > > 4 months

> > > > and the retina specialist every 2 until they are convinced

that

> > the

> > > damage

> > > > is contained..... Both have told me that even though I am off

> the

> > > Plaquenil

> > > > that I can still suffer damage from it down the road....

> > > >

> > > > Bottom line... Call your rheumy and tell him/her this. Most

> > require

> > > that you

> > > > are followed up by an ophthalmologist while on Plaquenil. If

> not,

> > I

> > > am sure

> > > > he/she will refer you to one.

> > > >

> > > > *~ Kami ~*

> > > >

> > > > [ ] Effect on Eyes

> > > >

> > > > I was wondering if anyone had experienced blurred or reduced

> > > vision. I

> > > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

> Plaquenil /

> > > day

> > > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> > this

> > > is

> > > > the first med's that I have taken.

> > > >

> > > > My P seems to be spreading and worsending and so is the RA

> > symptoms

> > > and

> > > > I am having vision problems. I have been blaming the reduced

> > vision

> > > on

> > > > being 40 + years old now but I am beginning to wonder if the

> > > disease or

> > > > the medicine could be the culprit.

> > > >

> > > > Any thoughts?

> > > >

> > > > Thanks,

> > > >

> > > > Chris

> > > >

July 7, 2008

What meds are you currently taking?

*~ Kami ~*

[ ] Effect on Eyes

> >

> > I was wondering if anyone had experienced blurred or reduced

> vision. I

> > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg Plaquenil /

> day

> > and 1 MG folic acid. I have been on these meds for 5 weeks and

this

> is

> > the first med's that I have taken.

> >

> > My P seems to be spreading and worsending and so is the RA

symptoms

> and

> > I am having vision problems. I have been blaming the reduced

vision

> on

> > being 40 + years old now but I am beginning to wonder if the

> disease or

> > the medicine could be the culprit.

> >

> > Any thoughts?

> >

> > Thanks,

> >

> > Chris

> >

July 7, 2008

Prior to this problem I was taking 12.5 MTX / wkly, 400 mg Plaquenil

daily and 1 mg of folic acid daily. I am currently only taking the

folic acid. I had only been on these med's 8 weeks.

> > >

> > > I also developed problems and was pulled off Plaquenil about

a

> year

> > ago. I

> > > also failed a visual field test. It's SO important to have

> regular

> > eye

> > > exams with an ophthalmologist, NOT an optometrist when you're

on

> > this

> > > medication.

> > >

> > > _____

> > >

> > > From: [mailto:RA-

> > SUPPORT ] On

> > > Behalf Of ~ Kami ~

> > > Sent: Monday, June 02, 2008 8:13 AM

> > >

> > > Subject: Re: [ ] Effect on Eyes/BAMANUT

> > >

> > > Hi Chris!

> > >

> > > I started Plaquenil in December 2007 and by mid January

noticed a

> > decrease

> > > in my vision/blurriness. At the time I was also recovering

from a

> > case of

> > > scleritis so I thought that perhaps it was related to that

> > however.... In

> > > April I went for my 3 month checkup to my ophthalmologist and

> > failed my

> > > visual field test which led to more testing and found out

that I

> had

> > > developed discoloration around my macula. Long story short...

I

> > stopped

> > > Plaquenil at the end of April and within 2 weeks my vision

> returned

> > to

> > > normal. I still have the damage to my retina however it is

> > contained and not

> > > leaking. I will now be followed by my regular ophthalmologist

> every

> > 4 months

> > > and the retina specialist every 2 until they are convinced

that

> the

> > damage

> > > is contained..... Both have told me that even though I am off

the

> > Plaquenil

> > > that I can still suffer damage from it down the road....

> > >

> > > Bottom line... Call your rheumy and tell him/her this. Most

> require

> > that you

> > > are followed up by an ophthalmologist while on Plaquenil. If

not,

> I

> > am sure

> > > he/she will refer you to one.

> > >

> > > *~ Kami ~*

> > >

> > > [ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

July 7, 2008

Have you seen an ophthalmologist? I was on Plaquenil 3 months and have

irreversible damage to my retina. There is a specific pattern of damage with

Plaquenil toxicity. Email me offlist if you would like more details on my case.

I was told I am 1 in 50,000 that it happens to within 100 days of treatment.

If you have not been to an ophthalmologist, I strongly suggest you make an appt

ASAP so they can monitor your progress.

*~ Kami ~*

[ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

July 7, 2008

yes i just say an opthalamologits, eye doctor, he said my eris and lens was

fine. i got back in a couple weeks. i go every 6 months

thank you so much

From: ~ Kami ~ <kamilleon@...>

Subject: Re: [ ] Re: Effect on Eyes/BAMANUT

Date: Monday, July 7, 2008, 5:59 PM

Have you seen an ophthalmologist? I was on Plaquenil 3 months and have

irreversible damage to my retina. There is a specific pattern of damage with

Plaquenil toxicity. Email me offlist if you would like more details on my case.

I was told I am 1 in 50,000 that it happens to within 100 days of treatment.

If you have not been to an ophthalmologist, I strongly suggest you make an appt

ASAP so they can monitor your progress.

*~ Kami ~*

[ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

July 7, 2008

Kami,

I have seen an Opthamologist and also a Retina specialist. There

wasn't any damage noted. The Retina Spec. did say that it would have

been extremely rare for Plaguenil to be the culprit due the length of

time that I have been on the meds but apparently it isn't impossible.

Chris

> > > >

> > > > I also developed problems and was pulled off Plaquenil

about

> a

> > year

> > > ago. I

> > > > also failed a visual field test. It's SO important to have

> > regular

> > > eye

> > > > exams with an ophthalmologist, NOT an optometrist when

you're

> on

> > > this

> > > > medication.

> > > >

> > > > _____

> > > >

> > > > From: [mailto:RA-

> > > SUPPORT ] On

> > > > Behalf Of ~ Kami ~

> > > > Sent: Monday, June 02, 2008 8:13 AM

> > > >

> > > > Subject: Re: [ ] Effect on Eyes/BAMANUT

> > > >

> > > > Hi Chris!

> > > >

> > > > I started Plaquenil in December 2007 and by mid January

> noticed a

> > > decrease

> > > > in my vision/blurriness. At the time I was also recovering

> from a

> > > case of

> > > > scleritis so I thought that perhaps it was related to that

> > > however.... In

> > > > April I went for my 3 month checkup to my ophthalmologist

and

> > > failed my

> > > > visual field test which led to more testing and found out

> that I

> > had

> > > > developed discoloration around my macula. Long story

short...

> I

> > > stopped

> > > > Plaquenil at the end of April and within 2 weeks my vision

> > returned

> > > to

> > > > normal. I still have the damage to my retina however it is

> > > contained and not

> > > > leaking. I will now be followed by my regular

ophthalmologist

> > every

> > > 4 months

> > > > and the retina specialist every 2 until they are convinced

> that

> > the

> > > damage

> > > > is contained..... Both have told me that even though I am

off

> the

> > > Plaquenil

> > > > that I can still suffer damage from it down the road....

> > > >

> > > > Bottom line... Call your rheumy and tell him/her this. Most

> > require

> > > that you

> > > > are followed up by an ophthalmologist while on Plaquenil.

If

> not,

> > I

> > > am sure

> > > > he/she will refer you to one.

> > > >

> > > > *~ Kami ~*

> > > >

> > > > [ ] Effect on Eyes

> > > >

> > > > I was wondering if anyone had experienced blurred or

reduced

> > > vision. I

> > > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

> Plaquenil /

> > > day

> > > > and 1 MG folic acid. I have been on these meds for 5 weeks

> and

> > this

> > > is

> > > > the first med's that I have taken.

> > > >

> > > > My P seems to be spreading and worsending and so is the RA

> > symptoms

> > > and

> > > > I am having vision problems. I have been blaming the

reduced

> > vision

> > > on

> > > > being 40 + years old now but I am beginning to wonder if

the

> > > disease or

> > > > the medicine could be the culprit.

> > > >

> > > > Any thoughts?

> > > >

> > > > Thanks,

> > > >

> > > > Chris

> > > >

July 7, 2008

What did he say about the condition you mentioned?

I must see a retina specialist every 2 months for at least a year and my regular

ophthalmologist every four months. My vision HAS IMPROVED since stopping the

Plaquenil and is no longer blurry. It has taken a good 6 weeks for the vision to

return to normal but the damage to my retina is irreversible.

Best of luck and keep us updated.

*~ Kami ~*

[ ] Effect on Eyes

> > > >

> > > > I was wondering if anyone had experienced blurred or

reduced

> > > vision. I

> > > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

> Plaquenil /

> > > day

> > > > and 1 MG folic acid. I have been on these meds for 5 weeks

> and

> > this

> > > is

> > > > the first med's that I have taken.

> > > >

> > > > My P seems to be spreading and worsending and so is the RA

> > symptoms

> > > and

> > > > I am having vision problems. I have been blaming the

reduced

> > vision

> > > on

> > > > being 40 + years old now but I am beginning to wonder if

the

> > > disease or

> > > > the medicine could be the culprit.

> > > >

> > > > Any thoughts?

> > > >

> > > > Thanks,

> > > >

> > > > Chris

> > > >

July 7, 2008

The Retina Spec. is the one that actually diagnosed me. He said that

he felt certain that MTX was the culprit and not Plaquenil. He siad

that he did not see the need for a follow up visit unless I wasn't

better in a month. I am approaching the four week mark later this

week and while I am better, I am not cured. Hopefully I keep

progressing but it is definitely slow.

Thanks for the well wishes and the same to you.

> > > > >

> > > > > I also developed problems and was pulled off Plaquenil

> about

> > a

> > > year

> > > > ago. I

> > > > > also failed a visual field test. It's SO important to

have

> > > regular

> > > > eye

> > > > > exams with an ophthalmologist, NOT an optometrist when

> you're

> > on

> > > > this

> > > > > medication.

> > > > >

> > > > > _____

> > > > >

> > > > > From: [mailto:RA-

> > > > SUPPORT ] On

> > > > > Behalf Of ~ Kami ~

> > > > > Sent: Monday, June 02, 2008 8:13 AM

> > > > >

> > > > > Subject: Re: [ ] Effect on Eyes/BAMANUT

> > > > >

> > > > > Hi Chris!

> > > > >

> > > > > I started Plaquenil in December 2007 and by mid January

> > noticed a

> > > > decrease

> > > > > in my vision/blurriness. At the time I was also

recovering

> > from a

> > > > case of

> > > > > scleritis so I thought that perhaps it was related to

that

> > > > however.... In

> > > > > April I went for my 3 month checkup to my ophthalmologist

> and

> > > > failed my

> > > > > visual field test which led to more testing and found out

> > that I

> > > had

> > > > > developed discoloration around my macula. Long story

> short...

> > I

> > > > stopped

> > > > > Plaquenil at the end of April and within 2 weeks my

vision

> > > returned

> > > > to

> > > > > normal. I still have the damage to my retina however it

is

> > > > contained and not

> > > > > leaking. I will now be followed by my regular

> ophthalmologist

> > > every

> > > > 4 months

> > > > > and the retina specialist every 2 until they are

convinced

> > that

> > > the

> > > > damage

> > > > > is contained..... Both have told me that even though I am

> off

> > the

> > > > Plaquenil

> > > > > that I can still suffer damage from it down the road....

> > > > >

> > > > > Bottom line... Call your rheumy and tell him/her this.

Most

> > > require

> > > > that you

> > > > > are followed up by an ophthalmologist while on Plaquenil.

> If

> > not,

> > > I

> > > > am sure

> > > > > he/she will refer you to one.

> > > > >

> > > > > *~ Kami ~*

> > > > >

> > > > > [ ] Effect on Eyes

> > > > >

> > > > > I was wondering if anyone had experienced blurred or

> reduced

> > > > vision. I

> > > > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

> > Plaquenil /

> > > > day

> > > > > and 1 MG folic acid. I have been on these meds for 5

weeks

> > and

> > > this

> > > > is

> > > > > the first med's that I have taken.

> > > > >

> > > > > My P seems to be spreading and worsending and so is the

RA

> > > symptoms

> > > > and

> > > > > I am having vision problems. I have been blaming the

> reduced

> > > vision

> > > > on

> > > > > being 40 + years old now but I am beginning to wonder if

> the

> > > > disease or

> > > > > the medicine could be the culprit.

> > > > >

> > > > > Any thoughts?

> > > > >

> > > > > Thanks,

> > > > >

> > > > > Chris

> > > > >

July 8, 2008

omg kami . plaqenil did that. i am taking plaqenil. But i do go to the eye

doctor.

Clora

From: <bamanut3002@...>

Subject: [ ] Re: Effect on Eyes/BAMANUT

Date: Tuesday, July 8, 2008, 12:04 AM

The Retina Spec. is the one that actually diagnosed me. He said that

he felt certain that MTX was the culprit and not Plaquenil. He siad

that he did not see the need for a follow up visit unless I wasn't

better in a month. I am approaching the four week mark later this

week and while I am better, I am not cured. Hopefully I keep

progressing but it is definitely slow.

Thanks for the well wishes and the same to you.

> > > > >

> > > > > I also developed problems and was pulled off Plaquenil

> about

> > a

> > > year

> > > > ago. I

> > > > > also failed a visual field test. It's SO important to

have

> > > regular

> > > > eye

> > > > > exams with an ophthalmologist, NOT an optometrist when

> you're

> > on

> > > > this

> > > > > medication.

> > > > >

> > > > > _____

> > > > >

> > > > > From: @gro ups.com [mailto:RA-

> > > > SUPPORT@groups .com] On

> > > > > Behalf Of ~ Kami ~

> > > > > Sent: Monday, June 02, 2008 8:13 AM

> > > > > @gro ups.com

> > > > > Subject: Re: [ ] Effect on Eyes/BAMANUT

> > > > >

> > > > > Hi Chris!

> > > > >

> > > > > I started Plaquenil in December 2007 and by mid January

> > noticed a

> > > > decrease

> > > > > in my vision/blurriness. At the time I was also

recovering

> > from a

> > > > case of

> > > > > scleritis so I thought that perhaps it was related to

that

> > > > however.... In

> > > > > April I went for my 3 month checkup to my ophthalmologist

> and

> > > > failed my

> > > > > visual field test which led to more testing and found out

> > that I

> > > had

> > > > > developed discoloration around my macula. Long story

> short...

> > I

> > > > stopped

> > > > > Plaquenil at the end of April and within 2 weeks my

vision

> > > returned

> > > > to

> > > > > normal. I still have the damage to my retina however it

is

> > > > contained and not

> > > > > leaking. I will now be followed by my regular

> ophthalmologist

> > > every

> > > > 4 months

> > > > > and the retina specialist every 2 until they are

convinced

> > that

> > > the

> > > > damage

> > > > > is contained... .. Both have told me that even though I am

> off

> > the

> > > > Plaquenil

> > > > > that I can still suffer damage from it down the road....

> > > > >

> > > > > Bottom line... Call your rheumy and tell him/her this.

Most

> > > require

> > > > that you

> > > > > are followed up by an ophthalmologist while on Plaquenil.

> If

> > not,

> > > I

> > > > am sure

> > > > > he/she will refer you to one.

> > > > >

> > > > > *~ Kami ~*

> > > > >

> > > > > [ ] Effect on Eyes

> > > > >

> > > > > I was wondering if anyone had experienced blurred or

> reduced

> > > > vision. I

> > > > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

> > Plaquenil /

> > > > day

> > > > > and 1 MG folic acid. I have been on these meds for 5

weeks

> > and

> > > this

> > > > is

> > > > > the first med's that I have taken.

> > > > >

> > > > > My P seems to be spreading and worsending and so is the

RA

> > > symptoms

> > > > and

> > > > > I am having vision problems. I have been blaming the

> reduced

> > > vision

> > > > on

> > > > > being 40 + years old now but I am beginning to wonder if

> the

> > > > disease or

> > > > > the medicine could be the culprit.

> > > > >

> > > > > Any thoughts?

> > > > >

> > > > > Thanks,

> > > > >

> > > > > Chris

> > > > >

July 8, 2008

hi i take mtx & plaq. i just recently notice i've been having some blurred

vision. need to see eye dr. thanks!! god bless,melyndagamez 7/8/08

7:27p.m.central

[ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems.. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

July 9, 2008

Hi:

I have RA, and I take 3,000 gr. of Placquenil a day, .8 MTX injection 1x a

week, 2 Leucovorin [follic acid] 1x a week, and 2.5 Pred. daily.

The only problem I have had, is Cateracts in both eyes from Prednisone. I

had both cateracts removed last year, and my eyes are fine. I saw my

Opthamologist before starting Placquenil, and I see him every 6 months. I have

always had my eyes examined by an Opthamologist.

What a scarey thing to happen to your eyes so suddenly. I hope they

continue to improve, with no further damage. God Bless you, and I am wishing

you pain free days.

Hugs,

Barbara

From: Melynda Gamez <melyndagamez@...>

Subject: Re: [ ] Re: Effect on Eyes/BAMANUT

Date: Tuesday, July 8, 2008, 5:29 PM

hi i take mtx & plaq. i just recently notice i've been having some blurred

vision. need to see eye dr. thanks!! god bless,melyndagamez 7/8/08

7:27p.m.central

[ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems.. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

July 9, 2008

P.S.

I made an error on my MEDS. I take 2 Placquenil a day, and 1,000 gr. 3x

a day of

Sulfasalazine.

Sorry for the mix up.

From: Melynda Gamez <melyndagamez>

Subject: Re: [ ] Re: Effect on Eyes/BAMANUT

@gro ups.com

Date: Tuesday, July 8, 2008, 5:29 PM

hi i take mtx & plaq. i just recently notice i've been having some blurred

vision. need to see eye dr. thanks!! god bless,melyndagamez 7/8/08

7:27p.m.central

[ ] Effect on Eyes

> > >

> > > I was wondering if anyone had experienced blurred or reduced

> > vision. I

> > > have P/RA. I have been taking 12.5 of MTX /wk, 400 mg

Plaquenil /

> > day

> > > and 1 MG folic acid. I have been on these meds for 5 weeks

and

> this

> > is

> > > the first med's that I have taken.

> > >

> > > My P seems to be spreading and worsending and so is the RA

> symptoms

> > and

> > > I am having vision problems.. I have been blaming the reduced

> vision

> > on

> > > being 40 + years old now but I am beginning to wonder if the

> > disease or

> > > the medicine could be the culprit.

> > >

> > > Any thoughts?

> > >

> > > Thanks,

> > >

> > > Chris

> > >

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