New member

[Guest guest]

Hi,

My name is . I am 44 years old and I have JRA.. was diagnosed

at 12 years old.

Up until 6 months ago I have managed with NSAIDs. To be honest, I

don't know a day without pain, but it's also a blessing... if I had

late onset RA I don't know if I could cope.

I have had many surgeries.. from wrist, knuckle replacement to lower

jaw surgery. I am lucky in that I have had little to no inflammation

and stiffness. What little of that I had usually disapates in 30

minutes or so after I start moving in the mornings. Until recently.

Now I have pain and stiffness, some days more than others (when

before it was usually a " mechanical " problem.. can't open bottles and

doors, button my clothes, etc.) Periodically I have major swelling in

one or both knees and stiffness which is new. My hands hurt even

though I am not doing anything.

I started receiving social security 5 years ago, I was a floral

designer (on my feet all day, sometimes 16 hours, working with my

hands)for 24 years. I think ceasing to work with my hands as much may

contribute to the pain I am feeling now, but I also know I can no

longer work. I draw and paint and excercise my hands when I can.

I started seeing a new rheumatologist two years ago, and at my first

appointment, looking at my records, He asked why I am not on Enbrel.

I was afraid of the side effects, and still am.

Recently one day I woke up and decided to stop treating the symptoms

and try to keep the RA from worsening.

So, I am at the point to try Enbrel. My doctor is very much for it,

and he explained the TB, infections,site reaction, which he has had

experience in dealing with his patients on Enbrel.

I would like to hear from Enbrel patients, what their experiences

have been, and what they have learned about the more serious and

possibly fatal side effects that may occur.

I have a history of kidney stones and a couple of abnormal pap smears

(one with precancerous cells, but have been treated, and have tested

negative for cervical cancer). If starting Enbrel, will these

conditions worsen (cancer, kidney disease)?

What lab work do I need to expect and how often?

Is there anything I can take to help lessen the risk of infections?

I am still afraid of Enbrel, but now I think I am more afraid of the

RA worsening and leaving me debilitated.

Forgive me for being long winded, this a new and frightening

experience for me.

Thank you,