Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 HI Heidi, Yes I totally understand what you are saying...but you see? that's the dark cloud I'm talking about. I hate that, it's so frustrating...so as long as I can get away with it....i'll put that dark cloud to the back of my mind. it's like, sometimes I wonder do we automatically, NOT do something, because the pain is coming anyway, so why bother? know what i mean? I haven't danced anymore today, but I still feel good too. Heidi in Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 6/15/2008 2:57:03 P.M. Eastern Daylight Time, hmendelsohn@... writes: Heidi, I am so glad you are having good days. I wish you many more. The one thing to remember, or at least it has always effected me, don't overdo just because you are feeling better. Its really easy to stress those muscles that feel great now and pay for it later. So have a wonderful day, enjoy the freedom from pain but remember to stop and rest. Heidi M On Sun, Jun 15, 2008 at 1:31 PM, <_sposy@..._ (mailto:sposy@...) > wrote: > Hello Listers! > > Happy Fathers Day to all you men on this list! I have to share with you all > > that I am feeling great today! I just danced with some friends, and am > ready to hit Bath and Body Works for the last day of the sale! Run girls > run! I > still feel great as I sit here and write this. I want to know, that when > you > all have days like this, do you ever wonder if maybe you shouldn't have > danced like that? Because I really believe in things like Dance til there's > no > tomorrow! But there is that RA cloud....do you think sometimes we hold back > > from doing what we want to do and maybe CAN do because the pain is just > lurking around the corner? I know for me I get scared to say that I could > be going > into remission. I mean, what a wonderful thing right?!?!?!? > Please don't think I'm taking away from the reality of anyones pain, > because > you all know I've been there too, and in all likelihood will be there > again, > but I got kind of frustrated that while dancing and laughing and being 16 > again, I had thoughts of tramadol will be needed later for sure! If some of > > this is making you laugh, great,,,,that' this is making you laugh, grea > to > hear your thoughts on it. > > I'm saddened by the passing of Tim Russert. When you listen to how much he > was loved by his friends, wow. If I could strive to be just 1/4 of the > person he is/was, I would be a very happy girl. Ok...enough, I really need > to get > to that sale. I never met a sale I didn't like! I'm going to drive with my > radio loud and sing. I can't wait to see what you all have to say! It's ok > if you call me nuts...LOL, it won't be the first time and I promise you it > won't be the last time I get this way...wink wink! > > Now, go dance! > > Heidi in Mass..... > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > ************ ************<WBR>**Vote for your city's best dining and nigh > 2008. (_http://citysbest.http://citysbhttp://citysbesthttp_ (http://citysbest.aol.com/?ncid=aolacg00050000000102) <_http://citysbest.http://cihttp://citysbesthttp://ci_ (http://citysbest.aol.com/?ncid=aolacg00050000000102) > > ) > > [Non-text portions of this message have been removed] > > > [Non-text portions of this message have been removed] **************Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Heidi, I am so glad you are having good days. I wish you many more. The one thing to remember, or at least it has always effected me, don't overdo just because you are feeling better. Its really easy to stress those muscles that feel great now and pay for it later. So have a wonderful day, enjoy the freedom from pain but remember to stop and rest. Heidi M On Sun, Jun 15, 2008 at 1:31 PM, <sposy@...> wrote: > Hello Listers! > > Happy Fathers Day to all you men on this list! I have to share with you all > > that I am feeling great today! I just danced with some friends, and am > ready to hit Bath and Body Works for the last day of the sale! Run girls > run! I > still feel great as I sit here and write this. I want to know, that when > you > all have days like this, do you ever wonder if maybe you shouldn't have > danced like that? Because I really believe in things like Dance til there's > no > tomorrow! But there is that RA cloud....do you think sometimes we hold back > > from doing what we want to do and maybe CAN do because the pain is just > lurking around the corner? I know for me I get scared to say that I could > be going > into remission. I mean, what a wonderful thing right?!?!?!? > Please don't think I'm taking away from the reality of anyones pain, > because > you all know I've been there too, and in all likelihood will be there > again, > but I got kind of frustrated that while dancing and laughing and being 16 > again, I had thoughts of tramadol will be needed later for sure! If some of > > this is making you laugh, great,,,,that's good for the soul....but I'd love > to > hear your thoughts on it. > > I'm saddened by the passing of Tim Russert. When you listen to how much he > was loved by his friends, wow. If I could strive to be just 1/4 of the > person he is/was, I would be a very happy girl. Ok...enough, I really need > to get > to that sale. I never met a sale I didn't like! I'm going to drive with my > radio loud and sing. I can't wait to see what you all have to say! It's ok > if you call me nuts...LOL, it won't be the first time and I promise you it > won't be the last time I get this way...wink wink! > > Now, go dance! > > Heidi in Mass..... > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > **************Vote for your city's best dining and nightlife. City's Best > 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102<http://citysbest.aol.com/?nc\ id=aolacg00050000000102> > ) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Heidi: WONDERFUL, WONDERFUL, WONDERFUL!!! So very happy for you that you feel so good, and felt like dancing!!!! I too, love to dance, plus, I love Rock and Roll!! I can well imagine the joy you are feeling, and hope it continues. If things change, at least you have had this wonderful, painfree, happy day!!! I hope you bought out Bath and Body works!!! I love that store!!! Your post certainly brightens my day, and I hope you are in a remission!!!! Enjoy your nice weather in Mass---I am sure it is much hotter and humid here in Florida. Can't wait to go home to the Cape in Aug. Hugs, Barbara From: sposy@... <sposy@...> Subject: [ ] Thoughts from everyone please... Date: Sunday, June 15, 2008, 5:31 PM Hello Listers! Happy Fathers Day to all you men on this list! I have to share with you all that I am feeling great today! I just danced with some friends, and am ready to hit Bath and Body Works for the last day of the sale! Run girls run! I still feel great as I sit here and write this. I want to know, that when you all have days like this, do you ever wonder if maybe you shouldn't have danced like that? Because I really believe in things like Dance til there's no tomorrow! But there is that RA cloud....do you think sometimes we hold back from doing what we want to do and maybe CAN do because the pain is just lurking around the corner? I know for me I get scared to say that I could be going into remission. I mean, what a wonderful thing right?!?!?!? Please don't think I'm taking away from the reality of anyones pain, because you all know I've been there too, and in all likelihood will be there again, but I got kind of frustrated that while dancing and laughing and being 16 again, I had thoughts of tramadol will be needed later for sure! If some of this is making you laugh, great,,,,that' s good for the soul....but I'd love to hear your thoughts on it. I'm saddened by the passing of Tim Russert. When you listen to how much he was loved by his friends, wow. If I could strive to be just 1/4 of the person he is/was, I would be a very happy girl. Ok...enough, I really need to get to that sale. I never met a sale I didn't like! I'm going to drive with my radio loud and sing. I can't wait to see what you all have to say! It's ok if you call me nuts...LOL, it won't be the first time and I promise you it won't be the last time I get this way...wink wink! Now, go dance! Heidi in Mass..... To those who believe, no explanation is necessary; to those who dont, no explanation is possible ************ **Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest. aol.com?ncid= aolacg0005000000 0102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Heidi you just made my day!! I am so happy you got to dance! Your upbeat mood and outlook just boosted mine! I believe on a day when I feel like I can do it all, I really do it! It was difficult yesterday, but I sat out in the sun and played on a blanket with my nephew. & nbsp; It was easy sitting there but hard getting up off the ground! But it was fun and I had a blast! Even have to chase after him when he went crawling in the grass!! I hope you keep playing that radio loud and I hope you got some really great stuff at that sale! I love Bath and Body Works and also the Body Shop!! Darn! I missed the sale! From: sposy@... & lt;sposy@... & gt; Subject: [ ] Thoughts from everyone please... Date: Sunday, June 15, 2008, 1:31 PM Hello Listers! Happy Fathers Day to all you men on this list! I have to share with you all that I am feeling great today! I just danced with some friends, and am ready to hit Bath and Body Works for the last day of the sale! Run girls run! I still feel great as I sit here and write this. I want to know, that when you all have days like this, do you ever wonder if maybe you shouldn't have danced like that? Because I really believe in things like Dance til there's no tomorrow! But there is that RA cloud....do you think sometimes we hold back from doing what we want to do and maybe CAN do because the pain is just lurking around the corner? I know for me I get scared to say that I could be going into remission. I mean, what a wonderful thing right?!?!?!? Please don't think I'm taking away from the reality of anyones pain, because you all know I've been there too, and in all likelihood will be there again, but I got kind of frustrated that while dancing and laughing and being 16 again, I had thoughts of tramadol will be needed later for sure! If some of this is making you laugh, great,,,,that' s good for the soul....but I'd love to hear your thoughts on it. I'm saddened by the passing of Tim Russert. When you listen to how much he was loved by his friends, wow. If I could strive to be just 1/4 of the person he is/was, I would be a very happy girl. Ok...enough, I really need to get to that sale. I never met a sale I didn't like! I'm going to drive with my radio loud and sing. I can't wait to see what you all have to say! It's ok if you call me nuts...LOL, it won't be the first time and I promise you it won't be the last time I get this way...wink wink! Now, go dance! Heidi in Mass..... To those who believe, no explanation is necessary; to those who dont, no explanation is possible ************ **Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest. aol.com?ncid= aolacg0005000000 0102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 I know there are times I automatically do NOT do something due to pain and I'm trying to get away from that because that is giving in to my disease and letting it rule me and I don't want to do that anymore. & nbsp; I do this with the anxiety too, and I've seen how much life I have lost. & nbsp; Late yesterday, the pain I had been feeling all day (even though I played in the sun and shade with my nephew), it knocked me out. & nbsp; My family all decided to go do a little shopping and I gave in to my sinus headache, stiff neck, FMS and knee pain and stayed home reading on the chaise while they all went and had fun. & nbsp; I know its probably something I needed to do, but in a few hours it would have been bedtime and I would have gotten plenty of rest so really, I COULD have gone! This has inspired me to make a list of things I avoid doing due to pain (I already know what I avoid doing thanks to the anxiety:) ). & nbsp; This way, I can make sure I'm finding balance and not let this take anymore life away from me:) From: sposy@... & lt;sposy@... & gt; Subject: Re: [ ] Thoughts from everyone please... Date: Sunday, June 15, 2008, 5:20 PM HI Heidi, Yes I totally understand what you are saying...but you see? that's the dark cloud I'm talking about. I hate that, it's so frustrating. ..so as long as I can get away with it....i'll put that dark cloud to the back of my mind. it's like, sometimes I wonder do we automatically, NOT do something, because the pain is coming anyway, so why bother? know what i mean? I haven't danced anymore today, but I still feel good too. Heidi in Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 6/15/2008 2:57:03 P.M. Eastern Daylight Time, hmendelsohn@ gmail.com writes: Heidi, I am so glad you are having good days. I wish you many more. The one thing to remember, or at least it has always effected me, don't overdo just because you are feeling better. Its really easy to stress those muscles that feel great now and pay for it later. So have a wonderful day, enjoy the freedom from pain but remember to stop and rest. Heidi M On Sun, Jun 15, 2008 at 1:31 PM, & lt;_sposy@..._ (mailto:sposy@...) & gt; wrote: & gt; Hello Listers! & gt; & gt; Happy Fathers Day to all you men on this list! I have to share with you all & gt; & gt; that I am feeling great today! I just danced with some friends, and am & gt; ready to hit Bath and Body Works for the last day of the sale! Run girls & gt; run! I & gt; still feel great as I sit here and write this. I want to know, that when & gt; you & gt; all have days like this, do you ever wonder if maybe you shouldn't have & gt; danced like that? Because I really believe in things like Dance til there's & gt; no & gt; tomorrow! But there is that RA cloud....do you think sometimes we hold back & gt; & gt; from doing what we want to do and maybe CAN do because the pain is just & gt; lurking around the corner? I know for me I get scared to say that I could & gt; be going & gt; into remission. I mean, what a wonderful thing right?!?!?!? & gt; Please don't think I'm taking away from the reality of anyones pain, & gt; because & gt; you all know I've been there too, and in all likelihood will be there & gt; again, & gt; but I got kind of frustrated that while dancing and laughing and being 16 & gt; again, I had thoughts of tramadol will be needed later for sure! If some of & gt; & gt; this is making you laugh, great,,,,that' this is making you laugh, grea & gt; to & gt; hear your thoughts on it. & gt; & gt; I'm saddened by the passing of Tim Russert. When you listen to how much he & gt; was loved by his friends, wow. If I could strive to be just 1/4 of the & gt; person he is/was, I would be a very happy girl. Ok...enough, I really need & gt; to get & gt; to that sale. I never met a sale I didn't like! I'm going to drive with my & gt; radio loud and sing. I can't wait to see what you all have to say! It's ok & gt; if you call me nuts...LOL, it won't be the first time and I promise you it & gt; won't be the last time I get this way...wink wink! & gt; & gt; Now, go dance! & gt; & gt; Heidi in Mass..... & gt; & gt; To those who believe, no explanation is necessary; to those who dont, no & gt; explanation is possible & gt; & gt; ************ ************ & lt;WBR & gt;**Vote for your city's best dining and nigh & gt; 2008. (_http://citysbest. http://citysbhtt p://citysbesthtt p_ (http://citysbest. aol.com/? ncid=aolacg00050 000000102) & lt;_http://citysbest. http://cihttp: //citysbesthttp: //ci_ (http://citysbest. aol.com/? ncid=aolacg00050 000000102) & gt; & gt; ) & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Heidi, I love your attitude.I do know that sometimes things just have to be done. I do the same especially when it comes to the kids. I agree that if its gonna hurt wheather you do or don't hell I say do LOL. Enjoy your day. Heidi M On Sun, Jun 15, 2008 at 6:19 PM, stephanie <stephieann2@...> wrote: > I know there are times I automatically do NOT do something due to pain > and I'm trying to get away from that because that is giving in to my disease > and letting it rule me and I don't want to do that anymore. & nbsp; I do this > with the anxiety too, and I've seen how much life I have lost. & nbsp; Late > yesterday, the pain I had been feeling all day (even though I played in the > sun and shade with my nephew), it knocked me out. & nbsp; My family all > decided to go do a little shopping and I gave in to my sinus headache, stiff > neck, FMS and knee pain and stayed home reading on the chaise while they all > went and had fun. & nbsp; I know its probably something I needed to do, but in > a few hours it would have been bedtime and I would have gotten plenty of > rest so really, I COULD have gone! This has inspired me to make a list of > things I avoid doing due to pain (I already know what I avoid doing thanks > to the anxiety:) ). & nbsp; This way, I can make sure I'm finding balance > and not let this take anymore life away from me:) > > > > & gt; Hello Listers! > & gt; > & gt; Happy Fathers Day to all you men on this list! I have to share with > you all > & gt; > & gt; that I am feeling great today! I just danced with some friends, and am > & gt; ready to hit Bath and Body Works for the last day of the sale! Run > girls > & gt; run! I > & gt; still feel great as I sit here and write this. I want to know, that > when > & gt; you > & gt; all have days like this, do you ever wonder if maybe you shouldn't > have > & gt; danced like that? Because I really believe in things like Dance til > there's > & gt; no > & gt; tomorrow! But there is that RA cloud....do you think sometimes we hold > back > & gt; > & gt; from doing what we want to do and maybe CAN do because the pain is > just > & gt; lurking around the corner? I know for me I get scared to say that I > could > & gt; be going > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > & gt; Please don't think I'm taking away from the reality of anyones pain, > & gt; because > & gt; you all know I've been there too, and in all likelihood will be there > & gt; again, > & gt; but I got kind of frustrated that while dancing and laughing and being > 16 > & gt; again, I had thoughts of tramadol will be needed later for sure! If > some of > & gt; > & gt; this is making you laugh, great,,,,that' this is making you laugh, > grea > & gt; to > & gt; hear your thoughts on it. > & gt; > & gt; I'm saddened by the passing of Tim Russert. When you listen to how > much he > & gt; was loved by his friends, wow. If I could strive to be just 1/4 of the > & gt; person he is/was, I would be a very happy girl. Ok...enough, I really > need > & gt; to get > & gt; to that sale. I never met a sale I didn't like! I'm going to drive > with my > & gt; radio loud and sing. I can't wait to see what you all have to say! > It's ok > & gt; if you call me nuts...LOL, it won't be the first time and I promise > you it > & gt; won't be the last time I get this way...wink wink! > & gt; > & gt; Now, go dance! > & gt; > & gt; Heidi in Mass..... > & gt; > & gt; To those who believe, no explanation is necessary; to those who dont, > no > & gt; explanation is possible > & gt; > & gt; ************ ************ & lt;WBR & gt;**Vote for your city's best > dining and nigh > & gt; 2008. (_http://citysbest. http://citysbhtt p://citysbesthtt p_ > (http://citysbest. aol.com/? ncid=aolacg00050 000000102) > & lt;_http://citysbest. http://cihttp: <http://cihttp/> //citysbesthttp: > //ci_ (http://citysbest. aol.com/? ncid=aolacg00050 000000102) & gt; > & gt; ) > & gt; > & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 My son's best friend, who is like a son to me, is getting married in August. One way or another, I'm gonna be dancing at his wedding! He and his fiancee' are just goofy in love with each other and this is going to be the most joyous wedding. I may be in bed the next day but that's a price i will gladly pay. I've decided that if I'm going to be hurting anyway I may as well hurt doing something I like! > > Hello Listers! > > Happy Fathers Day to all you men on this list! I have to share with you all > that I am feeling great today! I just danced with some friends, and am > ready to hit Bath and Body Works for the last day of the sale! Run girls run! I > still feel great as I sit here and write this. I want to know, that when you > all have days like this, do you ever wonder if maybe you shouldn't have > danced like that? Because I really believe in things like Dance til there's no > tomorrow! But there is that RA cloud....do you think sometimes we hold back > from doing what we want to do and maybe CAN do because the pain is just > lurking around the corner? I know for me I get scared to say that I could be going > into remission. I mean, what a wonderful thing right?!?!?!? > Please don't think I'm taking away from the reality of anyones pain, because > you all know I've been there too, and in all likelihood will be there again, > but I got kind of frustrated that while dancing and laughing and being 16 > again, I had thoughts of tramadol will be needed later for sure! If some of > this is making you laugh, great,,,,that's good for the soul....but I'd love to > hear your thoughts on it. > > I'm saddened by the passing of Tim Russert. When you listen to how much he > was loved by his friends, wow. If I could strive to be just 1/4 of the > person he is/was, I would be a very happy girl. Ok...enough, I really need to get > to that sale. I never met a sale I didn't like! I'm going to drive with my > radio loud and sing. I can't wait to see what you all have to say! It's ok > if you call me nuts...LOL, it won't be the first time and I promise you it > won't be the last time I get this way...wink wink! > > Now, go dance! > > Heidi in Mass..... > > To those who believe, no explanation is necessary; to those who dont, no > explanation is possible > > > > **************Vote for your city's best dining and nightlife. City's Best > 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 I KNOW I do that sometimes - I think its going to hurt to do such and such, so I avoid it. I am re-learning how to live one day at a time. My laundry list of ailments are just what's physically wrong with me, NOT who I really am and that is a HUGE issue that I am trying to get past. Friday night we had two of our grandchildren here for a few hours and we played and laughed and had such a good time that by the time they went home, I was feeling full and happy with life. Then Saturday afternoon, our oldest was here with his family and we had a good meal and played in the pool for hours! I almost didn't go in and then thought - to heck with this - this sweet grandchild wants to go swimming and there is no REAL reason why I couldn't do that with her. We had a blast. By Father's Day, I was hurting more than usual, and I knew part of it was from overdoing it a bit from the previous two days. The rainy season is here in FL and it has the barometric pressure jumping around like on a trampoline, too. BUT, I was so happy to have had those two days with the grands - we all had such a good time - and the weather is what it is, so I didn't allow all of that to ruin a perfectly good Father's Day, so we took hubby out to his favorite BBQ restaurant, had an awesome meal and came home and chilled for the rest of the evening. So, one day at a time I am re-learning how to live and remembering who I am. Sorry this is so long. It was definitely a thought provoking question....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Sometime when I am home by myself and not a care in the world, having a good day from relaxing and catching uop on my exhaustion from working all week. I crank up the music, and dance in my living room. Who care, it feels great. I always loved dancing and I can not dance anymore like I used to, but it still feels good to do it, even thow I know I don't have the movement of the past. So if you feel like dancing, then dance!!!!! & nbsp; From: JANE & lt;janeatregis@... & gt; Subject: [ ] Re: Thoughts from everyone please... Date: Monday, June 16, 2008, 9:11 AM My son's best friend, who is like a son to me, is getting married in August. One way or another, I'm gonna be dancing at his wedding! He and his fiancee' are just goofy in love with each other and this is going to be the most joyous wedding. I may be in bed the next day but that's a price i will gladly pay. I've decided that if I'm going to be hurting anyway I may as well hurt doing something I like! & gt; & gt; Hello Listers! & gt; & gt; Happy Fathers Day to all you men on this list! I have to share with you all & gt; that I am feeling great today! I just danced with some friends, and am & gt; ready to hit Bath and Body Works for the last day of the sale! Run girls run! I & gt; still feel great as I sit here and write this. I want to know, that when you & gt; all have days like this, do you ever wonder if maybe you shouldn't have & gt; danced like that? Because I really believe in things like Dance til there's no & gt; tomorrow! But there is that RA cloud....do you think sometimes we hold back & gt; from doing what we want to do and maybe CAN do because the pain is just & gt; lurking around the corner? I know for me I get scared to say that I could be going & gt; into remission. I mean, what a wonderful thing right?!?!?!? & gt; Please don't think I'm taking away from the reality of anyones pain, because & gt; you all know I've been there too, and in all likelihood will be there again, & gt; but I got kind of frustrated that while dancing and laughing and being 16 & gt; again, I had thoughts of tramadol will be needed later for sure! If some of & gt; this is making you laugh, great,,,,that' s good for the soul....but I'd love to & gt; hear your thoughts on it. & gt; & gt; I'm saddened by the passing of Tim Russert. When you listen to how much he & gt; was loved by his friends, wow. If I could strive to be just 1/4 of the & gt; person he is/was, I would be a very happy girl. Ok...enough, I really need to get & gt; to that sale. I never met a sale I didn't like! I'm going to drive with my & gt; radio loud and sing. I can't wait to see what you all have to say! It's ok & gt; if you call me nuts...LOL, it won't be the first time and I promise you it & gt; won't be the last time I get this way...wink wink! & gt; & gt; Now, go dance! & gt; & gt; Heidi in Mass..... & gt; & gt; To those who believe, no explanation is necessary; to those who dont, no & gt; explanation is possible & gt; & gt; & gt; & gt; ************ **Vote for your city's best dining and nightlife. City's Best & gt; 2008. (http://citysbest. aol.com?ncid= aolacg0005000000 0102) & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Hi , I totally understand what you are saying, however, I don't believe that the good old days are gone. If and when you have a good day, celebrate it! You are still you no matter what happens. I lost 180 pounds. Sure all that blubber covered up emotional things like a rape,etc. But once I shed those pounds, and I dealt with all the emotional stuff, the " new " physical me, I still was and am ME. I just happen to have RA now. Yup, I get frustrated, but I will never ever say goodbye to the person pre RA because she still exists. Maybe there are days when I can't move like a cat and am more sloth like, but my heart and soul remain. I also see a therapist and we discuss this all the time. I do have to work at a slower pace at times, I do have to cut my gardening time in half, I do drop things, I even had to have a " first date " cut up my food for me (long story, ask if you want to, yup its funny), I now have neuropathy in my fingertips and heels, but so what? LOL, just another thing to add to my list. My therapist is also a Breast Cancer survivor, and we both have " attitudes " I guess. I just don't want people to lose themselves because of RA or any illness that might come along and try to " consume " us. We have to accept reality, but we cannot deny the past. Ok , jumping off my soap box. I have a 7am MRI tomorrow of my head that I am not looking forward to because of some recent cognitive issues, so if I've repeated myself or totally said something out of whack , forgive me. In case you are wondering, I've already found out if they have my favorite radio station to listen to while I'm trapped for 45 minutes in that " open " torture chamber! Please don't be mad at me.... Heidi in Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 6/16/2008 8:26:57 P.M. Eastern Daylight Time, bennion8@... writes: , You will never know how much I needed to read your post today. Thank you very much for sharing those thoughts. God Bless, -- In _ @groRA-SUPP_ (mailto: ) , " " <man_u8@...> wrote: > > When I have a good day, I take full advantage of it. I wanted to > share with everyone about my rescent therapy session. I have been > going to therapy on and off for years. With all my recent drama, I > needed it. She was asking about my RA/fibromyalgia. I told her that > I have had it for the past 7 years. I miss the person that I once > was and I want to find that person again and learn to love myself > again. She said, that is my problem...I am not going to find that > person anymore. Chronic pain conditions change who you are and how to > you need to approach life. I need to find the person who I am > supposed to be now. It was like a light clicked on in my head. I > thought all these years that I learned to accept it. I have been > angery about life. She said what will help me move on, is to greive > my oldself and learn to embrace who I am today. She can help me with > that. I had stopped doing alot of things that I used to enjoy. I > thought I had accepted being in chronic pain. I will keep you all > enformed on how this process goes...but it made sense to me. > Sometimes you just need to hear it from someone else for it to make > sense. Enjoy the good days that you have. > > > > > > > & gt; > > & gt; Hello Listers! > > & gt; > > & gt; Happy Fathers Day to all you men on this list! I have to share > > with you all > > & gt; that I am feeling great today! I just danced with some > friends, > > and am > > & gt; ready to hit Bath and Body Works for the last day of the sale! > Run > > girls run! I > > & gt; still feel great as I sit here and write this. I want to know, > > that when you > > & gt; all have days like this, do you ever wonder if maybe you > shouldn't > > have > > & gt; danced like that? Because I really believe in things like > Dance > > til there's no > > & gt; tomorrow! But there is that RA cloud....do you think sometimes > we > > hold back > > & gt; from doing what we want to do and maybe CAN do because the > pain is > > just > > & gt; lurking around the corner? I know for me I get scared to say > that > > I could be going > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > & gt; Please don't think I'm taking away from the reality of anyones > > pain, because > > & gt; you all know I've been there too, and in all likelihood will > be > > there again, > > & gt; but I got kind of frustrated that while dancing and laughing > and > > being 16 > > & gt; again, I had thoughts of tramadol will be needed later for > sure! > > If some of > > & gt; this is making you laugh, great,,,,that' s good for the > soul....but > > I'd love to > > & gt; hear your thoughts on it. > > & gt; > > & gt; I'm saddened by the passing of Tim Russert. When you listen to > > how much he > > & gt; was loved by his friends, wow. If I could strive to be just > 1/4 of > > the > > & gt; person he is/was, I would be a very happy girl. Ok...enough, I > > really need to get > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > drive with my > > & gt; radio loud and sing. I can't wait to see what you all have to > > say! It's ok > > & gt; if you call me nuts...LOL, it won't be the first time and I > > promise you it > > & gt; won't be the last time I get this way...wink wink! > > & gt; > > & gt; Now, go dance! > > & gt; > > & gt; Heidi in Mass..... > > & gt; > > & gt; To those who believe, no explanation is necessary; to those > who > > dont, no > > & gt; explanation is possible > > & gt; > > & gt; > > & gt; > > & gt; ************ **Vote for your city's best dining and nightlife. > > City's Best > > & gt; 2008. (_http://citysbest._ (http://citysbest./) aol.com?ncid= aolacg0005000000 0102) > > & gt; > > & gt; > > & gt; [Non-text portions of this message have been removed] > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 WAY TO GO HEIDI SO WELL SAID. I have rsd not sure if any of you know but it is highest on the pain scale above cancer!!!!! I also have psoriasis/ ra and or psoriatic arthtritis etc. I listed to all the people tell me i would be in a wheelchair, of which can happen with rsd, but i thought my life was over I was also diagnosed with the ra and well in the beginning with the rsd i had a nervous breakdown cause i thoughtmy life was over!!1 Thank god and i say god cause that's what put me on my feet. It took me six months to walk again, i couldn't even stand to take a shower, and i have five kids. My life is far from over i just have to learn how to do new things. Do i have bad days yes alot, but i have good days. I gardened this year last year i couldn't getout of bed. I am still the old me, but with a bigger and better spirit that i can and will survive this. Jolene In a message dated 6/16/2008 8:45:04 P.M. Eastern Daylight Time, sposy@... writes: Hi , I totally understand what you are saying, however, I don't believe that the good old days are gone. If and when you have a good day, celebrate it! You are still you no matter what happens. I lost 180 pounds. Sure all that blubber covered up emotional things like a rape,etc. But once I shed those pounds, and I dealt with all the emotional stuff, the " new " physical me, I still was and am ME. I just happen to have RA now. Yup, I get frustrated, but I will never ever say goodbye to the person pre RA because she still exists. Maybe there are days when I can't move like a cat and am more sloth like, but my heart and soul remain. I also see a therapist and we discuss this all the time. I do have to work at a slower pace at times, I do have to cut my gardening time in half, I do drop things, I even had to have a " first date " cut up my food for me (long story, ask if you want to, yup its funny), I now have neuropathy in my fingertips and heels, but so what? LOL, just another thing to add to my list. My therapist is also a Breast Cancer survivor, and we both have " attitudes " I guess. I just don't want people to lose themselves because of RA or any illness that might come along and try to " consume " us. We have to accept reality, but we cannot deny the past. Ok , jumping off my soap box. I have a 7am MRI tomorrow of my head that I am not looking forward to because of some recent cognitive issues, so if I've repeated myself or totally said something out of whack , forgive me. In case you are wondering, I've already found out if they have my favorite radio station to listen to while I'm trapped for 45 minutes in that " open " torture chamber! Please don't be mad at me.... Heidi in Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 6/16/2008 8:26:57 P.M. Eastern Daylight Time, _bennion8@..._ (mailto:bennion8@...) writes: , You will never know how much I needed to read your post today. Thank you very much for sharing those thoughts. God Bless, -- In _ @-- In _RA-S-- In _ @_ @groRA-SUPP_ (mailto: ) ) , " " <man_u8@...> wrote: > > When I have a good day, I take full advantage of it. I wanted to > share with everyone about my rescent therapy session. I have been > going to therapy on and off for years. With all my recent drama, I > needed it. She was asking about my RA/fibromyalgia. I told her that > I have had it for the past 7 years. I miss the person that I once > was and I want to find that person again and learn to love myself > again. She said, that is my problem...I am not going to find that > person anymore. Chronic pain conditions change who you are and how to > you need to approach life. I need to find the person who I am > supposed to be now. It was like a light clicked on in my head. I > thought all these years that I learned to accept it. I have been > angery about life. She said what will help me move on, is to greive > my oldself and learn to embrace who I am today. She can help me with > that. I had stopped doing alot of things that I used to enjoy. I > thought I had accepted being in chronic pain. I will keep you all > enformed on how this process goes...but it made sense to me. > Sometimes you just need to hear it from someone else for it to make > sense. Enjoy the good days that you have. > > > > > > > & gt; > > & gt; Hello Listers! > > & gt; > > & gt; Happy Fathers Day to all you men on this list! I have to share > > with you all > > & gt; that I am feeling great today! I just danced with some > friends, > > and am > > & gt; ready to hit Bath and Body Works for the last day of the sale! > Run > > girls run! I > > & gt; still feel great as I sit here and write this. I want to know, > > that when you > > & gt; all have days like this, do you ever wonder if maybe you > shouldn't > > have > > & gt; danced like that? Because I really believe in things like > Dance > > til there's no > > & gt; tomorrow! But there is that RA cloud....do you think sometimes > we > > hold back > > & gt; from doing what we want to do and maybe CAN do because the > pain is > > just > > & gt; lurking around the corner? I know for me I get scared to say > that > > I could be going > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > & gt; Please don't think I'm taking away from the reality of anyones > > pain, because > > & gt; you all know I've been there too, and in all likelihood will > be > > there again, > > & gt; but I got kind of frustrated that while dancing and laughing > and > > being 16 > > & gt; again, I had thoughts of tramadol will be needed later for > sure! > > If some of > > & gt; this is making you laugh, great,,,,that' s good for the > soul....but > > I'd love to > > & gt; hear your thoughts on it. > > & gt; > > & gt; I'm saddened by the passing of Tim Russert. When you listen to > > how much he > > & gt; was loved by his friends, wow. If I could strive to be just > 1/4 of > > the > > & gt; person he is/was, I would be a very happy girl. Ok...enough, I > > really need to get > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > drive with my > > & gt; radio loud and sing. I can't wait to see what you all have to > > say! It's ok > > & gt; if you call me nuts...LOL, it won't be the first time and I > > promise you it > > & gt; won't be the last time I get this way...wink wink! > > & gt; > > & gt; Now, go dance! > > & gt; > > & gt; Heidi in Mass..... > > & gt; > > & gt; To those who believe, no explanation is necessary; to those > who > > dont, no > > & gt; explanation is possible > > & gt; > > & gt; > > & gt; > > & gt; ************ **Vote for your city's best dining and nightlife. > > City's Best > > & gt; 2008. (__http://citysbest.h_ (http://citysbest._/) (_http://citysbest.h_ (http://citysbest./) ) aol.com?ncid= aolacg0005000000 0102) > > & gt; > > & gt; > > & gt; [Non-text portions of this message have been removed] > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 When I have a good day, I take full advantage of it. I wanted to share with everyone about my rescent therapy session. I have been going to therapy on and off for years. With all my recent drama, I needed it. She was asking about my RA/fibromyalgia. I told her that I have had it for the past 7 years. I miss the person that I once was and I want to find that person again and learn to love myself again. She said, that is my problem...I am not going to find that person anymore. Chronic pain conditions change who you are and how to you need to approach life. I need to find the person who I am supposed to be now. It was like a light clicked on in my head. I thought all these years that I learned to accept it. I have been angery about life. She said what will help me move on, is to greive my oldself and learn to embrace who I am today. She can help me with that. I had stopped doing alot of things that I used to enjoy. I thought I had accepted being in chronic pain. I will keep you all enformed on how this process goes...but it made sense to me. Sometimes you just need to hear it from someone else for it to make sense. Enjoy the good days that you have. > & gt; > & gt; Hello Listers! > & gt; > & gt; Happy Fathers Day to all you men on this list! I have to share > with you all > & gt; that I am feeling great today! I just danced with some friends, > and am > & gt; ready to hit Bath and Body Works for the last day of the sale! Run > girls run! I > & gt; still feel great as I sit here and write this. I want to know, > that when you > & gt; all have days like this, do you ever wonder if maybe you shouldn't > have > & gt; danced like that? Because I really believe in things like Dance > til there's no > & gt; tomorrow! But there is that RA cloud....do you think sometimes we > hold back > & gt; from doing what we want to do and maybe CAN do because the pain is > just > & gt; lurking around the corner? I know for me I get scared to say that > I could be going > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > & gt; Please don't think I'm taking away from the reality of anyones > pain, because > & gt; you all know I've been there too, and in all likelihood will be > there again, > & gt; but I got kind of frustrated that while dancing and laughing and > being 16 > & gt; again, I had thoughts of tramadol will be needed later for sure! > If some of > & gt; this is making you laugh, great,,,,that' s good for the soul....but > I'd love to > & gt; hear your thoughts on it. > & gt; > & gt; I'm saddened by the passing of Tim Russert. When you listen to > how much he > & gt; was loved by his friends, wow. If I could strive to be just 1/4 of > the > & gt; person he is/was, I would be a very happy girl. Ok...enough, I > really need to get > & gt; to that sale. I never met a sale I didn't like! I'm going to > drive with my > & gt; radio loud and sing. I can't wait to see what you all have to > say! It's ok > & gt; if you call me nuts...LOL, it won't be the first time and I > promise you it > & gt; won't be the last time I get this way...wink wink! > & gt; > & gt; Now, go dance! > & gt; > & gt; Heidi in Mass..... > & gt; > & gt; To those who believe, no explanation is necessary; to those who > dont, no > & gt; explanation is possible > & gt; > & gt; > & gt; > & gt; ************ **Vote for your city's best dining and nightlife. > City's Best > & gt; 2008. (http://citysbest. aol.com?ncid= aolacg0005000000 0102) > & gt; > & gt; > & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 , You will never know how much I needed to read your post today. Thank you very much for sharing those thoughts. God Bless, -- In , " " <man_u8@...> wrote: > > When I have a good day, I take full advantage of it. I wanted to > share with everyone about my rescent therapy session. I have been > going to therapy on and off for years. With all my recent drama, I > needed it. She was asking about my RA/fibromyalgia. I told her that > I have had it for the past 7 years. I miss the person that I once > was and I want to find that person again and learn to love myself > again. She said, that is my problem...I am not going to find that > person anymore. Chronic pain conditions change who you are and how to > you need to approach life. I need to find the person who I am > supposed to be now. It was like a light clicked on in my head. I > thought all these years that I learned to accept it. I have been > angery about life. She said what will help me move on, is to greive > my oldself and learn to embrace who I am today. She can help me with > that. I had stopped doing alot of things that I used to enjoy. I > thought I had accepted being in chronic pain. I will keep you all > enformed on how this process goes...but it made sense to me. > Sometimes you just need to hear it from someone else for it to make > sense. Enjoy the good days that you have. > > > > > > > & gt; > > & gt; Hello Listers! > > & gt; > > & gt; Happy Fathers Day to all you men on this list! I have to share > > with you all > > & gt; that I am feeling great today! I just danced with some > friends, > > and am > > & gt; ready to hit Bath and Body Works for the last day of the sale! > Run > > girls run! I > > & gt; still feel great as I sit here and write this. I want to know, > > that when you > > & gt; all have days like this, do you ever wonder if maybe you > shouldn't > > have > > & gt; danced like that? Because I really believe in things like > Dance > > til there's no > > & gt; tomorrow! But there is that RA cloud....do you think sometimes > we > > hold back > > & gt; from doing what we want to do and maybe CAN do because the > pain is > > just > > & gt; lurking around the corner? I know for me I get scared to say > that > > I could be going > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > & gt; Please don't think I'm taking away from the reality of anyones > > pain, because > > & gt; you all know I've been there too, and in all likelihood will > be > > there again, > > & gt; but I got kind of frustrated that while dancing and laughing > and > > being 16 > > & gt; again, I had thoughts of tramadol will be needed later for > sure! > > If some of > > & gt; this is making you laugh, great,,,,that' s good for the > soul....but > > I'd love to > > & gt; hear your thoughts on it. > > & gt; > > & gt; I'm saddened by the passing of Tim Russert. When you listen to > > how much he > > & gt; was loved by his friends, wow. If I could strive to be just > 1/4 of > > the > > & gt; person he is/was, I would be a very happy girl. Ok...enough, I > > really need to get > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > drive with my > > & gt; radio loud and sing. I can't wait to see what you all have to > > say! It's ok > > & gt; if you call me nuts...LOL, it won't be the first time and I > > promise you it > > & gt; won't be the last time I get this way...wink wink! > > & gt; > > & gt; Now, go dance! > > & gt; > > & gt; Heidi in Mass..... > > & gt; > > & gt; To those who believe, no explanation is necessary; to those > who > > dont, no > > & gt; explanation is possible > > & gt; > > & gt; > > & gt; > > & gt; ************ **Vote for your city's best dining and nightlife. > > City's Best > > & gt; 2008. (http://citysbest. aol.com?ncid= aolacg0005000000 0102) > > & gt; > > & gt; > > & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Sending thoughts of wide open flower fields for you to enjoy while in the chamber of claustrophobia!!!! :-) > > > & gt; > > > & gt; Hello Listers! > > > & gt; > > > & gt; Happy Fathers Day to all you men on this list! I have to > share > > > with you all > > > & gt; that I am feeling great today! I just danced with some > > friends, > > > and am > > > & gt; ready to hit Bath and Body Works for the last day of the > sale! > > Run > > > girls run! I > > > & gt; still feel great as I sit here and write this. I want to > know, > > > that when you > > > & gt; all have days like this, do you ever wonder if maybe you > > shouldn't > > > have > > > & gt; danced like that? Because I really believe in things like > > Dance > > > til there's no > > > & gt; tomorrow! But there is that RA cloud....do you think > sometimes > > we > > > hold back > > > & gt; from doing what we want to do and maybe CAN do because the > > pain is > > > just > > > & gt; lurking around the corner? I know for me I get scared to say > > that > > > I could be going > > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > > & gt; Please don't think I'm taking away from the reality of > anyones > > > pain, because > > > & gt; you all know I've been there too, and in all likelihood will > > be > > > there again, > > > & gt; but I got kind of frustrated that while dancing and laughing > > and > > > being 16 > > > & gt; again, I had thoughts of tramadol will be needed later for > > sure! > > > If some of > > > & gt; this is making you laugh, great,,,,that' s good for the > > soul....but > > > I'd love to > > > & gt; hear your thoughts on it. > > > & gt; > > > & gt; I'm saddened by the passing of Tim Russert. When you listen > to > > > how much he > > > & gt; was loved by his friends, wow. If I could strive to be just > > 1/4 of > > > the > > > & gt; person he is/was, I would be a very happy girl. Ok...enough, > I > > > really need to get > > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > > drive with my > > > & gt; radio loud and sing. I can't wait to see what you all have > to > > > say! It's ok > > > & gt; if you call me nuts...LOL, it won't be the first time and I > > > promise you it > > > & gt; won't be the last time I get this way...wink wink! > > > & gt; > > > & gt; Now, go dance! > > > & gt; > > > & gt; Heidi in Mass..... > > > & gt; > > > & gt; To those who believe, no explanation is necessary; to those > > who > > > dont, no > > > & gt; explanation is possible > > > & gt; > > > & gt; > > > & gt; > > > & gt; ************ **Vote for your city's best dining and > nightlife. > > > City's Best > > > & gt; 2008. (_http://citysbest._ (http://citysbest./) aol.com?ncid= > aolacg0005000000 0102) > > > & gt; > > > & gt; > > > & gt; [Non-text portions of this message have been removed] > > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 In the past couple of weeks I think I've finally internalized the fact that I am going to have good and bad days. There is no miracle cure. So I made the decision to step back into my life. For the past 6 months I have been a virtual hermit, moving between home, work, and dr's. I finally decided to DO things again. I started ushering at a local theatre last week (I'm a theatre buff and was deeply involved in local theatre for years in the past). I made a couple of volunteer commitments and added a couple of get-togethers to my social calendar. I went to the mall...I just moved very slowly and rested more often. And I feel really good having this stuff on my agenda. I'm determined to bully my way through it no matter what. So hear hear, huzzah, (or whatever voice of approval you want) to Heidi's sentiments!!!!! :-) > > > & gt; > > > & gt; Hello Listers! > > > & gt; > > > & gt; Happy Fathers Day to all you men on this list! I have to > share > > > with you all > > > & gt; that I am feeling great today! I just danced with some > > friends, > > > and am > > > & gt; ready to hit Bath and Body Works for the last day of the > sale! > > Run > > > girls run! I > > > & gt; still feel great as I sit here and write this. I want to > know, > > > that when you > > > & gt; all have days like this, do you ever wonder if maybe you > > shouldn't > > > have > > > & gt; danced like that? Because I really believe in things like > > Dance > > > til there's no > > > & gt; tomorrow! But there is that RA cloud....do you think > sometimes > > we > > > hold back > > > & gt; from doing what we want to do and maybe CAN do because the > > pain is > > > just > > > & gt; lurking around the corner? I know for me I get scared to say > > that > > > I could be going > > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > > & gt; Please don't think I'm taking away from the reality of > anyones > > > pain, because > > > & gt; you all know I've been there too, and in all likelihood will > > be > > > there again, > > > & gt; but I got kind of frustrated that while dancing and laughing > > and > > > being 16 > > > & gt; again, I had thoughts of tramadol will be needed later for > > sure! > > > If some of > > > & gt; this is making you laugh, great,,,,that' s good for the > > soul....but > > > I'd love to > > > & gt; hear your thoughts on it. > > > & gt; > > > & gt; I'm saddened by the passing of Tim Russert. When you listen > to > > > how much he > > > & gt; was loved by his friends, wow. If I could strive to be just > > 1/4 of > > > the > > > & gt; person he is/was, I would be a very happy girl. Ok...enough, > I > > > really need to get > > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > > drive with my > > > & gt; radio loud and sing. I can't wait to see what you all have > to > > > say! It's ok > > > & gt; if you call me nuts...LOL, it won't be the first time and I > > > promise you it > > > & gt; won't be the last time I get this way...wink wink! > > > & gt; > > > & gt; Now, go dance! > > > & gt; > > > & gt; Heidi in Mass..... > > > & gt; > > > & gt; To those who believe, no explanation is necessary; to those > > who > > > dont, no > > > & gt; explanation is possible > > > & gt; > > > & gt; > > > & gt; > > > & gt; ************ **Vote for your city's best dining and > nightlife. > > > City's Best > > > & gt; 2008. (_http://citysbest._ (http://citysbest./) aol.com?ncid= > aolacg0005000000 0102) > > > & gt; > > > & gt; > > > & gt; [Non-text portions of this message have been removed] > > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Great post as always Heidi! I so agree! We still have the same beautiful spirit and qualities we were born with. & nbsp; Illness, whether it be RA, FMS, depression, anxiety, diabetes, it's all just a " LABEL " . & nbsp; It doesn't define WHO or WHAT I am. & nbsp; I'm still kind, still generous, still caring, still giving, I'm still me! I've just learned that I have more strength and patience than I ever thought I had. & nbsp; I'm still Me, Only better! & nbsp; Good luck on the MRI! And please keep me posted! Steph & gt; & gt; When I have a good day, I take full advantage of it. I wanted to & gt; share with everyone about my rescent therapy session. I have been & gt; going to therapy on and off for years. With all my recent drama, I & gt; needed it. She was asking about my RA/fibromyalgia. I told her that & gt; I have had it for the past 7 years. I miss the person that I once & gt; was and I want to find that person again and learn to love myself & gt; again. She said, that is my problem...I am not going to find that & gt; person anymore. Chronic pain conditions change who you are and how to & gt; you need to approach life. I need to find the person who I am & gt; supposed to be now. It was like a light clicked on in my head. I & gt; thought all these years that I learned to accept it. I have been & gt; angery about life. She said what will help me move on, is to greive & gt; my oldself and learn to embrace who I am today. She can help me with & gt; that. I had stopped doing alot of things that I used to enjoy. I & gt; thought I had accepted being in chronic pain. I will keep you all & gt; enformed on how this process goes...but it made sense to me. & gt; Sometimes you just need to hear it from someone else for it to make & gt; sense. Enjoy the good days that you have. & gt; & gt; & gt; & gt; & gt; & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; Hello Listers! & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; Happy Fathers Day to all you men on this list! I have to share & gt; & gt; with you all & gt; & gt; & amp;gt; that I am feeling great today! I just danced with some & gt; friends, & gt; & gt; and am & gt; & gt; & amp;gt; ready to hit Bath and Body Works for the last day of the sale! & gt; Run & gt; & gt; girls run! I & gt; & gt; & amp;gt; still feel great as I sit here and write this. I want to know, & gt; & gt; that when you & gt; & gt; & amp;gt; all have days like this, do you ever wonder if maybe you & gt; shouldn't & gt; & gt; have & gt; & gt; & amp;gt; danced like that? Because I really believe in things like & gt; Dance & gt; & gt; til there's no & gt; & gt; & amp;gt; tomorrow! But there is that RA cloud....do you think sometimes & gt; we & gt; & gt; hold back & gt; & gt; & amp;gt; from doing what we want to do and maybe CAN do because the & gt; pain is & gt; & gt; just & gt; & gt; & amp;gt; lurking around the corner? I know for me I get scared to say & gt; that & gt; & gt; I could be going & gt; & gt; & amp;gt; into remission. I mean, what a wonderful thing right?!?!?!? & gt; & gt; & amp;gt; Please don't think I'm taking away from the reality of anyones & gt; & gt; pain, because & gt; & gt; & amp;gt; you all know I've been there too, and in all likelihood will & gt; be & gt; & gt; there again, & gt; & gt; & amp;gt; but I got kind of frustrated that while dancing and laughing & gt; and & gt; & gt; being 16 & gt; & gt; & amp;gt; again, I had thoughts of tramadol will be needed later for & gt; sure! & gt; & gt; If some of & gt; & gt; & amp;gt; this is making you laugh, great,,,,that' s good for the & gt; soul....but & gt; & gt; I'd love to & gt; & gt; & amp;gt; hear your thoughts on it. & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; I'm saddened by the passing of Tim Russert. When you listen to & gt; & gt; how much he & gt; & gt; & amp;gt; was loved by his friends, wow. If I could strive to be just & gt; 1/4 of & gt; & gt; the & gt; & gt; & amp;gt; person he is/was, I would be a very happy girl. Ok...enough, I & gt; & gt; really need to get & gt; & gt; & amp;gt; to that sale. I never met a sale I didn't like! I'm going to & gt; & gt; drive with my & gt; & gt; & amp;gt; radio loud and sing. I can't wait to see what you all have to & gt; & gt; say! It's ok & gt; & gt; & amp;gt; if you call me nuts...LOL, it won't be the first time and I & gt; & gt; promise you it & gt; & gt; & amp;gt; won't be the last time I get this way...wink wink! & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; Now, go dance! & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; Heidi in Mass..... & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; To those who believe, no explanation is necessary; to those & gt; who & gt; & gt; dont, no & gt; & gt; & amp;gt; explanation is possible & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; ************ **Vote for your city's best dining and nightlife. & gt; & gt; City's Best & gt; & gt; & amp;gt; 2008. (__http://citysbest. h_ (http://citysbest. _/) (_http://citysbest. h_ (http://citysbest. /) ) aol.com?ncid= aolacg0005000000 0102) & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; & gt; & gt; & amp;gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 WAY TO GO HEIDI!! don't ever give up,yes there will b bad days but good days too. just do the BEST you can & live as if it was your last day on earth... i too move slowly but rest more often.. IT WORKS!! god bless,melyndagamez 6/16/08 10:21p.m.central [ ] Re: Thoughts from everyone please... In the past couple of weeks I think I've finally internalized the fact that I am going to have good and bad days. There is no miracle cure. So I made the decision to step back into my life. For the past 6 months I have been a virtual hermit, moving between home, work, and dr's. I finally decided to DO things again. I started ushering at a local theatre last week (I'm a theatre buff and was deeply involved in local theatre for years in the past). I made a couple of volunteer commitments and added a couple of get-togethers to my social calendar. I went to the mall...I just moved very slowly and rested more often. And I feel really good having this stuff on my agenda. I'm determined to bully my way through it no matter what. So hear hear, huzzah, (or whatever voice of approval you want) to Heidi's sentiments!!!!! :-) > > > & gt; > > > & gt; Hello Listers! > > > & gt; > > > & gt; Happy Fathers Day to all you men on this list! I have to > share > > > with you all > > > & gt; that I am feeling great today! I just danced with some > > friends, > > > and am > > > & gt; ready to hit Bath and Body Works for the last day of the > sale! > > Run > > > girls run! I > > > & gt; still feel great as I sit here and write this. I want to > know, > > > that when you > > > & gt; all have days like this, do you ever wonder if maybe you > > shouldn't > > > have > > > & gt; danced like that? Because I really believe in things like > > Dance > > > til there's no > > > & gt; tomorrow! But there is that RA cloud....do you think > sometimes > > we > > > hold back > > > & gt; from doing what we want to do and maybe CAN do because the > > pain is > > > just > > > & gt; lurking around the corner? I know for me I get scared to say > > that > > > I could be going > > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > > & gt; Please don't think I'm taking away from the reality of > anyones > > > pain, because > > > & gt; you all know I've been there too, and in all likelihood will > > be > > > there again, > > > & gt; but I got kind of frustrated that while dancing and laughing > > and > > > being 16 > > > & gt; again, I had thoughts of tramadol will be needed later for > > sure! > > > If some of > > > & gt; this is making you laugh, great,,,,that' s good for the > > soul....but > > > I'd love to > > > & gt; hear your thoughts on it. > > > & gt; > > > & gt; I'm saddened by the passing of Tim Russert. When you listen > to > > > how much he > > > & gt; was loved by his friends, wow. If I could strive to be just > > 1/4 of > > > the > > > & gt; person he is/was, I would be a very happy girl. Ok...enough, > I > > > really need to get > > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > > drive with my > > > & gt; radio loud and sing. I can't wait to see what you all have > to > > > say! It's ok > > > & gt; if you call me nuts...LOL, it won't be the first time and I > > > promise you it > > > & gt; won't be the last time I get this way...wink wink! > > > & gt; > > > & gt; Now, go dance! > > > & gt; > > > & gt; Heidi in Mass..... > > > & gt; > > > & gt; To those who believe, no explanation is necessary; to those > > who > > > dont, no > > > & gt; explanation is possible > > > & gt; > > > & gt; > > > & gt; > > > & gt; ************ **Vote for your city's best dining and > nightlife. > > > City's Best > > > & gt; 2008. (_http://citysbest._ (http://citysbest./) aol.com?ncid= > aolacg0005000000 0102) > > > & gt; > > > & gt; > > > & gt; [Non-text portions of this message have been removed] > > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 hi jane, i loved reading your post. you r sooo right,if you r going to b in PAIN you DANCE your ASS off!! at least you danced & u have a reason to b in pain. you go woman!!! REST,REST,REST, SO U CAN B YOUR BEST! god bless,melyndagamez 6/16/08 10:32p.m.central Re: [ ] Re: Thoughts from everyone please... WAY TO GO HEIDI SO WELL SAID. I have rsd not sure if any of you know but it is highest on the pain scale above cancer!!!!! I also have psoriasis/ ra and or psoriatic arthtritis etc. I listed to all the people tell me i would be in a wheelchair, of which can happen with rsd, but i thought my life was over I was also diagnosed with the ra and well in the beginning with the rsd i had a nervous breakdown cause i thoughtmy life was over!!1 Thank god and i say god cause that's what put me on my feet. It took me six months to walk again, i couldn't even stand to take a shower, and i have five kids. My life is far from over i just have to learn how to do new things. Do i have bad days yes alot, but i have good days. I gardened this year last year i couldn't getout of bed. I am still the old me, but with a bigger and better spirit that i can and will survive this. Jolene In a message dated 6/16/2008 8:45:04 P.M. Eastern Daylight Time, sposy@... writes: Hi , I totally understand what you are saying, however, I don't believe that the good old days are gone. If and when you have a good day, celebrate it! You are still you no matter what happens. I lost 180 pounds. Sure all that blubber covered up emotional things like a rape,etc.. But once I shed those pounds, and I dealt with all the emotional stuff, the " new " physical me, I still was and am ME. I just happen to have RA now. Yup, I get frustrated, but I will never ever say goodbye to the person pre RA because she still exists. Maybe there are days when I can't move like a cat and am more sloth like, but my heart and soul remain. I also see a therapist and we discuss this all the time. I do have to work at a slower pace at times, I do have to cut my gardening time in half, I do drop things, I even had to have a " first date " cut up my food for me (long story, ask if you want to, yup its funny), I now have neuropathy in my fingertips and heels, but so what? LOL, just another thing to add to my list. My therapist is also a Breast Cancer survivor, and we both have " attitudes " I guess. I just don't want people to lose themselves because of RA or any illness that might come along and try to " consume " us. We have to accept reality, but we cannot deny the past. Ok , jumping off my soap box. I have a 7am MRI tomorrow of my head that I am not looking forward to because of some recent cognitive issues, so if I've repeated myself or totally said something out of whack , forgive me. In case you are wondering, I've already found out if they have my favorite radio station to listen to while I'm trapped for 45 minutes in that " open "  torture chamber! Please don't be mad at me.... Heidi in Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 6/16/2008 8:26:57 P.M. Eastern Daylight Time, _bennion8@..._ (mailto:bennion8@...) writes: , You will never know how much I needed to read your post today. Thank you very much for sharing those thoughts. God Bless, -- In _ @-- In _RA-S-- In _ @_ @groRA-SUPP_ (mailto: ) ) , " " <man_u8@...> wrote: > > When I have a good day, I take full advantage of it. I wanted to > share with everyone about my rescent therapy session. I have been > going to therapy on and off for years. With all my recent drama, I > needed it. She was asking about my RA/fibromyalgia. I told her that > I have had it for the past 7 years. I miss the person that I once > was and I want to find that person again and learn to love myself > again. She said, that is my problem...I am not going to find that > person anymore. Chronic pain conditions change who you are and how to > you need to approach life.. I need to find the person who I am > supposed to be now. It was like a light clicked on in my head. I > thought all these years that I learned to accept it. I have been > angery about life. She said what will help me move on, is to greive > my oldself and learn to embrace who I am today. She can help me with > that. I had stopped doing alot of things that I used to enjoy. I > thought I had accepted being in chronic pain. I will keep you all > enformed on how this process goes...but it made sense to me. > Sometimes you just need to hear it from someone else for it to make > sense. Enjoy the good days that you have. > > > > > > > & gt; > > & gt; Hello Listers! > > & gt; > > & gt; Happy Fathers Day to all you men on this list! I have to share > > with you all > > & gt; that I am feeling great today! I just danced with some > friends, > > and am > > & gt; ready to hit Bath and Body Works for the last day of the sale! > Run > > girls run! I > > & gt; still feel great as I sit here and write this. I want to know, > > that when you > > & gt; all have days like this, do you ever wonder if maybe you > shouldn't > > have > > & gt; danced like that? Because I really believe in things like > Dance > > til there's no > > & gt; tomorrow! But there is that RA cloud....do you think sometimes > we > > hold back > > & gt; from doing what we want to do and maybe CAN do because the > pain is > > just > > & gt; lurking around the corner? I know for me I get scared to say > that > > I could be going > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > & gt; Please don't think I'm taking away from the reality of anyones > > pain, because > > & gt; you all know I've been there too, and in all likelihood will > be > > there again, > > & gt; but I got kind of frustrated that while dancing and laughing > and > > being 16 > > & gt; again, I had thoughts of tramadol will be needed later for > sure! > > If some of > > & gt; this is making you laugh, great,,,,that' s good for the > soul....but > > I'd love to > > & gt; hear your thoughts on it. > > & gt; > > & gt; I'm saddened by the passing of Tim Russert. When you listen to > > how much he > > & gt; was loved by his friends, wow. If I could strive to be just > 1/4 of > > the > > & gt; person he is/was, I would be a very happy girl. Ok...enough, I > > really need to get > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > drive with my > > & gt; radio loud and sing. I can't wait to see what you all have to > > say! It's ok > > & gt; if you call me nuts...LOL, it won't be the first time and I > > promise you it > > & gt; won't be the last time I get this way...wink wink! > > & gt; > > & gt; Now, go dance! > > & gt; > > & gt; Heidi in Mass..... > > & gt; > > & gt; To those who believe, no explanation is necessary; to those > who > > dont, no > > & gt; explanation is possible > > & gt; > > & gt; > > & gt; > > & gt; ************ **Vote for your city's best dining and nightlife. > > City's Best > > & gt; 2008. (__http://citysbest.h_ (http://citysbest._/) (_http://citysbest.h_ (http://citysbest./) ) aol.com?ncid= aolacg0005000000 0102) > > & gt; > > & gt; > > & gt; [Non-text portions of this message have been removed] > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 hope everything goes well heidi on your mri! just RELAX & STAY CALM. CLOSE EYES!!!!! KEEP US POSTED? god bless,melyndagamez 6/16/08 10:35central Re: [ ] Re: Thoughts from everyone please... Hi , I totally understand what you are saying, however, I don't believe that the good old days are gone. If and when you have a good day, celebrate it! You are still you no matter what happens. I lost 180 pounds. Sure all that blubber covered up emotional things like a rape,etc. But once I shed those pounds, and I dealt with all the emotional stuff, the " new " physical me, I still was and am ME. I just happen to have RA now. Yup, I get frustrated, but I will never ever say goodbye to the person pre RA because she still exists. Maybe there are days when I can't move like a cat and am more sloth like, but my heart and soul remain. I also see a therapist and we discuss this all the time. I do have to work at a slower pace at times, I do have to cut my gardening time in half, I do drop things, I even had to have a " first date " cut up my food for me (long story, ask if you want to, yup its funny), I now have neuropathy in my fingertips and heels, but so what? LOL, just another thing to add to my list. My therapist is also a Breast Cancer survivor, and we both have " attitudes " I guess. I just don't want people to lose themselves because of RA or any illness that might come along and try to " consume " us. We have to accept reality, but we cannot deny the past. Ok , jumping off my soap box. I have a 7am MRI tomorrow of my head that I am not looking forward to because of some recent cognitive issues, so if I've repeated myself or totally said something out of whack , forgive me. In case you are wondering, I've already found out if they have my favorite radio station to listen to while I'm trapped for 45 minutes in that " open " torture chamber! Please don't be mad at me.... Heidi in Mass. To those who believe, no explanation is necessary; to those who dont, no explanation is possible In a message dated 6/16/2008 8:26:57 P.M. Eastern Daylight Time, bennion8@... writes: , You will never know how much I needed to read your post today. Thank you very much for sharing those thoughts. God Bless, -- In _ @groRA-SUPP_ (mailto: ) , " " <man_u8@...> wrote: > > When I have a good day, I take full advantage of it. I wanted to > share with everyone about my rescent therapy session. I have been > going to therapy on and off for years. With all my recent drama, I > needed it. She was asking about my RA/fibromyalgia. I told her that > I have had it for the past 7 years. I miss the person that I once > was and I want to find that person again and learn to love myself > again. She said, that is my problem...I am not going to find that > person anymore. Chronic pain conditions change who you are and how to > you need to approach life. I need to find the person who I am > supposed to be now. It was like a light clicked on in my head. I > thought all these years that I learned to accept it. I have been > angery about life. She said what will help me move on, is to greive > my oldself and learn to embrace who I am today. She can help me with > that. I had stopped doing alot of things that I used to enjoy. I > thought I had accepted being in chronic pain. I will keep you all > enformed on how this process goes...but it made sense to me. > Sometimes you just need to hear it from someone else for it to make > sense. Enjoy the good days that you have. > > > > > > > & gt; > > & gt; Hello Listers! > > & gt; > > & gt; Happy Fathers Day to all you men on this list! I have to share > > with you all > > & gt; that I am feeling great today! I just danced with some > friends, > > and am > > & gt; ready to hit Bath and Body Works for the last day of the sale! > Run > > girls run! I > > & gt; still feel great as I sit here and write this. I want to know, > > that when you > > & gt; all have days like this, do you ever wonder if maybe you > shouldn't > > have > > & gt; danced like that? Because I really believe in things like > Dance > > til there's no > > & gt; tomorrow! But there is that RA cloud....do you think sometimes > we > > hold back > > & gt; from doing what we want to do and maybe CAN do because the > pain is > > just > > & gt; lurking around the corner? I know for me I get scared to say > that > > I could be going > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > & gt; Please don't think I'm taking away from the reality of anyones > > pain, because > > & gt; you all know I've been there too, and in all likelihood will > be > > there again, > > & gt; but I got kind of frustrated that while dancing and laughing > and > > being 16 > > & gt; again, I had thoughts of tramadol will be needed later for > sure! > > If some of > > & gt; this is making you laugh, great,,,,that' s good for the > soul.....but > > I'd love to > > & gt; hear your thoughts on it. > > & gt; > > & gt; I'm saddened by the passing of Tim Russert. When you listen to > > how much he > > & gt; was loved by his friends, wow. If I could strive to be just > 1/4 of > > the > > & gt; person he is/was, I would be a very happy girl. Ok...enough, I > > really need to get > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > drive with my > > & gt; radio loud and sing. I can't wait to see what you all have to > > say! It's ok > > & gt; if you call me nuts...LOL, it won't be the first time and I > > promise you it > > & gt; won't be the last time I get this way...wink wink! > > & gt; > > & gt; Now, go dance! > > & gt; > > & gt; Heidi in Mass..... > > & gt; > > & gt; To those who believe, no explanation is necessary; to those > who > > dont, no > > & gt; explanation is possible > > & gt; > > & gt; > > & gt; > > & gt; ************ **Vote for your city's best dining and nightlife. > > City's Best > > & gt; 2008. (_http://citysbest._ (http://citysbest./) aol.com?ncid= aolacg0005000000 0102) > > & gt; > > & gt; > > & gt; [Non-text portions of this message have been removed] > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 Heidi, Oh god, no I am not mad. I know I am still " me " , but I have been searching for who I was pre-RA. I was 24 when I was diagnosed and I am 31 now...I was pretty reckless before I was diagnosed. I think I was trying to find my 18 y/o self again. I would love to have my 18 y/o body again...lol. When I do have good days, I try to take advantage of it because I don't know when my next one will come. I know the good days are not over, but I guess what I was trying to say is you need to embrace who you are today. I never wanted to accept who I have been for the past few years. (I had my bowel puntured 2 years ago and that has left me scarred emotionally and physically). I have been trying to become the person I was before my tramatic hospitization. I have really bad PTSD and anxiety from it. That person does not exisit anymore, it has been a real struggle for me to accept who I am. I think I found a therapist who can help me find myself and learn to love myself again. Your past makes who you are today, but don't let it dictate who will become. > > > & gt; > > > & gt; Hello Listers! > > > & gt; > > > & gt; Happy Fathers Day to all you men on this list! I have to > share > > > with you all > > > & gt; that I am feeling great today! I just danced with some > > friends, > > > and am > > > & gt; ready to hit Bath and Body Works for the last day of the > sale! > > Run > > > girls run! I > > > & gt; still feel great as I sit here and write this. I want to > know, > > > that when you > > > & gt; all have days like this, do you ever wonder if maybe you > > shouldn't > > > have > > > & gt; danced like that? Because I really believe in things like > > Dance > > > til there's no > > > & gt; tomorrow! But there is that RA cloud....do you think > sometimes > > we > > > hold back > > > & gt; from doing what we want to do and maybe CAN do because the > > pain is > > > just > > > & gt; lurking around the corner? I know for me I get scared to say > > that > > > I could be going > > > & gt; into remission. I mean, what a wonderful thing right?!?!?!? > > > & gt; Please don't think I'm taking away from the reality of > anyones > > > pain, because > > > & gt; you all know I've been there too, and in all likelihood will > > be > > > there again, > > > & gt; but I got kind of frustrated that while dancing and laughing > > and > > > being 16 > > > & gt; again, I had thoughts of tramadol will be needed later for > > sure! > > > If some of > > > & gt; this is making you laugh, great,,,,that' s good for the > > soul....but > > > I'd love to > > > & gt; hear your thoughts on it. > > > & gt; > > > & gt; I'm saddened by the passing of Tim Russert. When you listen > to > > > how much he > > > & gt; was loved by his friends, wow. If I could strive to be just > > 1/4 of > > > the > > > & gt; person he is/was, I would be a very happy girl. Ok...enough, > I > > > really need to get > > > & gt; to that sale. I never met a sale I didn't like! I'm going to > > > drive with my > > > & gt; radio loud and sing. I can't wait to see what you all have > to > > > say! It's ok > > > & gt; if you call me nuts...LOL, it won't be the first time and I > > > promise you it > > > & gt; won't be the last time I get this way...wink wink! > > > & gt; > > > & gt; Now, go dance! > > > & gt; > > > & gt; Heidi in Mass..... > > > & gt; > > > & gt; To those who believe, no explanation is necessary; to those > > who > > > dont, no > > > & gt; explanation is possible > > > & gt; > > > & gt; > > > & gt; > > > & gt; ************ **Vote for your city's best dining and > nightlife. > > > City's Best > > > & gt; 2008. (_http://citysbest._ (http://citysbest./) aol.com? ncid= > aolacg0005000000 0102) > > > & gt; > > > & gt; > > > & gt; [Non-text portions of this message have been removed] > > > & gt; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.