Re: FMS overlap fatigue and suffering

June 21, 2008

That was a very interesting presentation! I noticed the patient case they

presented, the woman had inflamed knees..I wonder what was causing that, as that

was my very first symptom of an inflammatory process going on. For a year it

was one knee and then it began in both and the xray then showed bilateral

effusions. My PCP was actually the one who diagnosed me with FMS before sending

me off to the rheumatologist. He treats 8 patients for FMS but my case was more

complicated and had other things going on but he really keeps up to date on

treatments and helps to manage mine when I can't get to the rheumatologist. My

cardiologist who retired over a year ago, his daughters friend had FMS so he was

very knowledgeable too. We would end up talking about my FMS almost as much as

my heart! I thought that was a great thing that they all understood the whole

picture of what was going on..it always helps me from having to explain so

much:)

From: chris65peth <chris65peth@...>

Subject: [ ] FMS overlap fatigue and suffering

Date: Friday, June 20, 2008, 4:34 AM

Hello everyone.

Read this so supportive group's entries with admiration.( Am retired

doc in UK,and read on behalf of friend who has RA, uncontrolled, and

no computer.)

It appears to me as a concerned bystander that many of you who are

suffering most(including my friend) have strong features of the ill

understood fibromyalgia syndrome as well.Sadly this seems to often

baffle some doctors, so I was very interested to read (and take part

in) a CME (continuing medical education update) available for doctors

and other health care providers on Medscape.The title is

Fibromyalgia: A label for chronic widespread pain (release date May

29,2008) and runs to 14 pages, which I thought very well presented.If

more docs went through it I think they would have more

sympathy/understand ing!

I know may know ways of accessing this?? and also some have

mentioned you are nurses.Anyway perhaps you could tactfully point

your PCP towards it.LOL. Hope this helps anyway. One thing which it

mentioned which seemed so true of my friend and many of your posts,

is that you are more TENDER than the average,a brain/nerve thing, so

of course you feel everything more! A very good way of putting it I

thought,

best wishes,

Chris

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