Re: Is anyone on Humira WITHOUT MTX?

[Guest guest]

I take the enbrel with a low dose of arava 10 mg...and a 5 mg prednisone

every day.

I had to quit the mtx cause my liver enzymes increased.

a from Ohio

**************

Psssst...Have you heard the news? There's a new

fashion blog, plus the latest fall trends and hair styles at StyleList.com.

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[Guest guest]

Hi Kami, I'm not on Humira, but I take Enbrel and I've never taken mtx.  I'm

working my way down on low dose prednisone, but other than occasional courses of

NSAIDs, I've been a primary antiTNF girl.

[ ] Is anyone on Humira WITHOUT MTX?

I would like to hear from you.

I feel I need to stop the MTX because I am useless on the day I take it and the

following 2 days. (I take it on Friday and am useless on Sat and Sun) I dose

Humira every other Tuesday and will have 3 good days (Tue, Wed, Thur) and then

comes downtime on Fri, Sat, Sun.... following week is usually unpredictable

because I am not getting a full 2 weeks of Humira. Then Fri, Sat, Sun... have a

good day Monday.... Inject.... Cycle repeats.

Sooooo.... I am trying to figure what options I have..... I really, truly LOVE

the days my Humira works and HATE my MTX " recovery " days....

*~ Kami ~*

[Guest guest]

Kami,

I stopped the MTX and have continued the Humera. It had gotten to the point

that I was sick all the time from the MTX. Well its been around a month and

I can definitely tell the difference without the MTX. I have to move more

slowly and have a lot of muscle and joint pain. I guess however, that I

will deal with these pains rather that deal with the nausea and diarrhea of

MTX.

Heidi M

On Tue, Sep 9, 2008 at 2:04 PM, ~ Kami ~ <kamilleon@...> wrote:

> I would like to hear from you.

>

> I feel I need to stop the MTX because I am useless on the day I take it and

> the following 2 days. (I take it on Friday and am useless on Sat and Sun) I

> dose Humira every other Tuesday and will have 3 good days (Tue, Wed, Thur)

> and then comes downtime on Fri, Sat, Sun.... following week is usually

> unpredictable because I am not getting a full 2 weeks of Humira. Then Fri,

> Sat, Sun... have a good day Monday.... Inject.... Cycle repeats.

>

> Sooooo.... I am trying to figure what options I have..... I really, truly

> LOVE the days my Humira works and HATE my MTX " recovery " days....

>

> *~ Kami ~*

>

>

[Guest guest]

Hi Kami,

i took MTX but it was quite a few years ago. i've been on quite a

few other things since then but right now i am just on Humira.

i have been on the once every two weeks dosage since Dec. 2007.

i think it is working really well for me so far. i have a few days

here and there that i feel stiff and twinges of pain but nothing like

what i would have if i wasn't taking anything.

what worked really well for me was arava, i took that for almost 7

years and most of those days were pain free. my liver enzymes all of

a sudden got out of wack so i had to quit taking it. Once i quit my

liver enzymes went back to normal so we knew it was the med. i was

bummed since it worked so well for me for so long and it was a pill

rather than an injection.

i would definately talk to your doc about the way you feel. My doc

told me there are different cycles of humira you can be on. if i

felt that two weeks wasn't covering my pain she said we could move it

up to once every 10 days. everyone is different of course but you

could ask if that would be an option for you.

Hugs,

Lori

>

> I would like to hear from you.

>

> I feel I need to stop the MTX because I am useless on the day I

take it and the following 2 days. (I take it on Friday and am useless

on Sat and Sun) I dose Humira every other Tuesday and will have 3

good days (Tue, Wed, Thur) and then comes downtime on Fri, Sat,

Sun.... following week is usually unpredictable because I am not

getting a full 2 weeks of Humira. Then Fri, Sat, Sun... have a good

day Monday.... Inject.... Cycle repeats.

>

> Sooooo.... I am trying to figure what options I have..... I really,

truly LOVE the days my Humira works and HATE my MTX " recovery "

days....

>

>

>

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

I can't take MTX because it lowers my white blood cell count too low.

My rheumy at the time gave me a choice of Enbrel or Humira, and I chose

Enbrel. Enbrel is working very well for me with no additional RA med

except arthritis-strength Tylenol.

Are you on the MTX pills or the injectable? Some people have fewer side

effects with the injectable.

Sue

On Tuesday, September 9, 2008, at 02:04 PM, ~ Kami ~ wrote:

>

> I feel I need to stop the MTX because I am useless on the day I take

> it and the following 2 days. (I take it on Friday and am useless on

> Sat and Sun) I dose Humira every other Tuesday and will have 3 good

> days (Tue, Wed, Thur) and then comes downtime on Fri, Sat, Sun....

> following week is usually unpredictable because I am not getting a

> full 2 weeks of Humira. Then Fri, Sat, Sun... have a good day

> Monday.... Inject.... Cycle repeats.

[Guest guest]

Hi Kami,

I take Humira and MTX. The Humira, taken with MTX suppose to work

better. So, if you don't take MTX, you are not fatigued? I am

always fatigued, and feel badly. I am able to walk, and take care of

myself, at this point of my life.

I would sure talk with your doctor, and see if you can't find out

what is best for you. Keep us posted, Tawny

>

> I would like to hear from you.

>

> I feel I need to stop the MTX because I am useless on the day I

take it and the following 2 days. (I take it on Friday and am useless

on Sat and Sun) I dose Humira every other Tuesday and will have 3

good days (Tue, Wed, Thur) and then comes downtime on Fri, Sat,

Sun.... following week is usually unpredictable because I am not

getting a full 2 weeks of Humira. Then Fri, Sat, Sun... have a good

day Monday.... Inject.... Cycle repeats.

>

> Sooooo.... I am trying to figure what options I have..... I really,

truly LOVE the days my Humira works and HATE my MTX " recovery "

days....

>

>

>

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

Kami,

Have you ever tried the mtx injections? It's so much better, very

little side effects.

Take care, Tawny

>

> > I would like to hear from you.

> >

> > I feel I need to stop the MTX because I am useless on the day I

take it and

> > the following 2 days. (I take it on Friday and am useless on Sat

and Sun) I

> > dose Humira every other Tuesday and will have 3 good days (Tue,

Wed, Thur)

> > and then comes downtime on Fri, Sat, Sun.... following week is

usually

> > unpredictable because I am not getting a full 2 weeks of Humira.

Then Fri,

> > Sat, Sun... have a good day Monday.... Inject.... Cycle repeats.

> >

> > Sooooo.... I am trying to figure what options I have..... I

really, truly

> > LOVE the days my Humira works and HATE my MTX " recovery " days....

> >

> > *~ Kami ~*

> >

> >

[Guest guest]

Kami and group;

Omg, I have been in utter aweful pain as many of you know. I cant

take MTX cause I am allergic to it. I tried to take it about 6

months ago and I broke out in itching hives.

I started humirra injections Thursday. At first I notice I could get

up in the mornings much easier. Today is Tuesday and I was lieing in

bed when I realized I had no RA pain except in my neck.

A few minutes ago I got up and told my husband all the RA pain is

gone and the pain in my neck. I can't believe it. Wow its amazing. I

am so glad you brought up humira kami. I was wondering how to tell

the group. Is this going to be permanent while taking injections? Or

am I going to have RA pain free certain days????? Omg I have so many

questions. I guess I will have to wait and see.

My muscles are so weak from not using them. I am going to have to

rework them now. I am not pain free, but praise God it's a start.

Lyrica stops the fibro pain. I have osteo in my back I use pain

patches for that, Also I have bursitiis in my shoulders hips and

knees I get steroid shots for that in my hips and shoulders. Which

keeps the pain at bay.

The answer to your quetion Kami is yes you can take humira with out

the MTX. I do take plaqunil and sulfazaline also. I been taking that

for about 7 months now. I have not had any pain relief from taking

them. This is the first time I have been completely (RA) pain free

in a year.

I want to thank every one for their prayers. Thank you Dodge for

lighing a candle for me. I feel so wonderful. It only hit me a few

minutes ago I was not in pain. I was laying in bed watching tv and I

thought OMG THE HUMIRA IS WORKING. HAAAAAAAAAAAA. WOW WEE.

I told my husband please let me on the pc, ( he was taking his turn

on the pc) I got to tell my support group. You guys are the first I

wanted to tell. I love you all so very much.

Gentle kind loving hugs everyone

Clora

> I would like to hear from you.

>

> I feel I need to stop the MTX because I am useless on the day I

take it and the following 2 days. (I take it on Friday and am

useless on Sat and Sun) I dose Humira every other Tuesday and will

have 3 good days (Tue, Wed, Thur) and then comes downtime on Fri,

Sat, Sun.... following week is usually unpredictable because I am

not getting a full 2 weeks of Humira. Then Fri, Sat, Sun... have a

good day Monday.... Inject.... Cycle repeats.

>

> Sooooo.... I am trying to figure what options I have..... I

really, truly LOVE the days my Humira works and HATE my

MTX " recovery " days....

>

>

>

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

> It only hit me a few

> minutes ago I was not in pain. I was laying in bed watching tv and

I

> thought OMG THE HUMIRA IS WORKING. HAAAAAAAAAAAA. WOW WEE.

>

> I told my husband please let me on the pc, ( he was taking his turn

> on the pc) I got to tell my support group. You guys are the first I

> wanted to tell. I love you all so very much.

>

> Gentle kind loving hugs everyone

> Clora

>

Clora,

That is such fantastic news. I pray your pain reduction is long

term. It gives me such hope to hear stories of success such as

yours.

My first appt with the Rheumy is this Friday and I'm a bit nervious

about it. Glad it's almost here but nervous as to what to expect.

Harboring irrational fears such as she'll say " Sorry, but I can't

help you. Go home and take Tylenol. " LOL! I suspect this group can

identify with these types of crazy thoughts.

Still taking it one day at a time. Wishing all a pain free (or at

least, reduced, day.

Bob

[Guest guest]

>

> Kami and group;

>

> Omg, I have been in utter aweful pain as many of you know. I cant

> take MTX cause I am allergic to it. I tried to take it about 6

> months ago and I broke out in itching hives.

>

> I started humirra injections Thursday. At first I notice I could

get

> up in the mornings much easier. Today is Tuesday and I was lieing

in

> bed when I realized I had no RA pain except in my neck.

>

> A few minutes ago I got up and told my husband all the RA pain is

> gone and the pain in my neck. I can't believe it. Wow its amazing.

I

> am so glad you brought up humira kami. I was wondering how to tell

> the group. Is this going to be permanent while taking injections?

Or

> am I going to have RA pain free certain days????? Omg I have so

many

> questions. I guess I will have to wait and see.

>

> My muscles are so weak from not using them. I am going to have to

> rework them now. I am not pain free, but praise God it's a start.

> Lyrica stops the fibro pain. I have osteo in my back I use pain

> patches for that, Also I have bursitiis in my shoulders hips and

> knees I get steroid shots for that in my hips and shoulders. Which

> keeps the pain at bay.

>

> The answer to your quetion Kami is yes you can take humira with

out

> the MTX. I do take plaqunil and sulfazaline also. I been taking

that

> for about 7 months now. I have not had any pain relief from taking

> them. This is the first time I have been completely (RA) pain free

> in a year.

>

> I want to thank every one for their prayers. Thank you Dodge for

> lighing a candle for me. I feel so wonderful. It only hit me a few

> minutes ago I was not in pain. I was laying in bed watching tv and

I

> thought OMG THE HUMIRA IS WORKING. HAAAAAAAAAAAA. WOW WEE.

>

> I told my husband please let me on the pc, ( he was taking his

turn

> on the pc) I got to tell my support group. You guys are the first

I

> wanted to tell. I love you all so very much.

>

> Gentle kind loving hugs everyone

> Clora

>

>

> > I would like to hear from you.

> >

> > I feel I need to stop the MTX because I am useless on the day I

> take it and the following 2 days. (I take it on Friday and am

> useless on Sat and Sun) I dose Humira every other Tuesday and will

> have 3 good days (Tue, Wed, Thur) and then comes downtime on Fri,

> Sat, Sun.... following week is usually unpredictable because I am

> not getting a full 2 weeks of Humira. Then Fri, Sat, Sun... have a

> good day Monday.... Inject.... Cycle repeats.

> >

> > Sooooo.... I am trying to figure what options I have..... I

> really, truly LOVE the days my Humira works and HATE my

> MTX " recovery " days....

> >

> >

> >

> >

> >

> > *~ Kami ~*

> >

> >

> >

> >

> >

[Guest guest]

Bob and group;

I know Bob. Its news like this that got me on the ball to get humira.

Thats wy I had to tell my support group first. We all suffer so much.

I knew that everyone that heard me talk about how much pain I was in

would be so happy for me. ANd I knew it would give hope to those that

are new and never heard of relief.

When I came on this support group. I had no idea there could be relief

down the road. I thought only thing to stop the pain is strong,

drugged feeling pain killers. I wanted morphine back before the

support group. You guys are all my pals.

I know Bob that is my next question. How long is this going to be. Is

it for the full 2 weeks?? Does it keep working with every shot?? I

have so many questions. Thank you for your comment Bob

gentle hugs

clora

> That is such fantastic news. I pray your pain reduction is long

> term. It gives me such hope to hear stories of success such as

> yours.

> My first appt with the Rheumy is this Friday and I'm a bit nervious

> about it. Glad it's almost here but nervous as to what to expect.

> Harboring irrational fears such as she'll say " Sorry, but I can't

> help you. Go home and take Tylenol. " LOL! I suspect this group

can

> identify with these types of crazy thoughts.

> Still taking it one day at a time. Wishing all a pain free (or at

> least, reduced, day.

> Bob

>

[Guest guest]

CLORA

Im so glad your getting results from your humira..I have been

reading your posts and how frustrated it has been..hang in there

kiddo..diane

[Guest guest]

Clora,

I am so excited for you! I have found that having LESS PAIN makes the world a

brighter place.

I am the type of person that gets excited about LITTLE THINGS. I pumped my own

gas last week for the first time in oh... MONTHS and was THRILLED! You would

have thought I had just won the lottery I was so excited! Also.... being able to

peel and chop things excites me!

I know not all days are going to be like this but I am going to enjoy the days

that are!!!!

*~ Kami ~*

[ ] Re: Is anyone on Humira WITHOUT MTX?

Kami and group;

Omg, I have been in utter aweful pain as many of you know. I cant

take MTX cause I am allergic to it. I tried to take it about 6

months ago and I broke out in itching hives.

I started humirra injections Thursday. At first I notice I could get

up in the mornings much easier. Today is Tuesday and I was lieing in

bed when I realized I had no RA pain except in my neck.

A few minutes ago I got up and told my husband all the RA pain is

gone and the pain in my neck. I can't believe it. Wow its amazing. I

am so glad you brought up humira kami. I was wondering how to tell

the group. Is this going to be permanent while taking injections? Or

am I going to have RA pain free certain days????? Omg I have so many

questions. I guess I will have to wait and see.

My muscles are so weak from not using them. I am going to have to

rework them now. I am not pain free, but praise God it's a start.

Lyrica stops the fibro pain. I have osteo in my back I use pain

patches for that, Also I have bursitiis in my shoulders hips and

knees I get steroid shots for that in my hips and shoulders. Which

keeps the pain at bay.

The answer to your quetion Kami is yes you can take humira with out

the MTX. I do take plaqunil and sulfazaline also. I been taking that

for about 7 months now. I have not had any pain relief from taking

them. This is the first time I have been completely (RA) pain free

in a year.

I want to thank every one for their prayers. Thank you Dodge for

lighing a candle for me. I feel so wonderful. It only hit me a few

minutes ago I was not in pain. I was laying in bed watching tv and I

thought OMG THE HUMIRA IS WORKING. HAAAAAAAAAAAA. WOW WEE.

I told my husband please let me on the pc, ( he was taking his turn

on the pc) I got to tell my support group. You guys are the first I

wanted to tell. I love you all so very much.

Gentle kind loving hugs everyone

Clora

.

[Guest guest]

Diane and group.

Awe thank you so much Diane. Sometimes I wonder if anyone reads my

post, haaaaaaaaaa. I know they do cause everyone eventually comments

on them. But i like hearing it.

GEntle hugs

Clora

>

> CLORA

>

>

> Im so glad your getting results from your humira..I have been

> reading your posts and how frustrated it has been..hang in there

> kiddo..diane

>

[Guest guest]

Kami and group;

Thanks Kami. Your like our kitten. lol Coke is getting excited about

everything he finds new. Except in your case little commplishments

excite you. haaaaaaa. That is wonderful kami. To be able to find the

little excitments in life exciting. I am so grateful to our little

or big group.

gentle hugs

Clora

>

> I am so excited for you! I have found that having LESS PAIN makes

the world a brighter place.

>

> I am the type of person that gets excited about LITTLE THINGS. I

pumped my own gas last week for the first time in oh... MONTHS and

was THRILLED! You would have thought I had just won the lottery I

was so excited! Also.... being able to peel and chop things excites

me!

>

> I know not all days are going to be like this but I am going to

enjoy the days that are!!!!

>

>

> *~ Kami ~*

>

>

>

[Guest guest]

hi...not sure how these messages came to me, I just joined the support group but

I am drug free and trying to maintain that perspective, and thes types of emails

don't pertain to my case, so, how do i stop getting all these emails??   Pam

From: CLORA <clora4jesus@...>

Subject: [ ] Re: Is anyone on Humira WITHOUT MTX?

Received: Wednesday, September 10, 2008, 12:20 PM

Kami and group;

Thanks Kami. Your like our kitten. lol Coke is getting excited about

everything he finds new. Except in your case little commplishments

excite you. haaaaaaa. That is wonderful kami. To be able to find the

little excitments in life exciting. I am so grateful to our little

or big group.

gentle hugs

Clora

>

> I am so excited for you! I have found that having LESS PAIN makes

the world a brighter place.

>

> I am the type of person that gets excited about LITTLE THINGS. I

pumped my own gas last week for the first time in oh... MONTHS and

was THRILLED! You would have thought I had just won the lottery I

was so excited! Also.... being able to peel and chop things excites

me!

>

> I know not all days are going to be like this but I am going to

enjoy the days that are!!!!

>

>

> *~ Kami ~*

>

>

>

__________________________________________________________________

Looking for the perfect gift? Give the gift of Flickr!

http://www.flickr.com/gift/

[Guest guest]

Pam,

Go to:

/

Click on " Edit Membership " near the top center of the page.

Choose " Web Only " for your message delivery.

Not an MD

On Wed, Sep 10, 2008 at 11:28 AM, Pam Nyznik <pamnyznik@...> wrote:

> hi...not sure how these messages came to me, I just joined the support group

> but I am drug free and trying to maintain that perspective, and thes types

> of emails don't pertain to my case, so, how do i stop getting all these

> emails?? Pam

[Guest guest]

Clora,

I am so happy to hear the Humira is working for you, Tawny

> > It only hit me a few

> > minutes ago I was not in pain. I was laying in bed watching tv

and

> I

> > thought OMG THE HUMIRA IS WORKING. HAAAAAAAAAAAA. WOW WEE.

> >

> > I told my husband please let me on the pc, ( he was taking his

turn

> > on the pc) I got to tell my support group. You guys are the first

I

> > wanted to tell. I love you all so very much.

> >

> > Gentle kind loving hugs everyone

> > Clora

> >

>

[Guest guest]

Tawney and group

Thank you so much Tawney

hugs

Clora

>

[Guest guest]

Clora,

I pray the Humira works for you a long time. Have a good day, Tawny

>

> Tawney and group

>

> Thank you so much Tawney

>

> hugs

> Clora

>

> >

>

[Guest guest]

TAwny and group;

AWE thanks tawny, you're so sweet. There are so many sweet ladies here

and great guys. I have already cleaned my night stand, took a bath,

empty the tub of mat and shampoo bottles. I can't believe it. I

usually hate to take a bath cause its so taxing.

My muscles are weak cause I havent used them for so long. I got to

find some easy exercises to strengthen them. Yes I pray for a cure and

I pray the humira works for a long time

gentle kind hugs

Clora

[Guest guest]

Clora,

It sounds like you are busy today. I love to take a nice hot bath,

it makes me feel so much better. Speaking of bath tubs, I would like

to have one of those new tubs,( advertised on TV), you just walk in,

and sit down. I'm sure it's very expensive. Sometimes, I can't

hardly get in and out of the tub anymore, so would be great. Oh

well, nice to wish, huh? Have a bless day, Tawny

>

> TAwny and group;

>

> AWE thanks tawny, you're so sweet. There are so many sweet ladies

here

> and great guys. I have already cleaned my night stand, took a bath,

> empty the tub of mat and shampoo bottles. I can't believe it. I

> usually hate to take a bath cause its so taxing.

>

> My muscles are weak cause I havent used them for so long. I got to

> find some easy exercises to strengthen them. Yes I pray for a cure

and

> I pray the humira works for a long time

>

> gentle kind hugs

> Clora

>

[Guest guest]

Clora,

Here is an exercise for you. My cardi told me yesterday to do this

every thirty mins. or so and work up to 300 a day.

You sit in a chair at your table, hold to the table for leverage,

the stand up and sit down for twenty times. If you can't do twenty

at first do as many as you can.

The nurse said it has made a lot of difference in many patients.

Try not to over do it, but enjoy your freedom!

Shirley

>

> TAwny and group;

>

> AWE thanks tawny, you're so sweet. There are so many sweet ladies

here

> and great guys. I have already cleaned my night stand, took a

bath,

> empty the tub of mat and shampoo bottles. I can't believe it. I

> usually hate to take a bath cause its so taxing.

>

> My muscles are weak cause I havent used them for so long. I got to

> find some easy exercises to strengthen them. Yes I pray for a cure

and

> I pray the humira works for a long time

>

> gentle kind hugs

> Clora

>

[Guest guest]

Tawny and group;

The reason I mentioned the hot bath is, My family tries everything

to get me in the shower. Things like remember when you took a bath

every day. Or think how good a hot shower would feel. With the RA

pain its was just to painful and tiresome to take a shower. I would

not take a shower till someone said IT'S TIME.

I did it today without being told. lol. Yes Tawny I know what tub

your talking about. I have bathed in them before. YOu open the

little door get in and sit and fill it up with water. Yes indeed I

would love one of those right now. I take showers actually. I have a

milk crate I sit on. I put a towel on it. I can't sit in a bathtub

right now.

Not real busy Tawny. My muscles are getting worn out. My body is not

use to a lot of movement. Yes your right it's great to wish. I pray

someday you get your tub TAwny. You seem like such a sweet person.

gentle hugs

Clora

[Guest guest]

Shirly and group;

Haaaaaaaaaaaa twenty times. I will do 5 at first. I can hardly get

up now. Thanks for that tidbit shirley. I will start out with 5 and

work my way up. Wow 300 a day.

gentle hugs

clora

> Clora,

> Here is an exercise for you. My cardi told me yesterday to do this

> every thirty mins. or so and work up to 300 a day.

> You sit in a chair at your table, hold to the table for leverage,

> the stand up and sit down for twenty times. If you can't do twenty

> at first do as many as you can.

> The nurse said it has made a lot of difference in many patients.

> Try not to over do it, but enjoy your freedom!

> Shirley