Re: Is anyone on Humira WITHOUT MTX?

[Guest guest]

Congratulations, Clora! I am so happy for you! I hope that this

continues.

Sue

On Wednesday, September 10, 2008, at 01:42 AM, CLORA wrote:

> I feel so wonderful. It only hit me a few

> minutes ago I was not in pain. I was laying in bed watching tv and I

> thought OMG THE HUMIRA IS WORKING. HAAAAAAAAAAAA. WOW WEE.

[Guest guest]

Sue and Group;

Thanks Sue, its the group that did it for me.

gentle hugs

Clora

[Guest guest]

Clora,

I hope things get easier for you, since you started taking the

Humira. I know what you mean, my body doesn't catch up to my mind.

It just don't go like it use to. It doesn't hurt to wish, so would

love to have that new tub:) or a hot tub would do,lol

You have a nice evening, Tawny

>

> Tawny and group;

>

> The reason I mentioned the hot bath is, My family tries everything

> to get me in the shower. Things like remember when you took a bath

> every day. Or think how good a hot shower would feel. With the RA

> pain its was just to painful and tiresome to take a shower. I would

> not take a shower till someone said IT'S TIME.

>

> I did it today without being told. lol. Yes Tawny I know what tub

> your talking about. I have bathed in them before. YOu open the

> little door get in and sit and fill it up with water. Yes indeed I

> would love one of those right now. I take showers actually. I have

a

> milk crate I sit on. I put a towel on it. I can't sit in a bathtub

> right now.

>

> Not real busy Tawny. My muscles are getting worn out. My body is

not

> use to a lot of movement. Yes your right it's great to wish. I pray

> someday you get your tub TAwny. You seem like such a sweet person.

>

> gentle hugs

> Clora

>

[Guest guest]

Tawny and group;

Today has been a great day. I have minamal pain from other

conditions. The RA is a monster to me. Its like the monster has been

put to sleep. I don't want that monster back. I had no idea we could

put that monster to sleep till I came to this precious group.

Tawny I wish you could have that tub. They are really nice. I don't

really care for it myself. I wish I could sit in my tub and fill it

full of very warm water. Maybe someday.

I am so scared the RA will sneak back. I don't have RA pain. And I

am not all drugged up. Its a miracle. Many people in the group said

it happen to them. I knew if it could happen to them it could happen

to me. Thanks everyone.

gentle kind hugs

Clora

> Clora,

[Guest guest]

> Hi Clora,

I am so glad to hear that you are doing so well. I hope it

continues for you. It gives me hope that oneday I will be pain free

too.

Unfortunately I keep having weird reactions to some of my meds for

RA, it is effecting my liver. They put methol pred through me

intravenoulsy at hospital (similar to predisolone)last week, it

settled down the RA and FM for a few days but it it raring its ugly

head again.

I feel I am the doctors experiment at the moment. Hopefully they

will come up with something soon.

Please take care and gentle hugs back to you.

> Tawny and group;

>

> Today has been a great day. I have minamal pain from other

> conditions. The RA is a monster to me. Its like the monster has

been

> put to sleep. I don't want that monster back. I had no idea we

could

> put that monster to sleep till I came to this precious group.

>

> Tawny I wish you could have that tub. They are really nice. I

don't

> really care for it myself. I wish I could sit in my tub and fill

it

> full of very warm water. Maybe someday.

>

> I am so scared the RA will sneak back. I don't have RA pain. And I

> am not all drugged up. Its a miracle. Many people in the group

said

> it happen to them. I knew if it could happen to them it could

happen

> to me. Thanks everyone.

>

> gentle kind hugs

> Clora

> > Clora,

>

[Guest guest]

Morning Clora,

I'm so glad your feeling better, and your able to enjoy. One day,

there will be a cure, and we can all get back to our normal life,

wouldn't that be great?

I have a lot of pain, most of the time. Some days, are worse then

others. But, I am still so grateful, because I could be worse. I

have meds to control my pain, and so I can still get around.

I'm planning my daughter's b-day next month, at the amusement park.

I know it's a challange for me, but they have a lot of benches.

Oh, it would be great to have that tub, maybe one day. I always try

to stay positive, and you never know. It would feel so good to those

joints, that is for sure.

Well my friend, hope your day goes well. You take care of yourself,

and know your in my thoughts and prayers, Tawny

>

> Tawny and group;

>

> Today has been a great day. I have minamal pain from other

> conditions. The RA is a monster to me. Its like the monster has

been

> put to sleep. I don't want that monster back. I had no idea we

could

> put that monster to sleep till I came to this precious group.

>

> Tawny I wish you could have that tub. They are really nice. I don't

> really care for it myself. I wish I could sit in my tub and fill it

> full of very warm water. Maybe someday.

>

> I am so scared the RA will sneak back. I don't have RA pain. And I

> am not all drugged up. Its a miracle. Many people in the group said

> it happen to them. I knew if it could happen to them it could

happen

> to me. Thanks everyone.

>

> gentle kind hugs

> Clora

> > Clora,

>

[Guest guest]

Tawny and group;

Well its 3 pm and I did enjoy you telling me good morniing. Yes hon

a cure would be a world wide news wouldnt it. I have about 4 post

red flagged so I work my way from the bottom up. I am so sorry for

your pain Tawny. I still have pain from other conditions. But they

didnt keep me on my back like RA.

When my daughters was young I took them to the amusment park for

their birthday. They still talk about it TAwny. (Geauga lake) I

hope its a wonderful time for you and your daughters. Do you have a

wheel chair if so take it with you. I have a wheel chair, I havent

used it yet. But I will if needed.

Tawny I always believe that God will take care of me. When I cried

on the bed from the RA pain I knew God heard me and he would take

care of me. Its like when we give our babies immunization shots.

They look at us as why mommy why you let them hurt me. We had no

choice and we couldnt explain it to them cause they were to young to

understand. I think its the same with God. We are to young to

understand why he lets us hurt. but I believe there is a reason.

I love to read your post Tawny. Your so caring and understandiing.

Keep me in your prayers Tawny and keep believing. REmember the woman

with the issue of blood. Jesus said her faith healed her. Keep the

faith. I believe each one that believes will be heard. and taken

care of. My mommy is 75 and she is like a teen ager haaaaa. She is a

minister. I grew up with a minister. You know the preachers kids are

always the worse haaaaaaaaaa.

gentle hugs

Clora

[Guest guest]

(((Clora)))

Your such a special lady, and I'm so glad to know you. This group is

so amazing, how we all reach out to each other, when we are down. I

have been here quite awhile, and there have been times in the past,

I've been beside myself, but someone has always lifted my spirit.

I always do something special for her on her b-day. But, the last few

years, not a lot of walking. But, I can sit a lot at the park, and

they do have rental wheel chairs, so I might have to use one. I'm

just such a stubborn person. I feel like if I can still walk, I can

do it all. But, I need to change my attitude.

That is so cool, your Mom is a minister. My aunt is a minister, I

don't get to see her much, but she is a great person. You just keep

your faith, because God will be with you, and take care of you.

Have a good evening, Tawny

>

> Tawny and group;

>

> Well its 3 pm and I did enjoy you telling me good morniing. Yes hon

> a cure would be a world wide news wouldnt it. I have about 4 post

> red flagged so I work my way from the bottom up. I am so sorry for

> your pain Tawny. I still have pain from other conditions. But they

> didnt keep me on my back like RA.

>

> When my daughters was young I took them to the amusment park for

> their birthday. They still talk about it TAwny. (Geauga lake) I

> hope its a wonderful time for you and your daughters. Do you have

a

> wheel chair if so take it with you. I have a wheel chair, I havent

> used it yet. But I will if needed.

>

> Tawny I always believe that God will take care of me. When I cried

> on the bed from the RA pain I knew God heard me and he would take

> care of me. Its like when we give our babies immunization shots.

> They look at us as why mommy why you let them hurt me. We had no

> choice and we couldnt explain it to them cause they were to young

to

> understand. I think its the same with God. We are to young to

> understand why he lets us hurt. but I believe there is a reason.

>

> I love to read your post Tawny. Your so caring and understandiing.

> Keep me in your prayers Tawny and keep believing. REmember the

woman

> with the issue of blood. Jesus said her faith healed her. Keep the

> faith. I believe each one that believes will be heard. and taken

> care of. My mommy is 75 and she is like a teen ager haaaaa. She is

a

> minister. I grew up with a minister. You know the preachers kids

are

> always the worse haaaaaaaaaa.

>

> gentle hugs

> Clora

>

[Guest guest]

TAwny and group;

Awe thanks TAwny. Your a special lady too. I think thats what

makes this group unique. Everone is caring and undestanding. I guess

its unique. I never been in a support group. But they are caring

here. I love to get up every morniing and read my email posts..

I havent been able to walk for most of my life. I mean walking. I

did jog about 10 years ago. I was so surprised I could do it. I

started jogging around my trailer. Than to the mail box. Than down

the hill. ( remember I had to come up back lol) . Finally to the

stop sign which was a half mile, so back home totaled a mile. My

daddy passed away and i gave up on everything. Don't tell him he

would be so mad at me lol.

I know, its nice to be up liftd. I hope you have many up lifting

days. Thank you for your support. I don't mind using those little

battery cars at the walmart haaaaaaaaa. My husband didnt want me to

but i knew I had to. He just didnt want to see me in them. But I

like them haaaaaaaaaa. Better than hurting.

gentle hugs

Clora

> (((Clora)))

>

> Your such a special lady, and I'm so glad to know you. This group

is

> so amazing, how we all reach out to each other, when we are down.

I

> have been here quite awhile, and there have been times in the

past,

> I've been beside myself, but someone has always lifted my spirit.

> I always do something special for her on her b-day. But, the last

few

> years, not a lot of walking. But, I can sit a lot at the park,

and

> they do have rental wheel chairs, so I might have to use one. I'm

> just such a stubborn person. I feel like if I can still walk, I

can

> do it all. But, I need to change my attitude.

> That is so cool, your Mom is a minister. My aunt is a minister, I

> don't get to see her much, but she is a great person. You just

keep

> your faith, because God will be with you, and take care of you.

> Have a good evening, Tawny

>

>

>

>

>

> >

> > Tawny and group;

> >

> > Well its 3 pm and I did enjoy you telling me good morniing. Yes

hon

> > a cure would be a world wide news wouldnt it. I have about 4

post

> > red flagged so I work my way from the bottom up. I am so sorry

for

> > your pain Tawny. I still have pain from other conditions. But

they

> > didnt keep me on my back like RA.

> >

> > When my daughters was young I took them to the amusment park for

> > their birthday. They still talk about it TAwny. (Geauga lake)

I

> > hope its a wonderful time for you and your daughters. Do you

have

> a

> > wheel chair if so take it with you. I have a wheel chair, I

havent

> > used it yet. But I will if needed.

> >

> > Tawny I always believe that God will take care of me. When I

cried

> > on the bed from the RA pain I knew God heard me and he would

take

> > care of me. Its like when we give our babies immunization shots.

> > They look at us as why mommy why you let them hurt me. We had no

> > choice and we couldnt explain it to them cause they were to

young

> to

> > understand. I think its the same with God. We are to young to

> > understand why he lets us hurt. but I believe there is a reason.

> >

> > I love to read your post Tawny. Your so caring and

understandiing.

> > Keep me in your prayers Tawny and keep believing. REmember the

> woman

> > with the issue of blood. Jesus said her faith healed her. Keep

the

> > faith. I believe each one that believes will be heard. and taken

> > care of. My mommy is 75 and she is like a teen ager haaaaa. She

is

> a

> > minister. I grew up with a minister. You know the preachers kids

> are

> > always the worse haaaaaaaaaa.

> >

> > gentle hugs

> > Clora

> >

>

[Guest guest]

Clora,

If the Humira continues to help you, try a little walking. To keep

moving, helps us so much. I use to walk a lot, and then it all

crashed down on me. I try to walk, when I'm not in a lot of pain.

It's kind of hard for me, I have painful feet most of the time, so

you know how that is.

You are right, using the scooter's, ARE so much better then hurting.

Hey, you can go a lot faster, that's for sure. Take care, Tawny

>

> TAwny and group;

>

> Awe thanks TAwny. Your a special lady too. I think thats what

> makes this group unique. Everone is caring and undestanding. I

guess

> its unique. I never been in a support group. But they are caring

> here. I love to get up every morniing and read my email posts..

>

> I havent been able to walk for most of my life. I mean walking. I

> did jog about 10 years ago. I was so surprised I could do it. I

> started jogging around my trailer. Than to the mail box. Than down

> the hill. ( remember I had to come up back lol) . Finally to the

> stop sign which was a half mile, so back home totaled a mile. My

> daddy passed away and i gave up on everything. Don't tell him he

> would be so mad at me lol.

>

> I know, its nice to be up liftd. I hope you have many up lifting

> days. Thank you for your support. I don't mind using those little

> battery cars at the walmart haaaaaaaaa. My husband didnt want me to

> but i knew I had to. He just didnt want to see me in them. But I

> like them haaaaaaaaaa. Better than hurting.

>

> gentle hugs

> Clora

>

>

[Guest guest]

TAwny and group;

Your right TAwny. I will start a small walk today since you

mentioned it. I will take a walk outside as soon as the sun rises.

I may even go out and watch it rise. Thanks for mentioning about

the walks. I said I didnt know what to do since the Humira is

working and walking is a good start. Don't worry I wont over do it

lol..

Is that what they are called Scooters haaaaaaaa. At first I felt

guilty using them. But I didnt hurt as bad using them. Yes I tend to

get my shopping done faster, only hubby is always lagging behind

haaaaaaaaa.

Sun is coming up.

gentle hugs

Clora

> Clora,

>

> If the Humira continues to help you, try a little walking. To

keep

> moving, helps us so much. I use to walk a lot, and then it all

> crashed down on me. I try to walk, when I'm not in a lot of pain.

>

[Guest guest]

Clora,

Your hubby might be jealous, he can't keep up with you on that

scooter. I would say it's a scooter, in a weird sort of way. Thank

God they have them, it helps so much.

Please, don't over due the walking! I hope you will be able to start

a little walking, will be good for you.

You take care, and will catch you later, Tawny

>

> TAwny and group;

>

> Your right TAwny. I will start a small walk today since you

> mentioned it. I will take a walk outside as soon as the sun rises.

> I may even go out and watch it rise. Thanks for mentioning about

> the walks. I said I didnt know what to do since the Humira is

> working and walking is a good start. Don't worry I wont over do it

> lol..

>

> Is that what they are called Scooters haaaaaaaa. At first I felt

> guilty using them. But I didnt hurt as bad using them. Yes I tend

to

> get my shopping done faster, only hubby is always lagging behind

> haaaaaaaaa.

>

> Sun is coming up.

>

>

> gentle hugs

> Clora

>

>

>

[Guest guest]

TAwny and group;

Haaaaaaa dont over do the walking. I won't hurt clora. hee hee. But

thanks hon that is so sweet to tell me. I know, my husband is always

way behind me at the store. I have to turn my scooter around to

hunt him. He is still 2 isles over haaaaaa. Hopefully I will get a

little walk in tomorrow.

gentle hugs

Clora

>

> Your hubby might be jealous, he can't keep up with you on that

> scooter. I would say it's a scooter, in a weird sort of way.

Thank

> God they have them, it helps so much.

> Please, don't over due the walking! I hope you will be able to

start

> a little walking, will be good for you.

> You take care, and will catch you later, Tawny

>

>

>

>

>

[Guest guest]

Clora,

Got's to take care of you, there's only one of you. You leave him

biting the dust, when your on that scooter,lol That's good, Tawny

>

> TAwny and group;

>

> Haaaaaaa dont over do the walking. I won't hurt clora. hee hee. But

> thanks hon that is so sweet to tell me. I know, my husband is

always

> way behind me at the store. I have to turn my scooter around to

> hunt him. He is still 2 isles over haaaaaa. Hopefully I will get a

> little walk in tomorrow.

>

> gentle hugs

> Clora

>