symptom questions

[Guest guest]

Paxil poop-out? Increased stress and anxiety? Waxing phase? Or, as you

say, depression?

I've written before about how Kel seems to share a junior version of Ava's

particular symptom constellation. I have often recognized Kel in your

descriptions of Ava's behavior. When OCD is on the rise one of the first

things I notice in Kel is increased irritability and frustration. Kel

becomes very intolerant of stupidity and mistakes, and she also uses the

strong language, *hating* this or that person or event. When she was

younger she'd spend the day in tears over nothing (seemingly PMSing but

obviously too young for that!) but these days she gets *mad.*

Ava's asking inappropriate or personal questions could be a simple " just so,

just right " sort of compulsion, so if she has the thought, she *has* to ask

the question to make it right. Since you say she doesn't do this

impulsively and won't stop even when you anticipate what she's going to say

and tell her no, there may be the force of compulsion behind it. Much of

what Ava says are the sort of thoughts that would pass through most of our

minds in the situations you describe, though most wouldn't typically say

them to a stranger.

Kel often *must* know the answer to some question that has occured to her,

as though it's an emergency. Perhaps Ava has some of that going on too, she

*must* know whether losing an arm bothers the woman, whether the teacher's

cancer is gone, etc.?

Hope this helps,

Kathy R. in Indiana

----- Original Message -----

From: " Dana " <clayvon@...>

<egroups>

> One of the things I have noticed more about Ava in the past few months

> is that she is so irritable and exasperated with so many trivial

> things. This is not usually directed at any one person, just anything

> she finds annoying. When she watches TV she is so annoyed at the people

> who make mistakes or act stupid, even when it's clearly part of the plot

> or the point of the commercial. She'll scream that she HATES that

> person, whoever didn't know the answer, used the wrong product, made a

> poor choice etc.. This is an old trait that is returning. It is much

> worse when she's tired too. But it's definitely been increasing, even

> when she's happy and well rested.

> The other thing she's been doing more of, or maybe I'm just noticing it

> more as she gets older and it seems more out of place, is her tendency

> to ask even strangers very personal questions out of her own curiosity.

> Some of you remember when she asked our dinner guest , a single mother,

> where she " did it " , " like the pool or a hot tub like on TV? " . Then she

> was genuinely surprised that it was considered an inappropriate

> question. The other day at the local video store she asked a woman with

> one arm if she minded just having a stump because " it looks uneven and

> it would really bother me " . She wanted to launch into a list of reasons

> a person would prefer to have 2 whole arms but I stopped her. At work

> the other day she asked a teacher who had recently had breast cancer and

> a mastectomy " hey, do you still have cancer? " . She asked a parent

> yesterday " I know you're part Black because your skin color, but your

> eyes are slanted so I was wondering if you're Chinese too? " . These last

> 2 questions aren't inherently rude, just rude because they were asked in

> public and out of the blue and she didn't really know either person. She

> is way too big for these personal questions to be considered " cute " or

> precocious.

>

> I will discuss this with her doctor next week but I was wondering if

> anyone had any ideas about this. I suspect the irritability is part

> OCD, when things aren't " just right " and people aren't doing or saying

> what she thinks is " right " when she watches TV. Also, it could be

> Depression. She used to be much more this way, along with the

> controlling friends, and anyone else she can control, when she was

> younger and unmedicated. In fact, this was the first thing to go when

> she started taking meds. She's been on Paxil for about 2-3 years now.

> As far as the inappropriate questions, I don't know. She's not

> impulsive about it, in fact she's very determined and will find a way to

> ask even if I've anticipated her question and instructed her not to ask

> it.

[Guest guest]

HI Dana:

The way you describe Ava's inappropriate questioning makes it sound rather

compulsive. How we have worked with Steve on this is to remind him from

" Getting Control " by Dr. Lee Baer that you cannot always control your

thoughts and you cannot always control your feelings, but you can control

your behaviors. So, think what you want about people but do not express

it. We call this verbal diarrhea and no one wants to hear it. It will get

you into hot water with people, so please boss back wanting to say these

kinds of things.

His hypermorality, etc. can make this tough, but I notice he has really

made great strides lately. For the first couple of years after diagnosis I

despaired of getting much progress in this area, but it is definitely here.

Don't give up, remember it is just harder for our OCD kids to recognize

this as OCD, as something which makes them appear more than odd, and also

something that would hurt someone else.

What I have learned from Steve is the heightened irritability is a warning

sign that his depression is coming back. You may want to discuss

medication changes with Ava's doc. 2-3 years seems like ample time for

poop out to set in. Steve's Paxil poop out happened I think around 1.5

years but we did not recognize it until around 2 years. From being on this

list I am beginning to think poop out is more common than the research and

clinical literature would lead us to believe. Dr. Jenike also has

mentioned how SSRI poop out is more common for depression than for OCD.

Good luck, take care, aloha, Kathy (H)

kathyh@...

At 07:40 AM 10/24/2000 -0400, you wrote:

>One of the things I have noticed more about Ava in the past few months

>is that she is so irritable and exasperated with so many trivial

>things. This is not usually directed at any one person, just anything

>she finds annoying. When she watches TV she is so annoyed at the people

>who make mistakes or act stupid, even when it's clearly part of the plot

>or the point of the commercial. She'll scream that she HATES that

>person, whoever didn't know the answer, used the wrong product, made a

>poor choice etc.. This is an old trait that is returning. It is much

>worse when she's tired too. But it's definitely been increasing, even

>when she's happy and well rested.

>

>Sunday night a friend slept over and then they came to work with me at

>the preschool because it was a teacher workday. They seemed to be

>having a great time, playing with the art supplies and playing out in

>the woods most of the morning But when I asked Ava if she had had fun

>she said yes but, and proceeded with a litany of complaints about her

>friend wanted to play this and she wanted to play that etc.. No major

>disagreements, just that Ava couldn't direct every minute of their

>activities. I noticed at dinner she wanted to dominate the conversation

>and kept telling her friend to be quiet because SHE wanted to tell it.

>

>The other thing she's been doing more of, or maybe I'm just noticing it

>more as she gets older and it seems more out of place, is her tendency

>to ask even strangers very personal questions out of her own curiosity.

>Some of you remember when she asked our dinner guest , a single mother,

>where she " did it " , " like the pool or a hot tub like on TV? " . Then she

>was genuinely surprised that it was considered an inappropriate

>question. The other day at the local video store she asked a woman with

>one arm if she minded just having a stump because " it looks uneven and

>it would really bother me " . She wanted to launch into a list of reasons

>a person would prefer to have 2 whole arms but I stopped her. At work

>the other day she asked a teacher who had recently had breast cancer and

>a mastectomy " hey, do you still have cancer? " . She asked a parent

>yesterday " I know you're part Black because your skin color, but your

>eyes are slanted so I was wondering if you're Chinese too? " . These last

>2 questions aren't inherently rude, just rude because they were asked in

>public and out of the blue and she didn't really know either person. She

>is way too big for these personal questions to be considered " cute " or

>precocious.

>

>I will discuss this with her doctor next week but I was wondering if

>anyone had any ideas about this. I suspect the irritability is part

>OCD, when things aren't " just right " and people aren't doing or saying

>what she thinks is " right " when she watches TV. Also, it could be

>Depression. She used to be much more this way, along with the

>controlling friends, and anyone else she can control, when she was

>younger and unmedicated. In fact, this was the first thing to go when

>she started taking meds. She's been on Paxil for about 2-3 years now.

>As far as the inappropriate questions, I don't know. She's not

>impulsive about it, in fact she's very determined and will find a way to

>ask even if I've anticipated her question and instructed her not to ask

>it.

>

>Dana in NC

[Guest guest]

Hi Dana,

Been pretty self-involved these past few weeks to do much on the list, and

I'm not going to directly answer your questions, but just as an overall

observation-- your famous sense of humor seems to be missing lately, you are

having tons of overall concerns about all kinds of stuff, I would say that

your mood reflecting Ava's changes. If you are feeling this is OCD, I would

go with your instincts, and start pursuing the drug and therapy

merry-go-round again. Perhaps some of and Kathy's famous advice to

take care of yourself here too-- with what is going on with Ava, and this

renewed hostility between you and your ex, you are probably getting

burned-out too. I know losing my sense of humor my first sign of poop-out,

bet it is yours as well.

Take care of yourself,

Ellen

[Guest guest]

Hi Dana,

I don't know about Ava's questioning behavior, but I do think

irritability is often related to depression and to waxing OCD. One of

the first symptoms of andra's relapse this past summer was her

telling me that all her friends were annoying her. Of course, things

got much, much worse after that. So I guess my advice is jump on this

one and don't let is slide!

I also have irritability with depression. The Zoloft I'm taking has

cleared away the chronic depression I was feeling, but I'm still left

with PMS, and during those two to three days I tend to feel like the

whole world is getting on my nerves. (You don't know how it galls me to

admit to PMS. I refused for years to believe in it, because it totally

offends my feminist sensibilities!;o)

Keep us posted on Ava, and keep that fridge stocked with ice cream,

Lesli

[Guest guest]

Ellen,

Wow. Thanks for this perspective. I think you are right that I need to assess

where I am and how I'm feeling while I'm trying to cope with all of the recent

stuff that's been happening. It's not like " stuff " doesn't happen on a regular

basis around here! But perhaps my ability to cope is different. Right before

the latest challenge, the court thing, I had tried to get off Effexor and on to

Wellbutrin. I had an allergic reaction to the Wellbutrin and so I just stayed

on Effexor, but at a smaller dose.

Your observation that I'm losing my sense of humor was so on target! I've

noticed myself that when I'm writing and wry or funny things pop into my head I

screen them out (oh, nobody wants to hear that, just state the facts, life is

grim etc.). But it never occurred to me that this was a sign of stress overload

or returning Depression or both. The last time this happened was last spring

when Ava ran away and an old childhood friend pointed out that although big

stuff was happening that would upset anyone, I seemed " overwrought " in a way

that was unlike me. That's when I upped the Effexor from 75 mg to 150 mg.

Man 'o man. I am appreciating your friendship a whole bunch right now. I will

call my doctor today and go back up to the 150 mg! Things are going to get

worse before they get better so I need to take care of myself first. You know,

I do plenty of " pampering me " stuff, I do lots of fun things and I enjoy myself

most of the time. This doesn't really change when I am Depressed. Therefore,

it is hard for me to see when it's happening. I just get more cranky,

overwhelmed and lose my ability to appreciate the funny part of everything that

happens. So I truly appreciate your observation and without it I wouldn't know

when to get help.

So thank you for being so honest and observant and helpful. I felt inspired all

day to reclaim my sense of humor since I am feeling hopeful that with some

medical attention it will return. So I decided to make an appointment for Tim,

ya know, to return the favor of him making one for me (the mediation apt.) w/o

consulting me first: I called a hair replacement center and scheduled a free

consultation for him and left his phone number so they could " confirm " it. I've

been getting an evil chuckle out of that one all day.

And one final note. I took Ava in for a sports physical this afternoon and she

saw a new doctor (a woman, since she said she didn't want her old, male doctor

" looking at her butt " anymore) who was trying to treat her like a grownup-to-be.

She asks Ava if she has any questions before she begins the exam. Ava, in

complete earnestness, being She Who Must Know, says " yes, is it true that when

you do a physical on a boy you have to squeeze his balls? " . I thought the

doctor was gonna swallow her tongue. Gotta love those inquiring minds! I

talked to Ava's OCD doc today about this weird questioning/lack of screening but

I'll write more about her thoughts on it in another post.

Thanks again, Ellen.

Dana in NC

elan214@... wrote:

> Hi Dana,

>

> Been pretty self-involved these past few weeks to do much on the list, and

> I'm not going to directly answer your questions, but just as an overall

> observation-- your famous sense of humor seems to be missing lately, you are

> having tons of overall concerns about all kinds of stuff, I would say that

> your mood reflecting Ava's changes. If you are feeling this is OCD, I would

> go with your instincts, and start pursuing the drug and therapy

> merry-go-round again. Perhaps some of and Kathy's famous advice to

> take care of yourself here too-- with what is going on with Ava, and this

> renewed hostility between you and your ex, you are probably getting

> burned-out too. I know losing my sense of humor my first sign of poop-out,

> bet it is yours as well.

>

> Take care of yourself,

> Ellen

>

>

> You may subscribe to the OCD-L by emailing listserv@... . In the

body of your message write: subscribe OCD-L your name. You may subscribe to

the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access the

files, links, and archives for our list at

. Our list advisors are Tamar

Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are

Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman,

and Jackie Stout. Subscription issues, problems, or suggestions may be

addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

Hi Lesli,

I talked to Ava's doctor today and she said she thinks the irritability could be

related to the Paxil and the personal questions/boundary issues are probably

more related to the OCD. She said to slowly take Ava down to 10 mg Paxil again

and then I made an apt. for Nov.1 and we will try her on Luvox. She had tried

Luvox a few years ago but when she got the BSE's, which were really mouthy,

impulsive, impertinent, sneaky behaviors, I took her off of it. I didn't know

as much then and I didn't realize that such side effects are often a sign that

the medication will work and that they will go away after awhile.

The doctor also suggested that Ava might need a co-therapist, someone who will

do more than just meds. She said that Ava needs to be more aware of herself and

her OCD in order to participate in CBT. The goal would be to help her see her

inappropriate questioning, for example, as an OCD " need to know " compulsion that

harms her, not just others, in terms of how others view her. There are lots of

OCD things that Ava does that bother others but not her so she doesn't see them

as OCD.

Ellen and her post this morning helped me to realize just how much of a tailspin

I am in with the recent court summons I got. This is stressing me out in a way

disproportionate to any real danger. It's tapping into my unrealistic and

OCD-like fear of losing my daughter. I think the E & RP on this would be to

imagine the worst outcome, let the anxiety come and let it pass.(!) I'm going

to up my Effexor dose too. And I'll get by with a little help from my friends -

y'all are great!

Dana in NC

Masoud & Lesli Molaei wrote:

> Hi Dana,

>

> I don't know about Ava's questioning behavior, but I do think

> irritability is often related to depression and to waxing OCD. One of

> the first symptoms of andra's relapse this past summer was her

> telling me that all her friends were annoying her. Of course, things

> got much, much worse after that. So I guess my advice is jump on this

> one and don't let is slide!

>

> I also have irritability with depression. The Zoloft I'm taking has

> cleared away the chronic depression I was feeling, but I'm still left

> with PMS, and during those two to three days I tend to feel like the

> whole world is getting on my nerves. (You don't know how it galls me to

> admit to PMS. I refused for years to believe in it, because it totally

> offends my feminist sensibilities!;o)

>

> Keep us posted on Ava, and keep that fridge stocked with ice cream,

> Lesli

>

>

> You may subscribe to the OCD-L by emailing listserv@... . In the

body of your message write: subscribe OCD-L your name. You may subscribe to

the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access the

files, links, and archives for our list at

. Our list advisors are Tamar

Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are

Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman,

and Jackie Stout. Subscription issues, problems, or suggestions may be

addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

So after the doctor coughed her tongue back up, how did she answer Ava's

question?

There are other inquiring minds around here too, you know!

A funny end to a post where you acknowlege your sense of humor to be at a

low ebb. I'm still chuckling as I write this! You must be taking

particularly fast-acting Effexor, or just thinking of raising the dose is

having an effect :-))

Kathy R. in Indiana

----- Original Message -----

From: " Dana " <clayvon@...>

<egroups>

> And one final note. I took Ava in for a sports physical this afternoon

and she saw a new doctor (a woman, since she said she didn't want her old,

male doctor " looking at her butt " anymore) who was trying to treat her like

a grownup-to-be. She asks Ava if she has any questions before she begins

the exam. Ava, in complete earnestness, being She Who Must Know, says " yes,

is it true that when you do a physical on a boy you have to squeeze his

balls? " . I thought the doctor was gonna swallow her tongue. Gotta love

those inquiring minds! I talked to Ava's OCD doc today about this weird

questioning/lack of screening but I'll write more about her thoughts on it

in another post.

[Guest guest]

So after the doctor coughed her tongue back up, how did she answer Ava's

question?

Oh she was sooo far out of her depth with Ava. But she was also kind

of pompous so I just let her struggle and flounder a bit.

She kept trying to act like "I'm a doctor and I'm in control here".

She sputtered about "well yes, I mean no, I mean why are you asking , uh,

we call them testicles, well we don't actually squeeze them...........".

She kept looking at me for help, but since her "getting to know you"

comments to Ava had been kind of disparaging to me (let's bond around rebelling

against MOM!) I was in no hurry to bale her out. I finally just looked

at her and said quietly and sweetly "one of Ava's current fascinations

has to do with boy's genitalia". I had just told her Ava has OCD,

Tics, TTM, Anxiety NOS.

A few minutes later Ava was sniffing and the doc asked if she had a

cold. Ava said no, like "what a stupid question". Doc was getting

more flustered. Again I quietly said "Tics". Then " and there's nothing

in her eyes either (Ava was blinking away).

Then she asked me to step out so she could do her examination alone

with Ava, since she was almost a teenager. Normally I probably wouldn't

have let her but I was in a mood to continue her torture so out I went.

Ava was in there 45 minutes! I read magazines in the waiting room

while I just knew Ava was reciting the words to rap songs, detailing the

plots of action movies,explaining the minutia of what she hates about her

teachers, certain commercials etc.. Ava loves when she meets adults who

try to suck up to teenagers to prove how cool they are - they never shut

her up!

I'll probably look for another doctor while this one continues to look

for a CLUE.

Dana in NC

[Guest guest]

Dana

Once again you have me laughing. You go girl.!

[Guest guest]

Dana, if you are this funny depressed, you should consider a career in standup once the increased dose of Effexor kicks in! Besides, Ava is such a fertile source of new material for you. :-0 What a natural.

Have a great day Dana,

Kathy R. in Indiana

----- Original Message -----

From: Dana

I'll probably look for another doctor while this one continues to look for a CLUE.

[Guest guest]

Dear Dave,

Sorry to hear you are suffering so with these miserable diseases.

I am NOT a doc - can only tell you of our experiences & what worked

for us... Check with doc before trying any of what we did.

After many months on orals & relapse in 90 days, we began a holistic

approach to lyme (in more earnest than formerly). This has been

quite an eye-opening experience with regard to " medicine " and

healing...

Anyway, the loose stools, according to numerous holistic docs we've

consulted with are result of " leaky gut syndrome " - apparently, the

abxs actually eat holes in intestines & through these holes, waste

products which would otherwise be eliminated pass through holes in

intestines & sort of " free float " through body. This is a very

unhealthy condition for several reasons. Obviously toxic, but body

does not recognize these free floating toxins as " normal " & can set

up " allergic " or autoimmune problems (again, per docs).

To further compound the problem, as you are probably well aware, use

of abxs causes candida yeast to grow out of control & become

systemic... This, too, will cause loose stools.

LLMD rxd 1st lamasil, then diflucan - neither of which any of us here

would ingest (personal choice - I don't " do " drugs that can shut down

liver / kidneys). Asked holistic doc for help, showing yeast blood

test results, which were all at least FOUR TIMES normal high ranges.

Doc suggested Thorne Research castor acid bean derivative, to be

taken with high allycin content super garlic (Metagenics - there is a

Metagenics product discount site on web - don't have addy) - both to

be taken on empty stomach 1st thing in AM & last thing before bed

(again, empty stomach) - followed each time by fiber shake.

Doc stated that the castor acid bean derivative & garlic kill the

bad " yeasty beasties " in digestive tract, then fiber shake acts

like " scrub-brush " to scrub dead organisms out of digestive tract.

(He showed us pix of how candida builds up a thick, disgusting

coating in intestines - this fiber shake with these other products

gets rid of it... Oh - shake was UltraBalance (only sold to/through

health care providers) - these are all superior quality products.

doc also stated that there was research going on at that time that

was proving oral antifungals were NOT killing the " bad " yeast, only

driving it cell-wall-deficient into tissues (as I suspected). Donot

know if research has published or not yet -have lost touch with

doc... (He was not trying to " sell " me supplements - this was

confirmation in response to my suspicions regarding same.)

Three days later, stools were NORMAL & have remained so. (Please

remember, though, we are not on abxs here at all, so perhaps yeast is

not getting out of control for that reason.)

Also - check out pro-biotics at FATSTHATHEAL.COM - they sell a REAL

raspberry wafer with five pro-biotics in it. They are very tasty -

to be taken 5 min. after meals - used as dessert, actually. They

also have super omega fatty acids at what I've found to be very

competitive prices - very ethical company & super cust. service.

BTW, I have NO INTEREST whatsoever in any of these products / books /

companies or people - only sharing info.

Any good herbal site on net (try HerbalHealerAcademy.com - super

quality & prices, in my experience) should have searchable data base

of herbs / products by condition; there are many herbs that will help

with candida. It can be very stubborn, I've heard folks say - we did

not have any problem with the above protocol at all, but again, we

were not ingesting abxs at the time candida tx was done. Seems to me

oregon grape is an herb which helps with candida -there are many...

Strongly urge you to read several books: Vibrational Medicine by Dr.

Gerber ($18-avail in large bookstores - get paperback); Cure

for all diseases " Hulda ($20 - health food stores / large book

stores) & Barry Lynes, " The Cancer Cure that worked: 50 years of

suppression " (NOT just about cancer by ANY MEANS! only avail at

Amazon.com - bookstores will NOT TOUCH THIS TRUTH-FILLED BOOK - REAL

EYE-OPENER!) - $10+shpg at amazon...

These will give you some really great perspectives to aid you in your

healing process...

Hope this is helpful!

Blessings!

PS - Have info / 800 #s, etc. for products we used - they worked so

well, I've saved them, but do not want to post as I do not want to

appear to be promoting products, as this is not the case. Feel free

to write off list anytime!

> Greetings Listers:

> I've got some questions about some of my symptoms -- I'm just

trying to

> see if some of things I'm experiencing are me or if they're

common. FYI,

> I've been noticeably ill since Oct., did a month of oral doxy in

Dec. (very

> low dose), and began IV Rocephin 4 weeks ago, with a continuation

for

> probably at least 8 more weeks. I also found out last week I

tested + for

> Erlichia.

> First, and please excuse if this gets graphic -- I certainly

don't mean

> to disgust anyone, since late Jan. I've had very loose bowel

movements.

> Nothing seems to help. I've taken everything under the sun, even

some

> prescription stuff, and all I do is get constipated, but the

problem comes

> back after stopping the medicine. I had hoped the problem would

clear up

> with the IV antibitoics.

> Second, how long has the typical Herx lasted? I know, not an

easy

> question -- I'm sure we're all different.

> Last, has anyone else had a droop to the area over their

eyelids? The

> area between my eyelashes and eyelids droops down, thereby touching

by

> eyelid. Doesn't hurt, just annoying. Has anyone experienced this?

> Thanks for all your input.

>

> Regards, Dave S.

> Naples, FL

> csxtbonevalley@s...

>

>

>

>

[Guest guest]

Hi Dave,

I can't answer all your questions, I never knew when I

was herxing or when I was just really sick for a long

time when I was on the Rocephin IV, but as far as the

loose bowels: my alternative doc, the one who

actually did the PCR & found my Lyme's after 5 yrs,

has me take Poly-Dolphilus (milk-free), a high dose

pro-biotic (acidoplilus)made by Pathway which I

purchase at his office/pharmacy. Anyway, on occassion

while on Rocephin, I would get the " runs " (I'm always

the other extreme!) I called my LLMD & the doc I spoke

with said to increase the acidophilus, just one

capsule at a time, to the point where things were OK,

NOT to take Imodium or anything like that. She said

the loose bowels were from an imbalance of the good &

bad bacteria, so by taking the acidophilus, you

increase the good bacteria, which should straighten

things out. All I needed was 1 extra pill (I only

take 1 pill every morning regularly) when I had an

attack of loose bowels & then I was fine. You don't

want to take too many as it could result in the

opposite-constipation. I hope that helps! Ask away if

you have any questions!

Jeannie

--- Sheppard <csxtbonevalley@...>

wrote:

> Greetings Listers:

> I've got some questions about some of my

> symptoms --

__________________________________________________

[Guest guest]

Hi, I'll just recap for a sec so you know what I'm talking about. I'm newly

diagnosed with arthritis and was told it was probably RA even though the RA part

of the blood work was not showing it yet but everything else was sky high. First

I was put on something with aspirin, nope, I'm allergic and now I was told to

not take the ibuprofen from my GI because of another autoimmune I have so I have

been pain med less for the first time in years as I have always taken ibuprofen

and oh my gosh. I can't remember the last time I have been in this much pain. My

knees are killing me and I'm limping around, my hips are killing me. I know

those are normal pains but are these, I've got pain shooting from my knees to my

toes, I've got horrible pain in my butt area, what I used to think was sciatic

nerve but it went away with the arthritis med but is back with a vengeance. My

back in my spine from neck to butt is killing me and I can feel swelling in

parts of my back and I swear it's my actual spine, especially if I lay on the

floor to try to do PT. I actually can't at times. The spot between my shoulder

blades feels like pulled muscles but I know it's not and my shoulder joints are

hurting. My wrists and my hands are numb, it feels like I can't bend my fingers

but I can, almost like my knuckles have sand in them and it's hard to hold a

pen. I feel as if I don't have strength but my husband says I do. I also have a

lot of jaw pain. One day it might be one knee and the next day it might be the

other or it may be both or one day I might feel some what okay where only one

day a few things hurt but not everything. Also my joints have started popping

like crazy. I see and RA in the beginning of August and I have never looked

forward to a doctors appointment more. I'm using some over the counter Tylenol

but on days like today it doesn't do much so I turn to vicodin which makes me

ill. It's really scary how fast this is progressing and I'm just wondering if

all of these symptoms are normal for arthritis or if I will be starting another

road of trying to find out what is wrong with me.

Thanks,

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