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Good Morning Bob,

Your post reminded me of my job. I had a job where they wouldn't allow me to

park closer to the building, ignoring my rheumys recommendations. Every day

was a struggle just to walk into the building. I also worked on the 3rd

floor and used to do the stairs. It comes down to survival and preservation,

not being proud and a bit....stubborn....LOL. I know you don't want to give in

to having RA, trust me, I know this. But you have a wonderful opportunity

on Saturday so save your strength now and go and do it. Take the elevator,

park closer, maybe get up a half hour earlier and allow for some " working it

out " time. Don't pass up your chance this weekend, mornings can be tough,

but don't let them control you. Take charge of them!!!!

Heidi in Mass.

In a message dated 9/11/2008 7:41:05 A.M. Eastern Daylight Time,

kg2bc@... writes:

Hi all. Just need to dump a bit. I don't suspect the subject of

this post surprises anyone but felt I needed to share.

Mornings are beginning to really bother me. I guess you could say I

am at my worse. Yesterday afternoon I was actually having it pretty

good. The pain and stiffness was fairly deminished and what pain I

had I felt I could tolerate. This morning we start all over again.

I strain getting out of bed and taking a shower (At least I can take

a shower). Where I work, the employee parking lot where I park my

truck is about a quarter mile from my desk. I really dread that

walk. Mornings are the worse time for this disease and my hips and

knees are at their worse in the morning. I got myself a rolling

briefcase so I no longer need to carry it but it seemed this morning,

even just pulling it behind me was a struggle. Every step was a

conscious effort.

I've been forcing myself to use the stairs since my office is on the

third floor. All in all, 52 steps. I'm telling myself to not give

in and take the elevator but not sure how long I can keep this up.

What really burns me is that 6-8 months ago I was a very active

person, both physically and as a member of the community. I

volunteer in five separate organizations and also run a 501©3

charitable organization. Charity and volunteer work has been a big

part of my life! Don't know how long I can keep that up.

The TV show, Extreme Home Makeover is in our area and since my

company donates a lot of materials to the effort, I was invited to

participate in the final building and reveal this coming weekend.

The way I feel this morning, I'm going to have to pass. I am really

beginning to hate this disease. I haven't told them no yet, but my

shift would start 6AM Saturday. I just don't see this happening.

Tomorrow, I finally see the Rheummy for the first time. I've gone

from counting the days to counting the hours.

I really used to love mornings. Hot cup of coffee, a newspaper and a

sunrise followed by a long walk. It doesn't get much better than

that. There's a cloud over my sun right now and I am praying for

better weather ahead.

Thanks for letting me vent and thanks for listening. Hope all of you

have a pain free day.

Bob

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

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Bob,

Thank you for your kind words. You are very blessed with such a kind heart.

You are lucky to have many opportunities to give back and do what you do.

I hope that you will do this for a long time, people like you are hard to

come by! Very special indeed.

That being said, please take care of yourself and pay attention to what your

body is telling you so that you can continue to enjoy each day as pain free

as possible. Sometimes that RA God is not as humorous as we'd like him/her

to be. I love to garden. Instead of staying in there for hours, I know have

to do it in 10 to 15 minute increments and rest in between. The point is, I

am still gardening. I didn't give it up. I just changed the way I do it.

Good luck with whatever your decision for Saturday is. Let us know what

your rheumy has to say, and remember to ask lots of questions, none are silly,

I've come up with some doozies, but hey, you have to!!! This is YOUR life,

not your rheumys. And, if they want less phone calls from you, they will

answer the questions at the time of the appointment...LOL. Keep smiling, stay

a

bit mischievous, keep people wondering what you are up to....and stay as

healthy and pain free as possible.

Heidi in Mass.

In a message dated 9/11/2008 8:43:26 A.M. Eastern Daylight Time,

kg2bc@... writes:

Heidi,

I'm sitting here with tears in my eyes after reading your reply.

It's amazing how well we know each other despite that fact that we've

never met. :) I think you hit the nail with your comment about me

being stuborn. It's like I've been hanging on to doing the stairs as

a way to convince myself I don't have this disease. Denial maybe?

The issue with regard to this weekend's event is there are literally

thousands on a waiting list to participate in the build and if I

don't take my name off the volunteer list and then find I can't do it

on Saturday, I'm also taking away the opportunity for someone else

who could have been in my spot. This is a tough one.

I am truly blessed as I get many opportunities to give back to the

community and to the world in fact. When I was in Brazil in the

spring I got to visit a small remote community where I had been

working the last 2 years to raise grant money to purchase a van for a

publically supported nursing home. I got to personally deliver the

news that they would be getting their van. I also met and shook

hands with every resident of that nursing home and got to look into

each of their eyes to see the gratitude for the work we've done. It

doesn't get much better than that. This is one of several

international charitable efforts I've been fortunate to be a part

of. I'll get future opportunities. Many won't.

I think I may have made up my mind about this Saturday but I value

you're words of experience and wisdom. It's people like you that

make this forum something very special.

Thank you from the bottom of my heart.

Bob

>

> Good Morning Bob,

>

> Your post reminded me of my job. I had a job where they wouldn't

allow me to

> park closer to the building, ignoring my rheumys recommendations.

Every day

> was a struggle just to walk into the building. I also worked on

the 3rd

> floor and used to do the stairs. It comes down to survival and

preservation,

> not being proud and a bit....stubborn. not being proud and a

want to give in

> to having RA, trust me, I know this. But you have a wonderful

opportunity

> on Saturday so save your strength now and go and do it. Take the

elevator,

> park closer, maybe get up a half hour earlier and allow for

some " working it

> out " time. Don't pass up your chance this weekend, mornings can be

tough,

> but don't let them control you. Take charge of them!!!!

>

> Heidi in Mass.

>

>

> In a message dated 9/11/2008 7:41:05 A.M. Eastern Daylight Time,

> kg2bc@... writes:

>

>

>

>

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say

I

> am at my worse. Yesterday afternoon I was actually having it

pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over again.

> I strain getting out of bed and taking a shower (At least I can

take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this

morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on

the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am

really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and

a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of

you

> have a pain free day.

> Bob

>

>

>

>

>

>

>

> ************ **** ************<WBR>**Psssst.<WBR>..Have yo

fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (_http://www.stylelishttp://www.sthttp://www.stylehttp://ww_

(http://www.stylelist.com/trends?ncid=aolsty00050000000014) )

>

>

> [Non-text portions of this message have been removed]

>

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

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Share on other sites

I understand and feel your pain. I too work a highly demanding physical job. I

am a job coach for adults who have developmental disabilities and starting to

wonder if this is the right job for me. I work a really strange shift in the

evenings and a 13 hour day on saturdays. The saturdays kill me, I have to take

a bottle of advil and a pain pill that day just to make it through that day.

I stopped taking the stairs at work months ago due to the fact my knees could

not handle it anymore, you can still be physically fit and take the elevator,

just make an effort to walk a little more each day on a flat non-elevated

surface. I found that elevated surfaces make it increasingly hard for me to

walk.

If you don't go to the Extreme Home Makeover you will regret it, most people

don't get this opportunity to give back to the community and see something in

that magnatude.

Good luck on the Rheumy tommorrow my suggest is to write down all your questions

for him/her. you will eventually get your mornings back to some degree. Keep

your chin up and look upward and toward the future one hour, one day, one week

at a time.

[ ] I'm Beginning to Hate Mornings

Hi all. Just need to dump a bit. I don't suspect the subject of

this post surprises anyone but felt I needed to share.

Mornings are beginning to really bother me. I guess you could say I

am at my worse. Yesterday afternoon I was actually having it pretty

good. The pain and stiffness was fairly deminished and what pain I

had I felt I could tolerate. This morning we start all over again.

I strain getting out of bed and taking a shower (At least I can take

a shower). Where I work, the employee parking lot where I park my

truck is about a quarter mile from my desk. I really dread that

walk. Mornings are the worse time for this disease and my hips and

knees are at their worse in the morning. I got myself a rolling

briefcase so I no longer need to carry it but it seemed this morning,

even just pulling it behind me was a struggle. Every step was a

conscious effort.

I've been forcing myself to use the stairs since my office is on the

third floor. All in all, 52 steps. I'm telling myself to not give

in and take the elevator but not sure how long I can keep this up.

What really burns me is that 6-8 months ago I was a very active

person, both physically and as a member of the community. I

volunteer in five separate organizations and also run a 501©3

charitable organization. Charity and volunteer work has been a big

part of my life! Don't know how long I can keep that up.

The TV show, Extreme Home Makeover is in our area and since my

company donates a lot of materials to the effort, I was invited to

participate in the final building and reveal this coming weekend.

The way I feel this morning, I'm going to have to pass. I am really

beginning to hate this disease. I haven't told them no yet, but my

shift would start 6AM Saturday. I just don't see this happening.

Tomorrow, I finally see the Rheummy for the first time. I've gone

from counting the days to counting the hours.

I really used to love mornings. Hot cup of coffee, a newspaper and a

sunrise followed by a long walk. It doesn't get much better than

that. There's a cloud over my sun right now and I am praying for

better weather ahead.

Thanks for letting me vent and thanks for listening. Hope all of you

have a pain free day.

Bob

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Heidi,

I'm sitting here with tears in my eyes after reading your reply.

It's amazing how well we know each other despite that fact that we've

never met. :) I think you hit the nail with your comment about me

being stuborn. It's like I've been hanging on to doing the stairs as

a way to convince myself I don't have this disease. Denial maybe?

The issue with regard to this weekend's event is there are literally

thousands on a waiting list to participate in the build and if I

don't take my name off the volunteer list and then find I can't do it

on Saturday, I'm also taking away the opportunity for someone else

who could have been in my spot. This is a tough one.

I am truly blessed as I get many opportunities to give back to the

community and to the world in fact. When I was in Brazil in the

spring I got to visit a small remote community where I had been

working the last 2 years to raise grant money to purchase a van for a

publically supported nursing home. I got to personally deliver the

news that they would be getting their van. I also met and shook

hands with every resident of that nursing home and got to look into

each of their eyes to see the gratitude for the work we've done. It

doesn't get much better than that. This is one of several

international charitable efforts I've been fortunate to be a part

of. I'll get future opportunities. Many won't.

I think I may have made up my mind about this Saturday but I value

you're words of experience and wisdom. It's people like you that

make this forum something very special.

Thank you from the bottom of my heart.

Bob

>

> Good Morning Bob,

>

> Your post reminded me of my job. I had a job where they wouldn't

allow me to

> park closer to the building, ignoring my rheumys recommendations.

Every day

> was a struggle just to walk into the building. I also worked on

the 3rd

> floor and used to do the stairs. It comes down to survival and

preservation,

> not being proud and a bit....stubborn....LOL. I know you don't

want to give in

> to having RA, trust me, I know this. But you have a wonderful

opportunity

> on Saturday so save your strength now and go and do it. Take the

elevator,

> park closer, maybe get up a half hour earlier and allow for

some " working it

> out " time. Don't pass up your chance this weekend, mornings can be

tough,

> but don't let them control you. Take charge of them!!!!

>

> Heidi in Mass.

>

>

> In a message dated 9/11/2008 7:41:05 A.M. Eastern Daylight Time,

> kg2bc@... writes:

>

>

>

>

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say

I

> am at my worse. Yesterday afternoon I was actually having it

pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over again.

> I strain getting out of bed and taking a shower (At least I can

take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this

morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on

the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am

really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and

a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of

you

> have a pain free day.

> Bob

>

>

>

>

>

>

>

> **************Psssst...Have you heard the news? There's a new

fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

>

>

>

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,

Thank you so much for your comments. I too get the opportunity to

work with the devvelopmentally disabled in my home life as well as

volunteer life. My son who is now 27 is developmentally disabled and

it's allowed me to become very active with Special Olympics. I

personally have 2 gold medals and 1 silver for being a " unified "

partner with him in golf. In fact tomorrow I get the opportunity to

present a check to our county Special Olympics group from the

foundation I'm involved with. What a blessing to be in this

position. By the way, my son is doing way better than what the

doctor's predicted he do when he was first diagnosed as " retarded but

educatable " . He's proven just how educatable he can be. He's

graduated from high school and even passed his written and behind the

wheel driving test on his first attempt. Granted he was nearly 20

when he got his driver's license, but he continues to exceed

expectations on all front.

As for this weekend's event I pretty much responded to that in my

response to Heidi but thank you for your comments.

Also, thanks for the good luck with the Rheummy (female). Anxious to

see her because I'm anxious to get on with my life. I know it will

require adjustments but isn't that what life is all about? Facing

challenges and making adjustments. :)

Thanks again.

Bob

>

> I understand and feel your pain. I too work a highly demanding

physical job. I am a job coach for adults who have developmental

disabilities and starting to wonder if this is the right job for me.

I work a really strange shift in the evenings and a 13 hour day on

saturdays. The saturdays kill me, I have to take a bottle of advil

and a pain pill that day just to make it through that day.

>

> I stopped taking the stairs at work months ago due to the fact my

knees could not handle it anymore, you can still be physically fit

and take the elevator, just make an effort to walk a little more each

day on a flat non-elevated surface. I found that elevated surfaces

make it increasingly hard for me to walk.

>

> If you don't go to the Extreme Home Makeover you will regret it,

most people don't get this opportunity to give back to the community

and see something in that magnatude.

>

> Good luck on the Rheumy tommorrow my suggest is to write down all

your questions for him/her. you will eventually get your mornings

back to some degree. Keep your chin up and look upward and toward

the future one hour, one day, one week at a time.

>

>

>

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Morning Bob,

I am glad to hear your appointment at the rheumy is tomorrow. You

should be able to pick up an application for a disability placard, at

your local tag agency,(call first). Take the app with you to the

rheumy, and he should sign off on it. Just explain how hard it is

for you. It sure helps SO much, just a thought to make life easier.

I am sorry to hear the mornings are getting tougher for you. I am

not able to work now, but when I HAVE to get up early for an

appointment, it's so hard for me. The stiffness stays with me for

quite awhile. So, my morning is to get up, take my meds, and have a

hot cup of tea, and read the paper.

As for taking those stairs, you need to give in to the elevator. I

know it's not easy to give in to this disease, but we can't have you

in pain all day at work.

I know it's hard for you to slow down, but your going to have to slow

a little. Your body is not going to keep going like that.

Wow, you do have an exciting life with all the volunteering, that is

so great!

I pray your doctor will find some RA meds that will help you. So,

you will be able to keep working and volunteering. I know it's hard

to realize, life kind of stops suddenly.

You take care of yourself, and know you can post anytime, were always

here. Hope your day goes well, and I pray your pain eases up a

little, Tawny

>

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say

I

> am at my worse. Yesterday afternoon I was actually having it

pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over

again.

> I strain getting out of bed and taking a shower (At least I can

take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this

morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on

the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and

a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of

you

> have a pain free day.

> Bob

>

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I know what you mean. I have a feeling that most of us hate the

mornings - until we get going. Some mornings are worse than others.

I am 53 years old and have been deling with RA since I was 28 years

old. I no longer work but when I did I asked my doctor to get me a

handicapped sticker so that I could park near the building

(espeically since I was in Ohio and had to dela with snow and ice).

It took me many years to give in to the handicapped sticker - and I

still find myself hating that I need it some times.

Since you have not been to the Rheummy yet I assume that you are not

on medications at this point. Believe me the meds can help a lot. I

find that keeping a positive attitude helps, plus continueing to be

as active as possible. I walk every day, try to do streching excesies

(can't always manage those).

Best of luck with the Rheummy. And know that there are many people

here to help and to vent to when needed.

Skip

>

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say

I

> am at my worse. Yesterday afternoon I was actually having it

pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over

again.

> I strain getting out of bed and taking a shower (At least I can

take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this

morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on

the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and

a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of

you

> have a pain free day.

> Bob

>

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Mornings I call myself the " tin man "   and wonder where my oil can is.....

Raniolo

From: fullwave2 <kg2bc@...>

Subject: [ ] I'm Beginning to Hate Mornings

Date: Thursday, September 11, 2008, 7:23 AM

Hi all. Just need to dump a bit. I don't suspect the subject of

this post surprises anyone but felt I needed to share.

Mornings are beginning to really bother me. I guess you could say I

am at my worse. Yesterday afternoon I was actually having it pretty

good. The pain and stiffness was fairly deminished and what pain I

had I felt I could tolerate. This morning we start all over again.

I strain getting out of bed and taking a shower (At least I can take

a shower). Where I work, the employee parking lot where I park my

truck is about a quarter mile from my desk. I really dread that

walk. Mornings are the worse time for this disease and my hips and

knees are at their worse in the morning. I got myself a rolling

briefcase so I no longer need to carry it but it seemed this morning,

even just pulling it behind me was a struggle. Every step was a

conscious effort.

I've been forcing myself to use the stairs since my office is on the

third floor. All in all, 52 steps. I'm telling myself to not give

in and take the elevator but not sure how long I can keep this up.

What really burns me is that 6-8 months ago I was a very active

person, both physically and as a member of the community. I

volunteer in five separate organizations and also run a 501©3

charitable organization. Charity and volunteer work has been a big

part of my life! Don't know how long I can keep that up.

The TV show, Extreme Home Makeover is in our area and since my

company donates a lot of materials to the effort, I was invited to

participate in the final building and reveal this coming weekend.

The way I feel this morning, I'm going to have to pass. I am really

beginning to hate this disease. I haven't told them no yet, but my

shift would start 6AM Saturday. I just don't see this happening.

Tomorrow, I finally see the Rheummy for the first time. I've gone

from counting the days to counting the hours.

I really used to love mornings. Hot cup of coffee, a newspaper and a

sunrise followed by a long walk. It doesn't get much better than

that. There's a cloud over my sun right now and I am praying for

better weather ahead.

Thanks for letting me vent and thanks for listening. Hope all of you

have a pain free day.

Bob

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Hi Bob,

I think many of us can relate completely to your current anguish! I

was dx'd almost a year ago and for many months morning were an agony

for me. I'm still not on a set regime of medications but I am vastly

improved and that includes mornings. It's true that they are still a

difficult time, but much better.

The morning walk from the parking garage can still be a struggle, but

I finally gave in and got a temporary disabled placard and am able to

park closer to the building. That has been a great help, and if you're

able to do the same I would recommend it (ask your rheumy or primary

care physician for the paperwork when you see him/her).

I also had to change my sleep habits a bit. I go to bed earlier so

that I can get up a bit earlier. I need the extra time in the morning

to let the stiffness subside a bit and to take morning preparations

VERY slowly. I also was able to adjust my work hours a bit to allow

for extra time in the morning. This helps ease the degree of fatigue

that morning prep can cause.

There was a time when I felt like you, " I can't take much more of

this " . But I have seen a definite improvement with medication and am

beginning to get involved with life again after the RA-induced hiatus.

In retrospect, my re-involvement happened more quickly than I ever

thought possible - especially considering that 10 months ago I thought

I would never be able to do things again!

Good luck with your rheumy visit and take heart... things should

improve (albeit slowly for some of us). We're right there with you!

Kim

:-)

>

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say I

> am at my worse. Yesterday afternoon I was actually having it pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over again.

> I strain getting out of bed and taking a shower (At least I can take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of you

> have a pain free day.

> Bob

>

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Bob,

I'm sorry you're suffering so.

Please do tell your rheumatologist everything you told us here.

Early and aggressive treatment can lead to remission, so ask your

rheumatologist how you are going to get there.

Good luck for tomorrow.

Not an MD

On Thu, Sep 11, 2008 at 6:23 AM, fullwave2 <kg2bc@...> wrote:

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say I

> am at my worse. Yesterday afternoon I was actually having it pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over again.

> I strain getting out of bed and taking a shower (At least I can take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of you

> have a pain free day.

> Bob

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Bob,

Friday is a very big day. Don't forget to ask your questions and get

as much information as you can.

I can so relate to your agony. I hope your meds will work quickly.

Good luck, tomorrow.

Shirley

> On Thu, Sep 11, 2008 at 6:23 AM, fullwave2 <kg2bc@...> wrote:

> > Hi all. Just need to dump a bit. I don't suspect the subject of

> > this post surprises anyone but felt I needed to share.

> > Mornings are beginning to really bother me. I guess you could

say I

> > am at my worse. Yesterday afternoon I was actually having it

pretty

> > good. The pain and stiffness was fairly deminished and what pain

I

> > had I felt I could tolerate. This morning we start all over

again.

> > I strain getting out of bed and taking a shower (At least I can

take

> > a shower). Where I work, the employee parking lot where I park my

> > truck is about a quarter mile from my desk. I really dread that

> > walk. Mornings are the worse time for this disease and my hips

and

> > knees are at their worse in the morning. I got myself a rolling

> > briefcase so I no longer need to carry it but it seemed this

morning,

> > even just pulling it behind me was a struggle. Every step was a

> > conscious effort.

> >

> > I've been forcing myself to use the stairs since my office is on

the

> > third floor. All in all, 52 steps. I'm telling myself to not give

> > in and take the elevator but not sure how long I can keep this

up.

> > What really burns me is that 6-8 months ago I was a very active

> > person, both physically and as a member of the community. I

> > volunteer in five separate organizations and also run a 501©3

> > charitable organization. Charity and volunteer work has been a

big

> > part of my life! Don't know how long I can keep that up.

> > The TV show, Extreme Home Makeover is in our area and since my

> > company donates a lot of materials to the effort, I was invited

to

> > participate in the final building and reveal this coming weekend.

> > The way I feel this morning, I'm going to have to pass. I am

really

> > beginning to hate this disease. I haven't told them no yet, but

my

> > shift would start 6AM Saturday. I just don't see this happening.

> >

> > Tomorrow, I finally see the Rheummy for the first time. I've gone

> > from counting the days to counting the hours.

> > I really used to love mornings. Hot cup of coffee, a newspaper

and a

> > sunrise followed by a long walk. It doesn't get much better than

> > that. There's a cloud over my sun right now and I am praying for

> > better weather ahead.

> > Thanks for letting me vent and thanks for listening. Hope all of

you

> > have a pain free day.

> > Bob

>

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Thanks Skip. Couldn't last the day at work today so left at noon.

I'm only on Celebrex at this point which my GP presribed. It's

really not cutting it.

By the way, I'm also in Ohio (Northwest) so know what you mean about

the winters. My cold tolerance isn't what it used to be. The wind

coming off Lake Erie can really cut through you.

Thanks again.

Bob

> >

> > Hi all. Just need to dump a bit. I don't suspect the subject of

> > this post surprises anyone but felt I needed to share.

> > Mornings are beginning to really bother me. I guess you could

say

> I

> > am at my worse. Yesterday afternoon I was actually having it

> pretty

> > good. The pain and stiffness was fairly deminished and what pain

I

> > had I felt I could tolerate. This morning we start all over

> again.

> > I strain getting out of bed and taking a shower (At least I can

> take

> > a shower). Where I work, the employee parking lot where I park

my

> > truck is about a quarter mile from my desk. I really dread that

> > walk. Mornings are the worse time for this disease and my hips

and

> > knees are at their worse in the morning. I got myself a rolling

> > briefcase so I no longer need to carry it but it seemed this

> morning,

> > even just pulling it behind me was a struggle. Every step was a

> > conscious effort.

> >

> > I've been forcing myself to use the stairs since my office is on

> the

> > third floor. All in all, 52 steps. I'm telling myself to not

give

> > in and take the elevator but not sure how long I can keep this

up.

> > What really burns me is that 6-8 months ago I was a very active

> > person, both physically and as a member of the community. I

> > volunteer in five separate organizations and also run a 501©3

> > charitable organization. Charity and volunteer work has been a

big

> > part of my life! Don't know how long I can keep that up.

> > The TV show, Extreme Home Makeover is in our area and since my

> > company donates a lot of materials to the effort, I was invited

to

> > participate in the final building and reveal this coming

weekend.

> > The way I feel this morning, I'm going to have to pass. I am

really

> > beginning to hate this disease. I haven't told them no yet, but

my

> > shift would start 6AM Saturday. I just don't see this happening.

> >

> > Tomorrow, I finally see the Rheummy for the first time. I've

gone

> > from counting the days to counting the hours.

> > I really used to love mornings. Hot cup of coffee, a newspaper

and

> a

> > sunrise followed by a long walk. It doesn't get much better than

> > that. There's a cloud over my sun right now and I am praying for

> > better weather ahead.

> > Thanks for letting me vent and thanks for listening. Hope all of

> you

> > have a pain free day.

> > Bob

> >

>

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LOL! Loved the description. I can really identify with that.

>

> From: fullwave2 <kg2bc@...>

> Subject: [ ] I'm Beginning to Hate Mornings

>

> Date: Thursday, September 11, 2008, 7:23 AM

>

>

>

>

>

>

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say I

> am at my worse. Yesterday afternoon I was actually having it pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over again.

> I strain getting out of bed and taking a shower (At least I can

take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this

morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on

the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and

a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of

you

> have a pain free day.

> Bob

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Share on other sites

Kim,

You and the others give me hope. If it was going to be like this or

progressively worse I can see why they say a good size percentage of

people diagnosed with RA are not working after 5 years. Actually 5

years might work with my retirement plan. I'm 59 now. Really need

to work as long as I can. In addition to caring for my 27 year old

disabled son, my wife's wheelchair bound 90 year old mother lives

with us. My wife is Italian and it's customary to take care of your

own. I really don't mind but 5 more years of income would really

make things a bit easier later on.

Thanks again for your post. It's really helped.

Bob

>

> Hi Bob,

>

> I think many of us can relate completely to your current anguish! I

> was dx'd almost a year ago and for many months morning were an agony

> for me. I'm still not on a set regime of medications but I am vastly

> improved and that includes mornings. It's true that they are still a

> difficult time, but much better.

>

> The morning walk from the parking garage can still be a struggle,

but

> I finally gave in and got a temporary disabled placard and am able

to

> park closer to the building. That has been a great help, and if

you're

> able to do the same I would recommend it (ask your rheumy or primary

> care physician for the paperwork when you see him/her).

>

> I also had to change my sleep habits a bit. I go to bed earlier so

> that I can get up a bit earlier. I need the extra time in the

morning

> to let the stiffness subside a bit and to take morning preparations

> VERY slowly. I also was able to adjust my work hours a bit to allow

> for extra time in the morning. This helps ease the degree of fatigue

> that morning prep can cause.

>

> There was a time when I felt like you, " I can't take much more of

> this " . But I have seen a definite improvement with medication and am

> beginning to get involved with life again after the RA-induced

hiatus.

> In retrospect, my re-involvement happened more quickly than I ever

> thought possible - especially considering that 10 months ago I

thought

> I would never be able to do things again!

>

> Good luck with your rheumy visit and take heart... things should

> improve (albeit slowly for some of us). We're right there with you!

>

> Kim

> :-)

>

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" Remission " . Sounds good to me. I can only pray. Thanks .

Bob

>

> Bob,

>

> I'm sorry you're suffering so.

>

> Please do tell your rheumatologist everything you told us here.

>

> Early and aggressive treatment can lead to remission, so ask your

> rheumatologist how you are going to get there.

>

> Good luck for tomorrow.

>

>

>

> Not an MD

>

>

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Thanks Shirley. I was afraid I'd forget everything I wanted to say

and/or ask (a bit of a brain fog) so I wrote down a chronology of the

events and sysmptoms from the last couple years. I'm hoping she reads

it before she starts with the questions. I figured it may make the

whole " getting to know you " process go a bit smoother.

Thanks for your comments. :)

Bob

>

> Bob,

> Friday is a very big day. Don't forget to ask your questions and get

> as much information as you can.

> I can so relate to your agony. I hope your meds will work quickly.

> Good luck, tomorrow.

> Shirley

>

>

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Bob, you're in my thoughts and prayers.  I hope your rheum that you're seeing

soon is a gem.  If not, get a 2nd opinion asap.  Drugs are your friends and

medication induced remission is the goal!

Re: [ ] I'm Beginning to Hate Mornings

Bob,

I'm sorry you're suffering so.

Please do tell your rheumatologist everything you told us here.

Early and aggressive treatment can lead to remission, so ask your

rheumatologist how you are going to get there.

Good luck for tomorrow.

Not an MD

On Thu, Sep 11, 2008 at 6:23 AM, fullwave2 <kg2bchotmail (DOT) com> wrote:

> Hi all. Just need to dump a bit. I don't suspect the subject of

> this post surprises anyone but felt I needed to share.

> Mornings are beginning to really bother me. I guess you could say I

> am at my worse. Yesterday afternoon I was actually having it pretty

> good. The pain and stiffness was fairly deminished and what pain I

> had I felt I could tolerate. This morning we start all over again.

> I strain getting out of bed and taking a shower (At least I can take

> a shower). Where I work, the employee parking lot where I park my

> truck is about a quarter mile from my desk. I really dread that

> walk. Mornings are the worse time for this disease and my hips and

> knees are at their worse in the morning. I got myself a rolling

> briefcase so I no longer need to carry it but it seemed this morning,

> even just pulling it behind me was a struggle. Every step was a

> conscious effort.

>

> I've been forcing myself to use the stairs since my office is on the

> third floor. All in all, 52 steps. I'm telling myself to not give

> in and take the elevator but not sure how long I can keep this up.

> What really burns me is that 6-8 months ago I was a very active

> person, both physically and as a member of the community. I

> volunteer in five separate organizations and also run a 501©3

> charitable organization. Charity and volunteer work has been a big

> part of my life! Don't know how long I can keep that up.

> The TV show, Extreme Home Makeover is in our area and since my

> company donates a lot of materials to the effort, I was invited to

> participate in the final building and reveal this coming weekend.

> The way I feel this morning, I'm going to have to pass. I am really

> beginning to hate this disease. I haven't told them no yet, but my

> shift would start 6AM Saturday. I just don't see this happening.

>

> Tomorrow, I finally see the Rheummy for the first time. I've gone

> from counting the days to counting the hours.

> I really used to love mornings. Hot cup of coffee, a newspaper and a

> sunrise followed by a long walk. It doesn't get much better than

> that. There's a cloud over my sun right now and I am praying for

> better weather ahead.

> Thanks for letting me vent and thanks for listening. Hope all of you

> have a pain free day.

> Bob

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Thanks kathryn. Not too many Rheummys here in NW Ohio where I live so

I'm praying she knows her stuff. I did check into her with someone I

know. His wife has been seeing her for the last year and they seemed

pretty satisfied. I also trust the judgement of my GP. He's the best

family doc I've had the please to know and he really takes the time to

sit with you and answer all your questions. No rush. He's even given

me his email address which isn't something that normally happens.

Thanks.

Bob

>

> Bob, you're in my thoughts and prayers.  I hope your rheum that

you're seeing soon is a gem.  If not, get a 2nd opinion asap.  Drugs

are your friends and medication induced remission is the goal!

>

>

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and remember that depression goes hand in hand with flares. Once you get this

under control, hopefully you'll feel like a new man. When I flare I think I'll

be like that forever and that it marks a steady decline into decreased

functioning. Then I get 'roided up, take a bunch of Enbrel and remember what

life can really be like.

Once you find a good rheumatologist, you start to have hope that you can get

thru this. A nurse I work with said it best (her DH has RA). She pointed out

that you hope your rheumatologist can manage you for life. This isn't a

short-term relationship after all. I had an anxiety dream last week that mine

died. Here in central, IL there are only 4 of them and 1 doesn't use biologics

very much. Another I saw and we weren't a good fit. Mine is just great. She

understands the emotional side of RA and she saw me through my pregnancy and

recent delivery. She even kept my OB from killing a gnat with a shotgun when

she stopped her from giving me IV steriods during delivery as she had planned.

I got away with 10mg on both days of induction. I love that woman.

Feel better and stay hopeful. Try to get in the water if you can, that helps

with pain, sleep, and mood.

[ ] Re: I'm Beginning to Hate Mornings

Thanks kathryn. Not too many Rheummys here in NW Ohio where I live so

I'm praying she knows her stuff. I did check into her with someone I

know. His wife has been seeing her for the last year and they seemed

pretty satisfied. I also trust the judgement of my GP. He's the best

family doc I've had the please to know and he really takes the time to

sit with you and answer all your questions. No rush. He's even given

me his email address which isn't something that normally happens.

Thanks.

Bob

>

> Bob, you're in my thoughts and prayers. I hope your rheum that

you're seeing soon is a gem. If not, get a 2nd opinion asap. Drugs

are your friends and medication induced remission is the goal!

>

>

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Thank you . Your comments about depression were very timely.

Here it is 2:30 in the morning, I'm in a whole bunch of pain, can't

sleep, can't move, can't get comfortable either sitting, standing or

lying down and all I had were my thoughts and they were getting as

sick as my body. You reminded me that even with RA pain and

suffering, " this too shall pass " . Thank you very much for being

there for me when I needed it.

Bob

>

> and remember that depression goes hand in hand with flares. Once

you get this under control, hopefully you'll feel like a new man.

When I flare I think I'll be like that forever and that it marks a

steady decline into decreased functioning. Then I get 'roided up,

take a bunch of Enbrel and remember what life can really be like.

>

> Once you find a good rheumatologist, you start to have hope that

you can get thru this. A nurse I work with said it best (her DH has

RA). She pointed out that you hope your rheumatologist can manage

you for life. This isn't a short-term relationship after all. I had

an anxiety dream last week that mine died. Here in central, IL there

are only 4 of them and 1 doesn't use biologics very much. Another I

saw and we weren't a good fit. Mine is just great. She understands

the emotional side of RA and she saw me through my pregnancy and

recent delivery. She even kept my OB from killing a gnat with a

shotgun when she stopped her from giving me IV steriods during

delivery as she had planned. I got away with 10mg on both days of

induction. I love that woman.

>

> Feel better and stay hopeful. Try to get in the water if you can,

that helps with pain, sleep, and mood.

>

>

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Skip and group;

Hi skip, I lived in Ohio all my adult life. I am in SC, moved here

in 97. I miss lake erie so much. Cleveland Ohio has wonderful

summers. The winters is what brought me to SC. Plus the fact half of

my family moved here.

I just wanted to comment about ohio. I got about 40 more post to

read. I am red flagging all those that I need to comment on. I will

go back to comment when I have read them all.

I don't know what to do now that the RA pain is gone everyone. I use

to just lay in bed or sit at the computer. Getting out of bed in the

mornings was the most painfullest. I have started dong things

around the house slowly. I put clothes in the washer. I have stacked

the dishes.

I also have copd. So I notice I get out of breath since I am moving

around the house better. I notice I can think better now also.

Whereas while the RA was in full force there was not much thoughts

in my head except pain.

For those that dont know what I am talking about. I started Humira

injections thursday, and about monday all the ra pain stopped. I

have osteo and fibro to deal with now. But they RA Pain was

horrifying.

I give God all the credit. I know God sent me to this group to find

a way to feeling better. One thing I noticed about God he likes us

to use the scientific way. Other wise he sends his power of healing.

So those that believe keep the faith.

gentle hugs

Clora

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Best of Luck Bob with your appt! Please let us know how it goes.

Heidi in Mass.

In a message dated 9/12/2008 2:20:41 P.M. Eastern Daylight Time,

kg2bc@... writes:

>

> Bob and group;

>

> Mother is 90. So longevity runs in your family

> too.

>

> Gengle kind hugs

> Clora

>

>

Clora,

Oh how I wish. She's actually my Mother-in-Law so the longevity is on

my wife's side of the family. My side hasn't been so fortunate. :)

RA appt in about 2 hours.

Bob

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

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Bob and group;

Bob remember percentages is a range of more and less than 5 years

you mentioned. So you can work as long as you want. Just keep saying

I can. Those are my daddys words. You have a lot to care for. God

bless your heart. Mother is 90. So longevity runs in your family

too.

Gengle kind hugs

Clora

> Kim,

> You and the others give me hope. If it was going to be like this

or

> progressively worse I can see why they say a good size percentage

of

> people diagnosed with RA are not working after 5 years. Actually

5

> years might work with my retirement plan. I'm 59 now. Really

need

> to work as long as I can. In addition to caring for my 27 year

old

> disabled son, my wife's wheelchair bound 90 year old mother lives

> with us. My wife is Italian and it's customary to take care of

your

> own. I really don't mind but 5 more years of income would really

> make things a bit easier later on.

> Thanks again for your post. It's really helped.

> Bob

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>

> Bob and group;

>

> Mother is 90. So longevity runs in your family

> too.

>

> Gengle kind hugs

> Clora

>

>

Clora,

Oh how I wish. She's actually my Mother-in-Law so the longevity is on

my wife's side of the family. My side hasn't been so fortunate. :)

RA appt in about 2 hours.

Bob

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