Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 It really depends on the individual person. They may not be able to get in enough calories to maintain weight. If they are in a wheel chair they may be underweight so the family can take care of them. What about swallowing issues? I can't think of anything else specific to this diagnosis......hope this helps. ________________________________ From: rd-usa on behalf of Cara Sent: Wed 3/28/2012 1:19 PM To: rd-usa Subject: cerebral palsy What would the nutritional needs be for a patient with cerebral palsy? I have found information for adolescents, but not adults. I know it is slightly higher than normal, but don't have a specific formula to go by. Any help would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 It really depends on the individual person. They may not be able to get in enough calories to maintain weight. If they are in a wheel chair they may be underweight so the family can take care of them. What about swallowing issues? I can't think of anything else specific to this diagnosis......hope this helps. ________________________________ From: rd-usa on behalf of Cara Sent: Wed 3/28/2012 1:19 PM To: rd-usa Subject: cerebral palsy What would the nutritional needs be for a patient with cerebral palsy? I have found information for adolescents, but not adults. I know it is slightly higher than normal, but don't have a specific formula to go by. Any help would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 It really depends on the individual person. They may not be able to get in enough calories to maintain weight. If they are in a wheel chair they may be underweight so the family can take care of them. What about swallowing issues? I can't think of anything else specific to this diagnosis......hope this helps. ________________________________ From: rd-usa on behalf of Cara Sent: Wed 3/28/2012 1:19 PM To: rd-usa Subject: cerebral palsy What would the nutritional needs be for a patient with cerebral palsy? I have found information for adolescents, but not adults. I know it is slightly higher than normal, but don't have a specific formula to go by. Any help would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 Are they hypertonic? Do they move around alot? Or are they hypotonic and low muscle tone, non-ambulatory. You can use Mifflin-StJeor and adjust the activity factor based on the above information. If already on TF then you monitor weight/subcutaneous fat and adjust up or down on the kcals. Vitamins & minerals & protein to meet RDA although you might need extra vit D if they never go outside. I might do a little higher protein if they are non-ambulatory (nitrogen balance studies show net losses when people are on bedrest).  There is no available formula for CP because of so many variables in metabolism. Same goes for pediatric CP - some of my kids are as low as 5 kcal/cm (they are on vents) and some as high as 16-17 kcal/cm (hypertonic, constant movement in bed/wheelchair/floor/etc).  Holly ---------- Holly Lee Brewer, MS RD Pediatric Dietitian, Diabetes Educator Medical Nutrition Therapist, Las Vegas, NV Maj Holly Brewer, USAFR BSC 301st MDS, NAS JRB Fort Worth (Carswell), TX http://hollyinbalad.blogspot.com >To: rd-usa >Sent: Wednesday, March 28, 2012 10:19 AM >Subject: cerebral palsy > > > >What would the nutritional needs be for a patient with cerebral palsy? I have found information for adolescents, but not adults. I know it is slightly higher than normal, but don't have a specific formula to go by. Any help would be greatly appreciated. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 Are they hypertonic? Do they move around alot? Or are they hypotonic and low muscle tone, non-ambulatory. You can use Mifflin-StJeor and adjust the activity factor based on the above information. If already on TF then you monitor weight/subcutaneous fat and adjust up or down on the kcals. Vitamins & minerals & protein to meet RDA although you might need extra vit D if they never go outside. I might do a little higher protein if they are non-ambulatory (nitrogen balance studies show net losses when people are on bedrest).  There is no available formula for CP because of so many variables in metabolism. Same goes for pediatric CP - some of my kids are as low as 5 kcal/cm (they are on vents) and some as high as 16-17 kcal/cm (hypertonic, constant movement in bed/wheelchair/floor/etc).  Holly ---------- Holly Lee Brewer, MS RD Pediatric Dietitian, Diabetes Educator Medical Nutrition Therapist, Las Vegas, NV Maj Holly Brewer, USAFR BSC 301st MDS, NAS JRB Fort Worth (Carswell), TX http://hollyinbalad.blogspot.com >To: rd-usa >Sent: Wednesday, March 28, 2012 10:19 AM >Subject: cerebral palsy > > > >What would the nutritional needs be for a patient with cerebral palsy? I have found information for adolescents, but not adults. I know it is slightly higher than normal, but don't have a specific formula to go by. Any help would be greatly appreciated. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 Thank you, this is very helpful. They are non-ambulatory. > > Are they hypertonic? Do they move around alot? Or are they hypotonic and low muscle tone, non-ambulatory. > You can use Mifflin-StJeor and adjust the activity factor based on the above information. If already on TF then you monitor weight/subcutaneous fat and adjust up or down on the kcals. Vitamins & minerals & protein to meet RDA although you might need extra vit D if they never go outside. I might do a little higher protein if they are non-ambulatory (nitrogen balance studies show net losses when people are on bedrest). >  > There is no available formula for CP because of so many variables in metabolism. Same goes for pediatric CP - some of my kids are as low as 5 kcal/cm (they are on vents) and some as high as 16-17 kcal/cm (hypertonic, constant movement in bed/wheelchair/floor/etc). >  > Holly > > ---------- > Holly Lee Brewer, MS RD > Pediatric Dietitian, Diabetes Educator > Medical Nutrition Therapist, Las Vegas, NV > > > Maj Holly Brewer, USAFR BSC > 301st MDS, NAS JRB Fort Worth (Carswell), TX > http://hollyinbalad.blogspot.com > > > > >To: rd-usa > >Sent: Wednesday, March 28, 2012 10:19 AM > >Subject: cerebral palsy > > > > > > > >What would the nutritional needs be for a patient with cerebral palsy? I have found information for adolescents, but not adults. I know it is slightly higher than normal, but don't have a specific formula to go by. Any help would be greatly appreciated. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2012 Report Share Posted June 12, 2012 You may find some help with our book, Ped Nut in Chronic Dis and Dev Dis published by Oxford Univ Press , _www.oup.com/us_ (http://www.oup.com/us) promotion code 24095. It may be found at a med library too. or from me. Contact me directly for more information or for a CPEU self study for 35 cr if interested. Shirley Ekvall Ph.D.,RD, LD. Coauthor _shirley.ekvall@..._ (mailto:shirley.ekvall@...) or _ekvallr@..._ (mailto:ekvallr@...) Quote Link to comment Share on other sites More sharing options...
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