Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 My mom has unidentifiable arthritis. She has been seeing a reumatologist who says it is one of the most aggressive cases she has ever seen. It is completely destroying her joints. She has no joints left in her index fingers, they are entirely fused together. Doctor has ruled out RA but assumed it was autoimmune and has been using chemo-like IV drugs on her for over a year. Instead of getting better, it has gotten MUCH MUCH worse. Her doc says she only has 3 patients who are like my mom. She has recommended for my mom to get a second opinion, because she doesn't know if she is " missing " something. Now the doctor thinks it is inflammatory arthritis and is going to d/c the IVs soon, and start her on antibiotics contintuously. And maybe steroids. My mom doesn't want to take steroids, she will only take them as a last resort. IN the meantime her arthritis has gotten horrendous over the past two years. She went from having red nodules on her joints, to having no joints. Has anyone heard of a case like this, where doctors could not identify the type of arthritis, and treatment has not helped. Also, I am wondering if this is hereditary. Because I started having joint pains at 27, then I got pregnant after I turned 28 and the pains went away during the fourth month of pregnancy. Now my son is four months old, and I think I have full blown arthritis in my fingers and toes. Thanks, Quote Link to comment Share on other sites More sharing options...
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