Re: Whose on what for pain

July 6, 2008

Hi ,

I take Tramadol. It helps at times, but then again, sometimes my pain isnt

all that bad. I do have percocet (oxycodone) for bad pain. I hate it because

it makes me itchy. I also wake up with a headache. So, I just stick to

Tramadol. I manage.

Heidi in Mass.

Life is too short to wake up in the morning with regrets. So love the people

who treat you right. Forget about the ones who don't and believe that

everything happens for a reason. If you get a chance take it. If it changes your

life, let it. Nobody said that it would be easy.

In a message dated 7/6/2008 9:01:09 P.M. Eastern Daylight Time,

l8deblu@... writes:

Hi all,

I am wondering what people are taking for the pain. My Rheumy gave me

darvocet which doesn't really help. I have an appt tomorrow and am going to see

if

she'll change it to something else (I can't do vicodin because of stomach

issues) but I really would like to find something that helps with the pain.

Thanks in advance,

" We don't see things as they are, we see them as we are. " Anais Nin

Live well Laugh often Love much

" You alone are enough. You have nothing to prove to anybody. " Maya Angelou

myspace.com/myspace.

----- Original Message ----

From: " _ @groRA-SUPP_ (mailto: ) "

<_ @groRA-SUPP_ (mailto: ) >

_ @groRA-SUPP_ (mailto: )

Sent: Sunday, July 6, 2008 4:51:56 AM

Subject: [ ] Digest Number 8070

Rheumatoid Arthritis Support

Messages In This Digest (13 Messages)

1.1.

Re: Methotrexate From: patandpaula

1.2.

Re: Methotrexate From: patandpaula

1.3.

Re: Methotrexate From: Overell

1.4.

Re: Methotrexate From: Harnett

2a.

Minocycline or MTX? From: Amber Clifford

2b.

Re: Minocycline or MTX? From: Barbara

2c.

Re: Minocycline or MTX? From: Sue

3a.

Sulfasalazine From: ktandtm

3b.

Re: Sulfasalazine From: stephanie

3c.

Re: Sulfasalazine From: Dennis W

3d.

Re: Sulfasalazine From: CATHERINE RANIOLO

3e.

Re: Sulfasalazine From: Stitching Queen

4a.

Re: new to boards and desperate! From: Sue Guzman View All Topics | Create

New Topic

Messages

1.1.

Re: Methotrexate

Posted by: " patandpaula " _patandpaula@patandpaulpat_

(mailto:patandpaula@...) patandpaula

Sat Jul 5, 2008 8:50 am (PDT)

Thanks Lana, I appreciate your kind words. I am definitely planning to take

this slow, because I am already on Pred and trying to get off of it.

Everytime I reduce the Pred I become bedridden with the pain. I took the MTX

last

nite and so far this morning dont feel sick or anything, but also dont feel any

less pain. Im sure this takes a while to kick in. Thanks again, a

[ ] Re: new to boards and desperate!

Hi Guzzy,I also have Sjogrens syndrome,as well as RA & lupus.Good advice

about teeth cleaning every 3 mths.Also,brush 3 times a day and floss every

time.I never had cavities in my life,I'm 56,but at my last exam had 6 that

needed

filling.I also get cracks at the corners of my mouth,and inflamed salavary

glands,hurts like####.I sip water all day,swishing before swallowing.I wish I

could use the sugar free products,but they make me sick on my stomache.

Something else you might watch out for,thrush,I got it last year and it took

forever to get rid of.I am so sorry you have this awful syndrome,It has been a

real

pain in the you know what for me.Hope you feel better soon,Sherry

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July 6, 2008

Hi !

I haven't found a magic pill to take away all of the pain yet..I've found some

that mildly reduce it but I still have atleast a 4 to 5 level everyday. I've

taken Darvocet and am now taking Ultram ER 300mgs one pill stays in the system

for 24 hours. I'm taking it as it is beneficial for the FMS but I don't know

that its really helping the joint RA pain, etc. I've tried a form of morphine

but didn't stay on that long. The chance of it depressing my respiratory

system had me a little stressed and I have asthma. Vicodin makes me sick so I

can't do that one either:)

>

> Hi a:

>

> Welcome to this wonderful group of caring, supportive, helpful, and

very

> informative people. I have had RA for 5 1/2 years, and take MTX

every

> week. I stated with the pills, but they gave me so much nausea I

> couldn't take them. I have a bad stomach plus GERD. I then started

> with injections, which solved my nausea problem. My Rheumy taught

me how

> to give myself the injection, and have been doing it all this

time. I

> was a wreck to do this, but I knew I needed this med. for my RA. I

take

> my shot, .8 on the needle, every Sun. night, and 12 hrs. later I

take 2

> Leucovorin pills. That helps with the slight case of nausea I

have.

> I take my MTX at night, before bedtime. This works very well for

me. I

> hope this info. helps you. Sorry to hear you have 2 autoimmune

diseases

> to deal with. Wishing you pain free days, and again, welcome to our

> group.

>

> Hugs,

>

> Barbara

>

> >

> > Hi all,

> > I am new to the group. I was diagnosed with Polymyalgia

Rheumatica in

> January and have been on Prednisone since then. Now my rheumy has

said

> that I have Reumatoid Arthritis also because my hands and wrists and

> knee and ankle have been swelling and hurting so bad since I tried

to

> reduce the pred. He wants me to take MTX. Could anyone tell me what

dose

> you started with and what time of day it is best to take starting

out?

> Any help would be appreciated. Thank you,

> > a

> > -----

> >

July 6, 2008

Gave me darvocet too. And it is pretty useless. 2 Ultram work a little

better, but even they don't do much.

Chrissie

[ ] Whose on what for pain

Hi all,

I am wondering what people are taking for the pain. My Rheumy gave me

darvocet which doesn't really help. I have an appt tomorrow and am going to

see if she'll change it to something else (I can't do vicodin because of

stomach issues) but I really would like to find something that helps with

the pain.

Thanks in advance,

" We don't see things as they are, we see them as we are. " Anais Nin

Live well Laugh often Love much

" You alone are enough. You have nothing to prove to anybody. " Maya Angelou

myspace.com/l8deblu

[ ] Re: Methotrexate

-Hi a:

I've been taking methotrexate for a couple of years now. I was

diagnosed with RA 2 years ago. I started with this drug, and

although I had to stop it at one point about a year ago because my

liver became toxic, I was able to resume after 4 mos. My doctor

started me with 3, increased to 5 to 7 to 10. At 10 my blood work

started coming back with elevated ast and alt levels. SO I changed

rhemys and I am on 5 now, doing great. I take mine on Fri.

evening...never had any side effects other than liver. I hope this

helps you. My best to you!

-- In @gro ups.com, " Barbara " <bcreedon@.. .> wrote:

>

> Hi a:

>

> Welcome to this wonderful group of caring, supportive, helpful, and

very

> informative people. I have had RA for 5 1/2 years, and take MTX

every

> week. I stated with the pills, but they gave me so much nausea I

> couldn't take them. I have a bad stomach plus GERD. I then started

> with injections, which solved my nausea problem. My Rheumy taught

me how

> to give myself the injection, and have been doing it all this

time. I

> was a wreck to do this, but I knew I needed this med. for my RA. I

take

> my shot, .8 on the needle, every Sun. night, and 12 hrs. later I

take 2

> Leucovorin pills. That helps with the slight case of nausea I

have.

> I take my MTX at night, before bedtime. This works very well for

me. I

> hope this info. helps you. Sorry to hear you have 2 autoimmune

diseases

> to deal with. Wishing you pain free days, and again, welcome to our

> group.

>

> Hugs,

>

> Barbara

>

> >

> > Hi all,

> > I am new to the group. I was diagnosed with Polymyalgia

Rheumatica in

> January and have been on Prednisone since then. Now my rheumy has

said

> that I have Reumatoid Arthritis also because my hands and wrists and

> knee and ankle have been swelling and hurting so bad since I tried

to

> reduce the pred. He wants me to take MTX. Could anyone tell me what

dose

> you started with and what time of day it is best to take starting

out?

> Any help would be appreciated. Thank you,

> > a

> > -----

> >

July 6, 2008

I gone through the list and have gone up to Morphine and still have pain,

but at a lower level. My Rheumy had me take 1/2 tab of Prilosec OTC each day

for possible stomach reactions because of all the meds that will affect my

stomach. Just last week I didn't take them for 3 days and had to go back on

them because of stomach acid. With this small test, I learned that I

shouldn't go more than one day without them. It absolutely works for me!

Dennis

On Sun, Jul 6, 2008 at 7:01 PM, Sullivan <l8deblu@...> wrote:

> Hi all,

>

> I am wondering what people are taking for the pain. My Rheumy gave me

> darvocet which doesn't really help. I have an appt tomorrow and am going to

> see if she'll change it to something else (I can't do vicodin because of

> stomach issues) but I really would like to find something that helps with

> the pain.

>

> Thanks in advance,

>

> " We don't see things as they are, we see them as we are. " Anais Nin

>

> Live well Laugh often Love much

>

> " You alone are enough. You have nothing to prove to anybody. " Maya Angelou

>

July 7, 2008

, I have tried Darvocet, Tramadol, Advil, none of which helped. Was having

a really really bad day yesterday an took a Mobic (antiinflammatory) and it

really helped. Havent even researched it to see if you can take with Pred and

MTX, but I was desperate. a

[ ] Re: Methotrexate

-Hi a:

I've been taking methotrexate for a couple of years now. I was

diagnosed with RA 2 years ago. I started with this drug, and

although I had to stop it at one point about a year ago because my

liver became toxic, I was able to resume after 4 mos. My doctor

started me with 3, increased to 5 to 7 to 10. At 10 my blood work

started coming back with elevated ast and alt levels. SO I changed

rhemys and I am on 5 now, doing great. I take mine on Fri.

evening...never had any side effects other than liver. I hope this

helps you. My best to you!

-- In @gro ups.com, " Barbara " <bcreedon@.. .> wrote:

>

> Hi a:

>

> Welcome to this wonderful group of caring, supportive, helpful, and

very

> informative people. I have had RA for 5 1/2 years, and take MTX

every

> week. I stated with the pills, but they gave me so much nausea I

> couldn't take them. I have a bad stomach plus GERD. I then started

> with injections, which solved my nausea problem. My Rheumy taught

me how

> to give myself the injection, and have been doing it all this

time. I

> was a wreck to do this, but I knew I needed this med. for my RA. I

take

> my shot, .8 on the needle, every Sun. night, and 12 hrs. later I

take 2

> Leucovorin pills. That helps with the slight case of nausea I

have.

> I take my MTX at night, before bedtime. This works very well for

me. I

> hope this info. helps you. Sorry to hear you have 2 autoimmune

diseases

> to deal with. Wishing you pain free days, and again, welcome to our

> group.

>

> Hugs,

>

> Barbara

>

> >

> > Hi all,

> > I am new to the group. I was diagnosed with Polymyalgia

Rheumatica in

> January and have been on Prednisone since then. Now my rheumy has

said

> that I have Reumatoid Arthritis also because my hands and wrists and

> knee and ankle have been swelling and hurting so bad since I tried

to

> reduce the pred. He wants me to take MTX. Could anyone tell me what

dose

> you started with and what time of day it is best to take starting

out?

> Any help would be appreciated. Thank you,

> > a

> > -----

> >

July 7, 2008

Hi,

I use medical marijuana for my pain. Here in California it is legal if

you have a prescription from a doctor (many doctors will not give a

prescription but there are lists of doctor that do). Its nice because I

only need a little and it does get rid of the pain without an addiction

(like oxycontin would). You can smoke it or eat it in a cookie. There

are 13 states where this is legal. We get ours through a dispensary

where it is safe.

marla

sposy@... wrote:

>

> Hi ,

>

> I take Tramadol. It helps at times, but then again, sometimes my pain

> isnt

> all that bad. I do have percocet (oxycodone) for bad pain. I hate it

> because

> it makes me itchy. I also wake up with a headache. So, I just stick to

> Tramadol. I manage.

>

> Heidi in Mass.

>

> Life is too short to wake up in the morning with regrets. So love the

> people

> who treat you right. Forget about the ones who don't and believe that

> everything happens for a reason. If you get a chance take it. If it

> changes your

> life, let it. Nobody said that it would be easy.

>

> In a message dated 7/6/2008 9:01:09 P.M. Eastern Daylight Time,

> l8deblu@... <mailto:l8deblu%40> writes:

>

> Hi all,

>

> I am wondering what people are taking for the pain. My Rheumy gave me

> darvocet which doesn't really help. I have an appt tomorrow and am

> going to see if

> she'll change it to something else (I can't do vicodin because of stomach

> issues) but I really would like to find something that helps with the

> pain.

>

> Thanks in advance,

>

> " We don't see things as they are, we see them as we are. " Anais Nin

>

> Live well Laugh often Love much

>

> " You alone are enough. You have nothing to prove to anybody. " Maya Angelou

>

> myspace.com/myspace.

>

> [ ] Re: Methotrexate

>

> -Hi a:

>

> I've been taking methotrexate for a couple of years now. I was

> diagnosed with RA 2 years ago. I started with this drug, and

> although I had to stop it at one point about a year ago because my

> liver became toxic, I was able to resume after 4 mos. My doctor

> started me with 3, increased to 5 to 7 to 10. At 10 my blood work

> started coming back with elevated ast and alt levels. SO I changed

> rhemys and I am on 5 now, doing great. I take mine on Fri.

> evening...never had any side effects other than liver. I hope this

> helps you. My best to you!

>

> -- In @gro ups.com, " Barbara " <bcreedon@.. .> wrote:

> >

> > Hi a:

> >

> > Welcome to this wonderful group of caring, supportive, helpful, and

> very

> > informative people. I have had RA for 5 1/2 years, and take MTX

> every

> > week. I stated with the pills, but they gave me so much nausea I

> > couldn't take them. I have a bad stomach plus GERD. I then started

> > with injections, which solved my nausea problem. My Rheumy taught

> me how

> > to give myself the injection, and have been doing it all this

> time. I

> > was a wreck to do this, but I knew I needed this med. for my RA. I

> take

> > my shot, .8 on the needle, every Sun. night, and 12 hrs. later I

> take 2

> > Leucovorin pills. That helps with the slight case of nausea I

> have.

> > I take my MTX at night, before bedtime. This works very well for

> me. I

> > hope this info. helps you. Sorry to hear you have 2 autoimmune

> diseases

> > to deal with. Wishing you pain free days, and again, welcome to our

> > group.

> >

> > Hugs,

> >

> > Barbara

> >

> > >

> > > Hi all,

> > > I am new to the group. I was diagnosed with Polymyalgia

> Rheumatica in

> > January and have been on Prednisone since then. Now my rheumy has

> said

> > that I have Reumatoid Arthritis also because my hands and wrists and

> > knee and ankle have been swelling and hurting so bad since I tried

> to

> > reduce the pred. He wants me to take MTX. Could anyone tell me what

> dose

> > you started with and what time of day it is best to take starting

> out?

> > Any help would be appreciated. Thank you,

> > > a

> > > -----

> > >

July 8, 2008

hi jamie, the dr.just recently changed my PAIN meds. i was taking

lortabs+skelaxin,which is a muscle relaxer. it was not WORKING I WAS STILL IN

PAIN!!! so i asked about other meds, so now i take tramadol every 4 to 6 hrs.+

the lortabs & that seems to b HELPING ME NOW!! thank goodness, the pain was

intolerable. GOOD LUCK & IT DOES'NT HURT TO ASK. after all it's your body & no

one knows BETTER than you!! SORRY i was LATE in responding. you probably went to

the dr. already, HOPE everything is fine! god bless,melyndagamez 7/8/08

6:50p.m.central

Re: [ ] Whose on what for pain

Hi !

I haven't found a magic pill to take away all of the pain yet..I've found some

that mildly reduce it but I still have atleast a 4 to 5 level everyday. I've

taken Darvocet and am now taking Ultram ER 300mgs one pill stays in the system

for 24 hours. I'm taking it as it is beneficial for the FMS but I don't know

that its really helping the joint RA pain, etc. I've tried a form of morphine

but didn't stay on that long. The chance of it depressing my respiratory

system had me a little stressed and I have asthma. Vicodin makes me sick so I

can't do that one either:)

>

> Hi a:

>

> Welcome to this wonderful group of caring, supportive, helpful, and

very

> informative people. I have had RA for 5 1/2 years, and take MTX

every

> week. I stated with the pills, but they gave me so much nausea I

> couldn't take them. I have a bad stomach plus GERD. I then started

> with injections, which solved my nausea problem. My Rheumy taught

me how

> to give myself the injection, and have been doing it all this

time. I

> was a wreck to do this, but I knew I needed this med. for my RA. I

take

> my shot, .8 on the needle, every Sun. night, and 12 hrs. later I

take 2

> Leucovorin pills. That helps with the slight case of nausea I

have.

> I take my MTX at night, before bedtime. This works very well for

me. I

> hope this info. helps you. Sorry to hear you have 2 autoimmune

diseases

> to deal with. Wishing you pain free days, and again, welcome to our

> group.

>

> Hugs,

>

> Barbara

>

> >

> > Hi all,

> > I am new to the group. I was diagnosed with Polymyalgia

Rheumatica in

> January and have been on Prednisone since then. Now my rheumy has

said

> that I have Reumatoid Arthritis also because my hands and wrists and

> knee and ankle have been swelling and hurting so bad since I tried

to

> reduce the pred. He wants me to take MTX. Could anyone tell me what

dose

> you started with and what time of day it is best to take starting

out?

> Any help would be appreciated. Thank you,

> > a

> > -----

> >

July 8, 2008

I have been on Mobic (meloxicam) daily since diagnosed. Vicodin &

darvocet didn't seem to work for me. The percocet has worked pretty

well. I also live in California and have a recommendation for medical

marijuana, which is very effective for pain (it also helps

inflammation somewhat).

> > >

> > > Hi all,

> > > I am new to the group. I was diagnosed with Polymyalgia

> Rheumatica in

> > January and have been on Prednisone since then. Now my rheumy has

> said

> > that I have Reumatoid Arthritis also because my hands and wrists and

> > knee and ankle have been swelling and hurting so bad since I tried

> to

> > reduce the pred. He wants me to take MTX. Could anyone tell me what

> dose

> > you started with and what time of day it is best to take starting

> out?

> > Any help would be appreciated. Thank you,

> > > a

> > > -----

> > >

July 8, 2008

HI MARLA WHAT OTHER STATES ALLOW THIS? I TO USE IT SOMETIMES FOR PAIN BUT IT'S

ILLEGAL WHERE I LIVE.. MY DR. KNOW THOUGH, I TELL HER EVERYTHING. SHE SAYS IF IT

HELPS GO FOR IT!!!!

I'LL DO WHATEVER IT TAKES TOO FUNCTION SOMETIMES!!GOD BLESS,MELYNDA 7/8/08

7:33P.M.CENTRAL