Re: has anyone been misdiagnosed with fibromyalgia??

[Guest guest]

OM, did she test you for painful pressure points? Its my understanding that you

at least to have pain in some of the pressure points to have a diagnose of

fibromyalgia. When this all first started with me, I had severe pain in legs

and arms, not joints; no swelling, only excrutiating pain. Went to one doc who

said I had fibro (I really believe he was on some types of drugs himself) I

asked him why when everywhere he pressed felt good and he had no answer. Next

doc said PMR, polymyalgia rheumatica, but then later when I tried to reduce

pred, the pain in my knees wrists and fingers started with swelling and he says

I have secondary RA also. So its really confusing when you have multiple

symptoms. But I was just curious about the pressure points. a

[ ] has anyone been misdiagnosed with fibromyalgia??

I went for my first ever visit with a rheumatologist, and she (after

spending five minutes with me taking a VERY BRIEF history, and testing

range of motion of my joints) said I have fibromyalgia and not

arthritis. Her reasoning is that I do not have the joint destruction

commonly seen with arthritis. I have to say that I am 29 and the onset

of my symptoms is fairly recent.

Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

not muscle pain. Its not like I WANT to have arthritis. LOL. I would

love to hear that its not that serious, if that were true.

Fibromyalgia sounds so much more treatable than say... RA, PA, or

Lupus. No offense to people with fibromyalgia. I'm just saying that, I

have seen what RA can do to a person...

My mom has seronegative RA and has experienced severe destruction in

her joints. So, I know what happens when a diagnosis is delayed....

I am having pain:

wrists

shoulders

hips

ankles

toes

fingers

spine (neck & back)

Sometimes my joints " freeze " in place and it is really hard to move them.

Can fibromyalgia cause your joints to freeze??

She ordered labs, to be sure, but I am not convinced that I can trust

this rheumy. I have never heard of fibromyalgia causing severe pain in

joints.

I am just curious to hear if this has happened to anyone else.

[Guest guest]

Of course, you can have both, I do, but RA is more joints, Fibro is more

muscular.

Oy, what is it with these doctors? They want you to arrive in a wheelchair

before they will

diagnose you?! Duh, it takes a while for joint destruction!

First visit, I say last visit too.

>

> I went for my first ever visit with a rheumatologist, and she (after

> spending five minutes with me taking a VERY BRIEF history, and testing

> range of motion of my joints) said I have fibromyalgia and not

> arthritis. Her reasoning is that I do not have the joint destruction

> commonly seen with arthritis. I have to say that I am 29 and the onset

> of my symptoms is fairly recent.

>

> Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> love to hear that its not that serious, if that were true.

> Fibromyalgia sounds so much more treatable than say... RA, PA, or

> Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> have seen what RA can do to a person...

>

> My mom has seronegative RA and has experienced severe destruction in

> her joints. So, I know what happens when a diagnosis is delayed....

>

> I am having pain:

> wrists

> shoulders

> hips

> ankles

> toes

> fingers

> spine (neck & back)

>

> Sometimes my joints " freeze " in place and it is really hard to move them.

>

> Can fibromyalgia cause your joints to freeze??

>

> She ordered labs, to be sure, but I am not convinced that I can trust

> this rheumy. I have never heard of fibromyalgia causing severe pain in

> joints.

>

> I am just curious to hear if this has happened to anyone else.

>

[Guest guest]

sorry to hear you had such a rotten first visit with a rheumy.  I am lucky I do

have a great one,  He is an expert on fibromyalgia and has written a book called

the fibromyalgia cure.  His name is Dr. Dryland.  Maybe look up his

website and you can learn more about fibro.  I agree that you need to see

someone else.  I have both RA and fibro and sometimes everything hurts so bad ,

it hard to tell which it is.............you can have joint pain without RA and I

do hope that is the case for you,, but I would certainly get a second opinion on

this

Good luck

Pat in Southern Oregon

  Bureau Alvarez

[ ] Re: has anyone been misdiagnosed with fibromyalgia??

Of course, you can have both, I do, but RA is more joints, Fibro is more

muscular.

Oy, what is it with these doctors? They want you to arrive in a wheelchair

before they will

diagnose you?! Duh, it takes a while for joint destruction!

First visit, I say last visit too.

>

> I went for my first ever visit with a rheumatologist, and she (after

> spending five minutes with me taking a VERY BRIEF history, and testing

> range of motion of my joints) said I have fibromyalgia and not

> arthritis. Her reasoning is that I do not have the joint destruction

> commonly seen with arthritis. I have to say that I am 29 and the onset

> of my symptoms is fairly recent.

>

> Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> love to hear that its not that serious, if that were true.

> Fibromyalgia sounds so much more treatable than say... RA, PA, or

> Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> have seen what RA can do to a person...

>

> My mom has seronegative RA and has experienced severe destruction in

> her joints. So, I know what happens when a diagnosis is delayed....

>

> I am having pain:

> wrists

> shoulders

> hips

> ankles

> toes

> fingers

> spine (neck & back)

>

> Sometimes my joints " freeze " in place and it is really hard to move them.

>

> Can fibromyalgia cause your joints to freeze??

>

> She ordered labs, to be sure, but I am not convinced that I can trust

> this rheumy. I have never heard of fibromyalgia causing severe pain in

> joints.

>

> I am just curious to hear if this has happened to anyone else.

>

[Guest guest]

Nope, she did not test for pressure points. She did some kind of

physical examination, to test for range of motion in my joints.... but

IMHO it was not very thorough(sp). She asked me a bunch of questions,

and came to the conclusion that I have fibromyalgia. She used my

thyroid disorder as one basis for diagnosis. She did run tests for

Lupus, RA, and Vit D deficiency.... but, she seemed REALLY convinced

that I have fibromyalgia.

FYI the onset of my joint pain is fairly recent. So I do not have any

obvious joint damage. But I can see that some of my joints are

starting to swell. I am not entirely convinced that it is

fibromyalgia, because the pain is in my JOINTS.

She says my limited range of motion in my right hand is probably

caused osteoarthritis. At 29???

I am a bit confused and not convinced that she is right. Sometimes the

pain is so severe I cannot move. I have severe stiffness in my neck

and it " freezes " for hours at a time. The same with my hip, and

ankles. I am not sure what is wrong but I have never heard of

fibromyalgia doing this.

>

> OM, did she test you for painful pressure points? Its my

understanding that you at least to have pain in some of the pressure

points to have a diagnose of fibromyalgia. When this all first

started with me, I had severe pain in legs and arms, not joints; no

swelling, only excrutiating pain. Went to one doc who said I had

fibro (I really believe he was on some types of drugs himself) I asked

him why when everywhere he pressed felt good and he had no answer.

Next doc said PMR, polymyalgia rheumatica, but then later when I tried

to reduce pred, the pain in my knees wrists and fingers started with

swelling and he says I have secondary RA also. So its really

confusing when you have multiple symptoms. But I was just curious

about the pressure points. a

> [ ] has anyone been misdiagnosed with fibromyalgia??

>

>

> I went for my first ever visit with a rheumatologist, and she (after

> spending five minutes with me taking a VERY BRIEF history, and testing

> range of motion of my joints) said I have fibromyalgia and not

> arthritis. Her reasoning is that I do not have the joint destruction

> commonly seen with arthritis. I have to say that I am 29 and the onset

> of my symptoms is fairly recent.

>

> Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> love to hear that its not that serious, if that were true.

> Fibromyalgia sounds so much more treatable than say... RA, PA, or

> Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> have seen what RA can do to a person...

>

> My mom has seronegative RA and has experienced severe destruction in

> her joints. So, I know what happens when a diagnosis is delayed....

>

> I am having pain:

> wrists

> shoulders

> hips

> ankles

> toes

> fingers

> spine (neck & back)

>

> Sometimes my joints " freeze " in place and it is really hard to

move them.

>

> Can fibromyalgia cause your joints to freeze??

>

> She ordered labs, to be sure, but I am not convinced that I can trust

> this rheumy. I have never heard of fibromyalgia causing severe pain in

> joints.

>

> I am just curious to hear if this has happened to anyone else.

>

>

>

>

>

>

[Guest guest]

I couldn't have said it better myself:

" Oy, what is it with these doctors? They want you to arrive in a

wheelchair

before they will

diagnose you?! Duh, it takes a while for joint destruction!

First visit, I say last visit too. "

Agreed.

> >

> > I went for my first ever visit with a rheumatologist, and she (after

> > spending five minutes with me taking a VERY BRIEF history, and testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint destruction

> > commonly seen with arthritis. I have to say that I am 29 and the onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe destruction in

> > her joints. So, I know what happens when a diagnosis is delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can trust

> > this rheumy. I have never heard of fibromyalgia causing severe pain in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>

[Guest guest]

> >

> > I went for my first ever visit with a rheumatologist, and she

(after

> > spending five minutes with me taking a VERY BRIEF history, and

testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint

destruction

> > commonly seen with arthritis. I have to say that I am 29 and the

onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint

pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I

would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying

that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe

destruction in

> > her joints. So, I know what happens when a diagnosis is

delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can

trust

> > this rheumy. I have never heard of fibromyalgia causing severe

pain in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>

[Guest guest]

, you are so right. I started out trying to be docile and nice with the

doctors and the nurses. But not anymore. If they don't show a reasonable

amount of courtesy and professionalism, I let them have it. I would have never

dealt with situations like that in the past, just finally got fed up with the

lack of caring and empathy in the medical profession. I truly don't believe we

should have to suffer because of their incompetence. a

[ ] Re: has anyone been misdiagnosed with fibromyalgia??

> >

> > I went for my first ever visit with a rheumatologist, and she

(after

> > spending five minutes with me taking a VERY BRIEF history, and

testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint

destruction

> > commonly seen with arthritis. I have to say that I am 29 and the

onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint

pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I

would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying

that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe

destruction in

> > her joints. So, I know what happens when a diagnosis is

delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can

trust

> > this rheumy. I have never heard of fibromyalgia causing severe

pain in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>

[Guest guest]

FROM CLORA.   

OMG I READ THIS. I HAVE THOUGHT AND DID EVERYTING YOU GUYS SAID. I think i

should use my wheel chair when i go to my rheum. She said i cant do anything

till i get the eye reports. omg i hauled butt to get that report. I got in 2

weeks to get some pain relief. she better do something. i may even find another

rheum. I really dont know what to do. But after reading these letters I can calm

down,lol. Thank you so much for sending them. hugs

 

 

From: patandpaula <patandpaula@...>

Subject: Re: [ ] Re: has anyone been misdiagnosed with fibromyalgia??

Date: Tuesday, July 8, 2008, 8:34 AM

, you are so right. I started out trying to be docile and nice with the

doctors and the nurses. But not anymore. If they don't show a reasonable amount

of courtesy and professionalism, I let them have it. I would have never dealt

with situations like that in the past, just finally got fed up with the lack of

caring and empathy in the medical profession. I truly don't believe we should

have to suffer because of their incompetence. a

[ ] Re: has anyone been misdiagnosed with fibromyalgia? ?

> >

> > I went for my first ever visit with a rheumatologist, and she

(after

> > spending five minutes with me taking a VERY BRIEF history, and

testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint

destruction

> > commonly seen with arthritis. I have to say that I am 29 and the

onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint

pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I

would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying

that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe

destruction in

> > her joints. So, I know what happens when a diagnosis is

delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can

trust

> > this rheumy. I have never heard of fibromyalgia causing severe

pain in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>

[Guest guest]

I been in pain my entire adult life. But not all over. Always in a diff place.

Doctors found nothing for 30 years. Now i have rheum and fibro. I think i had it

all these years and finally one doctor found it. stupid doctors making money but

not doing anything. Well. there is some that care so don't give up

hugs

clora

 

From: OM Shanti <nk_laurie@...>

Subject: [ ] Re: has anyone been misdiagnosed with fibromyalgia??

Date: Monday, July 7, 2008, 11:17 PM

I couldn't have said it better myself:

" Oy, what is it with these doctors? They want you to arrive in a

wheelchair

before they will

diagnose you?! Duh, it takes a while for joint destruction!

First visit, I say last visit too. "

Agreed.

> >

> > I went for my first ever visit with a rheumatologist, and she (after

> > spending five minutes with me taking a VERY BRIEF history, and testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint destruction

> > commonly seen with arthritis. I have to say that I am 29 and the onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe destruction in

> > her joints. So, I know what happens when a diagnosis is delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can trust

> > this rheumy. I have never heard of fibromyalgia causing severe pain in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>

[Guest guest]

I agree. some doctors act like they are the only ones that know. And yes. I

think they should suffer or know real suffering. Cause than they would know how

we truly felt. Dont forget there is a caring doctor out there some where. dont

give up. I did find one after 30 years of fibro.

Clora, nickname is kloey

 

From: michellefollet <michellefollet@...>

Subject: [ ] Re: has anyone been misdiagnosed with fibromyalgia??

Date: Tuesday, July 8, 2008, 4:31 AM

> >

> > I went for my first ever visit with a rheumatologist, and she

(after

> > spending five minutes with me taking a VERY BRIEF history, and

testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint

destruction

> > commonly seen with arthritis. I have to say that I am 29 and the

onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint

pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I

would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying

that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe

destruction in

> > her joints. So, I know what happens when a diagnosis is

delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can

trust

> > this rheumy. I have never heard of fibromyalgia causing severe

pain in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>

[Guest guest]

Group it was the oposite for me. I was in pain with Fibro for 30 years before i

got a diagnos. Doctors, family and people thought i was making up the pain. I

had to do it on my own for 30 years. I had to get pain pills any way i could.

and than be careful i didnt over dose myself. My family knew i was in pain. but

since they didnt diagnoss me with anything i must be ok

Life was hard but i got through it and now the world knows. I have rheum, CHF.

DIABETES, fibromyalgia. all in one year. Give me a break doctors. you should of

found this 30 years ago. well the fibro anyway. I eventually learned the squeaky

wheel get oiled. i began to push the doctors. o a gentle push. Now they are

helping me slow but sure

clora

hugs everyone

 

From: <catdelouise@...>

Subject: [ ] Re: has anyone been misdiagnosed with fibromyalgia??

Date: Monday, July 7, 2008, 9:48 PM

Of course, you can have both, I do, but RA is more joints, Fibro is more

muscular.

Oy, what is it with these doctors? They want you to arrive in a wheelchair

before they will

diagnose you?! Duh, it takes a while for joint destruction!

First visit, I say last visit too.

>

> I went for my first ever visit with a rheumatologist, and she (after

> spending five minutes with me taking a VERY BRIEF history, and testing

> range of motion of my joints) said I have fibromyalgia and not

> arthritis. Her reasoning is that I do not have the joint destruction

> commonly seen with arthritis. I have to say that I am 29 and the onset

> of my symptoms is fairly recent.

>

> Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> love to hear that its not that serious, if that were true.

> Fibromyalgia sounds so much more treatable than say... RA, PA, or

> Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> have seen what RA can do to a person...

>

> My mom has seronegative RA and has experienced severe destruction in

> her joints. So, I know what happens when a diagnosis is delayed....

>

> I am having pain:

> wrists

> shoulders

> hips

> ankles

> toes

> fingers

> spine (neck & back)

>

> Sometimes my joints " freeze " in place and it is really hard to move them.

>

> Can fibromyalgia cause your joints to freeze??

>

> She ordered labs, to be sure, but I am not convinced that I can trust

> this rheumy. I have never heard of fibromyalgia causing severe pain in

> joints.

>

> I am just curious to hear if this has happened to anyone else.

>

[Guest guest]

Fibromyalgia is pretty distinct in being able to diagnose.  There are

qualifications that are used at the time of diagnois.  The trigger and tender

points are specific to FMS and if you had the required amount it is possible

that it is FMS.  FMS isn't just muscles that are affected, it causes nerve pain,

joints, tendons and ligaments.  However, although it may not do permanent damage

it is just as dibilitating as rheumatoid arthritis and really isn't all that

easy to treat.  There is only one drug on the market for FMS which is Lyrica and

many of us cannot take it, so we continue to suffer.  The artritis foundation

can send you a packet of information www.arthritis.org they send it to you for

free.  However, just because you have been diagnosed with FMS doesn't mean that

you might not get arthritis later.  I've had FMS since the age of 26 finally

diagnosed at 29 almost 30.  By 30, I was completely disabled and spent 2 years

bedbound.  The

rheumatologist will more than likely keep looking for other things if you begin

to show signs of arthritis.  For RA, you usually develope swelling, redness,

warmth and pain.  The morning stiffness is different than from what is

experienced with FMS.  FMS can overlap other illnesses and mimic others too. 

Many thought they had lyme but was FMS and vice versa.  Just because one gets

FMS doesn't mean they won't get something else, but it also does not mean you

will.  I have a friend that has had it since she was 20 she is now 36 like me. 

I now have connective tissue/inflammatory arthritis but she just still has

FMS.   I have much older friends that have FMS but does not have any other

illnesses either.  Usually a good rheumatologist will do a bunch of lab work

while diagnosing the FMS to rule out other things as well

From: OM Shanti <nk_laurie@...>

Subject: [ ] has anyone been misdiagnosed with fibromyalgia??

Date: Monday, July 7, 2008, 6:48 PM

I went for my first ever visit with a rheumatologist, and she (after

spending five minutes with me taking a VERY BRIEF history, and testing

range of motion of my joints) said I have fibromyalgia and not

arthritis. Her reasoning is that I do not have the joint destruction

commonly seen with arthritis. I have to say that I am 29 and the onset

of my symptoms is fairly recent.

Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

not muscle pain. Its not like I WANT to have arthritis. LOL. I would

love to hear that its not that serious, if that were true.

Fibromyalgia sounds so much more treatable than say... RA, PA, or

Lupus. No offense to people with fibromyalgia. I'm just saying that, I

have seen what RA can do to a person...

My mom has seronegative RA and has experienced severe destruction in

her joints. So, I know what happens when a diagnosis is delayed....

I am having pain:

wrists

shoulders

hips

ankles

toes

fingers

spine (neck & back)

Sometimes my joints " freeze " in place and it is really hard to move them.

Can fibromyalgia cause your joints to freeze??

She ordered labs, to be sure, but I am not convinced that I can trust

this rheumy. I have never heard of fibromyalgia causing severe pain in

joints.

I am just curious to hear if this has happened to anyone else.

[Guest guest]

Sometimes, one just having only Fibromyalgia has to use a wheelchair or a cane

to walk.  Muscles atrophy and become so weak due to not being able to do much,

plus having myofascia issues on top of the muscles makes it worse.  It can

affect the joints ligaments and nerves but does not cause damage like the RA

can.

From: <catdelouise@...>

Subject: [ ] Re: has anyone been misdiagnosed with fibromyalgia??

Date: Monday, July 7, 2008, 9:48 PM

Of course, you can have both, I do, but RA is more joints, Fibro is more

muscular.

Oy, what is it with these doctors? They want you to arrive in a wheelchair

before they will

diagnose you?! Duh, it takes a while for joint destruction!

First visit, I say last visit too.

>

> I went for my first ever visit with a rheumatologist, and she (after

> spending five minutes with me taking a VERY BRIEF history, and testing

> range of motion of my joints) said I have fibromyalgia and not

> arthritis. Her reasoning is that I do not have the joint destruction

> commonly seen with arthritis. I have to say that I am 29 and the onset

> of my symptoms is fairly recent.

>

> Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

> not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> love to hear that its not that serious, if that were true.

> Fibromyalgia sounds so much more treatable than say... RA, PA, or

> Lupus. No offense to people with fibromyalgia. I'm just saying that, I

> have seen what RA can do to a person...

>

> My mom has seronegative RA and has experienced severe destruction in

> her joints. So, I know what happens when a diagnosis is delayed....

>

> I am having pain:

> wrists

> shoulders

> hips

> ankles

> toes

> fingers

> spine (neck & back)

>

> Sometimes my joints " freeze " in place and it is really hard to move them.

>

> Can fibromyalgia cause your joints to freeze??

>

> She ordered labs, to be sure, but I am not convinced that I can trust

> this rheumy. I have never heard of fibromyalgia causing severe pain in

> joints.

>

> I am just curious to hear if this has happened to anyone else.

>

[Guest guest]

I have had fibromyalgia for 16 years or more and still don't need a

wheelchair of a cane. Still am very active and mobile so my msucles

don't get atrophy. The yoga classes I take help my muscles stay

limber. My rheum has always given me a script NSAID to help my

multiple joint pain even though I don't have RA or much OA yet.

Debbie L

>

> From: <catdelouise@...>

> Subject: [ ] Re: has anyone been misdiagnosed with

fibromyalgia??

>

> Date: Monday, July 7, 2008, 9:48 PM

>

>

>

>

>

>

> Of course, you can have both, I do, but RA is more joints, Fibro is

more muscular.

>

> Oy, what is it with these doctors? They want you to arrive in a

wheelchair before they will

> diagnose you?! Duh, it takes a while for joint destruction!

>

> First visit, I say last visit too.

>

>

>>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

HI I WOULD GET A SECOND OPINON, IF NOT HAPPY!! RA IS IN THE JOINTS..

GOD BLESS,MELYNDAGAMEZ 7/8/08 8:05P.M.CENTAL

[ ] has anyone been misdiagnosed with fibromyalgia??

I went for my first ever visit with a rheumatologist, and she (after

spending five minutes with me taking a VERY BRIEF history, and testing

range of motion of my joints) said I have fibromyalgia and not

arthritis. Her reasoning is that I do not have the joint destruction

commonly seen with arthritis. I have to say that I am 29 and the onset

of my symptoms is fairly recent.

Maybe I have fibromyalgia, maybe I don't. But I am having joint pain,

not muscle pain. Its not like I WANT to have arthritis. LOL. I would

love to hear that its not that serious, if that were true.

Fibromyalgia sounds so much more treatable than say... RA, PA, or

Lupus. No offense to people with fibromyalgia. I'm just saying that, I

have seen what RA can do to a person...

My mom has seronegative RA and has experienced severe destruction in

her joints. So, I know what happens when a diagnosis is delayed....

I am having pain:

wrists

shoulders

hips

ankles

toes

fingers

spine (neck & back)

Sometimes my joints " freeze " in place and it is really hard to move them.

Can fibromyalgia cause your joints to freeze??

She ordered labs, to be sure, but I am not convinced that I can trust

this rheumy. I have never heard of fibromyalgia causing severe pain in

joints.

I am just curious to hear if this has happened to anyone else.

------------------------------------

[Guest guest]

WAY TO GO PAULA,WAY TO GO. YOU SAID IT JUST RIGHT!!

[ ] Re: has anyone been misdiagnosed with fibromyalgia??

 

  > >

  > > I went for my first ever visit with a rheumatologist, and she

  (after

  > > spending five minutes with me taking a VERY BRIEF history, and

  testing

  > > range of motion of my joints) said I have fibromyalgia and not

  > > arthritis. Her reasoning is that I do not have the joint

  destruction

  > > commonly seen with arthritis. I have to say that I am 29 and the

  onset

  > > of my symptoms is fairly recent.

  > >

  > > Maybe I have fibromyalgia, maybe I don't. But I am having joint

  pain,

  > > not muscle pain. Its not like I WANT to have arthritis. LOL. I

  would

  > > love to hear that its not that serious, if that were true.

  > > Fibromyalgia sounds so much more treatable than say... RA, PA, or

  > > Lupus. No offense to people with fibromyalgia. I'm just saying

  that, I

  > > have seen what RA can do to a person...

  > >

  > > My mom has seronegative RA and has experienced severe

  destruction in

  > > her joints. So, I know what happens when a diagnosis is

  delayed....

  > >

  > > I am having pain:

  > > wrists

  > > shoulders

  > > hips

  > > ankles

  > > toes

  > > fingers

  > > spine (neck & back)

  > >

  > > Sometimes my joints " freeze " in place and it is really hard to

  move them.

  > >

  > > Can fibromyalgia cause your joints to freeze??

  > >

  > > She ordered labs, to be sure, but I am not convinced that I can

  trust

  > > this rheumy. I have never heard of fibromyalgia causing severe

  pain in

  > > joints.

  > >

  > > I am just curious to hear if this has happened to anyone else.

  > >

  >

 

[Guest guest]

Hi, I have RA, Lupus SLE, & Fibro. Sometimes, I don't know which one

is hurting or if it is all of them. I know my Rhem. factor was 342,

now they have it down to about 92. The doc said I don't have damage,

but my wrists,knees,hands,fingers,hips and lower back is in alot of

pain. They are always telling me I don't have inflamation, until I

went in the office one day and my right hand was so swelled I

couldn't make a fist. She told me she was giving me a kenalog shot

and if this didn't work, then she would have to put me on another

med. My next visit, she went back to India. Now I have to find

another doc and start over. I am trying to get disability, have been

fighting it for 3 years. Am due to go before a judge sometime this

year, and my doc goes back to India without any notice. Thank God I

have a wonderful family physican. Good Luck, my thoughts are with

you. Try a new doc.

Coetta

>

> I went for my first ever visit with a rheumatologist, and she (after

> spending five minutes with me taking a VERY BRIEF history, and

testing

> range of motion of my joints) said I have fibromyalgia and not

> arthritis. Her reasoning is that I do not have the joint destruction

> commonly seen with arthritis. I have to say that I am 29 and the

onset

> of my symptoms is fairly recent.

>

> Maybe I have fibromyalgia, maybe I don't. But I am having joint

pain,

> not muscle pain. Its not like I WANT to have arthritis. LOL. I would

> love to hear that its not that serious, if that were true.

> Fibromyalgia sounds so much more treatable than say... RA, PA, or

> Lupus. No offense to people with fibromyalgia. I'm just saying

that, I

> have seen what RA can do to a person...

>

> My mom has seronegative RA and has experienced severe destruction in

> her joints. So, I know what happens when a diagnosis is delayed....

>

> I am having pain:

> wrists

> shoulders

> hips

> ankles

> toes

> fingers

> spine (neck & back)

>

> Sometimes my joints " freeze " in place and it is really hard to move

them.

>

> Can fibromyalgia cause your joints to freeze??

>

> She ordered labs, to be sure, but I am not convinced that I can

trust

> this rheumy. I have never heard of fibromyalgia causing severe pain

in

> joints.

>

> I am just curious to hear if this has happened to anyone else.

>

[Guest guest]

Coetta and Group

Coetta for the past year I was hoping my rheumy would go back to

India. Yes she is from India, But since I been talking to our

support group here, I have learn why she has done or not done the

things I thought she should have.

I have CHF, PAH, COPD, high blood pressure and diabetes. These are

the most serious illnesses I have. I have all the othr stuff that

goes with it. So I am relizing she has to conceder them too. I still

believe one has to limp a little to get help. I am just sorry I

waited till I had to walk like I was in pain, cause I really was

lol. The illness I put in abbreviations are very serious illnes.

Meaning I am taking other types of medications too.

I am sorry your Rheumy took off like that.. One would think she/he

would set up for her patients to go some where else with the

records. On the news there was a dentist that did that, and one guy

sued, by golly he got his records and what else was needed.

haaaaaaaaaa.

Guys I hope I get the names right. We have a very large group and I

try very hard to keep everyones name right. If I dont please forgive

me.

gentle hugs

Clora

>

>

> Hi, I have RA, Lupus SLE, & Fibro. Sometimes, I don't know which

one

> is hurting or if it is all of them. I know my Rhem. factor was

342,

> now they have it down to about 92. The doc said I don't have

damage,

> but my wrists,knees,hands,fingers,hips and lower back is in alot

of

> pain. They are always telling me I don't have inflamation, until I

> went in the office one day and my right hand was so swelled I

> couldn't make a fist. She told me she was giving me a kenalog shot

> and if this didn't work, then she would have to put me on another

> med. My next visit, she went back to India. Now I have to find

> another doc and start over. I am trying to get disability, have

been

> fighting it for 3 years. Am due to go before a judge sometime this

> year, and my doc goes back to India without any notice. Thank God

I

> have a wonderful family physican. Good Luck, my thoughts are with

> you. Try a new doc.

> Coetta

>

>

>

>

>

>

>

> >

> > I went for my first ever visit with a rheumatologist, and she

(after

> > spending five minutes with me taking a VERY BRIEF history, and

> testing

> > range of motion of my joints) said I have fibromyalgia and not

> > arthritis. Her reasoning is that I do not have the joint

destruction

> > commonly seen with arthritis. I have to say that I am 29 and the

> onset

> > of my symptoms is fairly recent.

> >

> > Maybe I have fibromyalgia, maybe I don't. But I am having joint

> pain,

> > not muscle pain. Its not like I WANT to have arthritis. LOL. I

would

> > love to hear that its not that serious, if that were true.

> > Fibromyalgia sounds so much more treatable than say... RA, PA, or

> > Lupus. No offense to people with fibromyalgia. I'm just saying

> that, I

> > have seen what RA can do to a person...

> >

> > My mom has seronegative RA and has experienced severe

destruction in

> > her joints. So, I know what happens when a diagnosis is

delayed....

> >

> > I am having pain:

> > wrists

> > shoulders

> > hips

> > ankles

> > toes

> > fingers

> > spine (neck & back)

> >

> > Sometimes my joints " freeze " in place and it is really hard to

move

> them.

> >

> > Can fibromyalgia cause your joints to freeze??

> >

> > She ordered labs, to be sure, but I am not convinced that I can

> trust

> > this rheumy. I have never heard of fibromyalgia causing severe

pain

> in

> > joints.

> >

> > I am just curious to hear if this has happened to anyone else.

> >

>