Re: Does anyone have experience with Arava? Neurontin too.

[Guest guest]

I take Neurontin for neuropathy and it never made me feel crappy...maybe a

little drowsy at first, but that went away quickly.

I only take 900 mg a day and I know many take much higher doses so perhaps

at a higher dose, you could experience problems.

_____

From: [mailto: ] On

Behalf Of Melynda Gamez

Sent: Wednesday, July 02, 2008 12:34 AM

Subject: Re: [ ] Re: Does anyone have experience with Arava?

Nuerontin too.

hi mimi, what do u mean about the neurontin making u feel crappy? define it

please? god bless,melyndagamez 7/1/08 11:32p.m.central

[ ] Re: Does anyone have experience with Arava? Nuerontin

too.

Doreen, I've had some success with Arava taking it the past few years.

Side effects may be edema. I control that with diuretics.

Wondering about side effects any of you have had with Nerontin though.

It makes me feel crappy!

>

> I went to my rheumatologist yesterday and he recommended Arava. I just

> wondered if anyone had any experience with it. He is also recommending

> that I participate in a clinical study for RA. He said it would

> involve free testing and medications for up to a year with the

> possibility of either discounted or free meds from the manufacturer

> afterwards since we don't have any insurance. So, I guess this is a

> two-part question. Arava and participation in a clinical study.

>

> Doreen

>

------------------------------------

[Guest guest]

I also take Neurontin but only 600mg daily so it doesn't make me feel

crappy either. Does make me a bit dopey so can't drive after I take

my first dose. It also makes me a bit drowsy, too. Don't have

neuropathy that I know of or Restless Leg Syndrome.

Debbie L

>

> I take Neurontin for neuropathy and it never made me feel

crappy...maybe a

> little drowsy at first, but that went away quickly.

>

>

>

> I only take 900 mg a day and I know many take much higher doses so

perhaps

> at a higher dose, you could experience problems.

>

>

>

> _____

>

> From: [mailto:RA-

SUPPORT ] On

> Behalf Of Melynda Gamez

> Sent: Wednesday, July 02, 2008 12:34 AM

>

> Subject: Re: [ ] Re: Does anyone have experience with

Arava?

> Nuerontin too.

>

>

>

> hi mimi, what do u mean about the neurontin making u feel crappy?

define it

> please? god bless,melyndagamez 7/1/08 11:32p.m.central

>

>> ------------------------------------

>

>

[Guest guest]

Been offline for awhile so apologize for late response. Now that i;ve

been on the Neurontin for a couple of weeks the nausea went away but

still feeling pretty drowsy on 900 mg. daily and getting tremors, feel

shaky on it. The next step will be Lyrica. I'm still in pain and still

having neuropathy.

Suz (susan)

> >

> > I went to my rheumatologist yesterday and he recommended Arava. I

just

> > wondered if anyone had any experience with it. He is also

recommending

> > that I participate in a clinical study for RA. He said it would

> > involve free testing and medications for up to a year with the

> > possibility of either discounted or free meds from the manufacturer

> > afterwards since we don't have any insurance. So, I guess this is a

> > two-part question. Arava and participation in a clinical study.

> >

> > Doreen

> >

>

> ------------------------------------

>

>

[Guest guest]

I've been on Leflunomide (Arava) one tab daily since 12/13/06, Humira once evey

two weeks since 08/04/04 and started Lyrica 75mg twice daily for

Neuropathy since 06/26/08 along with other meds for RA, Osteoporosis

and Hypertension. So far no side effects that I know of from any of them and

doing fairly well holding back the progression and discomfort. I've never taking

Neurontin. Best of luck finding what works best for you, it's a real trial and

error type of deal or has been my experience since 2003.

 

Judy/Oklahoma

[Guest guest]

I've been on the 900 mg of Neurontin for over 2 years - the pain and the

neuropathy have never gone away.

The best I can say is that I regained some strength in my leg and can walk

without assistance. I don't believe it ever actually goes away.

_____

From: [mailto: ] On

Behalf Of susanraeburdick

Sent: Monday, July 07, 2008 12:28 PM

Subject: [ ] Re: Does anyone have experience with Arava? Neurontin

too.

Been offline for awhile so apologize for late response. Now that i;ve

been on the Neurontin for a couple of weeks the nausea went away but

still feeling pretty drowsy on 900 mg. daily and getting tremors, feel

shaky on it. The next step will be Lyrica. I'm still in pain and still

having neuropathy.

Suz (susan)

> >

> > I went to my rheumatologist yesterday and he recommended Arava. I

just

> > wondered if anyone had any experience with it. He is also

recommending

> > that I participate in a clinical study for RA. He said it would

> > involve free testing and medications for up to a year with the

> > possibility of either discounted or free meds from the manufacturer

> > afterwards since we don't have any insurance. So, I guess this is a

> > two-part question. Arava and participation in a clinical study.

> >

> > Doreen

> >

>

> ------------------------------------

>

>

[Guest guest]

Judy, thanks for your post I'm hoping Lyrica will be more effective

than Neuronton (Galabentin). I also have pulmonary hyptertension. Has

your doc related it to your RA or the meds?

(suz)

>

> I've been on Leflunomide (Arava) one tab daily since 12/13/06,

Humira once evey two weeks since 08/04/04 and started Lyrica 75mg

twice daily for Neuropathy since 06/26/08 along with other meds for

RA, Osteoporosis and Hypertension. So far no side effects that I know

of from any of them and doing fairly well holding back the progression

and discomfort. I've never taking Neurontin. Best of luck finding what

works best for you, it's a real trial and error type of deal or has

been my experience since 2003.

>

> Judy/Oklahoma

>

>

>

>

>

>

>

[Guest guest]

Support group

I am new here. so please forgive me if i am not following the rules of

engagments lol. Seriously though, I just relizing we are a group. You all are

great.

clora

 

From: Dorothy <dorv@...>

Subject: RE: [ ] Re: Does anyone have experience with Arava? Neurontin

too.

Date: Monday, July 7, 2008, 8:35 PM

I've been on the 900 mg of Neurontin for over 2 years - the pain and the

neuropathy have never gone away.

The best I can say is that I regained some strength in my leg and can walk

without assistance. I don't believe it ever actually goes away.

_____

From: @gro ups.com [mailto: @gro ups.com] On

Behalf Of susanraeburdick

Sent: Monday, July 07, 2008 12:28 PM

@gro ups.com

Subject: [ ] Re: Does anyone have experience with Arava? Neurontin

too.

Been offline for awhile so apologize for late response. Now that i;ve

been on the Neurontin for a couple of weeks the nausea went away but

still feeling pretty drowsy on 900 mg. daily and getting tremors, feel

shaky on it. The next step will be Lyrica. I'm still in pain and still

having neuropathy.

Suz (susan)

> >

> > I went to my rheumatologist yesterday and he recommended Arava. I

just

> > wondered if anyone had any experience with it. He is also

recommending

> > that I participate in a clinical study for RA. He said it would

> > involve free testing and medications for up to a year with the

> > possibility of either discounted or free meds from the manufacturer

> > afterwards since we don't have any insurance. So, I guess this is a

> > two-part question. Arava and participation in a clinical study.

> >

> > Doreen

> >

>

> ------------ --------- --------- ------

>

>

[Guest guest]

Dorothy

what do you attribute to regaining your strength? The meds? Did you

exercise?

Suz (susan)

> > >

> > > I went to my rheumatologist yesterday and he recommended Arava. I

> just

> > > wondered if anyone had any experience with it. He is also

> recommending

> > > that I participate in a clinical study for RA. He said it would

> > > involve free testing and medications for up to a year with the

> > > possibility of either discounted or free meds from the manufacturer

> > > afterwards since we don't have any insurance. So, I guess this is a

> > > two-part question. Arava and participation in a clinical study.

> > >

> > > Doreen

> > >

> >

> > ------------ --------- --------- ------

> >

> >