Re: numbness, doxycycline

[Guest guest]

Liz and group;

Hi hun. I get numbness in my hands and sometimes in my leg. I have

RA. I take plaqunil sulfazaline and humira injections for RA. I

got the numbness before I ever took anything for the pain. Before I

was even diagnosed with RA. I think I took Doxcline before. Thats

an antibiotic right? Never took it for RA though.

I have brain fog also. I think its from the fibro. I call it fibro

fog. I am reading your post as I text this to answer what you have

on your post. I do all my post that way. You mention face numbness

too. I get numbness in my face very rarely though. I have no idea

what the numbness is caused from. I had this numbness before I took

any meds for RA and before I got the diagnose for RA.

Plagunil and sulfazaline has done nothing to help my RA pain. But

as soon as I took the humira injections I got relief in 24 hours.

Wow there must be a lot of readers in our group. I was even

surprised at the readers of my post. Sometimes I thought my post

wasnt even read.

I hope you find out what your looking for. I know how our bodies

can confuse us. Nice to meet you. I hope you post some more about

lyme disease. I am curious about it. I have read much on lyme

disease but I understand our group better than I do the information

on the net.

gentle hugs

Clora

>

> Hi all! I don't post very much to this list but I do read when I

get the chance. Anyway, I was treated for Lyme disease several

years ago with IV antibiotics. My pain symptoms were joint pain,

numbness, and a weird brain fog which is common with late stage

LYME. ANyway, I was off all RA drugs while I was pregnant and for

six months after and was lucky to have had no pain except pain that

normally come with pregnancy. Last month the pain came back with a

vengeance, and I also developed numbness in my arms and face, and

occasional shooting pains in my feet and toes (definite nerve pain,

not joint or muscle). One time it was on just half of my body, I

thought I was having a stroke. I assumed the numbness in my arms

was from carrying the baby, but that wouldn't necessarliy affect my

face. ANyway, the doc reran all my bloodwork since it had been

months since I was on any medication . Of course my LYME tests were

positive since they always will be but he decided to treat me with

doxycycline for a month since numbness was a symptom before.

Ididn'treally like the dea but he said that some people take doxy

for RA so it would probably help the pain either way, and I have to

admit that it is. Makes me wonder as always whether I acually have

RA, chronic LYMe, or some mix?

>

> ANyway, the question is: does anyone have numbness with RA (I am

seronegative)? DOes anyone take DOXYCYCLINE for RA? What are your

experiences? I was treated with Plaquenil before and did well with

it.

>

>

> Thanks!

>

> Liz

>

>

[Guest guest]

Hi Liz,

 

I do not have numbness with my RA.  I know of a woman who does have facial

numbness and her rheumatologist said it was her Sjogren's syndrome which people

sometimes have by itself or with another autoimmune disease (like RA).  Hope

this is helpful.

 

[ ] numbness, doxycycline

Hi all! I don't post very much to this list but I do read when I get the chance.

Anyway, I was treated for Lyme disease several years ago with IV antibiotics. My

pain symptoms were joint pain, numbness, and a weird brain fog which is common

with late stage LYME. ANyway, I was off all RA drugs while I was pregnant and

for six months after and was lucky to have had no pain except pain that normally

come with pregnancy. Last month the pain came back with a vengeance, and I also

developed numbness in my arms and face, and occasional shooting pains in my feet

and toes (definite nerve pain, not joint or muscle). One time it was on just

half of my body, I thought I was having a stroke. I assumed the numbness in my

arms was from carrying the baby, but that wouldn't necessarliy affect my face.

ANyway, the doc reran all my bloodwork since it had been months since I was on

any medication . Of course my LYME tests were positive since they always will be

but he

decided to treat me with doxycycline for a month since numbness was a symptom

before. Ididn'treally like the dea but he said that some people take doxy for RA

so it would probably help the pain either way, and I have to admit that it is.

Makes me wonder as always whether I acually have RA, chronic LYMe, or some mix?

ANyway, the question is: does anyone have numbness with RA (I am seronegative) ?

DOes anyone take DOXYCYCLINE for RA? What are your experiences? I was treated

with Plaquenil before and did well with it.

Thanks!

Liz

[Guest guest]

Liz,

The only numbness that I have had was in my hands and arms. This was

caused from my cerivcal spine. I had that surgery in May and so far

no numbness.

Oops, I forgot, 3 yrs ago my lower spine caused numbness in my right

foot. All of the feeling has returned except for one small area. I

have a herniated disk there also, but I have heard too many horror

stories about surgery in the lumbar area. I truly believe that my RA

drugs have helped the osteo-arthritis there also.

Shirley

> > Hi all! I don't post very much to this list but I do read when

I

> get the chance. Anyway, I was treated for Lyme disease several

> years ago with IV antibiotics. My pain symptoms were joint pain,

> numbness, and a weird brain fog which is common with late stage

> LYME. ANyway, I was off all RA drugs while I was pregnant and

for

> six months after and was lucky to have had no pain except pain

that

> normally come with pregnancy. Last month the pain came back with

a

> vengeance, and I also developed numbness in my arms and face, and

> occasional shooting pains in my feet and toes (definite nerve

pain,

> not joint or muscle). One time it was on just half of my body, I

> thought I was having a stroke. I assumed the numbness in my arms

> was from carrying the baby, but that wouldn't necessarliy affect

my

> face. ANyway, the doc reran all my bloodwork since it had been

> months since I was on any medication . Of course my LYME tests

were

> positive since they always will be but he decided to treat me with

> doxycycline for a month since numbness was a symptom before.

> Ididn'treally like the dea but he said that some people take doxy

> for RA so it would probably help the pain either way, and I have

to

> admit that it is. Makes me wonder as always whether I acually

have

> RA, chronic LYMe, or some mix?

> >

> > ANyway, the question is: does anyone have numbness with RA (I

am

> seronegative)? DOes anyone take DOXYCYCLINE for RA? What are

your

> experiences? I was treated with Plaquenil before and did well

with

> it.

> >

> >

> > Thanks!

> >

> > Liz

> >

> >

[Guest guest]

Hi beth,

Congratulations on the baby, boy or girl?

I have heard, while pregnant many go into a remission. Then after

the baby, all the pain comes back, and more. With the numbness, I

think you need to see a neurologist right away. I have numbness in

my leg, which he diagnosed me with neuropathy pain. I take

Neurontin, and it does help me. If I miss a dose or two, my leg will

start swelling, and the numbness comes back. I have a lot of

symptoms of MS, but not enough. So, if I get any worse, then I will

see the neuro again. Please, see a neuro, there are many health

problems that cause your side effects. Take care, Tawny

--- In , beth Costa <elizcosta@...>

wrote:

>

> Hi all! I don't post very much to this list but I do read when I

get the chance. Anyway, I was treated for Lyme disease several years

ago with IV antibiotics. My pain symptoms were joint pain, numbness,

and a weird brain fog which is common with late stage LYME. ANyway,

I was off all RA drugs while I was pregnant and for six months after

and was lucky to have had no pain except pain that normally come with

pregnancy. Last month the pain came back with a vengeance, and I

also developed numbness in my arms and face, and occasional shooting

pains in my feet and toes (definite nerve pain, not joint or

muscle). One time it was on just half of my body, I thought I was

having a stroke. I assumed the numbness in my arms was from carrying

the baby, but that wouldn't necessarliy affect my face. ANyway, the

doc reran all my bloodwork since it had been months since I was on

any medication . Of course my LYME tests were positive since they

always will be but he decided to treat me with doxycycline for a

month since numbness was a symptom before. Ididn'treally like the

dea but he said that some people take doxy for RA so it would

probably help the pain either way, and I have to admit that it is.

Makes me wonder as always whether I acually have RA, chronic LYMe, or

some mix?

>

> ANyway, the question is: does anyone have numbness with RA (I am

seronegative)? DOes anyone take DOXYCYCLINE for RA? What are your

experiences? I was treated with Plaquenil before and did well with

it.

>

>

> Thanks!

>

> Liz

>

>

[Guest guest]

hi liz, yes i do have numbness+ tingling w/ my ra. when i was pg i felt GREAT

but afterwards my ra like u said came w/ a VENGANCE.

NO i don't take doxycycline but i do take plaquenile along w/SEVERAL other

drugs.. i HOPE u feel BETTER soon!! god bless,

melyndagamez 9/21/08

[ ] Re: numbness, doxycycline

Hi beth,

Congratulations on the baby, boy or girl?

I have heard, while pregnant many go into a remission.  Then after

the baby, all the pain comes back, and more.  With the numbness, I

think you need to see a neurologist right away.  I have numbness in

my leg, which he diagnosed me with neuropathy pain.  I take

Neurontin, and it does help me.  If I miss a dose or two, my leg will

start swelling, and the numbness comes back.  I have a lot of

symptoms of MS, but not enough.  So, if I get any worse, then I will

see the neuro again.  Please, see a neuro, there are many health

problems that cause your side effects.  Take care, Tawny

--- In , beth Costa <elizcosta@...>

wrote:

>

> Hi all!  I don't post very much to this list but I do read when I

get the chance.  Anyway, I was treated for Lyme disease several years

ago with IV antibiotics.  My pain symptoms were joint pain, numbness,

and a weird brain fog which is common with late stage LYME.  ANyway,

I was off all RA drugs while I was pregnant and for six months after

and was lucky to have had no pain except pain that normally come with

pregnancy.  Last month the pain came back with a vengeance, and I

also developed numbness in my arms and face, and occasional shooting

pains in my feet and toes (definite nerve pain, not joint or

muscle).  One time it was on just half of my body, I thought I was

having a stroke.  I assumed the numbness in my arms was from carrying

the baby, but that wouldn't necessarliy affect my face.  ANyway, the

doc reran all my bloodwork since it had been months since I was on

any medication .  Of course my LYME tests were positive since they

always will be but he decided to treat me with doxycycline for a

month since numbness was a symptom before.  Ididn'treally like the

dea but he said that some people take doxy for RA so it would

probably help the pain either way, and I have to admit that it is. 

Makes me wonder as always whether I acually have RA, chronic LYMe, or

some mix?

> 

> ANyway, the question is:  does anyone have numbness with RA (I am

seronegative)?  DOes anyone take DOXYCYCLINE for RA?  What are your

experiences?  I was treated with Plaquenil before and did well with

it.

> 

> 

> Thanks!

> 

> Liz

>

>