Re: Beginners in the Group

[Guest guest]

Hi there .. My name is Jolene. On top of the Ra/prosiatic arthritis I also

have rsd which is a very painful

Condition above anything else even cancer. I have to say that when I

started the methotrexate it put me on my feet literally. I wasn't walking

nor was I able to get out of bed .. I had a breakdown till they finally

diagnosed me, the rsd was a bad enough diagnose let alone the Ra. Anyways

what I wanted to say is that

I am so glad to be alive. I struggled like many here, I have good and bad

days, I also have five children and a grandbaby so it was a huge struggle to

accept this.. But once I have and Heidi on here will tell you she talked to

me online the first time I took my methotrexate cause I was so scared. And

yes I hear a lot of negative. Unfortunately there are some bad cases of

everything, not just Ra. Rsd what I have there is no cure for. From what

everyone told me I would be on pain pump,l and in a wheelchair, well guess

what I'm not!! I don't take that litely as I know I could be with either

diagnosis. But I know that having a good

Positive support system and encouragement is a big big difference in our

lives. Being in a group like this

And other supports is a very good thing. I am the unusual I take no pain

meds, most do I choose not to, and that's my choice, but I have learned to

sacrifice some days for others. I know if I go to church on Sunday that on

MOnday I have to rest. My husband has to grocery shop (YEAH) I crawl down

the basement stairs. I have learned to garden in a chair, but I can at

least do it. There is lots of hope my friend. If you need to talk I am

around.

Jolene

-- [ ] Beginners in the Group

Hello Group

I am a new person in the group. and I have read some

devastating news about RA. It is good that I know what

to expect. I am so sorry for those that are suffering.

I am suffering too. I don't have big bumps yet. I can

use the bathroom. I can open and close jars. I am in

pain.

I have had pain my entire adult life. On a 1 to 10, I will

say an average of 5 my entire adult life. The doctors

could not find anything wrong, so I had to get

pain medications any way I could. People who knew I

was in pain help me get pain medication. Doctor would

not give me any unless I found an unscrouplous doctor.

and I found some.

Well, Five years ago they found RA and Fibromyalgia. Now

I can get pain meds. But these last couple months, I have

been in unbearable pain. Some days at an all time high 10.

From the letters I read its going to be very good days

or very bad days. I am scared. I have read some

amazing stories here. People in pain I understand. And your

right no one can know what its like till it happens

to them. For the first time these last few weeks. I

could barely make it to the bathroom. I couldnt get out

of bed unless I had to go to the bathroom, thats how much

pain I was in.

I had no Idea it was going to be like this. Oh my gosh, Its

the letters I read that make me want to go on.

I had children so I know pain. Constant pain like I have

is so unbearable. Some of the stories scare me. But at least

I know what to expect.

Yours kindly

Clora

[Guest guest]

Clora,

Welcome. I know what you means about some of the post being scary. I

feel so compassionate and helpless for some of the members.

This is a great group. I rely on the input and information.

gives us great information and resources.

I love your email address and I am happy to know that you have the

best support person on your side. Stay positive, it is hard but oh

so essential.

Have a blessed day,

Shirley

>

> Hello Group

> I am a new person in the group. and I have read some

> devastating news about RA. It is good that I know what

> to expect. I am so sorry for those that are suffering.

> I am suffering too. I don't have big bumps yet. I can

> use the bathroom. I can open and close jars. I am in

> pain.

> I have had pain my entire adult life. On a 1 to 10, I will

> say an average of 5 my entire adult life. The doctors

> could not find anything wrong, so I had to get

> pain medications any way I could. People who knew I

> was in pain help me get pain medication. Doctor would

> not give me any unless I found an unscrouplous doctor.

> and I found some.

> Well, Five years ago they found RA and Fibromyalgia. Now

> I can get pain meds. But these last couple months, I have

> been in unbearable pain. Some days at an all time high 10.

> From the letters I read its going to be very good days

> or very bad days. I am scared. I have read some

> amazing stories here. People in pain I understand. And your

> right no one can know what its like till it happens

> to them. For the first time these last few weeks. I

> could barely make it to the bathroom. I couldnt get out

> of bed unless I had to go to the bathroom, thats how much

> pain I was in.

> I had no Idea it was going to be like this. Oh my gosh, Its

> the letters I read that make me want to go on.

> I had children so I know pain. Constant pain like I have

> is so unbearable. Some of the stories scare me. But at least

> I know what to expect.

> Yours kindly

> Clora

>

[Guest guest]

I do not write often, so many other do very well with out me anyway.

Not all of us have serious pain on & off all the time. I started out

in a very serious state, like you, I could not even go to the

bathroom without help & even then it HURT! When my rhuemy first saw

me, she set her goal to get me back to functioning. She put me on

Enbrel, plaquenil, methotrexate & prednisone. It is now nearly two

years later, but I function fine 95% of the time, with tiredness

being the first complaint. I hope your rheumy is treating your RA

aggressively as mine did. God bless, and I pray you'll be better

soon.

>

> Hello Group

> I am a new person in the group. and I have read some

> devastating news about RA. It is good that I know what

> to expect. I am so sorry for those that are suffering.

> I am suffering too. I don't have big bumps yet. I can

> use the bathroom. I can open and close jars. I am in

> pain.

> I have had pain my entire adult life. On a 1 to 10, I will

> say an average of 5 my entire adult life. The doctors

> could not find anything wrong, so I had to get

> pain medications any way I could. People who knew I

> was in pain help me get pain medication. Doctor would

> not give me any unless I found an unscrouplous doctor.

> and I found some.

> Well, Five years ago they found RA and Fibromyalgia. Now

> I can get pain meds. But these last couple months, I have

> been in unbearable pain. Some days at an all time high 10.

> From the letters I read its going to be very good days

> or very bad days. I am scared. I have read some

> amazing stories here. People in pain I understand. And your

> right no one can know what its like till it happens

> to them. For the first time these last few weeks. I

> could barely make it to the bathroom. I couldnt get out

> of bed unless I had to go to the bathroom, thats how much

> pain I was in.

> I had no Idea it was going to be like this. Oh my gosh, Its

> the letters I read that make me want to go on.

> I had children so I know pain. Constant pain like I have

> is so unbearable. Some of the stories scare me. But at least

> I know what to expect.

> Yours kindly

> Clora

>

[Guest guest]

Shirly

Thank you so much. Yes my nic is who i lean on and who I belive in. It is my

faith in God that makes me live.

God bless you

clora

ps. I hope this letter is ok group manager. I havent figured out how to send

email. but i dont want my email address out . so i will figure it out soon

hopefully

 

From: nana2livi <s.p5315@...>

Subject: [ ] Re: Beginners in the Group

Date: Friday, July 11, 2008, 6:03 AM

Clora,

Welcome. I know what you means about some of the post being scary. I

feel so compassionate and helpless for some of the members.

This is a great group. I rely on the input and information.

gives us great information and resources.

I love your email address and I am happy to know that you have the

best support person on your side. Stay positive, it is hard but oh

so essential.

Have a blessed day,

Shirley

>

> Hello Group

> I am a new person in the group. and I have read some

> devastating news about RA. It is good that I know what

> to expect. I am so sorry for those that are suffering.

> I am suffering too. I don't have big bumps yet. I can

> use the bathroom. I can open and close jars. I am in

> pain.

> I have had pain my entire adult life. On a 1 to 10, I will

> say an average of 5 my entire adult life. The doctors

> could not find anything wrong, so I had to get

> pain medications any way I could. People who knew I

> was in pain help me get pain medication. Doctor would

> not give me any unless I found an unscrouplous doctor.

> and I found some.

> Well, Five years ago they found RA and Fibromyalgia. Now

> I can get pain meds. But these last couple months, I have

> been in unbearable pain. Some days at an all time high 10.

> From the letters I read its going to be very good days

> or very bad days. I am scared. I have read some

> amazing stories here. People in pain I understand. And your

> right no one can know what its like till it happens

> to them. For the first time these last few weeks. I

> could barely make it to the bathroom. I couldnt get out

> of bed unless I had to go to the bathroom, thats how much

> pain I was in.

> I had no Idea it was going to be like this. Oh my gosh, Its

> the letters I read that make me want to go on.

> I had children so I know pain. Constant pain like I have

> is so unbearable. Some of the stories scare me. But at least

> I know what to expect.

> Yours kindly

> Clora

>

[Guest guest]

Hi Clora!

Welcome to the group! This group is filled with amazing, supportive, caring

individuals who are very knowledgeable and positive! I have FMS and Seronegative

RA.  The thing is, no matter how hard the pain gets, its important to focus on

the positive things in life otherwise we upset ourselves mentally and it adds to

the pain level.  I try to look at the situation as, every single day medical

miracles are happening.  They are finding medications to help diseases they

never thought possible.  Another thing is, each case of RA is unique to that

individual and their immune systems.  Everyone may not end up the way they think

because some medication combinations may work for one in the area that it doesnt

for another.  I know someone with MS who has had it for several years, she's

still quite active, has her eyesight, etc.  Yet I watched an interview with an

author Cohen who is legally blind due to his MS.  I just keep the faith

that it may not

get as bad as the stories get.  Hydrotherapy is really good for RA and FMS. 

I'm waiting to get a new order so I can get back in the water with the physical

therapist.  Just remember everyday those new medications to help us are being

worked on:)

From: CLORA <clora4jesus@...>

Subject: [ ] Beginners in the Group

Date: Thursday, July 10, 2008, 5:34 PM

Hello Group

I am a new person in the group. and I have read some

devastating news about RA. It is good that I know what

to expect. I am so sorry for those that are suffering.

I am suffering too. I don't have big bumps yet. I can

use the bathroom. I can open and close jars. I am in

pain.

I have had pain my entire adult life. On a 1 to 10, I will

say an average of 5 my entire adult life. The doctors

could not find anything wrong, so I had to get

pain medications any way I could. People who knew I

was in pain help me get pain medication. Doctor would

not give me any unless I found an unscrouplous doctor.

and I found some.

Well, Five years ago they found RA and Fibromyalgia. Now

I can get pain meds. But these last couple months, I have

been in unbearable pain. Some days at an all time high 10.

From the letters I read its going to be very good days

or very bad days. I am scared. I have read some

amazing stories here. People in pain I understand. And your

right no one can know what its like till it happens

to them. For the first time these last few weeks. I

could barely make it to the bathroom. I couldnt get out

of bed unless I had to go to the bathroom, thats how much

pain I was in.

I had no Idea it was going to be like this. Oh my gosh, Its

the letters I read that make me want to go on.

I had children so I know pain. Constant pain like I have

is so unbearable. Some of the stories scare me. But at least

I know what to expect.

Yours kindly

Clora

[Guest guest]

WELCOME CLORA!!! HANG IN THERE & WE'RE RIGHT BEHIND YOU.

GOD BLESS,MELYNDAGAMEZ 7/11/08 9P.M.CENTRAL

[ ] Beginners in the Group

Hello Group

I am a new person in the group. and I have read some

devastating news about RA. It is good that I know what

to expect. I am so sorry for those that are suffering.

I am suffering too. I don't have big bumps yet. I can

use the bathroom. I can open and close jars. I am in

pain.

I have had pain my entire adult life. On a 1 to 10, I will

say an average of 5 my entire adult life. The doctors

could not find anything wrong, so I had to get

pain medications any way I could. People who knew I

was in pain help me get pain medication. Doctor would

not give me any unless I found an unscrouplous doctor.

and I found some.

Well, Five years ago they found RA and Fibromyalgia. Now

I can get pain meds. But these last couple months, I have

been in unbearable pain. Some days at an all time high 10.

From the letters I read its going to be very good days

or very bad days. I am scared. I have read some

amazing stories here. People in pain I understand. And your

right no one can know what its like till it happens

to them. For the first time these last few weeks. I

could barely make it to the bathroom. I couldnt get out

of bed unless I had to go to the bathroom, thats how much

pain I was in. 

I had no Idea it was going to be like this. Oh my gosh, Its

the letters I read that make me want to go on.

I had children so I know pain. Constant pain like I have

is so unbearable. Some of the stories scare me. But at least

I know what to expect.

Yours kindly

Clora

------------------------------------

[Guest guest]

Welcome,

I have heard stories that scare me too, I have lupus and RA and

firbormyalgia i have swollen hands alot and it is hard to tie shoes

and what not, some days are better than others. Welcome to the group

and good luck dear.

Blessings

Kris

>

> From: nana2livi <s.p5315@...>

> Subject: [ ] Re: Beginners in the Group

>

> Date: Friday, July 11, 2008, 6:03 AM

>

>

>

>

>

>

> Clora,

> Welcome. I know what you means about some of the post being scary.

I

> feel so compassionate and helpless for some of the members.

> This is a great group. I rely on the input and information.

> gives us great information and resources.

> I love your email address and I am happy to know that you have the

> best support person on your side. Stay positive, it is hard but oh

> so essential.

> Have a blessed day,

> Shirley

>

> --- In @gro ups.com, " CLORA " <clora4jesus@ ...>

wrote:

> >

> > Hello Group

> > I am a new person in the group. and I have read some

> > devastating news about RA. It is good that I know what

> > to expect. I am so sorry for those that are suffering.

> > I am suffering too. I don't have big bumps yet. I can

> > use the bathroom. I can open and close jars. I am in

> > pain.

> > I have had pain my entire adult life. On a 1 to 10, I will

> > say an average of 5 my entire adult life. The doctors

> > could not find anything wrong, so I had to get

> > pain medications any way I could. People who knew I

> > was in pain help me get pain medication. Doctor would

> > not give me any unless I found an unscrouplous doctor.

> > and I found some.

> > Well, Five years ago they found RA and Fibromyalgia. Now

> > I can get pain meds. But these last couple months, I have

> > been in unbearable pain. Some days at an all time high 10.

> > From the letters I read its going to be very good days

> > or very bad days. I am scared. I have read some

> > amazing stories here. People in pain I understand. And your

> > right no one can know what its like till it happens

> > to them. For the first time these last few weeks. I

> > could barely make it to the bathroom. I couldnt get out

> > of bed unless I had to go to the bathroom, thats how much

> > pain I was in.

> > I had no Idea it was going to be like this. Oh my gosh, Its

> > the letters I read that make me want to go on.

> > I had children so I know pain. Constant pain like I have

> > is so unbearable. Some of the stories scare me. But at least

> > I know what to expect.

> > Yours kindly

> > Clora

> >

>

>

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>

>

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