Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 I joined this group before I was diagnosed. I knew what I had but my doctors wouldn't give me any for sures. I saw a rheumy a few weeks ago and even though my R Factor was negative she believed I have RA. Surprised I was not. Anyway, I am now taking celebrex and Meth something or other folic acid. I am supposed to be taking something for pain but it doesnt help. Now I have new things going on with me. I get really week in my legs and arms. I am typing and now I am tired. Sitting in a chair is even hard. It starts to hurt my hips and legs. I feel like I am falling apart. And when do you call the doctor. I don't even know anymore. The pain is not really bad unless have a flare. And now my kids are going to go to school this year and everyone is telling me oh now you can get a job. HA HA HA. People just don't understand. Amina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Amina - I would suggest calling your doctor. One of the things I really appreciate about my doc and her office is that I can call anytime I'm having a flare and even if it's just that they'll listen and sympathize, it's worth the call. Especially if you have an RA doc who diagnosed with without the RA factor (like mine did), they are more likely to be open to any call regarding your symptoms. It's also helpful for them to document every time you are having symptoms, so in the future if they need to send medical records to have other treatments approved (like injections or infusions), it's right there in writing that new treatments are medically necessary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 --- In , Hartman <megan_hartman@...> wrote: > > Amina - > I would suggest calling your doctor. One of the things I really appreciate about my doc and her office is that I can call anytime I'm having a flare and even if it's just that they'll listen and sympathize, it's worth the call. Especially if you have an RA doc who diagnosed with without the RA factor (like mine did), they are more likely to be open to any call regarding your symptoms. It's also helpful for them to document every time you are having symptoms, so in the future if they need to send medical records to have other treatments approved (like injections or infusions), it's right there in writing that new treatments are medically necessary. > > > wow when i call they seem to want to get off the phone fast. but i will try to call when i have a problem and see what happens thanks > clora > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 hi amina,i'm SORRY the drs.can't give u a positive answer. it's sad when u know that there's something wrong with u & u feel a certain way, & the docs can't figure it out. whatz up with that!!! can u describe the kind of pain u get to me? maybe i can HELP! i take mtx 7 pills every friday & skip the folic acid on that day. when 2 call the doc, right away it's your life so do what u can to feel BETTER!!!!!! i know what u mean about falling apart, i feel the same & i only have 1 daughter. alyssa's in school though. the job part we don't even discuss cuz being a mother is a FULL TIME JOB,THANK-YOU VERY MUCH!! NO PEOPLE DON'T UNDERSTAND cuz they are not us just like we r not them!!!!! do what u feel u can do & LEAVE THE REST TO GOD!! hope u feel BETTER SOON.god bless,melyndagamez 7/11/08 8:38p.m.central [ ] Newly diagnosed I joined this group before I was diagnosed. I knew what I had but my doctors wouldn't give me any for sures. I saw a rheumy a few weeks ago and even though my R Factor was negative she believed I have RA. Surprised I was not. Anyway, I am now taking celebrex and Meth something or other folic acid. I am supposed to be taking something for pain but it doesnt help. Now I have new things going on with me. I get really week in my legs and arms. I am typing and now I am tired. Sitting in a chair is even hard. It starts to hurt my hips and legs. I feel like I am falling apart. And when do you call the doctor. I don't even know anymore. The pain is not really bad unless have a flare. And now my kids are going to go to school this year and everyone is telling me oh now you can get a job. HA HA HA. People just don't understand. Amina ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Hello, and welcome to this wonderful group. I am sorry you have RA, and I know just how you feel. I have had it for 5 1/2 years, and it overwhelmed me too. I had never heard of it before, and knew nothing about it. I was so scared, and felt all alone too. You will be so happy you joined this group, as we all know what you are going through, as we have all been there before. Lots of support here, great information too. I hope you will be feeling better soon. It takes awhile for the MTX and other RA meds. to start working, so don't get discouraged, just take one day at a time. That is what I do. I have a wonderful Rheumy, and she is so caring and smart, she is there for me always. I love that about her. Wishing you pain free days. I am glad you are in our group. Hugs Barbara > > Hello. I was just diagnosed 2 weeks ago with RA. I feel like I am > hanging out in the wind. I have gone to a couple of websites that my > rheumatologist reccomended and I have talked with my husband and > friends but I feel like I am all alone. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 It's going to be OK. It's hard when you try talking to your spouse or friends about how you feel, especially with a chronic pain condition. It's nice to talk, vent, cry with someone who understands what you are going through. This web board has been a great help with my support system. Talk to your rheumy about treatment options that are best for you. Everyone is different. Sometimes, it's trial and error to see what medication regimne you need to be on. You are not alone. Welcome to the webboard. > > Hello. I was just diagnosed 2 weeks ago with RA. I feel like I am > hanging out in the wind. I have gone to a couple of websites that my > rheumatologist reccomended and I have talked with my husband and > friends but I feel like I am all alone. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 hi, WELCOME to this AWESOME RA GROUP! u will never b alone, there r too many people who CARE!! sorry to here that u have what all of us have! we SUPPORT each other though. gina she's an awesome helper in finding certain things that we can't find or mayb we don't UNDERSTAND! SO DON'T GIVE IN U R NOT ALONE! god bless,melyndagamez 7/16/08 12:23a.m. [ ] Newly diagnosed Hello. I was just diagnosed 2 weeks ago with RA. I feel like I am hanging out in the wind. I have gone to a couple of websites that my rheumatologist reccomended and I have talked with my husband and friends but I feel like I am all alone. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Welcome to the group. There is a fantastic bunch of people here. We will all listen to how your feeling & doing. It's easy to feel " out there " because the greater population seems to think of RA as just regular arthritis & everybody has it. Many do not realize or think there's a difference, but we know better. We are here for you. > > Hello. I was just diagnosed 2 weeks ago with RA. I feel like I am > hanging out in the wind. I have gone to a couple of websites that my > rheumatologist reccomended and I have talked with my husband and > friends but I feel like I am all alone. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 I was diagnosed 3 weeks ago and I know exactly how you feel. People assume that because you look well, that you are feeling fine. This is a very isolating condition. " Friendship, like true love, never, ever dies. Ever! " " Twisted Sista " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 kmitch, Welcome to the group. You are not alone, that is one thing that I learned as soon as I joined the group. Everyone here understands the physical and mental pain you are experiencing. It is important to have someone to go to that can say, I know, that can offer a virtual shoulder, and to just be here for you. You have found the right place to be. Heidi M On Wed, Jul 16, 2008 at 6:44 PM, Sheri BledsoeTwisted Sista < srobsoe@...> wrote: > I was diagnosed 3 weeks ago and I know exactly how you feel. People > assume that because you look well, that you are feeling fine. This is a > very isolating condition. > > " Friendship, like true love, never, ever dies. Ever! " > > " Twisted Sista " > > Quote Link to comment Share on other sites More sharing options...
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