Re: OT-Clora Feels better

[Guest guest]

TAwney and group;

Yes, I was dx with DDD many years ago. I should tell my RA that

too. No back surgery for me. Everyone I know that had back surgery

is still complaining long after the surgery. A lot of people talk

about how they forget too. I can't think of simple words a lot. I

read it was the hippocampus in the brain. Where our remembering

part is.

I will write all my questions down for the doctor next time so I

don't forget what to ask. I had a pretty good day yesterday. I

have pain patchec for my back. The only problem is getting some one

to put them on for me. You take care Tawney. Now I don't mind my

name up there since I know Its not because I done something wrong.

I put up Clora feels better.

Gentle hugs

Clora

> Clora,

>

> Glad your feeling better after the humira shot. You might

have,disc

> degenertive disease,(DDD.) You might talk to your doctor next

time.

> There isn't a lot you can do about it, other then surgery. I'm

sure

> not ready for that, I take Flexeril for the spasms.

> I take Neurontin for neuropathy pain in my leg. If I don't take

it,

> my leg starts swelling, and I have terrible pain. My neurologist

put

> me on Neurontin a few years ago. If I take it, my leg does well,

but

> if I miss a dose, the leg starts acting up on me.

>

[Guest guest]

Clora,

I'm like you, no back or neck surgery for me! I just deal with the

pain. I can't stay on the PC long, my neck and shoulders starts

hurting so badly.

I have a hard time remembering things. Its really embarrassing too.

I think the meds plays a part of it, but not all. I just feel so

stupid, my family just stares at me, when I can't think of a word,

during a conversation.

I took my humira last night, and I have less pain today. After being

off the med for 5 weeks, I can tell it works. I take mtx tonight,

not looking forward to it. But, if it helps, I'll take it.

I hope you can get someone to put your patches on. My youngest one

helps me with stuff like that. She is a gift from God. You take

care of yourself, and know your in my prayers.

Hugs, Tawny

>

> TAwney and group;

>

> Yes, I was dx with DDD many years ago. I should tell my RA that

> too. No back surgery for me. Everyone I know that had back

surgery

> is still complaining long after the surgery. A lot of people talk

> about how they forget too. I can't think of simple words a lot. I

> read it was the hippocampus in the brain. Where our remembering

> part is.

>

> I will write all my questions down for the doctor next time so I

> don't forget what to ask. I had a pretty good day yesterday. I

> have pain patchec for my back. The only problem is getting some

one

> to put them on for me. You take care Tawney. Now I don't mind my

> name up there since I know Its not because I done something wrong.

> I put up Clora feels better.

>

> Gentle hugs

> Clora

>

>

>

>

>

> > Clora,

> >

> > Glad your feeling better after the humira shot. You might

> have,disc

> > degenertive disease,(DDD.) You might talk to your doctor next

> time.

> > There isn't a lot you can do about it, other then surgery. I'm

> sure

> > not ready for that, I take Flexeril for the spasms.

> > I take Neurontin for neuropathy pain in my leg. If I don't take

> it,

> > my leg starts swelling, and I have terrible pain. My neurologist

> put

> > me on Neurontin a few years ago. If I take it, my leg does well,

> but

> > if I miss a dose, the leg starts acting up on me.

> >

>

[Guest guest]

Tawny,

So glad to know that your pain is better today. It is wonderful to

have meds that work!

I was blessed to have a fantastic neuro-surgeon to do my cervical

spine surgery. (It didn't hurt that he is young, handsome and has an

outstanding bedside manner.) He told me if I didn't have the surgery

an auto accident or a fall and I could be a quadriplegic. I didn't

like the thought.

I had it in May and thus far, no regrets at all. Now, if the rest of

my body would co-operate!

I hope Doreen wasn't teasing about putting my name on the list.

Shirley

>

> Clora,

>

> I'm like you, no back or neck surgery for me! I just deal with

the

> pain. I can't stay on the PC long, my neck and shoulders starts

> hurting so badly.

> I have a hard time remembering things. Its really embarrassing

too.

> I think the meds plays a part of it, but not all. I just feel so

> stupid, my family just stares at me, when I can't think of a word,

> during a conversation.

> I took my humira last night, and I have less pain today. After

being

> off the med for 5 weeks, I can tell it works. I take mtx tonight,

> not looking forward to it. But, if it helps, I'll take it.

> I hope you can get someone to put your patches on. My youngest

one

> helps me with stuff like that. She is a gift from God. You take

> care of yourself, and know your in my prayers.

> Hugs, Tawny

[Guest guest]

Wow Shirley, you did luck out:) I'm glad your surgery went well,

that gives us all hope. Bless, Tawny

> >

> > Clora,

> >

> > I'm like you, no back or neck surgery for me! I just deal with

> the

> > pain. I can't stay on the PC long, my neck and shoulders starts

> > hurting so badly.

> > I have a hard time remembering things. Its really embarrassing

> too.

> > I think the meds plays a part of it, but not all. I just feel so

> > stupid, my family just stares at me, when I can't think of a

word,

> > during a conversation.

> > I took my humira last night, and I have less pain today. After

> being

> > off the med for 5 weeks, I can tell it works. I take mtx

tonight,

> > not looking forward to it. But, if it helps, I'll take it.

> > I hope you can get someone to put your patches on. My youngest

> one

> > helps me with stuff like that. She is a gift from God. You take

> > care of yourself, and know your in my prayers.

> > Hugs, Tawny

>

[Guest guest]

hi clora & tawny, first of all i want to say clora i hope u feel better soon.

today is an o.k. day for me a lil pain free. yesterday was a

different story,PAIN BIG TIME!!!!!!!!!! i was reading about the neck, back

surgery. i to will NEVER b able to have that done &

my pcp was thinking about it, i said there's no way i can have that done with

all that i'm dealing w/right now.. i've friends that

r physically fine yet they had to have back surgery now they r WORSE off than

just dealing w/the pain.. i guess some people r just lucky. god bless the both

of u,melyndagamez 9/21/08

 

[ ] Re: OT-Clora Feels better

Wow Shirley, you did luck out:)  I'm glad your surgery went well,

that gives us all hope.  Bless, Tawny

> >

> > Clora,

> >

> > I'm like you, no back or neck surgery for me!  I just deal with

> the

> > pain.  I can't stay on the PC long, my neck and shoulders starts

> > hurting so badly.

> > I have a hard time remembering things.  Its really embarrassing

> too. 

> > I think the meds plays a part of it, but not all.  I just feel so

> > stupid, my family just stares at me, when I can't think of a

word,

> > during a conversation.

> > I took my humira last night, and I have less pain today.  After

> being

> > off the med for 5 weeks, I can tell it works.  I take mtx

tonight,

> > not looking forward to it.  But, if it helps, I'll take it.

> > I hope you can get someone to put your patches on.  My youngest

> one

> > helps me with stuff like that.  She is a gift from God.  You take

> > care of yourself, and know your in my prayers.

> > Hugs, Tawny

>

------------------------------------

[Guest guest]

Does any one know if it would be a problem taking my enbrel shot I am on

amoxicillian for a sinus infection Please let me know I in a lot of pain and

the pain pills are not helping right now

-- Re: [ ] Re: OT-Clora Feels better

hi clora & tawny, first of all i want to say clora i hope u feel better soon

today is an o.k. day for me a lil pain free. yesterday was a

different story,PAIN BIG TIME!!!!!!!!!! i was reading about the neck, back

surgery. i to will NEVER b able to have that done &

my pcp was thinking about it, i said there's no way i can have that done

with all that i'm dealing w/right now.. i've friends that

r physically fine yet they had to have back surgery now they r WORSE off

than just dealing w/the pain.. i guess some people r just lucky. god bless

the both of u,melyndagamez 9/21/08

[ ] Re: OT-Clora Feels better

Wow Shirley, you did luck out:) I'm glad your surgery went well,

that gives us all hope. Bless, Tawny

> >

> > Clora,

> >

> > I'm like you, no back or neck surgery for me! I just deal with

> the

> > pain. I can't stay on the PC long, my neck and shoulders starts

> > hurting so badly.

> > I have a hard time remembering things. Its really embarrassing

> too.

> > I think the meds plays a part of it, but not all. I just feel so

> > stupid, my family just stares at me, when I can't think of a

word,

> > during a conversation.

> > I took my humira last night, and I have less pain today. After

> being

> > off the med for 5 weeks, I can tell it works. I take mtx

tonight,

> > not looking forward to it. But, if it helps, I'll take it.

> > I hope you can get someone to put your patches on. My youngest

> one

> > helps me with stuff like that. She is a gift from God. You take

> > care of yourself, and know your in my prayers.

> > Hugs, Tawny

>

------------------------------------

[Guest guest]

I'm very sorry that you are in so much pain, .

The safest thing to do would be to check with your rheumatologist.

Not an MD

On Sun, Sep 21, 2008 at 7:06 PM, bengal9 <bengal9@...> wrote:

> Does any one know if it would be a problem taking my enbrel shot I am on

> amoxicillian for a sinus infection Please let me know I in a lot of pain and

> the pain pills are not helping right now

>

>

[Guest guest]

,

Please, check with your rheummy. Mine told me if I did get sick I

would need to stop the Enbrel to take antibiotics.

I'm sorry you are in pain, hope you feel better soon.

Shirley

>

> Does any one know if it would be a problem taking my enbrel shot I

am on

> amoxicillian for a sinus infection Please let me know I in a lot of

pain and

> the pain pills are not helping right now

>

>

[Guest guest]

Melynda,

Its so nice to hear your feeling better. Having surgery is very

scary for me. I've heard many horrible stories, but there are people

who are doing fine. It would be nice, to go one day without neck

pain. My neck is very limited, and its scary.

Melynda, I hope you have another good day tomorrow, Tawny

--- In , Melynda Gamez <melyndagamez@...>

wrote:

>

> hi clora & tawny, first of all i want to say clora i hope u feel

better soon. today is an o.k. day for me a lil pain free. yesterday

was a

> different story,PAIN BIG TIME!!!!!!!!!! i was reading about the

neck, back surgery. i to will NEVER b able to have that done &

> my pcp was thinking about it, i said there's no way i can have that

done with all that i'm dealing w/right now.. i've friends that

> r physically fine yet they had to have back surgery now they r

WORSE off than just dealing w/the pain.. i guess some people r just

lucky. god bless the both of u,melyndagamez 9/21/08

>

>  

>

>

[Guest guest]

,

I would take a break from the enbrel, until your sinus infection

clears up. I'm so sorry your in so much pain. I have been off the

humira and mtx for 5 weeks now. I started the humira last night, and

the mtx will be tonight. I had two cysts removed, and I'm clumsy, so

I'm always running into things, or falling, causing open wounds.

Having a sinus infection does happen on the biologic meds, that is

the down side of the med. Contact your doctor though, Tawny

>

> Does any one know if it would be a problem taking my enbrel shot I

am on

> amoxicillian for a sinus infection Please let me know I in a lot of

pain and

> the pain pills are not helping right now

>

>

>

>

>

> -------Original Message-------

>

>

>

[Guest guest]

Tawny and group;

I can't stay on the pc long either. My neck and back starting

hurting so bad it's intolerable. I been doing the neck exercises

and its starting to help some.

I know my memory is shot. My husband or someone else will finish a

sentence for me haaaaaaaaa. I would say for example; I need to fix

my , hu hmm my a what you call it. Huband will say your stuffed

cabbage. I will go yes yes. We would have talked about it early

that day and he knows what I want to say.

I am really embarrassed when I do it in my chatroom on paltalk. My

members would finish the sentence for me. They are really

understanding, about 5 of them would say or text DSYLEXIC. I would

have that word on the tip of my tongue. I would discribe the word

and than everyone will text it. Like a word game haaaaaaaaaa.

I am alergic to MXT. It broke me out in red itchy hives. No one

could put on my pain patches today. I put it on my lower lower

back, below my waiste so my son n law can't put them on for me. I

would let him but he is to embarrassed haaaaaaaa. I worked in the

medical field and a butt is nothing to me.

My husband works all day on Sunday. My daughter has Mersa and she

is weak and tired from taking care of an infant. I am going to feed

and change my grandson so she can get a few hours sleep tomorrow.

Maybe she can put them on before I start. Thanks for asking.

I agree our children belong to God, God is entrusting us to teach

and love them. How old is your daughter? My babies are 24, 34 and

36. They will always be my babies no matter how old they get.

gentle hugs

Clora

> Clora,

>

> I'm like you, no back or neck surgery for me! I just deal with

the

> pain. I can't stay on the PC long, my neck and shoulders starts

> hurting so badly.

> I have a hard time remembering things. Its really embarrassing

too.

> I think the meds plays a part of it, but not all. I just feel so

> stupid, my family just stares at me, when I can't think of a word,

> during a conversation.

> I took my humira last night, and I have less pain today. After

being

> off the med for 5 weeks, I can tell it works. I take mtx tonight,

> not looking forward to it. But, if it helps, I'll take it.

> I hope you can get someone to put your patches on. My youngest

one

> helps me with stuff like that. She is a gift from God. You take

> care of yourself, and know your in my prayers.

> Hugs, Tawny

>

>

[Guest guest]

Clora,

Sorry no one could put the patches on for you. You made me laugh,

about, " butt " is nothing, your so cute. You always lift my spirits.

Sorry the mtx don't work for you. There might be some other med to

go along with the humira that might work better. But, if your doing

OK on the humira now, you might just wait. I hate taking the mtx, I

went back on the pills,(I was on the injection), and it makes my

tummy sick. Now, I just make sure I get to bed after taking it. I

woke up one night, and was throwing up in my sleep, and I was

swallowing it, nasty I know.

Sometimes, I use the rice sock for my neck, while I'm on the PC. It

does help quite a bit.

My family fills in my blanks,lol I get up to do something, and

forget what I'm going to do. It makes me not want to leave the

house. Sometimes, my oldest daughter will talk about something that

happened in the past when she was little, and I have no idea what she

is talking about. It makes me feel bad, and like I'm a bad mother.

Do you live in SC? Have you heard of CTU?

Well, I better close for now. You take care, and have a good night,

Tawny

>

> Tawny and group;

>

> I can't stay on the pc long either. My neck and back starting

> hurting so bad it's intolerable. I been doing the neck exercises

> and its starting to help some.

>

> I know my memory is shot. My husband or someone else will finish a

> sentence for me haaaaaaaaa. I would say for example; I need to fix

> my , hu hmm my a what you call it. Huband will say your stuffed

> cabbage. I will go yes yes. We would have talked about it early

> that day and he knows what I want to say.

>

> I am really embarrassed when I do it in my chatroom on paltalk. My

> members would finish the sentence for me. They are really

> understanding, about 5 of them would say or text DSYLEXIC. I

would

> have that word on the tip of my tongue. I would discribe the word

> and than everyone will text it. Like a word game haaaaaaaaaa.

>

> I am alergic to MXT. It broke me out in red itchy hives. No one

> could put on my pain patches today. I put it on my lower lower

> back, below my waiste so my son n law can't put them on for me. I

> would let him but he is to embarrassed haaaaaaaa. I worked in the

> medical field and a butt is nothing to me.

>

> My husband works all day on Sunday. My daughter has Mersa and she

> is weak and tired from taking care of an infant. I am going to feed

> and change my grandson so she can get a few hours sleep tomorrow.

> Maybe she can put them on before I start. Thanks for asking.

>

> I agree our children belong to God, God is entrusting us to teach

> and love them. How old is your daughter? My babies are 24, 34 and

> 36. They will always be my babies no matter how old they get.

>

> gentle hugs

> Clora

>

>

[Guest guest]

Melynda and group;

Awe Melynda, what a sweet person you are. I get through the day

when I get my pain patches on my back. I love to read your post.

You are such a caring person as many others in the group.

My son n law had back surgery. It has been a year and he is still

in agony. He has a hard time getting pain medications for it too.

I guess its cause the doctors are afraid to give out narcotitics.

My dad was so healthy up to the day he died. He passed at 73. He

had congestive heart failure the same as I have now. But he stayed

so busy and was so healthy.

gentle hugs

Clora

>

> hi clora & tawny, first of all i want to say clora i hope u feel

better soon. today is an o.k. day for me a lil pain free. yesterday

was a

> different story,PAIN BIG TIME!!!!!!!!!! i was reading about the

neck, back surgery. i to will NEVER b able to have that done &

> my pcp was thinking about it, i said there's no way i can have

that done with all that i'm dealing w/right now.. i've friends that

> r physically fine yet they had to have back surgery now they r

WORSE off than just dealing w/the pain.. i guess some people r just

lucky. god bless the both of u,melyndagamez 9/21/08

>

[Guest guest]

Thanks me too i have a very hard time getting around since the weather turned

cooler never really

figured it would bother me this bad till i stopped taking my meds wanted to be

on the safe side

I was recently diagnosed with this terrible disease and haven't really faced the

blunt of it like some

of you, but have read a lot of your email and see what i am in for

Thanks

[ ] Re: OT-Clora Feels better

,

Please, check with your rheummy. Mine told me if I did get sick I

would need to stop the Enbrel to take antibiotics.

I'm sorry you are in pain, hope you feel better soon.

Shirley

>

> Does any one know if it would be a problem taking my enbrel shot I

am on

> amoxicillian for a sinus infection Please let me know I in a lot of

pain and

> the pain pills are not helping right now

>

>

[Guest guest]

Tawny,

?Thanks for the advice ya this stinks that we can't take our meds when

we get sick so we have to suffer and get rid of one thing to get back to

being able to function on the other.

[ ] Re: OT-Clora Feels better

,

I would take a break from the enbrel, until your sinus infection

clears up. I'm so sorry your in so much pain. I have been off the

humira and mtx for 5 weeks now. I started the humira last night, and

the mtx will be tonight. I had two cysts removed, and I'm clumsy, so

I'm always running into things, or falling, causing open wounds.

Having a sinus infection does happen on the biologic meds, that is

the down side of the med. Contact your doctor though, Tawny

>

> Does any one know if it would be a problem taking my enbrel shot I

am on

> amoxicillian for a sinus infection Please let me know I in a lot of

pain and

> the pain pills are not helping right now

>

>

>

>

>

> -------Original Message-------

>

>

>

[Guest guest]

,

You will learn a lot here. I hope mostly that we care for each other

and try to help if we can.

Always remember that remission is possible. Several of the members

here are in or have been in remission. That is my goal.

Sweetie, I truly hate it that you have a disease. It isn't the end

though. I have learned what is important and what I thought was

important are not the same thing. For this I am thankful.

Like you most of us do not look forward to cooler weather. I hope this

year will be better. I love the fall colors though. Such a masterpiece!

Hopefully you will be better really soon and you can resume your meds.

God Bless,

Shirley

- In , bengal9@... wrote:

>

>

> Thanks me too i have a very hard time getting around since the

weather turned cooler never really

> figured it would bother me this bad till i stopped taking my meds

wanted to be on the safe side

> I was recently diagnosed with this terrible disease and haven't

really faced the blunt of it like some

> of you, but have read a lot of your email and see what i am in for

> Thanks

[Guest guest]

,

It does stink! I have waited too long without my meds, I'm really

paying for it now. Hope you can get back on your meds soon.

Hope your day goes well, Tawny

>

>

> Tawny,

> ?Thanks for the advice ya this stinks that we can't take our meds

when

> we get sick so we have to suffer and get rid of one thing to get

back to

> being able to function on the other.

>

>

>

>

>

>

>

>

[Guest guest]

Tawny,

Thanks it's going pretty good today, since the weather

was warm that helped alot

[ ] Re: OT-Clora Feels better

,

It does stink! I have waited too long without my meds, I'm really

paying for it now. Hope you can get back on your meds soon.

Hope your day goes well, Tawny

>

>

> Tawny,

> ?Thanks for the advice ya this stinks that we can't take our meds

when

> we get sick so we have to suffer and get rid of one thing to get

back to

> being able to function on the other.

>

>

>

>

>

>

>

>