Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Swp27 and group; I am so sorry about your pain. Thats a lot of pain for a long time. I have had much problems with pain through out my adult life also. Mine was never diagnosed. I endured it and tried to get pain meds through out my adult life. I am 54 now. Most of the time my family and friends thought there was nothing wrong with me. I would complain about the pain and had to continue working and go on anyway. I only wanted a diagnose back than. Just to verify what ever it was that I had. I have been diagnosed with RA, osteo, fibro, bursitis, sleep apnea. Thats all the ones that made working hard for many years. I was just diagnosed with these in the last 5 years. Its hard to say what the other pain was from. At least I got help for those I listed now. So, I understand your pain swp. I feel for you. I sure dont know what sarcoidosis is but I will look it up. Do you have a name. I didnt see one at the end of your post? gentle hugs Clora > > I also have 2 auto imm. diseases, sarcoidosis (dx when I was 22), which they say is in remission and > RA, which was dx in July. I am 58 now. The fatigue I feel with RA is the same way I felt when the sarcoid was active. I was told that sarcoids can affect your joints and muscles, and I truly believe it. I started having muscle and joint pain at age 25 and it never stopped, just got progressively worse. Over the years, I have been dx with tennis elbow, bursitis, oseto. arithtis, tendonitis, stretched ligaments, frozen shoulders, fibro. I have spent years in and out of physical theraphy. It took 35 years for me to finally get some relief. I am now on prednisone and mtx, as well as tramadol, vicodin and ibuprofen. I still have pain in my neck, shoulders, elbows, hands, knees, ankles and feet, but the pain levels are now around 4-6 instead of 9-10. I had been in intense pain since Dec. 2006. Thank God I was able to retire at 52, after working 30 years. I have much sympathy for all of you that work! > > > > > > > > [ ] Re: auto immune diseases > > > > > > > > > > > > > > > > > > > > > > > > > > Wow, Shirley - if those are all linked to RA in some way or another, > > sign me up - its no wonder! I have had hypothyroidism since I was in > > my 20's. I had an IUD a couple of different times and had troubles > > with them both. Not to mention the horrific experiences I have endured > > throughout my lifetime as well. Its no wonder women are diagnosed with > > RA more than men! Seems like all of the different types of stresses in > > our lives (whether physical, emotional or medical) wreaks havoc with > > our immune system. Which would stand to reason. Our immune system is > > designed to recognize some kind of foreign response in our bodies and > > attack it to make it go away. I imagine when something major happens > > or something major is ongoing (good, bad or otherwise), our immune > > systems go into overload - then it doesn't know how to shut back off > > when the stress to our system is over - or adjust itself if the stress > > to our system is ongoing. > > > > We need a " reset " button, I think. Maybe that is the answer to all of > > this..............Doreen > > > > > > > > > > I have hypo-thyroid also. I had the onset of it in 2000, when my > > > mother died and I could not get out of bed. I was dxd with RA about > > > 18mos ago. > > > I believe that when you have an autoimmune disease you have a > > > greater risk for others. I have nothing to back this, just the > > > observation of this groups multiple illnesses. > > > I never had an IUD though. My daughter did and had so many problems > > > she had it removed. A couple of years ago she developed fibro. We > > > truly believe her fibro surfaced because of a horrific accident to > > > her foot and ankle. She has 2 plates and 10 pins in it. I would not > > > be surprised to learn that the IUD played some role though. > > > Shirley > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Hi Clora, my name is Sandy and I live in Pittsburgh...Go Steelers! Not far from your home town of Akron, Ohio! I know what you mean when you say, you miss the summers up here. My sister lives in Columbia SC, so i know what your summers are like! Sandy [ ] Re: auto immune diseases > > > > > > > > > > > > > > > > > > > > > > > > > > Wow, Shirley - if those are all linked to RA in some way or another, > > sign me up - its no wonder! I have had hypothyroidism since I was in > > my 20's. I had an IUD a couple of different times and had troubles > > with them both. Not to mention the horrific experiences I have endured > > throughout my lifetime as well. Its no wonder women are diagnosed with > > RA more than men! Seems like all of the different types of stresses in > > our lives (whether physical, emotional or medical) wreaks havoc with > > our immune system. Which would stand to reason. Our immune system is > > designed to recognize some kind of foreign response in our bodies and > > attack it to make it go away. I imagine when something major happens > > or something major is ongoing (good, bad or otherwise), our immune > > systems go into overload - then it doesn't know how to shut back off > > when the stress to our system is over - or adjust itself if the stress > > to our system is ongoing. > > > > We need a " reset " button, I think. Maybe that is the answer to all of > > this..............Doreen > > > > > > > > > > I have hypo-thyroid also. I had the onset of it in 2000, when my > > > mother died and I could not get out of bed. I was dxd with RA about > > > 18mos ago. > > > I believe that when you have an autoimmune disease you have a > > > greater risk for others. I have nothing to back this, just the > > > observation of this groups multiple illnesses. > > > I never had an IUD though. My daughter did and had so many problems > > > she had it removed. A couple of years ago she developed fibro. We > > > truly believe her fibro surfaced because of a horrific accident to > > > her foot and ankle. She has 2 plates and 10 pins in it. I would not > > > be surprised to learn that the IUD played some role though. > > > Shirley > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 Sandy and group; Nice to meet you Sandy. I was never a football fan that much. We use to say go Browns lol. Awe yes Ohio's summers are so grand. Here in SC, one can't go outside long with 95 degress temps. Cleveland Ohio had temps of average 75 degress. My bother lives next to Akron. I don't know where. I will ask him next time we chat on the phone. I miss the great Lake Erie. WE could hop in the car and be there in about 10 minutes. I took the Lake for granted. I thought everyone had a great lake haaaaaaaa. gentle kind hugs Clora > Hi Clora, my name is Sandy and I live in Pittsburgh...Go Steelers! Not far from your home town of Akron, Ohio! I know what you mean when you say, you miss the summers up here. My sister lives in Columbia SC, so i know what your summers are like! > > Sandy > > > Quote Link to comment Share on other sites More sharing options...
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