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Hi Phyl!

Thanks for the info. It is obvious fibro is used to describe other illness

then and isn't really a disease in its own right. Just a description of

symptoms it seems.

For those not born with a genetic condition it still seems that Fibro is

diagnosed when Chronic Lyme is not allowed by definition to exist! The

problem is when you say there is no such thing as Chronic Lyme you are left

with no way to diagnose the disease except by catch all names like

Fibromyalgia!

> [ ] Lyrica

>

> Hi Guys,

> Okay, I have Stickler Syndrome, was born

> with it and a common side effect is fibro.

> I started taking " Gabasomething " which

> my insurance covers and is supposed to

> work like Lyrica. For me it has worked

> wonders. All of this happened BEFORE

> Lyme so there are other things that cause

> fibro.

>

> Phyl

>

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Fibromyalgia is general pain that really

has no reason but doesn't respond to the

medicines we take for our joint problems

etc. The change for me with the

Gabapentin is huge. Where I've

controlled my joint pain to some degree

I've always had the " other " pain. This

new medicine for me makes a world of

difference. I can now take a walk and get

bitten by a tick haha.

My ex has " dementia " . That's another

word like fibromyalgia. The doctors have

no idea why my ex is being weirder than

he already was but they use this catch all

word that means they don't have to check

for alzheimer's or low oxygen during

surgery etc. I think there are a lot of

words in medicine like these two just to

make doctors feel smart and us to feel like

they know what's happening to us.

Phyl

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