What Do You Think?

[Guest guest]

Im not expert but i can absolutly see a diference, it looks good from what i can see but im not expert we are just picking up our band this week, i hope for good results as well

megan

What do you think?

The photos on the left are before her helmet and the photos on the right are 4 weeks with the helmet. Is there a difference??? Better/worse/same??? I see her everyday so it's hard to tell...

Thanks,

Naomi

[Guest guest]

I see a difference - especially in the top two pics. The bulge out to the left seems smaller. Your doing great Mom!!!!!

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

Wow, I see a good difference. Good job ! Looks like it is helping.

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of Naomi BarringerSent: Saturday, August 12, 2006 3:17 PMPlagiocephaly Subject: What do you think?

The photos on the left are before her helmet and the photos on the right are 4 weeks with the helmet. Is there a difference??? Better/worse/same??? I see her everyday so it's hard to tell...

Thanks,

Naomi

[Guest guest]

Naomi,

I can definitely tell a difference from

the top and a small difference from the side. She looks good!

Theresa

What do you

think?

The photos on the left are before her helmet and the

photos on the right are 4 weeks with the helmet. Is there

a difference??? Better/worse/same??? I see her everyday

so it's hard to tell...

Thanks,

Naomi

[Guest guest]

Her head looks great! Oh my gosh, how old was she

when she started? I hope and pray that we get good

results, but Noah is already 12 months.

--- Naomi Barringer <naomibarringer@...>

wrote:

> The photos on the left are before her helmet and the

> photos on the right are 4 weeks with the helmet. Is

> there a difference??? Better/worse/same??? I see

> her everyday so it's hard to tell...

>

> Thanks,

> Naomi

__________________________________________________

[Guest guest]

She started when she was 15 months old and has had the helmet on for approximately 4 weeks.

I know a little boy who started when he was 2.5 yrs old and they are satisfied with the results.

Good Luck,

Naomi Barringer

Re: What do you think?

Her head looks great! Oh my gosh, how old was shewhen she started? I hope and pray that we get goodresults, but Noah is already 12 months. --- Naomi Barringer <naomibarringerhotmail>wrote:> The photos on the left are before her helmet and the> photos on the right are 4 weeks with the helmet. Is> there a difference??? Better/worse/same??? I see> her everyday so it's hard to tell...> > Thanks, > Naomi__________________________________________________

[Guest guest]

Our 9 month old daughter has been wearing the Clarren helmet for 6

weeks now and there have been a few times where I have looked at her

head and hoped that we hadn't gotten to the final point yet because

it looked worse than when we started. BUT - it keeps changing as she

grows and we are definitely seeing a difference. It seems to kind of

morph into a new shape each week, some weeks it looks pretty and

rounder and other weeks it is a little lopsided or strange looking.

I also noticed that I was very used to how my baby looks, even if it

is with a flat head, so when I first noticed a change, even though

it was better, it was weird because my little girl looked different.

Hang in there, I have talked to a lot of mommies that have used the

Clarren and at the end of treatment they all have had positive

experiences.

-

>

> Hi,

>

> My son has been in his helmet for about five weeks, I think it's

the

> Mclaren or something like that, and I'm not positive it's doing

what

> it should be. When we began helmet treatment, his head was flat

on

> the right hand side and that ear was pushed quite a bit further

away

> from his face than the other side. Now his head is rounding out,

but

> it's rounding out towards the left. So, if you look from the top

or

> the back it looks like it's almost round. If you look from the

top,

> and find his nose, then you can tell that his head is rounding out

> towards his left. From the front, you can see that left hand side

of

> the head much easier than the right. His left eye has gotten

smaller

> since we began treatment.

>

> We have been seeing a doctor at the Seattle Children's Hospital

> Craniofacial center. We went back two weeks ago, and he did a bit

of

> trimming but he said the helmet is doing what it's supposed to be

> doing. I then made another appointment a few days ago so I could

ask

> some more questions. This time we saw the original nurse that

made

> the diagnosis, and she said his head looks better. I asked her

about

> the concerns I wrote about above, and she said that sometimes

things

> look worse before they look better.

>

> I hope we're not making his head worse! I still have doubts. What

do

> you think? I'm going to put a few new pictures in 's

folder.

>

> Thanks,

>

> Debbie

> North Bend WA

> 8 months old

>

[Guest guest]

Hi,

I took a look at your photos. Some don't look too bad. However it

shows the most in the following:

1703 - you can see a large bulge in the right-front. Also look at how

far his ears are off. That tells you that his head is off by quite a bit.

0190 - there is a lot of extra height. Maybe that is why the asymmetry

looks like less than some other heads would from the top. He has kind

of a conehead here. Also if you look you can see that his head bulge

is above the ear. The lower part looks a little more pushed in -

almost like a dent. This may be at least partly a shadow on the

picture. And it looks like his forehead is bossing (pushed out) over

the left eye.

I'm not trying to be super critical. He is a very cute boy. However I

do think his head shape is severe, and that you should band him as

quickly as possible to maximize the correction. For one thing with

extra height you can't really get rid of it. You direct the new growth

to other areas so it is balanced out more. This is the same with my

daughter she had brachy (flat in back) so she had quite a bit of extra

width,but also some extra height. That didn't go away, but the

overall proportion is now much more balanced.

-christine

sydney 2 yrs starband grad

>

> I posted my sons head pics in the B section. This is the kid they are

> saying is a 30 mm assemetry. I just dont see it! I forgot to enter

> his name so they are at the end under bryced2007. I was not able to

> figure out how to post the pics from Cranial Tech. Those are more

> detailed...if soemone knows how to post those, I will.

>

[Guest guest]

HI! I looked at the pics... while it might be hard to see the flattening in the birds-eye shots, it's the side shot that I really see the asym. He has alot of height and an indention in the lower back part of his skull. It may be hard to see because it is not the typical "plagio".

If CT says they can help, believe them. They have a great reputation dealing with complex head shapes. Just remember that the skullbase asym is the last to correct... and that effects the facial asym.

Jen and Luli - 29 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

What do you think?

I posted my sons head pics in the B section. This is the kid they are

saying is a 30 mm assemetry. I just dont see it! I forgot to enter

his name so they are at the end under bryced2007. I was not able to

figure out how to post the pics from Cranial Tech. Those are more

detailed...if soemone knows how to post those, I will.

Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

[Guest guest]

Hi there. He sure is a cute little fella. But I can see the asymmetry. I can't tell if it's 15mm or 30 mm, but I can see it's there. If it were me, I'd go ahead with the banding. My story: Sophie is on day 4 with her band and it has really been a piece of cake. I thought after the first night it would be terrible (she wouldn't sleep with it on) but it turned out that was because she didn't hardly nap and was over tired. She's been doing great ever since, 23 hours a day. She has 19mm of asymmetry. I waffled about it at first, thinking it's a sad thing to do to her, but I'm glad we're doing it and she doesn't even seem to care. And, call me

crazy, I can already see some changes. One of the things that drove me to do it was the small window of opportunity to try something non-invasive. It won't be long before nothing else can be done but surgery, and I wouldn't even entertain that idea myself. And banding really can't hurt. In the future, if it hadn't resolved itself without the band, and if Sophie or I continued to notice it, I would've felt really bad. Since I'm doing what I can, if it still doesn't resolve, I won't feel guilty. The people at CT have been perfect about everything. I went there at 2 months, 4 months, and 6 months just to have pictures and measurements to see how she was progressing with repositioning and they weren't pushy at all at 2 or 4 months when I was still in "wait and see" mode. At 6 months I could pretty much see for myself that while there was improvement, it wasn't really on a fast enough course of

correction.Anyway, that's my $0.02. Seeing how adaptable our babies are, it really hasn't been a bad experience so far, and there is very little downside. But go with your mother's intuition or gut instinct or whatever. But I wouldn't choose to *not* do it based on fear of the process or helmet discomfort or embarassment or inconvenience. Most of the time, it's really easy once you decide to do it. Good luck!Wendee What do you think?I posted my sons head pics in the B section. This is the kid they are

saying is a 30 mm assemetry. I just dont see it! I forgot to enter

his name so they are at the end under bryced2007. I was not able to

figure out how to post the pics from Cranial Tech. Those are more

detailed...if soemone knows how to post those, I will. Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I looked at the photos and first of all, the professional one of him

is so cute! He's adorable!

I do see the asymmetry. The thing to keep in mind is that the

measurements are done by hand and there could be a + or - deviation

from that number (you'll see that for sure if you get another eval

somewhere else, everyone measures differently). And 30 seems like such

a big number, but mm are so tiny. I can tell you that my son measured

at 15mm, and I would say he is less severe than Bryce. Now whether

that's 15mm less severe, or 10mm or whatever, I don't know. The

measurements are somewhat linear and don't take into account the

volume of the head (whether there's volume missing at the beginning of

treatment, or volume added at the end, you can't measure that as

easily), so what matters is what his head looks like to you. If you're

not happy with it, this is your chance to fix it. My son's head did

not round out on it's own, at least not significantly enough to skip

banding. So I'm glad we did eventually band him, but I would have been

happier banding him earlier on. I bet if you band him you will get

great results, and then when you look back at before and after photos,

the differences will be dramatic for you to see. Of course he's

perfect to you just the way he is, but it's our jobs as moms to do

everything we can to help our children because they cannot help

themselves, and if a band can give him a nice round head with no pain

and little problem, why not go for it?

That's just my take on it. Take it for what it's worth. Good luck!

Jake-20m (tort resolved/rt plagio/DOCBand 12 weeks)

Jordan-4

>

> I posted my sons head pics in the B section. This is the kid they

are

> saying is a 30 mm assemetry. I just dont see it! I forgot to enter

> his name so they are at the end under bryced2007. I was not able to

> figure out how to post the pics from Cranial Tech. Those are more

> detailed...if soemone knows how to post those, I will.

>

[Guest guest]

I say if his headshape bothers you at all, I would go for the band. I didn't see my daughters at first and she was high moderate to severe. I am so glad we banded her. Se wore a band from age 9 to 12 months. She is now in kindergarten and doing wonderful.

Good luck with your decision. He is adorable by the way.

Angie (Jenna STAR grad & Ky repo)

What do you think?

I posted my sons head pics in the B section. This is the kid they are saying is a 30 mm assemetry. I just dont see it! I forgot to enter his name so they are at the end under bryced2007. I was not able to figure out how to post the pics from Cranial Tech. Those are more detailed...if soemone knows how to post those, I will.

[Guest guest]

So, I am currently seeing 2 Rheums., obviously I have to make a choice, but then

I thought

what if the 2nd one isn't good either? So, I asked the hand specialist that I

saw to send his

report to both doctors. I called up the first doctor and told his admin. that

the hand

specialist advised me to seek a second opinion (true) and I was doing that and I

would be

back in touch with him.

5 minutes later I get a call back from HIM, claiming that he couldn't read his

admins.

writing, what was going on? I explained and he said, " Well, who are you seeing? "

I told him

and he said he knew her and wanted a report from her.

Then he said, " I don't want to lose you as a patient! " and I said, " Well I am

looking for

someone who will treat me aggressively. " " Well these aggressive drugs have side

effects! "

" Yes, but I was taking Humira and that had a lot of side effects as well. " (One

of which may

be lymphoma) I told him that I would get back to him after I saw the other

Rheum. (which

would be my second visit but he doesn't know that)

What did he mean when he said he didn't want to lose me as a patient? Lose my

money?

Does he really care about me as a patient? Does he want me to get better instead

of worse

like I get day by day? Does he want to dig until he figures out what is going on

with me?

This is what I want in a doctor.

DH thinks I now have some leverage with him, if he doesn't want to lose me he is

now

more likely to do what I want.

Thoughts, please?

Thanks,

[Guest guest]

I think that you answered him quite well. I think that if I were you,

I'd see the other doctor and see how you like her. Ask her how

aggressively she treats RA. Sometimes you just have a better rapport

with one doctor than with another. I think that you have a choice and

have an important decision to make. Let us know how the other

appointment goes.

Sue

On Wednesday, June 18, 2008, at 09:53 PM, wrote:

>

> Then he said, " I don't want to lose you as a patient! " and I said,

> " Well I am looking for

> someone who will treat me aggressively. " " Well these aggressive drugs

> have side effects! "

> " Yes, but I was taking Humira and that had a lot of side effects as

> well. " (One of which may

> be lymphoma) I told him that I would get back to him after I saw the

> other Rheum. (which

> would be my second visit but he doesn't know that)

[Guest guest]

It is hard for me to " down " the RD considering that we don't know everything. 

Before today have you came out and said exactly that you are willing to risk

side effects?  Have you been completely open with him about your expectations? 

Have you demonstrated that you are knowledgeable about your illness and can be

an equal partner in your health care?

 

Many times we don't vocalize our issues adequately, nor our expectations.  I

know I often go into the RD office and just state that I am doing ok.  Mind you

I don't know what you say at your RD appointments, but if they feel that you are

keeping status quo there really is no reason to change anything.

 

You should definitely seek second opinions, I think, for any life altering

health issue that is a prudent thing to do.  However, I think your RD may

actually care about your case.  I very much doubt that he is fueled by money (it

really isn't all that much that they get from you), if anything it is ego.

 

Don't think of this as leverage and about getting what you want.  Since you are

getting a second opinion, gather both doctor's advices and see what is going to

be in the best interest of your health, which is not necessarily what you want.

 

JMHO...

Shandi

From: <catdelouise@...>

Subject: [ ] What Do You Think?

Date: Wednesday, June 18, 2008, 9:53 PM

So, I am currently seeing 2 Rheums., obviously I have to make a choice, but then

I thought

what if the 2nd one isn't good either? So, I asked the hand specialist that I

saw to send his

report to both doctors. I called up the first doctor and told his admin. that

the hand

specialist advised me to seek a second opinion (true) and I was doing that and I

would be

back in touch with him.

5 minutes later I get a call back from HIM, claiming that he couldn't read his

admins.

writing, what was going on? I explained and he said, " Well, who are you seeing? "

I told him

and he said he knew her and wanted a report from her.

Then he said, " I don't want to lose you as a patient! " and I said, " Well I am

looking for

someone who will treat me aggressively. " " Well these aggressive drugs have side

effects! "

" Yes, but I was taking Humira and that had a lot of side effects as well. " (One

of which may

be lymphoma) I told him that I would get back to him after I saw the other

Rheum. (which

would be my second visit but he doesn't know that)

What did he mean when he said he didn't want to lose me as a patient? Lose my

money?

Does he really care about me as a patient? Does he want me to get better instead

of worse

like I get day by day? Does he want to dig until he figures out what is going on

with me?

This is what I want in a doctor.

DH thinks I now have some leverage with him, if he doesn't want to lose me he is

now

more likely to do what I want.

Thoughts, please?

Thanks,

[Guest guest]

Hi Lynn-

We (the moderators) don't have a problem with your business card

idea, as long as your ortho office is willing to put them out (I

imagine some may not be willing, so I would check before you put too

much work into them!). The only thing we would suggest would be to

add a disclaimer (or however you want to word it) that says the

Plagio board is a support/advice board for parents, and not a

substitution for medical advice, just so it's clear what our purpose

is. We'd love to welcome any new members you may bring in! Thanks

for your idea!

Jake-2 (DOCBand Grad 9/19/08)

Jordan-4.5

>

> I was wondering how you all would feel about this. I realized as

I

> was walking out from our scanning appointment that while I knew

what

> was going on and what would happen next and what it's like to have

a

> child with plagio & what it's like to go through the band

treatment

> and all-- not every parent coming out of those evaluations would--

> and I thought- I wish I could tell all those moms & dads about

this

> group--

>

> so I was thinking-

> would it be okay to print up a few business type cards (to be left

at

> the desk of the facility, with permission)that just said something

> like- " do you have questions about plagiocephaly? want to talk to

> other parents in the same situation? you can get your questions

> answered and talk to other parents on the positional plagiocephaly

> group online. new members welcome. " and have the url listed

on

> the card.

>

> not sure if this is a violation of things or not so moderators

please

> let me know-- and if it'd be better for me to make up a local

> group for plagio I could do that, too- and put cards out for that.

>

> it's just a brainstorm. I know for me one of the first things I

do

> when I'm faced with a new unknown is to google & search the heck

out

> of it- which is how I found all of you- but I don't think most

people

> are like that.

>

> anyhow. chime in, pipe in, give me your 2 cents. you all have

been

> so wonderful to me that I don't want to violate trust or

friendships,

> but if you think it's a good idea, I'd hate for others to miss out

> when they could at the least find some solidarity out there.

>

> okay. looking forward to feedback.

>

> lynn

> mom to:

> dylan, age 3yr, docband grad

> daphne & andrea, age 6mo, starband hopefuls

> northern indiana

>

[Guest guest]

The wording on our website says the following so you may want to include

something similar:

*Please note that any advice/comments from this site do not necessarily

voice the opinions of the group owner or moderators* **The information on

this website should not be used for medical advice. Medical or health advice

should be provided only by medical or health professionals.**

Molly

Novato, California

Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5.5

, 9

Re: what do you think?

Hi Lynn-

We (the moderators) don't have a problem with your business card

idea, as long as your ortho office is willing to put them out (I

imagine some may not be willing, so I would check before you put too

much work into them!). The only thing we would suggest would be to

add a disclaimer (or however you want to word it) that says the

Plagio board is a support/advice board for parents, and not a

substitution for medical advice, just so it's clear what our purpose

is. We'd love to welcome any new members you may bring in! Thanks

for your idea!

Jake-2 (DOCBand Grad 9/19/08)

Jordan-4.5

>

> I was wondering how you all would feel about this. I realized as

I

> was walking out from our scanning appointment that while I knew

what

> was going on and what would happen next and what it's like to have

a

> child with plagio & what it's like to go through the band

treatment

> and all-- not every parent coming out of those evaluations would--

> and I thought- I wish I could tell all those moms & dads about

this

> group--

>

> so I was thinking-

> would it be okay to print up a few business type cards (to be left

at

> the desk of the facility, with permission)that just said something

> like- " do you have questions about plagiocephaly? want to talk to

> other parents in the same situation? you can get your questions

> answered and talk to other parents on the positional plagiocephaly

> group online. new members welcome. " and have the url listed

on

> the card.

>

> not sure if this is a violation of things or not so moderators

please

> let me know-- and if it'd be better for me to make up a local

> group for plagio I could do that, too- and put cards out for that.

>

> it's just a brainstorm. I know for me one of the first things I

do

> when I'm faced with a new unknown is to google & search the heck

out

> of it- which is how I found all of you- but I don't think most

people

> are like that.

>

> anyhow. chime in, pipe in, give me your 2 cents. you all have

been

> so wonderful to me that I don't want to violate trust or

friendships,

> but if you think it's a good idea, I'd hate for others to miss out

> when they could at the least find some solidarity out there.

>

> okay. looking forward to feedback.

>

> lynn

> mom to:

> dylan, age 3yr, docband grad

> daphne & andrea, age 6mo, starband hopefuls

> northern indiana

>

------------------------------------

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