Re: Hi there, newbie here...need support system.

[Guest guest]

--- In , " crystals_zoo " <crystals_zoo@...>

wrote:

>

> Hi there, newbie here...need support system. I've got Spondylitis,

> osteo arthritis, fibromyalgia, etc,etc,etc, and virtually no support

> system. My family says " get over it " and don't believe me when I tell

> them I'm in pain. I have good days and bad days. I'm on Methotrexate,

> leucovor, prednizone, cymbalta, and more. I have two little dogs who

> love me though and encourage mee to walk them, often, even if it is

> only around the block. They just know they get to go walking. I've

> also had back surgery, neck surgery, and synvisc injections, that

> didn't help very much. I really need someone to vent with, talk to,

> and just to understand what I go thru each day. Thanks.

> Crystal

>

Welcome Crystal to this wonderful caring group. I found this site, and

am so very glad I did. Sorry to hear your family doesn't understand what

you are going through, and the pain you are having. Sure do wish we

" could get over it, and not be sick and in so much pain and suffering " .

There are lots of people out there that just don't get what we are

dealing with every day. I am sure that is very hard for you.Thank

goodness you have your 2 wonderful dogs. I know they know what you are

feeling.Animals can sense that about us.It is good you can even take

them out for a short walk.Pets are a great source of comfort.You can say

whatever is bothering you, vent and talk here when you want to.We all

care, been through it all, and sure do understand.Hope this helps you.I

care, and wish you pain free days.

Hugs,

Barbara

[Guest guest]

Hi Crystal,

A newbie here myself. I empathize with you, especially about the " no

support " part. It's hard. I am isolated--at one time by choice, now

it seems to be by necessity. I have no family support either-a mother

(87) who just doesn't " get it " (I have fibromyalgia, osteoarthritis,

degenerative disc disease, bursitis, chronic pain, tiredness,

depression, etc., etc.), and a son who virtually ignores It/me, maybe

in the hope that It/I will go away! I just received a Disability

Award. That means I'm " disabled " - which means I can't work, do things

I used to do. I feel my son and his family don't trust me to be around

my twin granddaughters. It hurts! Please feel free to vent to me at

any time.

Barbra

--- In , " crystals_zoo " <crystals_zoo@...>

wrote:

>

> Hi there, newbie here...need support system. I've got Spondylitis,

> osteo arthritis, fibromyalgia, etc,etc,etc, and virtually no support

> system. My family says " get over it " and don't believe me when I

tell

> them I'm in pain. I have good days and bad days. I'm on

Methotrexate,

> leucovor, prednizone, cymbalta, and more. I have two little dogs who

> love me though and encourage mee to walk them, often, even if it is

> only around the block. They just know they get to go walking. I've

> also had back surgery, neck surgery, and synvisc injections, that

> didn't help very much. I really need someone to vent with, talk to,

> and just to understand what I go thru each day. Thanks.

> Crystal

>

[Guest guest]

How long did you have to wait before you were awarded Social Security

Disability? Did you have to hire a lawyer? gentle hugs! Marcia in Western New

York State

[Guest guest]

HI BARBARA & CRYSTAL, WELCOME! you know what, if the two of you feel like there's

no support from either side of your family's the two of you got us here at the

ra group. WE CARE & WE WILL BE THERE!! do either of you have friends to count

on? they too r a great support system!! ever need to vent, i'll be HERE! god

bless,melyndagamez

[ ] Re: Hi there, newbie here...need support system.

Hi Crystal,

A newbie here myself.  I empathize with you, especially about the " no

support " part.  It's hard..  I am isolated--at one time by choice, now

it seems to be by necessity.  I have no family support either-a mother

(87) who just doesn't " get it " (I have fibromyalgia, osteoarthritis,

degenerative disc disease, bursitis, chronic pain, tiredness,

depression, etc., etc.), and a son who virtually ignores It/me, maybe

in the hope that It/I will go away!  I just received a Disability

Award.  That means I'm " disabled " - which means I can't work, do things

I used to do.  I feel my son and his family don't trust me to be around

my twin granddaughters.  It hurts!  Please feel free to vent to me at

any time.

Barbra

--- In , " crystals_zoo " <crystals_zoo@...>

wrote:

>

> Hi there, newbie here...need support system.  I've got Spondylitis,

> osteo arthritis, fibromyalgia, etc,etc,etc, and virtually no support

> system.  My family says " get over it " and don't believe me when I

tell

> them I'm in pain.  I have good days and bad days.  I'm on

Methotrexate,

> leucovor, prednizone, cymbalta, and more.  I have two little dogs who

> love me though and encourage mee to walk them, often,  even if it is

> only around the block.  They just know they get to go walking.  I've

> also had back surgery, neck surgery, and synvisc injections, that

> didn't help very much.  I really need someone to vent with, talk to,

> and just to understand what I go thru each day.  Thanks.

> Crystal

>

------------------------------------

[Guest guest]

Hi,

No I have no friends either. I've managed to alienate any friends I

had because of depression. At one time, it was my choice not to be

with people--now it has become a necessity! I am reluctant to " plan "

anything with anyone--even what family I do have--because of the

unpredictably of my fibro and pain, tiredness, depression, etc. I am

glad I found this support group.

I saw a message asking how long it took to get Disability from SSA.

I don't know if it was directed to me, but it didn't take very long

at all. Just about 3 months, and, no, I didn't have to hire a

lawyer. I was rather surprised. I think being thorough with your

answers and having been sent to an osteopath and psychiatrist who

understood what was going on with me (by SSA) was a great help.

Barbara

> >

> > Hi there, newbie here...need support system.  I've got

Spondylitis,

> > osteo arthritis, fibromyalgia, etc,etc,etc, and virtually no

support

> > system.  My family says " get over it " and don't believe me when I

> tell

> > them I'm in pain.  I have good days and bad days.  I'm on

> Methotrexate,

> > leucovor, prednizone, cymbalta, and more.  I have two little dogs

who

> > love me though and encourage mee to walk them, often,  even if it

is

> > only around the block.  They just know they get to go walking. 

I've

> > also had back surgery, neck surgery, and synvisc injections, that

> > didn't help very much.  I really need someone to vent with, talk

to,

> > and just to understand what I go thru each day.  Thanks.

> > Crystal

> >

>

>

>

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>

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