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>

> I will check it out with his doctor. I will ask him to send us to a

plastic surgeon.

> I look at him right now and he is so happy and cooing so lovely.It

just breaks my heart that he will need to wear a helmet..is that

hurting?will he be in pain?

No bands don't hurt. I don't know how much the others weigh, but a

DOC Band is 6 oz at the most. My kids' clothes weighed more than the

band.

FYI, if you are going to see a plastic surgeon you may have a wait.

Around here it takes 1-2 mo just to get in.

Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

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>

> I will check it out with his doctor. I will ask him to send us to a

plastic surgeon.

> I look at him right now and he is so happy and cooing so lovely.It

just breaks my heart that he will need to wear a helmet..is that

hurting?will he be in pain?

No bands don't hurt. I don't know how much the others weigh, but a

DOC Band is 6 oz at the most. My kids' clothes weighed more than the

band.

FYI, if you are going to see a plastic surgeon you may have a wait.

Around here it takes 1-2 mo just to get in.

Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

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I said i will see a plastic surgeon..now, I don't know...I will call

his doctor tomorrow and I hope we will have an appt for his helmet

or band as soon as possible maybe even without the plastic surgeon.

I'm glad he won't be hurt by the helmet and that the helmet is not

heavy. But will he still have to have his tummy time? He absolutly

hates the tummy time...he tries to crawl and he gets frustrated

because he can't yet..he is only 4 month and 2 weeks old and he is

the most adorable baby :)

Andra

> >

> > I will check it out with his doctor. I will ask him to send us

to a

> plastic surgeon.

> > I look at him right now and he is so happy and cooing so

lovely.It

> just breaks my heart that he will need to wear a helmet..is that

> hurting?will he be in pain?

>

>

> No bands don't hurt. I don't know how much the others weigh, but

a

> DOC Band is 6 oz at the most. My kids' clothes weighed more than

the

> band.

> FYI, if you are going to see a plastic surgeon you may have a

wait.

> Around here it takes 1-2 mo just to get in.

>

> Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

>

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I said i will see a plastic surgeon..now, I don't know...I will call

his doctor tomorrow and I hope we will have an appt for his helmet

or band as soon as possible maybe even without the plastic surgeon.

I'm glad he won't be hurt by the helmet and that the helmet is not

heavy. But will he still have to have his tummy time? He absolutly

hates the tummy time...he tries to crawl and he gets frustrated

because he can't yet..he is only 4 month and 2 weeks old and he is

the most adorable baby :)

Andra

> >

> > I will check it out with his doctor. I will ask him to send us

to a

> plastic surgeon.

> > I look at him right now and he is so happy and cooing so

lovely.It

> just breaks my heart that he will need to wear a helmet..is that

> hurting?will he be in pain?

>

>

> No bands don't hurt. I don't know how much the others weigh, but

a

> DOC Band is 6 oz at the most. My kids' clothes weighed more than

the

> band.

> FYI, if you are going to see a plastic surgeon you may have a

wait.

> Around here it takes 1-2 mo just to get in.

>

> Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

>

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Andra,

Let us know what your ped says. Yes, he still needs to have his tummy

time. It's really important to his development. Keep us posted.

> > >

> > > I will check it out with his doctor. I will ask him to send us

> to a

> > plastic surgeon.

> > > I look at him right now and he is so happy and cooing so

> lovely.It

> > just breaks my heart that he will need to wear a helmet..is that

> > hurting?will he be in pain?

> >

> >

> > No bands don't hurt. I don't know how much the others weigh, but

> a

> > DOC Band is 6 oz at the most. My kids' clothes weighed more than

> the

> > band.

> > FYI, if you are going to see a plastic surgeon you may have a

> wait.

> > Around here it takes 1-2 mo just to get in.

> >

> > Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

> >

>

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Andra,

Let us know what your ped says. Yes, he still needs to have his tummy

time. It's really important to his development. Keep us posted.

> > >

> > > I will check it out with his doctor. I will ask him to send us

> to a

> > plastic surgeon.

> > > I look at him right now and he is so happy and cooing so

> lovely.It

> > just breaks my heart that he will need to wear a helmet..is that

> > hurting?will he be in pain?

> >

> >

> > No bands don't hurt. I don't know how much the others weigh, but

> a

> > DOC Band is 6 oz at the most. My kids' clothes weighed more than

> the

> > band.

> > FYI, if you are going to see a plastic surgeon you may have a

> wait.

> > Around here it takes 1-2 mo just to get in.

> >

> > Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

> >

>

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Hi .

What is better..Starband or Docband? Or the helmets?

From what I understand in Grand Rapids they have only bands...can I

go on my own without my doctor's aproval to get Matt's helmet or

band?Will the insurance company pay in this case?

What is the procedure?

Andra

> > > >

> > > > I will check it out with his doctor. I will ask him to send

us

> > to a

> > > plastic surgeon.

> > > > I look at him right now and he is so happy and cooing so

> > lovely.It

> > > just breaks my heart that he will need to wear a helmet..is

that

> > > hurting?will he be in pain?

> > >

> > >

> > > No bands don't hurt. I don't know how much the others weigh,

but

> > a

> > > DOC Band is 6 oz at the most. My kids' clothes weighed more

than

> > the

> > > band.

> > > FYI, if you are going to see a plastic surgeon you may have a

> > wait.

> > > Around here it takes 1-2 mo just to get in.

> > >

> > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

> > >

> >

>

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Hi .

What is better..Starband or Docband? Or the helmets?

From what I understand in Grand Rapids they have only bands...can I

go on my own without my doctor's aproval to get Matt's helmet or

band?Will the insurance company pay in this case?

What is the procedure?

Andra

> > > >

> > > > I will check it out with his doctor. I will ask him to send

us

> > to a

> > > plastic surgeon.

> > > > I look at him right now and he is so happy and cooing so

> > lovely.It

> > > just breaks my heart that he will need to wear a helmet..is

that

> > > hurting?will he be in pain?

> > >

> > >

> > > No bands don't hurt. I don't know how much the others weigh,

but

> > a

> > > DOC Band is 6 oz at the most. My kids' clothes weighed more

than

> > the

> > > band.

> > > FYI, if you are going to see a plastic surgeon you may have a

> > wait.

> > > Around here it takes 1-2 mo just to get in.

> > >

> > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

> > >

> >

>

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Andra,

They're both really great products. With the STARband you're going to

have to do your homework. Throughtly interview any potential

orthotisits. You need to know how many babies he/she has treated

successfully. You want before and after pictures of babies he/she has

treated successfully. You'd also like some references from past

clients. If an ortho can't provide at least the first 2 of these

things, then I think you need to find a different ortho. Most places

yes you can go on your own but in order for your baby to be casted for

a band or a helmet you need a prescription from your pediatrician. In

some cases insurance does pay. Call your insurance company and ask

them. Good luck and please keep us posted.

> > > > >

> > > > > I will check it out with his doctor. I will ask him to send

> us

> > > to a

> > > > plastic surgeon.

> > > > > I look at him right now and he is so happy and cooing so

> > > lovely.It

> > > > just breaks my heart that he will need to wear a helmet..is

> that

> > > > hurting?will he be in pain?

> > > >

> > > >

> > > > No bands don't hurt. I don't know how much the others weigh,

> but

> > > a

> > > > DOC Band is 6 oz at the most. My kids' clothes weighed more

> than

> > > the

> > > > band.

> > > > FYI, if you are going to see a plastic surgeon you may have a

> > > wait.

> > > > Around here it takes 1-2 mo just to get in.

> > > >

> > > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

> > > >

> > >

> >

>

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Andra,

They're both really great products. With the STARband you're going to

have to do your homework. Throughtly interview any potential

orthotisits. You need to know how many babies he/she has treated

successfully. You want before and after pictures of babies he/she has

treated successfully. You'd also like some references from past

clients. If an ortho can't provide at least the first 2 of these

things, then I think you need to find a different ortho. Most places

yes you can go on your own but in order for your baby to be casted for

a band or a helmet you need a prescription from your pediatrician. In

some cases insurance does pay. Call your insurance company and ask

them. Good luck and please keep us posted.

> > > > >

> > > > > I will check it out with his doctor. I will ask him to send

> us

> > > to a

> > > > plastic surgeon.

> > > > > I look at him right now and he is so happy and cooing so

> > > lovely.It

> > > > just breaks my heart that he will need to wear a helmet..is

> that

> > > > hurting?will he be in pain?

> > > >

> > > >

> > > > No bands don't hurt. I don't know how much the others weigh,

> but

> > > a

> > > > DOC Band is 6 oz at the most. My kids' clothes weighed more

> than

> > > the

> > > > band.

> > > > FYI, if you are going to see a plastic surgeon you may have a

> > > wait.

> > > > Around here it takes 1-2 mo just to get in.

> > > >

> > > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads)

> > > >

> > >

> >

>

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  • 6 months later...
Guest guest

i'm so glad you saw a doctor too!! go get hitched and get those tests done! ;)

hopefully you don't have anything serious, but if you do you can treat it and

recover and live a blissful married life!

good luck and keep us posted.

:) kelly

Olif <OVanPelt@...> wrote:

I went to the naturopath today, and I am really glad that I went. She

seemed impressed with all the work I have done regarding diet, antifungals, etc.

It is highly possible that I have Hodgkin's Lymphoma. My top 3 symptoms are

fatigue, one swollen gland (that I never thought too much about), and night

sweats (that I honestly never thought too much about and came up almost by

chance in our conversation). Obviously I need to have several tests done to

confirm this. I also have no insurance.

On a brighter note, I have plans to get married within a year and will have

insurance. The doctor strongly encouraged us to get married ASAP and get the

tests done. We will more than likely be doing this.

If you have been dealing with problems for any length of time and don't seem to

be getting any better, I really urge you to get to a good doctor/naturopath. I

have been self treating for a year now. Although I have done a good job so far

(she seemed pretty impressed), how long would it have taken me to come up with

something like Hodgkin's Lymphoma?! Possibly too long...

I really hope this helps someone!

-Olif

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Guest guest

What do you think about getting married right now, by a Judge?

You can have a huge wedding or party later.......

Your doctor may be wrong, but what about paying for a test out of

pocket,(your insurance will never know) just to see what's going on.

Maybe you should have health insurance right now.

I believe if we follow that little voice inside, we are usually okay.

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Guest guest

Thanks, and !

We are going to get married within a month or so. We have to apply for our

marriage license, and I don't know what the waiting period is.

My ND also suspected toxins, and I forgot to tell her about mold that is growing

in our bathroom! I emailed her to let her know, and it is something she

definitely wants me to get checked out. I seem to be the only one effected

though, but this would explain my extreme fatigue with diet not helping.

Duncan, do you know anything about mold illnesses? It is " a " black mold but

probably not " the " black mold. I suspect it originated in the basement, and it

is in the 2nd floor bathroom, which means it is probably throughout the house.

It has been in the house since we moved in (actually it started a few weeks

afterwards because they painted to cover it up!). We have lived here for 4

years, and I have been extremely fatigued for 1 year. Any help would be greatly

appreciated!

Thanks,

Olif

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Guest guest

Hi! I am new to this forum. I have been dealing with Candida for over a decade

and would

like to find out how you obtain a naturopath. I live in NYC but I don't know

where to start.

Thanks for any input in this,

---------------------------------------------------------------

> Olif <OVanPelt@...> wrote:

> I went to the naturopath today, and I am really glad that I went.

She seemed

impressed with all the work I have done regarding diet, antifungals, etc. It is

highly

possible that I have Hodgkin's Lymphoma. My top 3 symptoms are fatigue, one

swollen

gland (that I never thought too much about), and night sweats (that I honestly

never

thought too much about and came up almost by chance in our conversation).

Obviously I

need to have several tests done to confirm this. I also have no insurance.

>

> On a brighter note, I have plans to get married within a year and will have

insurance.

The doctor strongly encouraged us to get married ASAP and get the tests done. We

will

more than likely be doing this.

>

> If you have been dealing with problems for any length of time and don't seem

to be

getting any better, I really urge you to get to a good doctor/naturopath. I have

been self

treating for a year now. Although I have done a good job so far (she seemed

pretty

impressed), how long would it have taken me to come up with something like

Hodgkin's

Lymphoma?! Possibly too long...

>

> I really hope this helps someone!

>

> -Olif

>

>

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Guest guest

In my area, some aspergillus growth made health authorities

declare unsafe, then clean up, couple of dozen homes on the

Indian reserve, and renovate the homes to prevent further

occurrence; they even replaced several homes.

The most common black mold I think is aspergillus niger, which

isn't as likely to cause illness, but I think that it could

present an additional inflammation burden even without producing

identifiable toxic symptoms.

Duncan

> Duncan, do you know anything about mold illnesses? It is " a " black

> mold but probably not " the " black mold. I suspect it originated in the

> basement, and it is in the 2nd floor bathroom, which means it is

> probably throughout the house. It has been in the house since we moved

> in (actually it started a few weeks afterwards because they painted to

> cover it up!). We have lived here for 4 years, and I have been

> extremely fatigued for 1 year. Any help would be greatly appreciated!

>

> Thanks,

> Olif

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Guest guest

Elaine -

Welcome! And please know that each and every one of us who have had

revision surgery were scared to death also....but the joys of

getting some type of normalacy back in our lives - meaning more or

less pain/deformity free - have made us realize it was all worth

it. Surgery is certainly no joy, but has changed so drastically

over the years since we all had our first one as teens that there is

absolutely no comparison. And please let us know what Dr. Ondra has

to say once you talk to him again!

In Faith -

~CA ~

>

> I've only posted about twice on this site but have read a lot of

the

> other post. I had two harrington rod surgeries when I was a

> teenager. I have a total of 5 rods with 1 maybe 2 of them broken.

> The one that broke about 25 years ago migrated down and has

> implanted itself in my pelvis. I have been miserable for the last

> few years and have really gotten a lot worse in the last year. I

> finally decided to see a doctor and find out if they could do

> anything. I was luckly enought to find a neurosurgeon here in

> Oklahoma City who knew what was wrong and that he couldn't help

me.

> He referred me to Dr. Ondra in Chicago. I saw Dr. Ondra on July

> 10th. I really liked him and he told me the pros and cons of

having

> surgery. He told me I needed to think it over and if I decided I

> wanted to proceed he would operate on my my back. He said he

thought

> I would need two surgeries. One on my upper back and then one on

the

> lower back. I am going to proceed and I am now waiting for him to

> call me. He sent me for a CT and said after he studied that he

would

> call and tell me exactly what he could do and we could talk about

> scheduling. I am anxious to get on with it now that I have decided

I

> want to have surgery. However I am also scared to death. I am fine

> during the day but at night I lay awake and wonder if it is the

> right thing and almost have a panic attack thinking about actually

> having surgery again. I am glad to have found a place where so

many

> are going through the same kind of experiences. I pray all goes

well

> for everyone and we all find some relief.

> Elaine

>

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Guest guest

Elaine,

It is a huge step when we hear that you think you have found the

right surgeon and are approaching the idea of surgery. yhankyou for

joining in and telling us.

I just want to say that what you are feeling right now seems like

is pretty normal for most of us. Going through a period of doubt and

anguish about this decision seems almost necessary in order to be

able to feel " right " about your decision when you get into those

early post-surgery days when every fiber of your being is going to

tell you that you have made a huge mistake. But with any small

amount of luck, you should find some relief and a better quality of

life on the " other side " . There are studies that support what most I

think the consenus in this group is....the surgery may not be

perfect...but it is way better than where most of us were before.

I don't know much about panic attacks, but others have expressed

smililar feelings in the months leading up to scheduled surgery and

some were offered medication to help calm themselves. If you feel

very unsettled for long you may want to talk to your surgeon or PCP

about this option. It will not help if you loose sleep for months

before surgery and have yourself in a totally wiped out state!

If there was one thing I wish for us all it would be a comprehensive

exploration of the psychological effects of undergoing our original

surgeries and facing them again many years later. I think the ghosts

of our teenaged selves coming back after most of us have

conveniently and neatly put them away in a closet...and this may

have a big role in our inability to move forward.

That said...I think you have every reason to hope that your surgery

will get you where you wish and know that we are all hoping that for

you as well.

Take Care, Cam

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Guest guest

--Elaine,

I had what I guess you could call panic attacks before surgery. I

told Dr.Rand's office and he prescribed something for me, it helped

alot. It is normal to feel like you are going out of your tree before

this surgery. I swore I would have a breakdown before I made it to

surgery, with the kids, getting everything settled before I left

town, I live outside Phila. and traveled to Boston to have surgery.

Don't be afraid to ask the doctors office for help. , PA

- In , " cammaltby " <cammaltby@...>

wrote:

>

> Elaine,

>

> It is a huge step when we hear that you think you have found the

> right surgeon and are approaching the idea of surgery. yhankyou for

> joining in and telling us.

>

> I just want to say that what you are feeling right now seems like

> is pretty normal for most of us. Going through a period of doubt

and

> anguish about this decision seems almost necessary in order to be

> able to feel " right " about your decision when you get into those

> early post-surgery days when every fiber of your being is going to

> tell you that you have made a huge mistake. But with any small

> amount of luck, you should find some relief and a better quality of

> life on the " other side " . There are studies that support what most

I

> think the consenus in this group is....the surgery may not be

> perfect...but it is way better than where most of us were before.

>

> I don't know much about panic attacks, but others have expressed

> smililar feelings in the months leading up to scheduled surgery and

> some were offered medication to help calm themselves. If you feel

> very unsettled for long you may want to talk to your surgeon or PCP

> about this option. It will not help if you loose sleep for months

> before surgery and have yourself in a totally wiped out state!

>

> If there was one thing I wish for us all it would be a

comprehensive

> exploration of the psychological effects of undergoing our original

> surgeries and facing them again many years later. I think the

ghosts

> of our teenaged selves coming back after most of us have

> conveniently and neatly put them away in a closet...and this may

> have a big role in our inability to move forward.

>

> That said...I think you have every reason to hope that your surgery

> will get you where you wish and know that we are all hoping that

for

> you as well.

>

> Take Care, Cam

>

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Guest guest

Thanks for the kind words. I may get to the place I want to take

something to help me calm down. Right now it just some nights that I

feel panicy. Now that I have finally got to the place I am thinking

surgery I just want to move forward. If we could decide to have this

hugh surgery and then do so in the town we live in it would be a

hugh benefit. I know most everyone has to travel as I do and that

create hugh obstacles as well. After seeing that so many of you have

found ways to do this it gave me the motivation to try as well. Now

I am finding how blessed my life really is because so many friends

and family members are offering to help.

-- In , " heatherbenjaminnicholas "

<heatherbenjaminnicholas@...> wrote:

>

> --Elaine,

> I had what I guess you could call panic attacks before surgery. I

> told Dr.Rand's office and he prescribed something for me, it

helped

> alot. It is normal to feel like you are going out of your tree

before

> this surgery. I swore I would have a breakdown before I made it to

> surgery, with the kids, getting everything settled before I left

> town, I live outside Phila. and traveled to Boston to have

surgery.

> Don't be afraid to ask the doctors office for help. , PA

>

>

> - In , " cammaltby " <cammaltby@>

> wrote:

> >

> > Elaine,

> >

> > It is a huge step when we hear that you think you have found the

> > right surgeon and are approaching the idea of surgery. yhankyou

for

> > joining in and telling us.

> >

> > I just want to say that what you are feeling right now seems

like

> > is pretty normal for most of us. Going through a period of doubt

> and

> > anguish about this decision seems almost necessary in order to

be

> > able to feel " right " about your decision when you get into those

> > early post-surgery days when every fiber of your being is going

to

> > tell you that you have made a huge mistake. But with any small

> > amount of luck, you should find some relief and a better quality

of

> > life on the " other side " . There are studies that support what

most

> I

> > think the consenus in this group is....the surgery may not be

> > perfect...but it is way better than where most of us were before.

> >

> > I don't know much about panic attacks, but others have expressed

> > smililar feelings in the months leading up to scheduled surgery

and

> > some were offered medication to help calm themselves. If you

feel

> > very unsettled for long you may want to talk to your surgeon or

PCP

> > about this option. It will not help if you loose sleep for

months

> > before surgery and have yourself in a totally wiped out state!

> >

> > If there was one thing I wish for us all it would be a

> comprehensive

> > exploration of the psychological effects of undergoing our

original

> > surgeries and facing them again many years later. I think the

> ghosts

> > of our teenaged selves coming back after most of us have

> > conveniently and neatly put them away in a closet...and this may

> > have a big role in our inability to move forward.

> >

> > That said...I think you have every reason to hope that your

surgery

> > will get you where you wish and know that we are all hoping that

> for

> > you as well.

> >

> > Take Care, Cam

> >

>

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Guest guest

If you really want to stay in OKC, you could visit with Dr

and see if you like his plan.

> > >

> > > Elaine,

> > >

> > > It is a huge step when we hear that you think you have found

the

> > > right surgeon and are approaching the idea of surgery.

yhankyou

> for

> > > joining in and telling us.

> > >

> > > I just want to say that what you are feeling right now seems

> like

> > > is pretty normal for most of us. Going through a period of

doubt

> > and

> > > anguish about this decision seems almost necessary in order to

> be

> > > able to feel " right " about your decision when you get into

those

> > > early post-surgery days when every fiber of your being is

going

> to

> > > tell you that you have made a huge mistake. But with any small

> > > amount of luck, you should find some relief and a better

quality

> of

> > > life on the " other side " . There are studies that support what

> most

> > I

> > > think the consenus in this group is....the surgery may not be

> > > perfect...but it is way better than where most of us were

before.

> > >

> > > I don't know much about panic attacks, but others have

expressed

> > > smililar feelings in the months leading up to scheduled

surgery

> and

> > > some were offered medication to help calm themselves. If you

> feel

> > > very unsettled for long you may want to talk to your surgeon

or

> PCP

> > > about this option. It will not help if you loose sleep for

> months

> > > before surgery and have yourself in a totally wiped out state!

> > >

> > > If there was one thing I wish for us all it would be a

> > comprehensive

> > > exploration of the psychological effects of undergoing our

> original

> > > surgeries and facing them again many years later. I think the

> > ghosts

> > > of our teenaged selves coming back after most of us have

> > > conveniently and neatly put them away in a closet...and this

may

> > > have a big role in our inability to move forward.

> > >

> > > That said...I think you have every reason to hope that your

> surgery

> > > will get you where you wish and know that we are all hoping

that

> > for

> > > you as well.

> > >

> > > Take Care, Cam

> > >

> >

>

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  • 11 months later...
Guest guest

Our thoughts and prayers are with you.

Create a great day

doctor visit

My name is Mike I just came back from the doctor.The doctor may want

to put me back on treatment. My hepC came back. This is an agonizing

decision. Because I just started to make payments on my new home . I

just got transfered to Lakeland fl from Clearwater Fl. Everything is

going great.But if I go back to treatment, there is no way I would be

able to work. I went through this the last time. I am trying to seek

other medications with out the side effects.For now I am just waiting

for my records to get to my new doctor.If I am in stage one (fibrosis)

I can wait awhile. I hope so. wish me luck Mike

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

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Guest guest

Our thoughts and prayers are with you.

Create a great day

doctor visit

My name is Mike I just came back from the doctor.The doctor may want

to put me back on treatment. My hepC came back. This is an agonizing

decision. Because I just started to make payments on my new home . I

just got transfered to Lakeland fl from Clearwater Fl. Everything is

going great.But if I go back to treatment, there is no way I would be

able to work. I went through this the last time. I am trying to seek

other medications with out the side effects.For now I am just waiting

for my records to get to my new doctor.If I am in stage one (fibrosis)

I can wait awhile. I hope so. wish me luck Mike

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Games.

http://sims./

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