Plaquanil! - Re: Humira, Imuran, Plaquenil

[Guest guest]

Stella,

 

I too, am off all meds - other than celebrex.  I envy those that can take them.

For me personally the side effects and how my body reacts to the medications are

worse than the significant joint damage I experience.

 

My Doc said he know people in their 90's in wheelchairs enjoying their families

on Xmas morning.

 

He does not want to see me die due to the horrid side efeects I was having.

 

None of these decisions are easy for any of us. We must listen to our bodies

and act accordinglly.

 

Many blessings....

Raniolo

From: nana2livi <s.p5315@...>

Subject: [ ] Plaquanil! - Re: Humira, Imuran, Plaquenil

Date: Saturday, September 13, 2008, 1:20 PM

Stella,

That is horrible, so sorry, to hear this. You're without any RA meds?

Let us know how you do.

Shirley

>

> Bonnie and Group,

>

> Plaquanil put me in the hospital for 2 days last week. One of the

> side effects that can happen is muscle weakness. I reached the

point

> where I collapsed and could hardly even whisper a sound. Had to

call

> 911... Be careful with ALL RA meds...I wonder if they can do more

> harm in the long run than do good. I got off of all the RA meds.

> And my PCP and Rheumy didn't listen to my complaints at all , only

> the neuralogist who was called in to see me listened to what I had

to

> say. To the end my PCP said I was severly depressed and it was

> causing my weakness. Said I need to work with the doctor and help

my

> self to get stronger and get out and walk and socialize. What

> garbage! These docs are going to get copies of letters I'll write

to

> the head of their practice groups. I am so angry that I'm

smoking.

> A few days off of Plaqunil and I started feeling better. Then

stopped

> methotrexate and Sulfasalazine.

>

> Be Very Careful of ALL these meds and gentle hugs.

>

> Stella

>

[Guest guest]

and Shirley,

Interesting that when I was weak and fatigued, I didn't experience

much pain or none at all. When I was in a lot of pain, I didn't have

much fatigue and weakness. One or the other. I'd rather experience

the latter. Weakness shuts down the whole body and brain. I'd rather

be without meds for RA. I've had these symptom for a many years

before any of these meds and it came and went (except the

methotrexate in my chemo treatment in 2005 for breast cancer-I felt

extra weak during treatment and for a long while after it-actually

like I never got my self back). So now I'll just have to wait and

see how it all works out.

Stella Farnsworth

> >

> > Bonnie and Group,

> >

> > Plaquanil put me in the hospital for 2 days last week. One of the

> > side effects that can happen is muscle weakness. I reached the

> point

> > where I collapsed and could hardly even whisper a sound. Had to

> call

> > 911... Be careful with ALL RA meds...I wonder if they can do more

> > harm in the long run than do good. I got off of all the RA meds.

> > And my PCP and Rheumy didn't listen to my complaints at all ,

only

> > the neuralogist who was called in to see me listened to what I

had

> to

> > say. To the end my PCP said I was severly depressed and it was

> > causing my weakness. Said I need to work with the doctor and help

> my

> > self to get stronger and get out and walk and socialize. What

> > garbage! These docs are going to get copies of letters I'll write

> to

> > the head of their practice groups. I am so angry that I'm

> smoking.

> > A few days off of Plaqunil and I started feeling better. Then

> stopped

> > methotrexate and Sulfasalazine.

> >

> > Be Very Careful of ALL these meds and gentle hugs.

> >

> > Stella

> >

>

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