Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 If she was my daughter I would want a second opinion. It may not change the outcome, but I would want it. I pray the celebrex gives her some relief. I would run all of this information by her primary. If she doesn't get relief soon, don't hesitate to speak up. Sometimes doctors are slow to understand just how much pain we are in. Pain can also be a gauge for progression and treatment. I will keep both of you in my prayers. Shirley > > Well today we saw the RA Specialist...he did some more indepth blood > work, for lupus. On her initial visit we didn't think she had RA so he > tested for lupus. Well the test came back positive. we just got the > news today and we are soaking it all in. she was also told she has > sjogrens also. she will start plaquenil after she gets her eyes checked > and he started her on celebrx today to help in her pain. > she is VERY stiff, can't walk well, stand up, take her shirt off, put > on her book bag, get out of a car. all this simple things she is having > a very hard time with. we hope she gets relief soon. we are also > debating on getting a second opinion. we are also waiting to hear back > from her primary doc to give her the news...and ask her opinion...and > thoughts on this is appreciated... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Molly, Sorry to hear the bad news. I know it's a lot to take in, just know were all here for you, and your daughter. Tawny > > Well today we saw the RA Specialist...he did some more indepth blood > work, for lupus. On her initial visit we didn't think she had RA so he > tested for lupus. Well the test came back positive. we just got the > news today and we are soaking it all in. she was also told she has > sjogrens also. she will start plaquenil after she gets her eyes checked > and he started her on celebrx today to help in her pain. > she is VERY stiff, can't walk well, stand up, take her shirt off, put > on her book bag, get out of a car. all this simple things she is having > a very hard time with. we hope she gets relief soon. we are also > debating on getting a second opinion. we are also waiting to hear back > from her primary doc to give her the news...and ask her opinion...and > thoughts on this is appreciated... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Thank you Tawny...it helps alot.... right now she dont have many questions...she is a quiet gal. thank you again! > > > > Well today we saw the RA Specialist...he did some more indepth > blood > > work, for lupus. On her initial visit we didn't think she had RA so > he > > tested for lupus. Well the test came back positive. we just got the > > news today and we are soaking it all in. she was also told she has > > sjogrens also. she will start plaquenil after she gets her eyes > checked > > and he started her on celebrx today to help in her pain. > > she is VERY stiff, can't walk well, stand up, take her shirt off, > put > > on her book bag, get out of a car. all this simple things she is > having > > a very hard time with. we hope she gets relief soon. we are also > > debating on getting a second opinion. we are also waiting to hear > back > > from her primary doc to give her the news...and ask her > opinion...and > > thoughts on this is appreciated... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 thanks Shirley, allprayers are welcome. I hope to talk to the primary doc today. give her all the details i have. thanks again! > > > > Well today we saw the RA Specialist...he did some more indepth > blood > > work, for lupus. On her initial visit we didn't think she had RA > so he > > tested for lupus. Well the test came back positive. we just got > the > > news today and we are soaking it all in. she was also told she has > > sjogrens also. she will start plaquenil after she gets her eyes > checked > > and he started her on celebrx today to help in her pain. > > she is VERY stiff, can't walk well, stand up, take her shirt off, > put > > on her book bag, get out of a car. all this simple things she is > having > > a very hard time with. we hope she gets relief soon. we are also > > debating on getting a second opinion. we are also waiting to hear > back > > from her primary doc to give her the news...and ask her > opinion...and > > thoughts on this is appreciated... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Molly My prayers are with you and your daughter. The Lupus foundation has a great web-site. You may be able to learn from there. My Mother had Lupus and she had many years where she only felt bad a day or two out of the week. I hope they find somthing to help her. Heidi M On Tue, Sep 16, 2008 at 6:01 PM, molly1762 <molly1762@...> wrote: > Well today we saw the RA Specialist...he did some more indepth blood > work, for lupus. On her initial visit we didn't think she had RA so he > tested for lupus. Well the test came back positive. we just got the > news today and we are soaking it all in. she was also told she has > sjogrens also. she will start plaquenil after she gets her eyes checked > and he started her on celebrx today to help in her pain. > she is VERY stiff, can't walk well, stand up, take her shirt off, put > on her book bag, get out of a car. all this simple things she is having > a very hard time with. we hope she gets relief soon. we are also > debating on getting a second opinion. we are also waiting to hear back > from her primary doc to give her the news...and ask her opinion...and > thoughts on this is appreciated... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Thanks Heidi...i have been to the website and it is great. i am still trying to learn all i can... the future is a bit scary but we will deal just fine...most days anyway... thanks!! > > > Well today we saw the RA Specialist...he did some more indepth blood > > work, for lupus. On her initial visit we didn't think she had RA so he > > tested for lupus. Well the test came back positive. we just got the > > news today and we are soaking it all in. she was also told she has > > sjogrens also. she will start plaquenil after she gets her eyes checked > > and he started her on celebrx today to help in her pain. > > she is VERY stiff, can't walk well, stand up, take her shirt off, put > > on her book bag, get out of a car. all this simple things she is having > > a very hard time with. we hope she gets relief soon. we are also > > debating on getting a second opinion. we are also waiting to hear back > > from her primary doc to give her the news...and ask her opinion...and > > thoughts on this is appreciated... > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Which anti-malarial herb is your daughter taking for Babesia? Kelley [ ] Daughter Update > > After feeling even more tired for a couple of weeks, my daughter was > beginning to feel a little better when I got a call from the doctor's > office that my daughter had tested positive for babesia. > > She is now on another medication (Mepron) and an herb to fight the > protozoa that prevented my daughter from recovering from Lyme disease > when she was treated in the fall of 2008. She is on amoxicillin, > Zythromax, and Mepron as well as an anti-malarial herb. > > God bless, > Michele Quote Link to comment Share on other sites More sharing options...
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