Cross-post: Need advice re autism

[Guest guest]

Dear Colleagues,

Please excuse the cross-post, I am in need of help for the child of

relatives.

2-year-old male (b. 5/28/10). Dx GERD at 2 weeks (do not know what

treatment was given). Normal growth and development otherwise.

At one year, was given MMR vaccine, within 3 days developed temperature

of 104 F. This has recurred every 3 weeks since then. He has been on

antibiotics since 1 year.

One month ago parents noted abnormal behavioral development; Dr.

diagnosed autism. Upon a second examination, she repeated " definitely

autism. " Parents took child to another physician (former pediatrician,

turned focus to immunology). This dr. stated " Definitely not autism. "

Ordered elimination of gluten, casein, dairy, and soy. Tests show he is

allergic to dogs, cats, peanuts. But as far as I can make out, there is

no suggestion of celiac disease.

Mother now offers only organic foods, and juices fruits and vegetables

for him. Child will not eat many of the foods available, but will eat

eggs which she scrambles in coconut oil; Smart Portion veggie straws.

Was told by dr. not to use Bare Naked Smoothies or Green Machine with

barley/wheat grass, due to possible presence of gluten.

Since starting diet, child has improved -- speaks new words daily, talks

to younger brother, interacts with parents. However, he has diarrhea;

and after 3 weeks developed a rash on trunk. Since 2 weeks he has had

occasional BMs that smell like vomit and contain clear, jelly-like mucus.

Parents are hopeful because of positive behavior changes; but concerned

re rash, diarrhea, and nature of BMs. Want to know best possible diet

for him within his restrictions and have been reading " Primal Blueprint "

(apparently a return to eating pattern of early humans, similar to paleo

diet).

I suggested a test for vitamin D deficiency, also testing for small

intestinal bowel overgrowth. Also suggested a pre-probiotic d/to

repeated antibiotic use, but she asked if there is one that is

gluten-free, which I don't know.

This young couple is very proactive and willing to do whatever it takes

for their son. However, I have no experience with pediatric diet, nor

pediatric allergies. Can anyone offer advice, resources, or suggestions?

Is LEAP useful in autism? MCTs, if so what brand?

I appreciate any help, and thank you in advance.

-ne

[Guest guest]

GET THIS KID LEAP TESTED...NOW.

Call me if you want to talk

Dawn Privett, RDLD, CLT

http://www.symmetrydirect.com/dprivett 

________________________________

To: Celiac Dietetic List ; rd-usa Listserv

<rd-usa >; Dietetics in Health Communities (DHCC)

; " Nutrition_Reports "

<Nutrition_Reports >; Dietitians in Integrative and Functional

Medicine (DIFM) <DIFM_Listserv >

Sent: Monday, May 28, 2012 9:27 AM

Subject: Cross-post: Need advice re autism

 

Dear Colleagues,

Please excuse the cross-post, I am in need of help for the child of

relatives.

2-year-old male (b. 5/28/10). Dx GERD at 2 weeks (do not know what

treatment was given). Normal growth and development otherwise.

At one year, was given MMR vaccine, within 3 days developed temperature

of 104 F. This has recurred every 3 weeks since then. He has been on

antibiotics since 1 year.

One month ago parents noted abnormal behavioral development; Dr.

diagnosed autism. Upon a second examination, she repeated " definitely

autism. " Parents took child to another physician (former pediatrician,

turned focus to immunology). This dr. stated " Definitely not autism. "

Ordered elimination of gluten, casein, dairy, and soy. Tests show he is

allergic to dogs, cats, peanuts. But as far as I can make out, there is

no suggestion of celiac disease.

Mother now offers only organic foods, and juices fruits and vegetables

for him. Child will not eat many of the foods available, but will eat

eggs which she scrambles in coconut oil; Smart Portion veggie straws.

Was told by dr. not to use Bare Naked Smoothies or Green Machine with

barley/wheat grass, due to possible presence of gluten.

Since starting diet, child has improved -- speaks new words daily, talks

to younger brother, interacts with parents. However, he has diarrhea;

and after 3 weeks developed a rash on trunk. Since 2 weeks he has had

occasional BMs that smell like vomit and contain clear, jelly-like mucus.

Parents are hopeful because of positive behavior changes; but concerned

re rash, diarrhea, and nature of BMs. Want to know best possible diet

for him within his restrictions and have been reading " Primal Blueprint "

(apparently a return to eating pattern of early humans, similar to paleo

diet).

I suggested a test for vitamin D deficiency, also testing for small

intestinal bowel overgrowth. Also suggested a pre-probiotic d/to

repeated antibiotic use, but she asked if there is one that is

gluten-free, which I don't know.

This young couple is very proactive and willing to do whatever it takes

for their son. However, I have no experience with pediatric diet, nor

pediatric allergies. Can anyone offer advice, resources, or suggestions?

Is LEAP useful in autism? MCTs, if so what brand?

I appreciate any help, and thank you in advance.

-ne