Re: Younger people with ra/CLORA

[Guest guest]

Hi Clora - {{{{{HUGS}}}}} I am so sorry you were hurt by your

daughter's comment. EVERYONE is different with RA - pain levels,

length of time they've had it, how fast the disease is progressing,

tolerance to medications, and on and on and on. Have you had your

daughter read The Spoon Theory? Maybe that would help her to

understand a little better. Her MIL might not need as many spoons to

get through her day or to do various chores around the home. I know

how you feel. When I tell people I have RA, they only hear

the " arthritis " part and either poopoo it off or say, " oh yeah, I

have arthritis in my little finger " - not realizing that RA is much

more than just " arthritis " . Its hard to explain to people. If your

daughter is willing, ask her to read up on RA as much as she can.

There are a lot of good sites out there with a lot of info on the

disease. I Googled " RA Prognosis " (for example) and you would be

surprised at the number of variables to take into consideration even

for a prognosis! Bottom line - no two people are alike, so its not

fair to try and compare yourself to her MIL. Best of luck to you,

dear Clora - I really don't think RA has anything to do with

tolerance to pain as even the most stoic of people eventually get

worn down by the pain............Doreen

>

> Group;

>

> Hello everyone, my daughter said something that hurt me. She didnt

> mean to hurt me for she is a very loving daughter. She said " My

> mother n law must have a high tollerance for pain she is not

> hurting from RA like you are. " Myself I thought everyone has a

> different level of RA. I didnt know how to explain this to her. Her

> mother n law hurts from RA, but she is able to clean house, I can't

> do much of anything. I dont hurt like I use to, taking the

> prednisone is great. But I still am unable to clean house like I

> use to. Anyone know why this is?

>

> gentle hugs everyone

> Clora

>

[Guest guest]

Doreen and group;

Haaaaaaa, yes people poo poo it off. My husband is really good to me

and he said I got arthritis in my leg haaaaaaaa. I think he got

sore from walking all the way home from walmart when the van broke

down. Cause he never complained about it before. ANd yes there are

diff types of arthiritis. I got the osteo also, its in my spine.

Ouch lower spine. ]

I dont even know wy they call it arthiritis ita an auto-immune

disease. Anyway thanks for answering my post I really do appreciate

it. I have spent the last 15 minutes trying to down load the sppoon

theory on my pc. My pc wont down load it. I have Avant Browser and I

don't like it. But my son gave me the pc and who am I to complain

lol. I got an Idea what it means. I have to figure out each day what

i can and can't do as the day goes on.

My daughters mother-n-law has RA too. I feel for her cause it hurts

her so much also. And she has always been so sweet to me. I don't

even think my daughter realized what she said. But I am going to

show her your letter and the other posts I received on this subject.

I have had pain all my life and could hardly hold down jobs. I

believe I had fibro all my life. I was diagnosed with fibro about 4

years ago. I am 54 now.

People seem to think there was nothing wrong with me all those years

cause the doctors couldnt find anything wrong with me. When I was

diagnosed with fibro it was the exact same pain I have been living

with all those years. I had people even ask me to give up my chair

for someone who had a bad back. Just because someone looks ok, don't

mean they are, you and I know that, but most of the world don't know

that.

I am rambling a bit so let me close and say I love all of you, ,

Chriss, , Paris, debs, deebs, (when is barbara coming back?,)

Dodge, All of you I love, cant think of everyons name right off.

Fibro fog lol.

Gentle kind hugs everyone

Clora

> Hi Clora - {{{{{HUGS}}}}} I am so sorry you were hurt by your

> daughter's comment. EVERYONE is different with RA - pain levels,

> length of time they've had it, how fast the disease is

progressing,

> tolerance to medications, and on and on and on. Have you had your

> daughter read The Spoon Theory? Maybe that would help her to

> understand a little better. Her MIL might not need as many spoons

to

> get through her day or to do various chores around the home. I

know

> how you feel. When I tell people I have RA, they only hear

> the " arthritis " part and either poopoo it off or say, " oh yeah, I

> have arthritis in my little finger " - not realizing that RA is

much

> more than just " arthritis " . Its hard to explain to people. If your

> daughter is willing, ask her to read up on RA as much as she can.

> There are a lot of good sites out there with a lot of info on the

> disease. I Googled " RA Prognosis " (for example) and you would be

> surprised at the number of variables to take into consideration

even

> for a prognosis! Bottom line - no two people are alike, so its not

> fair to try and compare yourself to her MIL. Best of luck to you,

> dear Clora - I really don't think RA has anything to do with

> tolerance to pain as even the most stoic of people eventually get

> worn down by the pain............Doreen

[Guest guest]

Clora:

The reason why they call certain types of Arthritis autoimmune diseases is

because an autoimmune disease occurs when the immune sysztem malfunctions. In

arthritis, the immune system thinks that the body is a foreign invader, and

wrongly tries to get rid of that invader, thus get rid of itself. This is, of

course, a very simple explanation, but there it is... When that happens, then

we have things like bone loss, joint deformity, etc, all because our immune

systems are ramped up way to high and are out of control. That's why we take

drugs to calm our immune systems down.

--

Dodge

Resolve to be tender with the young, compassionate with the aged, sympathetic

with the striving, and tolerant of the weak and wrong, because sometime

in your life you will have been all of these.

Read my blog at:

http://jumpthis.wordpress.com

---- CLORA <clora4jesus@...> wrote:

=============

Doreen and group;

Haaaaaaa, yes people poo poo it off. My husband is really good to me

and he said I got arthritis in my leg haaaaaaaa. I think he got

sore from walking all the way home from walmart when the van broke

down. Cause he never complained about it before. ANd yes there are

diff types of arthiritis. I got the osteo also, its in my spine.

Ouch lower spine. ]

I dont even know wy they call it arthiritis ita an auto-immune

disease. Anyway thanks for answering my post I really do appreciate

it. I have spent the last 15 minutes trying to down load the sppoon

theory on my pc. My pc wont down load it. I have Avant Browser and I

don't like it. But my son gave me the pc and who am I to complain

lol. I got an Idea what it means. I have to figure out each day what

i can and can't do as the day goes on.

[Guest guest]

Dodge and group;

Thanks Dodge, I looked up in the dictionary arthritis is

inflamaination in the joints and so on. I guess the plaquenile and

sulfazaline is to calm down my immune systems, because its doing

nothing for the pain.

I start humira as soon as my TB test is taken and my insurance

company approves the humira. I am on prednisone for the pain untill

than, as I said before. I love prednisone. I like the way you

explained it Dodge. I have some medical terminology. So can you

explain why prednisone is so bad. It dont make me eat ( yet ). But

it sure makes me feel good lol.

kind gentle hugs

Clora

> Clora:

>

> The reason why they call certain types of Arthritis autoimmune

diseases is because an autoimmune disease occurs when the immune

sysztem malfunctions. In arthritis, the immune system thinks that

the body is a foreign invader, and wrongly tries to get rid of that

invader, thus get rid of itself. This is, of course, a very simple

explanation, but there it is... When that happens, then we have

things like bone loss, joint deformity, etc, all because our immune

systems are ramped up way to high and are out of control. That's

why we take drugs to calm our immune systems down.

>

> --

> Dodge

>

> Resolve to be tender with the young, compassionate with the aged,

sympathetic with the striving, and tolerant of the weak and wrong,

because sometime

> in your life you will have been all of these.

>