Re: Newly Diagnosed part 2

[Guest guest]

, I sure can relate to what youre saying. I am so very tired of not being

able to move my wrists or hands without hurting, and all of the bloodwork;

including CPP has come back negative. It's very frustrating not to be sure what

is wrong. Anytime you want to feverishly vent about those wrists you can

email me. a

[ ] Newly Diagnosed part 2

WOW! Thank you all for the great response! For the first time in

weeks I did not feel like I was out there by myself.

I have had wrist pain most of my adult life. This March I decided to

see a surgeon about fixing the laxity in them. It started with a trip

to see my gp, then on to the ortho and finally the hand and wrist

surgeon. He just suggested phys ther. At that time the last thing I

wanted to do was move my wrists. The ortho ran some blood work and it

came back not normal. My gp ran it again a few weeks later and the

results were still not normal. She suggested the rheumatologist.

Got in to see him and he was very nice. Checked all of my joints and

ordered more blood work. At this time he said he was calling it

inflamatory arthritis. When the blood work came back I was told it

was RA, even though my rf was negative. I was told of some websites

to check out and was put on Plaqenil. By the second day of those I

could barely get out of bed. It felt like I had the worst case of the

flu you could imagine. Then the gastric problems started. Ugh! After

a week I called to get something for the pain and my dr decided to

put me on prednisone for 2 weeks. One week through and no relief yet.

At first I felt glad to have a diagnosis. To have a name on this

sometimes unbearable pain. But at the same time it's scary as all

heck. But then I started thinking maybe he is wrong because I have

always had joint hypermobility and have sprained or dislocated my

wrists all the time. But can that be part of the RA or is it just a

side note? My dr said I presented with all the RA symptoms but the RF

was negative. But all the other blood said otherwise. I guess now I

am rambling on because I am still trying to wrap my brain around it.

Some days I feel totally useless. I mean when my wrists are bad I

can't do anything. Even holding a book is futile. My husband and 17

yr old daughter are wonderful. They take up where I leave off. But

some days I can't help but feel like a doorstop. And I am on

antidepressants and anxiety meds. Been on those for a while. I guess

I am just feeling sorry for myself. Pity party, table for one! But I

thank all of you for all of the generous offers of support. I finally

feel connected again.

Thanks for letting me blab on.

[Guest guest]

You're quite welcome, anytime. All this stuff with RA etc can be

confusing in not just very overwhelming in the beginning especially.

Hang on, you'll make it. Try not stressing over it though, because

stress makes it worse. Relax, you'll get through it!

>

> WOW! Thank you all for the great response! For the first time in

> weeks I did not feel like I was out there by myself.

>

> I have had wrist pain most of my adult life. This March I decided

to

> see a surgeon about fixing the laxity in them. It started with a

trip

> to see my gp, then on to the ortho and finally the hand and wrist

> surgeon. He just suggested phys ther. At that time the last thing I

> wanted to do was move my wrists. The ortho ran some blood work and

it

> came back not normal. My gp ran it again a few weeks later and the

> results were still not normal. She suggested the rheumatologist.

>

> Got in to see him and he was very nice. Checked all of my joints

and

> ordered more blood work. At this time he said he was calling it

> inflamatory arthritis. When the blood work came back I was told it

> was RA, even though my rf was negative. I was told of some websites

> to check out and was put on Plaqenil. By the second day of those I

> could barely get out of bed. It felt like I had the worst case of

the

> flu you could imagine. Then the gastric problems started. Ugh!

After

> a week I called to get something for the pain and my dr decided to

> put me on prednisone for 2 weeks. One week through and no relief

yet.

>

> At first I felt glad to have a diagnosis. To have a name on this

> sometimes unbearable pain. But at the same time it's scary as all

> heck. But then I started thinking maybe he is wrong because I have

> always had joint hypermobility and have sprained or dislocated my

> wrists all the time. But can that be part of the RA or is it just a

> side note? My dr said I presented with all the RA symptoms but the

RF

> was negative. But all the other blood said otherwise. I guess now I

> am rambling on because I am still trying to wrap my brain around

it.

>

> Some days I feel totally useless. I mean when my wrists are bad I

> can't do anything. Even holding a book is futile. My husband and 17

> yr old daughter are wonderful. They take up where I leave off. But

> some days I can't help but feel like a doorstop. And I am on

> antidepressants and anxiety meds. Been on those for a while. I

guess

> I am just feeling sorry for myself. Pity party, table for one! But

I

> thank all of you for all of the generous offers of support. I

finally

> feel connected again.

>

> Thanks for letting me blab on.

>

>

>

[Guest guest]

--- Thanks a!

wendy

>

> , I sure can relate to what youre saying. I am so very tired

of not being able to move my wrists or hands without hurting, and all

of the bloodwork; including CPP has come back negative. It's very

frustrating not to be sure what is wrong. Anytime you want to

feverishly vent about those wrists you can email me. a

> [ ] Newly Diagnosed part 2

>

>

> WOW! Thank you all for the great response! For the first time in

> weeks I did not feel like I was out there by myself.

>

> I have had wrist pain most of my adult life. This March I decided

to

> see a surgeon about fixing the laxity in them. It started with a

trip

> to see my gp, then on to the ortho and finally the hand and wrist

> surgeon. He just suggested phys ther. At that time the last thing

I

> wanted to do was move my wrists. The ortho ran some blood work

and it

> came back not normal. My gp ran it again a few weeks later and

the

> results were still not normal. She suggested the rheumatologist.

>

> Got in to see him and he was very nice. Checked all of my joints

and

> ordered more blood work. At this time he said he was calling it

> inflamatory arthritis. When the blood work came back I was told

it

> was RA, even though my rf was negative. I was told of some

websites

> to check out and was put on Plaqenil. By the second day of those

I

> could barely get out of bed. It felt like I had the worst case of

the

> flu you could imagine. Then the gastric problems started. Ugh!

After

> a week I called to get something for the pain and my dr decided

to

> put me on prednisone for 2 weeks. One week through and no relief

yet.

>

> At first I felt glad to have a diagnosis. To have a name on this

> sometimes unbearable pain. But at the same time it's scary as all

> heck. But then I started thinking maybe he is wrong because I

have

> always had joint hypermobility and have sprained or dislocated my

> wrists all the time. But can that be part of the RA or is it just

a

> side note? My dr said I presented with all the RA symptoms but

the RF

> was negative. But all the other blood said otherwise. I guess now

I

> am rambling on because I am still trying to wrap my brain around

it.

>

> Some days I feel totally useless. I mean when my wrists are bad I

> can't do anything. Even holding a book is futile. My husband and

17

> yr old daughter are wonderful. They take up where I leave off.

But

> some days I can't help but feel like a doorstop. And I am on

> antidepressants and anxiety meds. Been on those for a while. I

guess

> I am just feeling sorry for myself. Pity party, table for one!

But I

> thank all of you for all of the generous offers of support. I

finally

> feel connected again.

>

> Thanks for letting me blab on.

>

>

>

>

>

>

>

>

[Guest guest]

......

I have a large box of decorations for your party...we all have had pity

parties...let me know if you want me to ship the decorations...it makes the pity

party more festive! Even if you are the only one invited... ;o)

(you know I'm kidding , right?)

Take care of YOU, get lots of rest and don't worry yourself sick...things will

level out and get better with time and the right meds! vAnd I have found this a

very supportive group! jenna

in the mountains of NC, where the flowers are all in bloom. And the weather is

heavenly! A big change from the Phoenix area! BIG change!

mtdreamspinner.wordpress.com Plying in the Woolpile

[Guest guest]

>

Hi Puala, can you tell me about your wrists? And I was not sure where

to send an email to.

Thanks a!

>

> wendy

> >

> > , I sure can relate to what youre saying. I am so very tired

> of not being able to move my wrists or hands without hurting, and all

> of the bloodwork; including CPP has come back negative. It's very

> frustrating not to be sure what is wrong. Anytime you want to

> feverishly vent about those wrists you can email me. a

> >

> > > >

> >

> >

[Guest guest]

Jenna thanks for the offer of decorations. The thought of sitting all

by myself with balloons and decorations having a pity party really made

me laugh! Thanks I needed that.

wendy

> ......

> I have a large box of decorations for your party...we all have had

pity parties...let me know if you want me to ship the decorations...it

makes the pity party more festive! Even if you are the only one

invited... ;o)

> (you know I'm kidding , right?)

>

[Guest guest]

I personally like the idea of tiaras.....

>

> Jenna thanks for the offer of decorations. The thought of sitting all

> by myself with balloons and decorations having a pity party really

made

> me laugh! Thanks I needed that.

>

> wendy

>

> > ......

> > I have a large box of decorations for your party...we all have had

> pity parties...let me know if you want me to ship the

decorations...it

> makes the pity party more festive! Even if you are the only one

> invited... ;o)

> > (you know I'm kidding , right?)

> >

>