Re: Re: WHAT A BOMBSHELL!!!

[Guest guest]

Ginny,

Welcome to the group. I know that making someone who does not have RA,

Fibro, Lupus, or any other of the auto-immune diseases understand what you

are going through is almost impossible. The more information you can get to

the family, the better. Sometimes some of the post from members can also

help. Once they see that there are a whole lot of us around, somehow allows

loved ones to see just how widespread these damn diseases are, can sometimes

help as well.This group is a wonderful place for information, advice or to

just come and be with those who understand. Give your family time, they have

to adjust to the diagnosis just like you did. As I am sure you have heard

there are 5 stages to grief or loss. These are not just for someone who has

lost a friend or loved one, They are for any type of loss, including the

freedom to move around without pain. The stages are, Denial,anger,

depression, bargaining, and acceptance.I still have a really hard time with

the acceptance phase and I have been diagnosed for a long time. But just

know that the more informed you are the better. Having a Dr that is willing

to work with you and that will listen is really important as well. Feel free

to ask any questions.

Heidi M

On Wed, Jul 16, 2008 at 6:36 PM, <man_u8@...> wrote:

> Ginny, welcome to the group. Having a good support system is key.

> Talking to friends and family helps, but sometimes you just need to

> talk to someone who knows what it feels like to go through a " flare " .

> One thing that I have learned (I was an active 24 y/o with a promising

> career when I was diagnosed) is that pain is a feeling; pain doesn't

> define who you are as a person.

> I have struggled with it myself and I need to find the person who I am

> susposed to be NOW, instead of trying to find the person who I was

> before RA/fibromyalgia. It's a hard process, I am not going to lie.

> This web board has been extremely supportive and knowledable. You do

> not have to go through this alone.

>

>

>

>

> >

> > JUST NEWLY DIAGNOSED WITH A DOUBLE WHAMMY SYSTEMIC LUPUS AND RA. I AM

> > AN ACTIVE 53 YEAR OLD, WHAT A CRIMP. READ ALL THE BOOKS TALKED TO THE

> > DOCTOR, ON A METHOTREXATE SHOT EVERY WEEK ALONG WITH MUCH MORE MEDS,

> > HAVE GOOD DAYS AND BAD ONES. BUT I FEEL MY FAMILY AND HUSBAND JUST DO

> > NOT UNDERSTAND. I GET I DONT NEED TO HEAR ABOUT THIS EVERYDAY. WELL I

> > DIDNT KNOW THAT I WAS TALKING ABOUT IT EVERYDAY, THIS IS A LITTLE NEW

> > TO ME, THEN COME THE INADEQUET FEELINGS, THAT THIS IS JUST NOT ME, AT

> > TIMES I FEEL HOPELESS AND HELPLESS, I GUESS THIS TO SHALL PASS????I

> > LOOK AT EVERY OTHER WOMAN NOW AS A THREAT. WHAT IS ONE TO DO??I JUST

> > WANT A LITTLE PART OF ME BACK. ANY SUGGESTIONS? THANKS ALL GINNY

> >

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