Re: still no dx of fibromyalgia

[Guest guest]

Didn't know that somoeone could test for IBS. I have had that for

years. Did test negative for Celiac disease though. Hope your next

appointment goes well. Hang in there sweetie!

soft hugs,

Debbie L

>

> I tested negative for Celiac disease and IBS. I have not yet had

the

> sleep study that my doctor wants. She has had me on a sleep med and

it

> helps, but not when it is around my monthly cycle. She also put me

on

> Nabumetone and it does not work at all. (It almost seems as if it

makes

> the pain worse.) Anyway, I am at my wits end. I am ALWAYS tired and

in

> pain. This has been going on for a year now. Some days are better

than

> others but some are so awful I can't stand it. One day I actually

had

> to use the power chair at the grocery store. I use that store often

so

> the people were surprised to see me in a chair. Also, my brain was

so

> foggy that I had to ask for help to find things that I usually can

find

> on my own. My children even had to help me. Is this what the future

> holds for me??? Anyway, I have another appointment tomorrow.---

>

[Guest guest]

Hi !

Have they examined you physically for FMS? Such as touching the areas that are

required for the trigger points that are required of FMS? I had been diagnosed

based on my symptoms, while ruling everything else out at the same time.  My

doctors were even able to feel the knots my myofasica syndrome forms and can

feel muscle spasms just by lightly touching my neck and shoulders.   ME/Chronic

Fatigue syndrome is another illness that causes extreme fatigue and pain but

without the tender points and some other issues that go with FMS.  I hope you

find an answer soon.  I know the road to diagnosis can be frustrating..even upon

diagnosis trial and error of medications and treatment can be difficult as well.

From: deebs87 <dlohf@...>

Subject: [ ] Re: still no dx of fibromyalgia

Date: Wednesday, July 9, 2008, 1:05 PM

Didn't know that somoeone could test for IBS. I have had that for

years. Did test negative for Celiac disease though. Hope your next

appointment goes well. Hang in there sweetie!

soft hugs,

Debbie L

>

> I tested negative for Celiac disease and IBS. I have not yet had

the

> sleep study that my doctor wants. She has had me on a sleep med and

it

> helps, but not when it is around my monthly cycle. She also put me

on

> Nabumetone and it does not work at all. (It almost seems as if it

makes

> the pain worse.) Anyway, I am at my wits end. I am ALWAYS tired and

in

> pain. This has been going on for a year now. Some days are better

than

> others but some are so awful I can't stand it. One day I actually

had

> to use the power chair at the grocery store. I use that store often

so

> the people were surprised to see me in a chair. Also, my brain was

so

> foggy that I had to ask for help to find things that I usually can

find

> on my own. My children even had to help me. Is this what the future

> holds for me??? Anyway, I have another appointment tomorrow.---

>

[Guest guest]

No, still not physically examined yet. My doctor is a general

practitioner. She had said something about sending me to a

rheumatologist but still has not yet. However, she did put me on

Lyrica. Have you ever tried that? I get very dizzy, tired, hard to

think straight. She says that all may go away after awhile. I hope

so. I have only had it for a week now. The pain seems to be a tiny

but better. The dose will be bumped up if I tolerate the first week.--

-

> >

> > I tested negative for Celiac disease and IBS. I have not yet had

> the

> > sleep study that my doctor wants. She has had me on a sleep med

and

> it

> > helps, but not when it is around my monthly cycle. She also put

me

> on

> > Nabumetone and it does not work at all. (It almost seems as if it

> makes

> > the pain worse.) Anyway, I am at my wits end. I am ALWAYS tired

and

> in

> > pain. This has been going on for a year now. Some days are better

> than

> > others but some are so awful I can't stand it. One day I actually

> had

> > to use the power chair at the grocery store. I use that store

often

> so

> > the people were surprised to see me in a chair. Also, my brain

was

> so

> > foggy that I had to ask for help to find things that I usually

can

> find

> > on my own. My children even had to help me. Is this what the

future

> > holds for me??? Anyway, I have another appointment tomorrow.---

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Yes, it is something new according to the doctor. It is a breath

test. You stop eating certain foods for a while then you fast for a

night then they test your breath in the morning every 20 minutes or

so for 2 hours. It is non invasive but very boring!---

> >

> > I tested negative for Celiac disease and IBS. I have not yet had

> the

> > sleep study that my doctor wants. She has had me on a sleep med

and

> it

> > helps, but not when it is around my monthly cycle. She also put

me

> on

> > Nabumetone and it does not work at all. (It almost seems as if it

> makes

> > the pain worse.) Anyway, I am at my wits end. I am ALWAYS tired

and

> in

> > pain. This has been going on for a year now. Some days are better

> than

> > others but some are so awful I can't stand it. One day I actually

> had

> > to use the power chair at the grocery store. I use that store

often

> so

> > the people were surprised to see me in a chair. Also, my brain

was

> so

> > foggy that I had to ask for help to find things that I usually

can

> find

> > on my own. My children even had to help me. Is this what the

future

> > holds for me??? Anyway, I have another appointment tomorrow.---

>

> >

>