Guest guest Posted October 2, 2011 Report Share Posted October 2, 2011 Hi, my daughter's latest lab tests indicate a normal Vitamin D, 25-hydroxy level of 63 , but her calcitriol level is elevated at 80.7, she was taking a prenatal vitamin and 3000 IU of supplemental D to bring her levels up to normal since they were 20 when initially tested. She was trying to conceive and was having labwork prior to conceiving and has since stopped trying to get pregnant since she was diagnosed with Lyme disease. She is being treated with doxycycline for 6 weeks, after 4 weeks on Ceftin (they first gave her Ceftin because she was trying to get pregnant). She does not drink milk (lactose intolerant) and her MD did not address the elevated calcitriol level. Any advice? TIA. Sue NOTICE: This confidential message/attachment contains information intended for a specific individual(s) and purpose. Any inappropriate use, distribution or copying is strictly prohibited. If received in error, please notify the sender and immediately delete the message. Thank you. Sue Nichols, MS/RD/CDE/CDN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2011 Report Share Posted October 3, 2011 Hi Sue, I was going to add a note to my email but I saw yours and my info is pertinent to both. Arachidonic acid foods* will help build stronger membranes and more resistant immune system. It is half of one of the main endogenous cannabinoids. The 20 level for 25 D in the initial measurement reflected the Lyme Disease infection already lowgrade but doing its thing. The overactive/infected white blood cells produce the enzyme that activates 25 D to 1, 25 D/calcitriol. The 3000 IU of vitamin 25 D was over converted to the 80.7 value compared to what normal kidney action would have produced. Anything over a 40-50 of calcitriol/active steroid 1,25-D is causing demineralization of the bone. The excess calcium causes muscle knots, joint pain, irritability and other uncomfortable symptoms. And it triggers the release of more membrane building blocks inside of the cell - which is what the infection wants. It is a parasite that learned how to live within and feed off of our white blood cells. But not all of them. Chemotherapy randomly kills healthy and sick. Feeding ourselves well will arm the healthy WBCs for better ability to recognize and kill the infected ones. Immune suppressants might suppress inflammation but it allows over time for the infection to get more active and more and more pirating of nutrients occurs. Tired mitochondria is a new thing being described by doctors - it is the cell wall deficient bacteria eating our energy rich cell interiors. 1-alpha-hydroxylase is the enzyme found in the kidney . . . and in the liver, placenta, cancer cells and wound condition white blood cells. And if anyone bothered to look for it chances are in Lyme's disease overactive white blood cells as well. All that overactivity isn't just good guys. Check out Trevor Marshall's information at bacteriality.com. I reread a bit of it since my first go through in 2005. He doesn't have all the answers either but he has a few more than the Immunology textbooks (autoimmunity can not be a natural part of aging if more aand more young kids are " getting it " - how can it be natural degeneration if we can even " get it " .) Lyme's disease and tuberculosis have similar cell wall deficient bacterial forms and the Marshall work on autoimmunity has found evidence supporting other diseases being attributed to cell wall deficient bacteria. I don't have a blog specific to autoimmunity but there are a few with info about my case. TNF inhibitor and rheumatoid arthritis one has the most I think. The list of titles at the top R of my page are links. http://bacteriality.com/about-the-mp/ If she does get involved with it they have a patient forum and a health professional forum that you could join (I think - that is how it used to work) I got stomped on for mentioning iodine and didn't participate much (BTW - the world is iodine deficient - lowgrade to outright - I see the symptoms on TV in magazines and locally in little kids faces - its the eyebrowlessness (one of the Twilight teen boy stars is so congentital hypothyroid it'ld be funny if it were funny - has the spikey hair and pixie features - big eyes. - tangent - iodine and selenium would help build a better baby later and fight infection now. Carrot, apple and nuts beans seeds daily and your daughter's body will be better armed to hunt down the infected cells and kill them. Trevor Marshall's theory is that the Benicar helps the antibiotics work better but it is also helping by reducing magnesium wasting by the kidneys. I did find it wonderful, from day one on Benicar dosed TID as the Marshall Protocol recommended, my migraines were gone. A miracle compared to the doom I felt when chocolate was added to my I can't have anymore until I'm dead or conquer migraine problem. Obviously chocolate does make a good motivator. ( I had given up the MJ at that time) Actually chocolate had little to do with it - husband's sarcoidosis is the same thing that Trevor Marshall had and still has in remission over a decade past his " death sentence " . The MP has been used lots for Lyme's Disease and he got his orphan drug approval for the Benicar for some of the diagnoses he works with - error - the MP has been successfully used in conjunction with one's own family doctor. He is a biomedical engineer not an MD. Summary of his plan is antibiotics every other day for a year or more building up to 2 or 3 types of antibiotics at once but still every other day. The Infected cell die off causes a flood of dead material and toxin/sick/flu like symptoms (Herxheimer reaction) that is easier to handle in waves. I would have to psych myself up with " I'm killing bugs " chants and make myself take the antibiotics (dread of the flulike symptoms the next day - they got less and less as I got farther along the three antibiotics were no worse flu-like symptoms then the first mini doses were. The huge difference in the MP is the baby stepping up the dose. The problem he and the doctor he did research with found that too rapid use of higher/normal dose antibiotics would cause massive die off and massive negative symptoms up to cardiac sudden death risk - more advanced disease probably has worse symptoms, mine were flu like and sore teeth-odd-. My husband has had antibiotics at normal doses twice since I learned of the MP theory and tried it myself and man did he suffer on the 5 day normal/high dose antibiotics - he was a firm believer in doctors and authority answers. He takes vitamins I recommend and eventually tried the MP kind of but never as rigidly as I did. When she is ready to get pregnant after a year or so of focus on feeding membranes and white blood cells, then the placenta will activate just the right amount of vitamin D that it needs to mobilize resources specifically for the umbilical cord and baby without flooding the rest of the body with mobilize your membrane messages which would allow low grade infections to become full blown again. It would be key point to not do the 3000 IU or any IU vitamin D ever, ever again. Cutting out food, supplement and excess sunlight and bright light is a major part of the MP and it is actually more comfortable once you get used to it. I am less sensitive now but my one month outdoor work did cripple up my shoulder and back a bit - muscle knots that don't want to go away -all day, all week all month. shortened shoulder muscle. Lyme's disease sufferer's frequently suffer for years with the same you're not really sick messages that I heard. More D is just doing the infection's job getting those membranes ready to be remade into bacterial bodies - just hiding out within the interior of the infected cell. I retried sardines recently after having given them up for the MP (300 IU vit D) and I did actually feel worse the next day or two. Oh, and I would encourage her to keep up the great job not drinking milk . . . ;-) Almonds have as much calcium as magnesium and a serving is almost as much as dairy serving of calcium - but so many other immune bonuses packed in. I hope she stopped taking the vitamin D - all of the vitamin D. She was doing good/stable at the 20. That seems to be the normal end of low/normal. Not deficient. The Institute of Med did not recommend supplementing D until below 20, 20 to 30 was considered low normal because it wasn't associated with fractures in any of the metareview. I'm sure she'll be fine and her bones too - oh and avoid excess glutamates and probably aspatame/neotame too but I haven't found the same solid research link that I found about the glutamates. Repair the membrane problem and enzyme trace minerals and the pregnancy will follow. She may need pickles and B vitamins too (vilitigo article). Good luck to you both. Vajda, R.D. www.GingerJens.com *Arachidonic acid foods are a poly unsat. omega 6 essential fat, not saturated fat but rich sources include animal foods that also have sat fats beef, chicken, egg so the assoc was in my head from this link: http://riskfactor.cancer.gov/diet/foodsources/fatty_acids/table4.html http://www.livestrong.com/article/536948-nutritional-sources-of-arachidonic-acid\ / *** please eat eggs again and inform the public to please eat some eggs ***says arachidonic acid " promotes inflammation " - actually it is associated with inflammation . it is part of the eCBs that were released in response to increased intracellular levels of calcium or glutamates - bad news folks -its not the arachidonic acid that is the promoter of inflammation - assuming causation where there is correlation is a logic error seen too frequently. I had forgotten that arachidonic acid had gotten on the we think this is bad list. But if there is lot of it in inflammation then chances are there is a lot of it being used up in inflammation and replacing lost resources is our field of play. Turns out that chicken thighs are good for us - I did trim off the gobs of fat and thick chunks of skin - couldn't help myself but I skipped the chicken breasts. http://www.livestrong.com/article/496582-vegetables-that-contain-arachidonic-aci\ d/?utm_source=popslideshow & utm_medium=a1 http://www.livestrong.com/article/38903-foods-high-arachidonic-acid/ ________________________________ To: " rd-usa " <rd-usa > Sent: Sun, October 2, 2011 11:21:37 AM Subject: vitamin D results in Lyme disease Hi, my daughter's latest lab tests indicate a normal Vitamin D, 25-hydroxy level of 63 , but her calcitriol level is elevated at 80.7, she was taking a prenatal vitamin and 3000 IU of supplemental D to bring her levels up to normal since they were 20 when initially tested. She was trying to conceive and was having labwork prior to conceiving and has since stopped trying to get pregnant since she was diagnosed with Lyme disease. She is being treated with doxycycline for 6 weeks, after 4 weeks on Ceftin (they first gave her Ceftin because she was trying to get pregnant). She does not drink milk (lactose intolerant) and her MD did not address the elevated calcitriol level. Any advice? TIA. Sue NOTICE: This confidential message/attachment contains information intended for a specific individual(s) and purpose. Any inappropriate use, distribution or copying is strictly prohibited. If received in error, please notify the sender and immediately delete the message. Thank you. Sue Nichols, MS/RD/CDE/CDN Quote Link to comment Share on other sites More sharing options...
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