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Hi, my daughter's latest lab tests indicate a  normal Vitamin D, 25-hydroxy

level of 63 , but her calcitriol level is elevated at 80.7, she was taking a

prenatal vitamin  and 3000 IU of supplemental D to bring her levels up to normal

since they were 20 when initially tested. She was trying to conceive and

was having labwork prior to conceiving and has since stopped trying to get

pregnant since she was diagnosed with Lyme disease. She is being treated with

doxycycline for 6 weeks, after 4 weeks on Ceftin (they first gave her Ceftin

because she was trying to get pregnant). She does not drink milk (lactose

intolerant) and her MD did not address the elevated calcitriol level. Any

advice? TIA. Sue 

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Sue Nichols, MS/RD/CDE/CDN

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Hi Sue,

I was going to add a note to my email but I saw yours and my info is pertinent

to both. Arachidonic acid foods* will help build stronger membranes and more

resistant immune system. It is half of one of the main endogenous cannabinoids.

The 20 level for 25 D in the initial measurement reflected the Lyme Disease

infection already lowgrade but doing its thing. The overactive/infected white

blood cells produce the enzyme that activates 25 D to 1, 25 D/calcitriol. The

3000 IU of vitamin 25 D was over converted to the 80.7 value compared to what

normal kidney action would have produced. Anything over a 40-50 of

calcitriol/active steroid 1,25-D is causing demineralization of the bone. The

excess calcium causes muscle knots, joint pain, irritability and other

uncomfortable symptoms. And it triggers the release of more membrane building

blocks inside of the cell - which is what the infection wants. It is a parasite

that learned how to live within and feed off of our white blood cells. But not

all of them. Chemotherapy randomly kills healthy and sick. Feeding ourselves

well will arm the healthy WBCs for better ability to recognize and kill the

infected ones. Immune suppressants might suppress inflammation but it allows

over time for the infection to get more active and more and more pirating of

nutrients occurs. Tired mitochondria is a new thing being described by doctors -

it is the cell wall deficient bacteria eating our energy rich cell interiors.

1-alpha-hydroxylase is the enzyme found in the kidney . . . and in the liver,

placenta, cancer cells and wound condition white blood cells. And if anyone

bothered to look for it chances are in Lyme's disease overactive white blood

cells as well. All that overactivity isn't just good guys. Check out Trevor

Marshall's information at bacteriality.com. I reread a bit of it since my first

go through in 2005. He doesn't have all the answers either but he has a few more

than the Immunology textbooks (autoimmunity can not be a natural part of aging

if more aand more young kids are " getting it " - how can it be natural

degeneration if we can even " get it " .) Lyme's disease and tuberculosis have

similar cell wall deficient bacterial forms and the Marshall work on

autoimmunity has found evidence supporting other diseases being attributed to

cell wall deficient bacteria. I don't have a blog specific to autoimmunity but

there are a few with info about my case. TNF inhibitor and rheumatoid arthritis

one has the most I think. The list of titles at the top R of my page are links.

http://bacteriality.com/about-the-mp/ If she does get involved with it

they have a patient forum and a health professional forum that you could join (I

think - that is how it used to work) I got stomped on for mentioning iodine and

didn't participate much (BTW - the world is iodine deficient - lowgrade to

outright - I see the symptoms on TV in magazines and locally in little kids

faces - its the eyebrowlessness (one of the Twilight teen boy stars is so

congentital hypothyroid it'ld be funny if it were funny - has the spikey hair

and pixie features - big eyes. - tangent - iodine and selenium would help build

a better baby later and fight infection now.

Carrot, apple and nuts beans seeds daily and your daughter's body will be better

armed to hunt down the infected cells and kill them. Trevor Marshall's theory is

that the Benicar helps the antibiotics work better but it is also helping by

reducing magnesium wasting by the kidneys. I did find it wonderful, from day one

on Benicar dosed TID as the Marshall Protocol recommended, my migraines were

gone. A miracle compared to the doom I felt when chocolate was added to my I

can't have anymore until I'm dead or conquer migraine problem. Obviously

chocolate does make a good motivator. ( I had given up the MJ at that time)

Actually chocolate had little to do with it - husband's sarcoidosis is the same

thing that Trevor Marshall had and still has in remission over a decade past his

" death sentence " . The MP has been used lots for Lyme's Disease and he got his

orphan drug approval for the Benicar for some of the diagnoses he works with -

error - the MP has been successfully used in conjunction with one's own family

doctor. He is a biomedical engineer not an MD.

Summary of his plan is antibiotics every other day for a year or more building

up to 2 or 3 types of antibiotics at once but still every other day. The

Infected cell die off causes a flood of dead material and toxin/sick/flu like

symptoms (Herxheimer reaction) that is easier to handle in waves. I would have

to psych myself up with " I'm killing bugs " chants and make myself take the

antibiotics (dread of the flulike symptoms the next day - they got less and less

as I got farther along the three antibiotics were no worse flu-like symptoms

then the first mini doses were. The huge difference in the MP is the baby

stepping up the dose. The problem he and the doctor he did research with found

that too rapid use of higher/normal dose antibiotics would cause massive die off

and massive negative symptoms up to cardiac sudden death risk - more advanced

disease probably has worse symptoms, mine were flu like and sore teeth-odd-. My

husband has had antibiotics at normal doses twice since I learned of the MP

theory and tried it myself and man did he suffer on the 5 day normal/high dose

antibiotics - he was a firm believer in doctors and authority answers. He takes

vitamins I recommend and eventually tried the MP kind of but never as rigidly as

I did.

When she is ready to get pregnant after a year or so of focus on feeding

membranes and white blood cells, then the placenta will activate just the right

amount of vitamin D that it needs to mobilize resources specifically for the

umbilical cord and baby without flooding the rest of the body with mobilize your

membrane messages which would allow low grade infections to become full blown

again. It would be key point to not do the 3000 IU or any IU vitamin D ever,

ever again. Cutting out food, supplement and excess sunlight and bright light is

a major part of the MP and it is actually more comfortable once you get used to

it. I am less sensitive now but my one month outdoor work did cripple up my

shoulder and back a bit - muscle knots that don't want to go away -all day, all

week all month. shortened shoulder muscle.

Lyme's disease sufferer's frequently suffer for years with the same you're not

really sick messages that I heard. More D is just doing the infection's job

getting those membranes ready to be remade into bacterial bodies - just hiding

out within the interior of the infected cell.

I retried sardines recently after having given them up for the MP (300 IU vit D)

and I did actually feel worse the next day or two.

Oh, and I would encourage her to keep up the great job not drinking milk . . .

;-)

Almonds have as much calcium as magnesium and a serving is almost as much as

dairy serving of calcium - but so many other immune bonuses packed in. I hope

she stopped taking the vitamin D - all of the vitamin D. She was doing

good/stable at the 20. That seems to be the normal end of low/normal. Not

deficient. The Institute of Med did not recommend supplementing D until below

20, 20 to 30 was considered low normal because it wasn't associated with

fractures in any of the metareview. I'm sure she'll be fine and her bones too -

oh and avoid excess glutamates and probably aspatame/neotame too but I haven't

found the same solid research link that I found about the glutamates.

Repair the membrane problem and enzyme trace minerals and the pregnancy will

follow. She may need pickles and B vitamins too (vilitigo article).

Good luck to you both.

Vajda, R.D.

www.GingerJens.com

*Arachidonic acid foods are a poly unsat. omega 6 essential fat, not saturated

fat but rich sources include animal foods that also have sat fats beef, chicken,

egg so the assoc was in my head from this link:

http://riskfactor.cancer.gov/diet/foodsources/fatty_acids/table4.html

http://www.livestrong.com/article/536948-nutritional-sources-of-arachidonic-acid\

/

*** please eat eggs again and inform the public to please eat some eggs

***says arachidonic acid " promotes inflammation " - actually it is associated

with inflammation . it is part of the eCBs that were released in response to

increased intracellular levels of calcium or glutamates - bad news folks -its

not the arachidonic acid that is the promoter of inflammation - assuming

causation where there is correlation is a logic error seen too frequently. I had

forgotten that arachidonic acid had gotten on the we think this is bad list. But

if there is lot of it in inflammation then chances are there is a lot of it

being used up in inflammation and replacing lost resources is our field of

play.

Turns out that chicken thighs are good for us - I did trim off the gobs of fat

and thick chunks of skin - couldn't help myself but I skipped the chicken

breasts.

http://www.livestrong.com/article/496582-vegetables-that-contain-arachidonic-aci\

d/?utm_source=popslideshow & utm_medium=a1

http://www.livestrong.com/article/38903-foods-high-arachidonic-acid/

________________________________

To: " rd-usa " <rd-usa >

Sent: Sun, October 2, 2011 11:21:37 AM

Subject: vitamin D results in Lyme disease

Hi, my daughter's latest lab tests indicate a normal Vitamin D, 25-hydroxy

level of 63 , but her calcitriol level is elevated at 80.7, she was taking a

prenatal vitamin and 3000 IU of supplemental D to bring her levels up to normal

since they were 20 when initially tested. She was trying to conceive and

was having labwork prior to conceiving and has since stopped trying to get

pregnant since she was diagnosed with Lyme disease. She is being treated with

doxycycline for 6 weeks, after 4 weeks on Ceftin (they first gave her Ceftin

because she was trying to get pregnant). She does not drink milk (lactose

intolerant) and her MD did not address the elevated calcitriol level. Any

advice? TIA. Sue

NOTICE: This confidential message/attachment contains information intended for a

specific individual(s) and purpose. Any inappropriate use, distribution or

copying is strictly prohibited. If received in error, please notify the sender

and immediately delete the message. Thank you.

Sue Nichols, MS/RD/CDE/CDN

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